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Post by See Jane Crawl on Aug 12, 2006 22:04:37 GMT -5
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Post by Cliff Mickelson on Aug 13, 2006 1:13:46 GMT -5
Hi Jane:
Yes, this is the legendary "Diary of a Parasite sufferer." This was one of the seminal works on Morgellons aka the Fiber disease. The author appears to be a bit of a recluse however and has not updated his diary in many months. Not even sure what his true name is. However, much of his research corroborates my work. It was interesting as well as significant that we both came to similiar conclusions independently of each other at about the same time. It's a good read. I can't testify as to the success of any of the protocols he recommends because there has been no follow-up reporting from him.
-Cliff
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Post by thinker on Aug 31, 2006 13:29:51 GMT -5
This is an excellet article. www.lifetechnology.org/blog/2006/07/morgellons-linked-to-gm-cotton.htmlMy home is almost free of this stuff now. It took a very thorough investigation and cleaning. The main thing is that you have to find the sources of infestation. In my case, it was cotton items purchased within the last few years, including dog toys/beds, fabric, clothing, towels, sheets and rugs. I still had them in my ammonia-washed towels, making me crazy when I dry off. But, I realized I was washing newer towels with older ones. Once I separated them from each other and washed the older items separately, I had no more fiber or lint on my body after showering. Every other person's house I have checked is more lint-ridden than mine was. In fact, I got sick the other night after being in one of those houses. The next day, the brain fog was back, slimies in my eyes and horrible congestion. I took my herbs and within about 6 hours I was almost back to norm again. I still have one floater that I picked up that night, but he's gonna be history soon. Ironically, that person is a microbiologist who doesn't believe any of this. Go figure.
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Post by thinker on Aug 31, 2006 13:31:34 GMT -5
Oh, and by the way, that microbiologist's husband has been having lesion problems for 2 years. Doctor gave him cortisone cream, and every time they appear, he doses them, and they go away. But he looked so tired, so drained of life, I couldn't believe it (haven't seen him for 3 years).
Anyone willing to bet he's got it, too?
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Post by Joyfullee on Sept 7, 2006 19:41:09 GMT -5
This is an excellet article. www.lifetechnology.org/blog/2006/07/morgellons-linked-to-gm-cotton.htmlMy home is almost free of this stuff now. It took a very thorough investigation and cleaning. The main thing is that you have to find the sources of infestation. In my case, it was cotton items purchased within the last few years, including dog toys/beds, fabric, clothing, towels, sheets and rugs. I still had them in my ammonia-washed towels, making me crazy when I dry off. But, I realized I was washing newer towels with older ones. Once I separated them from each other and washed the older items separately, I had no more fiber or lint on my body after showering. Every other person's house I have checked is more lint-ridden than mine was. In fact, I got sick the other night after being in one of those houses. The next day, the brain fog was back, slimies in my eyes and horrible congestion. I took my herbs and within about 6 hours I was almost back to norm again. I still have one floater that I picked up that night, but he's gonna be history soon. Ironically, that person is a microbiologist who doesn't believe any of this. Go figure.
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Post by aussie on Sept 8, 2006 7:02:33 GMT -5
Hi joyfullee I just read that link to lifetechnology.org you posted above. That is amazing. Went to the National Textile Centre site he recommended and, even though it's fairly technical you get the general idea that he may not be far from the truth........ www.ntcresearch.org/pdf/Bref/0601/M98-A16.pdf"Intelligent, Stimuli-Sensitive Fibers and Fabrics"......... "Stimuli-sensitive materials change their properties upon tiny environmental changes." www.ntcresearch.org/pdf-rpts/Bref0601/M98-C05.pdf "We are exploiting recombinant DNA and plant technologies to create and produce novel protein polymers in significant quantity for fiber spinning.".........excerpt Re: "Spider dragline silk is spidroin.......We have also constructed a heteropolymer of spidroin 2 and collagen, using parts of the a-helical(Gly-X-Y) repeat from a NEMATODE(Meloidogyne incognita) cuticle collagen." "In order to express this fibrous protein on a more significant scale, we engineered this same gene in a plant vector for transgenic experiment. We completed the first several rounds of tobacco transformation using Agrobacterium tumefaciens, a species of bacteria that is capable of incorporating foreign genes into the plant genome and are now selecting transgenic tissue. " www.ntcresearch.org/pdf-rpts/Bref0206/M00-M003-02.pdfBio-Active Fibres.....Development of Bio-Active Fabrics.........excerpt "Our vision is to create fabric based bio-reactors in which colonies of mammalian cells or bacteria can live or function for extended periods of time. We began by loading bacteria into hollow fibers and assessing their growth function. Using e.coli bacteria that have been genetically engineered to produce green fluorescent protein we can study bacterial function in the fiber as a function of time and environmental stress". It's just gotta be time to go and watch "the "Simpsons"!
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Post by sarahconnor on Sept 8, 2006 9:56:38 GMT -5
Clever hey? You managed to draw me back in for one more comment.
It's just gotta be time to go and watch "the "Simpsons"! I think it is time ya stopped believing everything you read on the internet - documents like that are called - well planted traps for innocent victims of Morgellons.
Just think about it for a while, I am not being smart here, just honest okay.
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Post by sarahconnor on Sept 8, 2006 9:58:02 GMT -5
One more thing - if the documents are 100% true. What the heck are we going to do about it?? Nothing - we can't - we don't have the energy, money, power etc. That is why I don't read that stuff anymore, creates further stress, and in turn doesn't help me and maybe others get well.
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Post by aussie on Sept 8, 2006 19:51:30 GMT -5
Ah Sarah, I have always been of the belief that "if you can't say anything nice, don't say anything at all". Haven't you ever heard the term "knowledge is power"? I don't see you attacking Cliff, Thinker or Joyfullee for their posts that I only followed up on. Are you, in fact, just one of the "sheople", content to let others do the research whilst you sit there and wallow in your own misery waiting for someone to hand you a magic pill which has only come about because of their work? For your information The National Textile Center, University Research Consortium consists of the Universities of Auburn, Clemson, Cornell, North Carolina State, Philadelphia, Davis, Dartmouth and Georgia Insitute of Technology. www.ntcresearch.orgAre you suggesting they deliberately post disinformation in their research? And, if the documents are 100% true, everyone should be aware of it that has any interest in the future of this world. You are only thinking of yourself.....I have 4 children and 6 grandchildren and I want the world to still here for them and others, after I've gone. I just love the way you told Thinker to go get his dog some Feliway so his dog would fell "good and happy". How come you don't suggest that everyone who has Morgellons(or whatever term you want to use), to go dose themselves up with Valium so they too, could feel "good and happy"? Don't you get it....the poor dog has the same affliction. Thinker said the vet is saying Lyme disease(i.e. Borrelia from a tick bite)or cancer. Treat the underlying cause. By the way, since you have a cat, has it occurred to you that you may even have Toxoplasmosis? If you can actually be bothered to research it you will find that in humans, acute infection with Toxoplasma gondii can cause brain lesions, changes in personality, and symptoms of psychosis including delusions and auditory hallucinations. Apparently due to frequency of cat ownership a large percentage of the U.S. population has been exposed to Toxoplasmosis, but most immunocompetent carriers remain asymptomatic until another immunological burden such as HIV or a separate parasite weakens the host defences and precipitates pathogenic expression. Buy a back issue of Nexus magazine(June-July 2004) and read article by Frank Strick(Clinical Research Director for The Research Institute for Infections and Mental Illness, Santa Cruz, California.) I'm sure you'll find it interesting. www.nexusmagazine.comAnd, no, of course I don't believe everything I read on the net....i.e YOU, for instance...I think you're really unbelievable. I just flicked to Morgellonswatch and read your posting for Sept 08.. Quote Sarahconnor: "WOW!! PMMD - can I sign up to be a volunteer for further research!" (PMMD = PREMENSTRUAL DYSPHORIC DISORDER). I do hope you get accepted as a volunteer....I'm sure you'll do well there and come up to expectations.
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Post by Joyfullee on Sept 9, 2006 19:36:35 GMT -5
Hi Aussie,
Hang in there! It's caring, smart people like you, and Cliff and Thinker who can make a difference. Wish more people knew about this forum. I have not been an activist as it is a challenge for me to keep the wounds clean and my home vaccumed, mopped and dusted. Social life is down to basics, grocery/pharmacy/doctors. I know we are contagious because if I wear something a 2nd time, the lesions that occur in my skin, correspond to Fibers in the same position on the clothing. (Often a double seam). I don't wear cotton anymore unless it's white and can be bleached. Thick sport socks must be discarded after wearing. The article about engineered fabric fibers is informative and hopefully something Randy Wymore can address in his study.
Yes, I live in the States. Lived 5 years in the L.A. area with my beautiful, graceful dog, Liz (1/2 Greyhound & 1/2 Golden Lab), and my elegant Siamese, Gucci. When we left L.A., my son took Liz to Atlanta and my daughter took Guc to Chicago. Both the beloved pets have nervous disorders, i.e. chasing and biting invisible bugs, Liz became mentally confused and incontinent (sp?). Vet diagnosed CA. However, Guc manifests no CA, but psychosis: a cat-scream each time he catches site of his reflection and yowling each time he goes in the catbox. The latter may be a physical reaction? Vet can't see anything wrong. Both show listlessness and personality change. It's very sad. I feel for Thinker! Our pets are a part of our family. When they suffer, we suffer with them. My daughter and son show no symtoms of Morgellons.
You asked about Ticks. I'm aware of the theory. Liz, our dog had a couple ticks removed. That's all. Though, anything is possible. I may have caught it from her? I have a compromised immune system. Toward the last of Liz's life, (13 yrs) she shed hair terribly and I was the one who cleaned after her. Not incidently, I have lost hair in my brows, eyelashes and head. These Fibers seem to attach to the hair folicle and dissolve hair strands.
Back to the cotten theory and thing's labeled from China. (I'm NOT preporting Bio-Terrorism either.) However, I too, have noticed that some new cotton clothing contain these small dark-colored fibers. In addition, I did not purchase shoes (this summer thongs from China), at a large franchise store, when I noticed they contained the same pathogens. I've also seen these fibers in unopened pkgs of toilet paper at the store. These fibers are all around us, especially cotton and wood products. (Learned not to use wood eyeliners/lipstick/eyebrow) Evidently the human/animal/bird, etc., who becomes ill from this is either immunocompromised or swarmed to the extent their immune system cannot thow it off. Don't know about the rosebush, but if it is surrounded by barkdust?
I also wish to weigh-in here with the the RN and request that all monies be directed to Randy Wymore, whom I trust more than the newly established CDC Taskforce, not to mention troubled Morgellon website. Ever seen the CDC in Atlanta? I have. They need money for themselves. They have a very old structure with not enough room for files, let alone personnel. In my opinion, this reflects the government's value of their services. Let's stick like glue to Wymore and OSU.
Also, I hope Cliff, Mr. X (Journal of Fiber Disease) and more informed Microbiologists, Biologists, professionals, etc. weigh-in here and keep us updated. And please, those of whom have personal experience to combat the spread and discomfort of this ordeal, please, please post here. I notice that Aussie and my short exchanges have been read 217 times already. KNOWLEDGE IS POWER. We the people still have voice to be heard.
Aussie, thanks for looking for the herb, Tansy. I am interviewing Herbalists and Naturopaths now. Traditional medicine is overwhelmed and not adapting to this newly formed disorder. It will probably be years we don't have before enough research is accepted for treatment. My Infectious Disease doctor has been treating me with Ivermectin, Doxycycline and Fluconazole. (Fungus is often associated with this.) In order to obtain this treatment, I had to furnish all the info I had...Drs. Wymore, Harvey, Amin, Stricker, Savely) along with a committment not to discuss his treatment of me. After 4 months of this regimen, I have only slightly improved. The fibers have shrunk in length, but not the number of them...they seem to multiply faster than fruitflies.
Hope I answered your questions, Aussie. I vote with you...let's exhange info with one another, not only for ourselves, but for our children's future. It may just be enough to get the Kinetic ball of research rolling
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Post by sarahconnor on Sept 10, 2006 1:02:00 GMT -5
To Aussie - yes it does appear that we have got off on the wrong foot. You certainly got me at a bad time, and I reacted.
I was hoping that I could come here and share information also, especially since I do not go to Lymebusters anymore and there really isn't a support forum around.
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I have campaigned for the recogniton of Morgellons being a distinct (real) and newly emerging infectious disease for nearly 2 years. This has included radio interview Aussie and USA, letter writing, emails, supporting other aussies through phone and email, posting info, 18 months worth of phone calls to the USA.
I have my diagnosis of chronic Rickettiosis/? Lyme and I have a treatment regime also.
This comment below hurt my feelings very much. I do agree that all underlying causes of a disease must be treated. The felliway is a naturally occuring hormone specifically designed for pets. The aroma lifts their spirits, makes them feel happy. It is not a valium or a drug. My vet recommended for my cat because she had become stressed. He said it was a much better altnerative than giving her a pill like an antidepressant.
"I just love the way you told Thinker to go get his dog some Feliway so his dog would fell "good and happy". How come you don't suggest that everyone who has Morgellons(or whatever term you want to use), to go dose themselves up with Valium so they too, could feel "good and happy"? Don't you get it....the poor dog has the same affliction. Thinker said the vet is saying Lyme disease(i.e. Borrelia from a tick bite)or cancer. Treat the underlying cause."
Did you know that the original post from "Thinker" on that topic has now disappeared?
ALSO:
"Quote Sarahconnor: "WOW!! PMMD - can I sign up to be a volunteer for further research!" (PMMD = PREMENSTRUAL DYSPHORIC DISORDER).
I do hope you get accepted as a volunteer....I'm sure you'll do well there and come up to expectations"
This comment hurt me also. This is called "having a bit of fun", any harm in me saying that? I don't think so.
I have researched the illusive Morgellons pathogen for 4 solid years. I have never for once sat and wallowed in my own misery. Maybe I should have, then perhaps I would not be so ill now. I have had many comments of gatitude & thanks from other Aussie sufferers during phone conversations, a couple around your age also.
I do not mind constructive criticism, or a telling off when I derserve it. But I am sorry to say that your last post came across rather aggressively, given your age group, and the fact that you have children and grandchildren.
You are old enough to be my mother.
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Morgellons Disease has not yet been confirmed by the CDC as being a real disease.
The CDC told me that it is going to be very hard to pin point and/or proove the actual cause or causes because so many different factors are involved.
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"I don't see you attacking Cliff, Thinker or Joyfullee for their posts that I only followed up on. "
AND
Hi Aussie,
Hang in there! It's caring, smart people like you, and Cliff and Thinker who can make a difference.
I don't think these two comments are very welcoming to a victim on a Morgellons Group forum, do you?
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If we go back to the start Aussie, I was upset with you for your info. on drinking tea tree and said so and gave my reasons why with information on side effects.
You fueled me more by saying your naturopath knows of this condition and new what to do right away. I have been to naturopaths and they had not heard of this disorder. Myself and the other aussie suffers have tried everything naturally, and always spoke about side effects etc, use at own risk etc etc.
With the tansy being contraindicated for a person with epilepsy I felt compelled to comment, because suffering seizures myself without "a medical explanation" is something that a "Morgellons" victim must consider. Seizures have happened to many reporting to have this.
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"By the way, since you have a cat, has it occurred to you that you may even have Toxoplasmosis? If you can actually be bothered to research it you will find that in humans, acute infection with Toxoplasma gondii can cause brain lesions, changes in personality, and symptoms of psychosis including delusions and auditory hallucinations."
My cat is in great physical health, she has regular vet checks and prescription diet. I would like to think I can trust the physicians I am under to give me a diagnosis, rather than self diagnosing through internet research, and then telling my doctor - "maybe I have this."
You see that is what got me caught up in all of this to begin with finding the MRF website and saying - "I have fibers too, just like this website". The physician who treated me for chronic rickettsiosis believes in Morgellons Syndrome (which was fine by me), but the intravenous treatment near killed me because he was trying to rid my body of the Morgellons pathogen also (in the skin). He believes it is connected with the Rickettsia group. This is quite likely, anything is likely really. The problem though is people trying to kill a pathogen, organism when the cause has not been found, especially with an antibiotic that near killed me.
****************************************************
I do not wish to get angry with you or have aggressive posts backwards and forwards, or to have the feeling of a "group bash session on me".
As I said, I am very ill and I have been getting very upset over conflicting information I have been given in regards to MRF, OSU and everyone associated. I should not have said what I said to you when I was angry, but I had my personal reasons, and therefore you got the brunt of it. I do apologise.
I agree with you on one thing though that "knowledge is power" but you must also understand that "A Little Knowledge can be Dangerous". You have little knowledge or understand of me and my situation.
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Post by sarahconnor on Sept 10, 2006 1:06:33 GMT -5
I would also like to say I am not "debunking" the fact that we have something happening here with regards to "fibres/hair/threads" coming from our bodies. I just don't warm to the name Morgellons Disease much anymore, I do know that Cliff feels that way also.
I have spent many hours talking to Mary Leitao the founder of the Morgellons Research Foundation, and I worked my little butt off doing what I could to help the cause.
Reading the last few posts here it doesn't seem to have done me much good, does it??
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Post by sarahconnor on Sept 10, 2006 1:09:07 GMT -5
If you wish to discuss this on a personal level I would be more than happy to talk to you.
You may send me a private message, we could exchange phone numbers, and I can always put you in contact with other registered sufferers within your area if you would like that.
Thank you.
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Post by sarahconnor on Sept 10, 2006 2:16:01 GMT -5
To Joyfullee - With regards to the cotton theory - myself and another guy in aussie have chatted and laughed many times about the little fuzzy white to clear fibers that we have been growing from our clothes pegs!!! You know I spoke with a lovely couple living in NSW in Aussie a couple of months ago. They both have suffered terribly from this affliction. They thought it was to do with the fiber glass insulation in the ceiling. Because they were in rented property, they decided to move. To prove that maybe it could be the fiber glass penetrating their skin, one placed a clean arm in a bag of fiber glass material - immediately the fibers grabbed the entire arm!!! These people moved house, sold what they could and threw away every single item that they thought was contaminated down to knives and forks and the their clothes. They lost everything and had to start again. I think the organism is that small that if it could live on the skin surface it seems to want to suck in or eat whatever the person comes in contact with. Because my scalp hair is so severely effected by this makes me wonder if the illusive pathogen is something we breath, sniff, touch....in the environment and we can't even see it. The pathogen is that clever it has the ability to adhere its self to medical implements. www.cdc.gov/ncidod/eid/vol7no1/valdezate.htmThis bacteria was been found in patients with symptoms of "Morgellons". Very good article, heavy read re medical terms.
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Post by sarahconnor on Sept 10, 2006 4:54:38 GMT -5
This link also: www.cdc.gov/ncidod/EID/vol8no9/01-0535.htm Stenotrophomonas (formerly Pseudomonas and Xanthomonas) maltophilia is a widespread environmental microorganism that has become an important opportunistic pathogen associated with nosocomial colonization and infection (1–7). These organisms have been recovered from water faucets, water traps, respirometers, sinks, suction catheters, and occasionally, from cultures of the hands of hospital personnel (5,8). Infection and colonization of implantable medical devices such as catheters and intravenous cannulae represent a major risk for hospitalized patients. S. maltophilia can cause septicemia, endocarditis, conjunctivitis, mastoiditis, meningitis, postoperative wounds, abscesses, urinary tract infections, and pneumonia (6,9–11). Management of infection and successful clinical outcome by means of antimicrobial therapy are complicated by the intrinsic resistance of the bacteria to multiple antimicrobial agents, including carbapenems, and to the natural protection that biofilms confer to the enclosed bacteria (8,14). Besides the ability to adhere to plastic, to survive and multiply within total parenteral nutrition and other types of intravenous infusions, and to produce extracellular enzymes (4,8), little information is available regarding virulence factors associated with the pathogenesis of these bacteria. Production of a protease and elastase appears to be important in the pathogenesis of S. maltophilia–associated infections (5,17). Aussie - when you mentioned in your post about something in the garden sticking to your vinyl shoes, it stuck in my head for a good reason obviously, I remembered I had these documents tucked away, another sufferer in Aussie gave me this particularly link, it was well over 12 months ago so I forgot I had it.
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Post by aussie on Sept 10, 2006 7:40:54 GMT -5
Hi Joyfullee, great to hear from you. I hope SarahC knows that no one is trying to denigrate or dismiss her work/contribution in any way. From her above posting, she undoubtedly has been helpful to a lot of people. Therefore, it was just so odd and surprising to be spoken to in her former manner. As she said above, I am old enough to be her mother and I certainly wouldn't allow my offspring to treat me with disrespect without due cause. I sincerely hope we can all have some better, more rewarding exchanges in the future. I think we all want to be constructive and helpful. I do agree with you about the fibres being everywhere, absolutely everywhere. I was becoming paranoid about them, the clothing I was wearing, the water(tank), the fruit I was eating(some of which had specks throughout the flesh and produced fibres if left out on a bench for a while, the plants in the garden. I was in observation mode with everything! My naturopath assured me that I was cleared of "the thing" and none of these things could hurt me. Sarah doesn't like the term Morgellon's, and I must admit I'm not overly fond of it either. Perhaps we could think up something better.....I mean, really..."Morgie" doesn't do a lot for you, does it? My own personal feelings about the fibres in clothing that are coming from cellulose based plant materials, is that they are attracted to the electricity in our bodies, which are electromagnetic in nature. That somehow the virus/bacteria/spirochetes in our bodies has changed our pH, that we have become probably more acidic and bingo, we're a huge magnet to the fibres which have their own charge(probably GM modified) . Does that sound at all feasible? At least I've put it "out there". Sarah, I think that is why your friend who placed his/her arm in the plastic bag had the fibres grab the arm. I have read studies have shown that people who have Cancer are highly acidic and it is very important to get your body's pH right and if it is too acidic to eat a lot of alkaline foods to correct it. The other thing is Nylon is not made from cellulose but mostly from crude oil. So, perhaps it would be a good idea to search out some nylon clothes(haunt the"op" shops"! No, I'm not kidding. At least you can still buy nylon undies and socks. (Viscose is cellulose based from woodchip, so you can forget that, linen is cellulose, too.) Oh, and if you are worried about Candida(thrush) anywhere in your body....naturopath said to rub a couple of drops of tea tree oil on the soles of your feet morning and night and it will get rid of it. I've heard of people being tested positive for Lyme disease even though they can't remember being bitten by a tick. I think sometimes you can be bitten when young, not remember it, it stays dormant in your system till something comes along to activate it? I have noticed the same as you with the small dark fibres in the white cotton clothing, toilet paper and cotton buds. (Crikey, you'd never put one of those in your ears again, would you?) And as for woodchip mulch, yes, Ive seen the fibres alright. The other thing is....mycoplasma(which I had), as a co-infection with Borrelia burgdorferi(Lyme disease). There is a lot of information on the Lymebusters site about co-infections and it is well worth reading. I hadn't realised both of the ladies with their stories there, had this as a co-infection. If you don't know much about Mycoplasma go to www.nexusmagazine.com/articles/mycoplasma.html Mycoplasma the Linking Pathogen in Neurostemic Diseases.... Quote: "They had produced a crystalline bacterial toxin extracted from the Brucella bacterium. The bacterial toxin could be removed in crystalline form and stored, transported and deployed without deteriorating. It could be delivered by other vectors such as insects, aerosol or the food chain (in nature it is delivered within the bacterium). But the factor that is working in the Brucella is the mycoplasma. Brucella is a disease agent that doesn't kill people; it disables them. But according to Dr Donald MacArthur of the Pentagon appearing before before a congressional committee in 1969, 4 researchers found that if they had mycoplasma at a certain strength-- actually 10 to the 10th power(1010) it would develop into Aids and the person would die from it within a reasonable period of time because it could bypass the natural human defences. If the strength was 108, the person would manifest with chronic fatigue syndrome or fibromyalgia. If it was 107, they would pressent as wasting; they wouldn't die and they wouldn't be disabled, but they would not be very interested in life, they would waste away." No moving right along to what you were saying about humans/animals/birds.....back issue of Nexus Magazine April-May 2006...."Avian Flu or Mycoplasma Epidemic"....You can probably guess where it's going. (Have to subscribe to the mag to get that one). When I discovered at the end of the first months treatment with the teatree oil and Tansy that there were no more fibres, they had entirely disappeared from the lesions, and the lesions were rapidly healing, and no more were occurring, I was really excited. I could hardly wait to finish the second month with the acidopholus, to be absolutely sure. I am continuing to take acidopholus(and Life Springs colloidal minerals for a compromised immune system). I've been told that immune compromised people are almost always severely lacking in minerals. I feel very free and light. Bye for now.
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Post by aussie on Sept 10, 2006 8:34:51 GMT -5
G'Day Sarah,
Sorry if your feelings were hurt in my post, but I just don't like being attacked unless I deserve it, and when I tried to rationalise what you were saying ,it didn't come across well.
It amuses me that you think I would be non reactive at my age! You don't know my profession. It's just the best time to debate, believe me.
However, I don't hold grudges, so hopefully we can start again with a better understanding.
I don't care if "Morgellons"is a real disease or not. To me it's just a name for a syndrome that people are suffering from and that I used to suffer from. You've been around the traps for quite a while and know a lot of people....think up a new name that you like, even just for this forum and put it out there.
About the two comments you didn't like and "I don't think these two comments are vey welcoming to a victim on a Morgellon's Forum, do you?" Well, Sarah, I think that should have been my line to you...after all I was the new member, not you.
About my naturopath, he really is something special, not your "run of the mill" practioner and I've never met anyone like him. As you said, I've been around a long time. I travel 300kms to see him.
You may very well be right about Tansy being contraindicated for a person with epilepsy, and I do agree with you, it should in any case be done under supervision. What about allergy testing? I guess there would be a lot of medications that would be off the list.
About your cat- if she is in great physical health, how come she needed the feel good stuff?
And, I also agree with you about self diagnosis. I didn't suggest that you do that - but there's nothing wrong with suggesting a possible treatment to your doctor. My own regular doctor is very open to alternative therapies and really likes it when I suggest stuff. I guess I'm just lucky and I certainly don't think that doctors are "God". Too many mistakes for that.
As I said in my post to Joyfullee, I don't wish to denigrate you in any way either. I'm sure you've done a wonderful job as a support for others in the past.
Your apology is accepted and believe me, Sarah, if you knew my whole story your hair would curl, too. Cheers.
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Post by aussie on Sept 10, 2006 9:17:49 GMT -5
Thanks for that, Sarah. Yes, I have previously done some research on S. Maltophilia and had read the same article some time ago. However, I don't think, in this case, it is relevant because as I understand it S.M is a bacteria that basically lives in damp/watery areas, sinks, old pipes and similar areas that you have mentioned above. I take it that hospital staff get it on their hands even from washing them in water coming through contaminated plumbing. Good reason to stay away from hospitals. In the case of the plants(common name is flickweed), they were growing out in the open, plenty of sunshine, not in a damp area. In fact it hadn't rained for ages. I walked through them. It was only the ones that stuck on my vinyl shoes that developed the fibres after probably an hour or so, and the ones that had fallen off on the cement verandah, along with a few which ended up on a table, because I had immediately picked them from my track pants, didn't develop any fibres on the stems, whatsoever. And, the ones that grew fibres had multi fibres, which had, in some cases, wound themselves around the stems. Now, this is the second amazing thing and, it did really freak me out so I didn't put it in my posting and I am even reluctant to tell anybody now but............ I was sitting outside, at the table and there was another chair next to me. When I was looking at the stems with the fibres I accidentally dropped several on the vinyl padded chair next to me. I nearly jumped in fright when these three stems, which had been a couple of cms apart on the chair, all jumped together and joined as if by a magnet. And, when I moved my finger towards them, they moved, sort of jumped on the seat without me touching them. They were waving in whatever direction I moved my finger. So....now what's your opinion? (Stop laughing, I know it sounds ridiculous).
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Post by Joyfullee on Sept 10, 2006 16:21:24 GMT -5
Not ridiculous, Aussie! The Fibers do react to electricity (electromagnetic) and when the Fibers are airborne, they do not float aimlessly, but are directed toward the body. Also when light makes them visible while airborne, I have observed the Fibers bind quickly to most any object. As I poured bleach on a Fiber in my white cotten tank top, the Fiber 'flew' apart and became several Fibers. They must be similar to worms in that they separate from an original and reproduce wholly in this separation. What is apparent when the Fibers separate from the original Fiber is that the successive ones are not as dark or thick. But that doesn't seem to hamper them in desolving quickly into the skin.
You're absolutely correct when you state that one can become convinced they are paranoid and obsessive. Try this one...while cleaning one wound on my neck or face, I can have the other wounds, even in my feet begin to bite! Now when I realized that this was some type of warning in their inner communication, I quit trying to figure out what was happening. I decided that this stuff could make one crazy. How can something like a protozoa or nematode have the instinct (brains? Hee!) to warn one another to dig in for safety??? You just have to laugh. I shake my head and sigh alot. It's my understanding that as long as we question our own sanity, we're okay... However, I did watch a study in progess which measured plant reactions to the human voice. Who can know the intelligence of God?
And like you I've been though the mill w/health issues. Life issues, too. Maybe we all share that in comman. But, my family has extreme allergies; my maternal uncle died of a bee sting at 29 yrs. I almost lost my daughter when she was stung, and my son was hospitalized, critically ill with inflamed intestines. He had 3 life-saving surgeries to separate them. Years later, he is alive, but the University of Oregon Health Science Center rewrote their textbooks because of his ordeal. There has never been agreement between his Pediatric Physician (MD & Ph.d) and the Surgeon on his condition.
When you asked if I recalled having a tick bite, I thought you meant as an adult. I did have a tick enter my skin when I was a child. That would be a long incubation... And perhaps not incidentally, my neighbor who has shown no skin eruptions has been recalled for blood tests. The first blood test, after a tick bite showed Lyme Disease. The second and third have shown, no Lyme Disease. She continues to be tested. (I had mentioned this family in an earlier post in which her husband's Dr. diagnosed his lesions (pocks) as Shingles and their loveable cat now has bald spots.) I think we veterans of this malady connect the dots before the doctors.
Thanks for the websites and for the tip on thrush. My tongue is coated overnight if I'm off the yeast med for more than a few days.
Question: Have you read that Wymore or OSU may be studying the Fiber Disease funded by Bell Labs?
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Post by thinker on Sept 12, 2006 12:38:15 GMT -5
Hi, all. I'm glad to see discussion here. I still stand by Cliff 100%, because what I have learned from him is exactly what I have found in my own home. I am updating my post on this board about my "poor, poor dog." You've gotta figure all kinds of folks are viewing this stuff, including the people who are responsible for it. If you have any doubt, look at Clifford Carnicom's server "visitor" list. He addresses both Morgs and chemtrails. www.carnicom.com/visitors.htmWe are probably doing "their" work for them, listing our experiences and all, but I guess that's the price we pay to be able to communicate at all. We must continue to think out of the box, because it's very apparent that "they" are, and sadly, it's a whole new world now. Knowledge IS power. I'm off to the other page to post about my dog. Please read about the updated info. It's been tough. Thank you!!
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Post by thinker on Sept 12, 2006 19:16:30 GMT -5
Aussie and Joyfulee - I can't believe you brought up these subjects. I didn't want to sound too crazy, but what the heck.
I, too, have seen the fibers "congregate" acting as if communicating, like ants gravitating to food. But I always wrote it off to "strong static."
I also have experienced the cross-pinching stuff mentioned above. It always makes me think of acupuncture, how our nerves are connected and how they react. I figured I am getting bitten in one place and the nerve is reacting at its opposite end, or something like that. But, maybe not.
I have also watched them float through the air - plucked one out of the air that was floating between my husband and I. It actually changed course and went straight for his face, as if it knew exactly what it wanted. I got it before it landed.
With all of the infestation in my home, not one silk flower has any sign of fiber, which is very odd.
But more odd is what I'm about to ask, regarding electricity. I know these things have unusual static qualities. I've seen plenty of proof.
QUESTION 1:
Does anyone here have reactions from electronic or electric devices? Do you have days where your PC or mouse or whatever is just whacko? The TV remote won't work for you, the smoke alarm goes off when you walk by it? Stuff like that. I know several Morgies with these symptoms.
They cannot even use the remotes on their vehicles because they have what we have dubbed as "electronic foo."
It is odd that when one person experiences it, the others are usually having events too.
QUESTION 2:
Does anyone go outside, into the heat, and have a normal reaction. But after coming inside, and a few minutes pass, then you heat up and sweat like crazy? Some say it feels like a network of some sort of heating element is disbursed under their skin and it has a latent heating effect after being outside. And no, this doesn't appear to be hormonal.
OK. I've wanted to ask about these things for a long time. They started happening about the same time the Morgs symptoms began showing up and we just recently began wondering if they were connected.
Thanks!! I feel so much better now. LOL
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Post by thinker on Sept 12, 2006 19:19:41 GMT -5
The best way to describe the heat reaction is that you feel like you're being microwaved, or at least cooked, from the inside-out.
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Post by thinker on Sept 12, 2006 19:30:06 GMT -5
And one more thing ... anyone hear about this rage disorder thing going around? I thought of Morgs immediately - whether there might be a connection.
And I thought about it again when I read Sarah's posts. She's normally much nicer, and it reminded me of what has happened with other Morgies. I guess maybe it's grouped under the "bipolar" symptom.
Morgies' patience has been tried and rightfully, perhaps, run out. Maybe it's just frustration and disgust and fear of the unknown that makes us lash out when we're normally very nice people.
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Post by sarahconnor on Sept 12, 2006 20:17:56 GMT -5
Yes I am normally very nice - but when I read stuff such as the link below, I do get very upset. These machines were apparently recommended for the treatment of Morgellons. www.valleyskeptic.com/fakehe1.htm
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Post by aussie on Sept 13, 2006 1:36:47 GMT -5
Wow, Thinker...that is a really informative site(Carnicom) that you recommended above. There has been a lot of stuff written about ELF(extremely low frequency radiation), and if it is denying the absorption of potassium to humans, animals and plants, who can say where we will end up. Some years ago when I was diagnosed with iron overload disorder(haemochromotosis), which is hereditary, my doctor told me most people who have it, have Irish ancestors who went through the great potato famine and whose offsprings' DNA were affected through the lack of potassium from the potatoes, which were their staple diet. http:// www.carnicom.com/potassium2.htmI can see how this could relate directly to Morgellons as, when I was doing my investigative thing, I noticed that over the period of about 9 months, all my San Sevieria plants(Snake plant/Mother in laws tongue...very hardy, succulent, full sun, needing hardly any water), had brown spots on the leaves which eventually spread over the whole leaf and it died. Looked like the plant had gone rotten, but we were in the midst of a drought. When I took a leaf and cut it crosswise against the grain, you could see small brown specks in the cut flesh and fibres immediately started to form on that flesh. The plants are in different areas over 10 acres, but almost all of them were affected. As they reproduce themselves by rhizomes(underground tubers which spread), each new leaf that emerged from the ground developed the spotting after a few weeks. Now, this is the interesting thing---my naturopth told me they needed to be treated with POTASSIUM PERMANGANATE(Condy's Crystals) and they would be okay. I have not done this(am waiting for a volunteer), as after having been bitten out there a total of 4 times with ticks I decided I didn't want to "go there". But, it is interesting all the same and I see from Wikipedia that you can use it(hight grade) to remove iron and hydrogen sulphate(rotten egg smell) from well/tank water. Also it is used to treat some parasitic diseases of fish and as a disinfectant of vegs. Dilute solutions are used for ulcers, disinfectant for the hands, dermatitis and fungal infections of the hands and feet. P.s. For others reading this. it's a bit hard to understand about ELF unless you have done some reading/research on HAARP. www.earthpulse.com/scr/category.asp?catid=1
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Post by aussie on Sept 13, 2006 4:34:37 GMT -5
Hi Sarah, I seems to me that there are basically mainstream medical patients/believers who no matter what the good results that friends acquaintences have with alternative therapies, they refuse to listen or even have an open mind. And then there are those who will put themselves on the line to get better, no matter what the modality. Now, I don't wish to get into an online dispute with you(really I don't), but I would like to know exactly what it is that annoys you about "these machines"? Have you ever used or even seen one? That site you referred to www.valleyskeptic.com.fakehe1.htm or "Welcome to the Annapolis Valley Skeptic....The Voice of Reason and RIDICULE"...................... That is what they do, you know, a little fact and a lot of disinformation, so that everything gets thrown out in the bathwater. Credible things are rubbished because it's too difficult for the average person to separate fabrication from fact. Electromagnetic vibrational therapy diagnostic machines and treatments have been around for ages and being refined all the time. I have personally been treated with them as a non invasive diagnostic tool over the years. They have picked up things in my system that my doctor would not have thought to test for, but once tested(lab), have been confirmed. If Royal Rife was such a quack he would have been forgotten aeons ago- the mere fact that he in mentioned in 60 Internet sites, countless books, magazine articles and personal testimonials, must say something for his machine. And Skeptic says "dubious personal testimonials"... he/she cowardly doesn't elaborate on that. Rubbish. Then there is the criticism of Nexus Magazine. Duncan Roads does his best to present unbiased, free thinking, informative, health, free energy, conspiracy etc articles and he receives many worlwide "thank you" letters, which are printed. Does Skeptic want to site any but the most wayout titles, which, if you took the time to read the stories, present as a distinct possibility. It's a magazine for open minded people, not brainwashed ones. Many people have used electronic zappers. Some swear by them and to others it doesn't seem to make any difference. Could depend on the current or the persons own electro magnetic field, homeopathy doesn't work for everybody either. Then again, some people have a good stiff Scotch before dinner anad swear by that! Skeptic is quite clever however, he/she puts down the operators of these machines and implies, but doesn't come up with any death statistics. Now, Professor John Dwyer, has been a bigwig at Prince Henry and Prince of Wales Hospitals for a very long time. I can remember him doing studies on Chronic Fatigue Syndrome(CFS), 20 years ago when it was called Myalgic Encephalomyelitis(ME). Even though he is so critical of alternative therapies, has he, or any of his colleagues come up with a cure for CFS? If so, they forgot to share it. Kinesiology diagnoses with "muscle testing" for dis-ease. Skeptic must be talking about lymphatic drainage on a lymphasizer when he/she says kinesiology is "jumping on a trampoline from time to time".......didn't do the homework! And...John Foley, 40 year old Adelaide skeptic, said he had chicken pox "in which the body becomes covered in bright red spots"--- ha ha ha...poor bugger didn't even know he had measles! ha ha ha ha Sorry, can't help it. Homeopathic/naturopathic/herbal remedies were around long before the multinational drug companies got in on the deal and have been trying to force them out ever since. Glad to see Skeptic admits homeopathic is now a university accredited course - My, they're coming into thier own after all! In 1993, if alternative medicine was worth $620 million in Oz - that's great, it's $620 million the multinationals have missed out on. Skeptic: "Why are people turning back to remedies that were popular a century ago in the pre-antibiotic age-?" S-T-U-P-I-D question, Skeptic! So, why does Dr Richard Gordon, a medical practioner who is president of Australian Skeptics waste his time criticizing alternative therapies? Has he run out of patients to treat?? Have they left his surgery for the local naturopath? Goodness me, Skeptic says (1998 study), 18,000 people have died of doctor caused deaths, half of which were preventable.( Two deaths from complimentary therapies). I know.....I was almost one of those doctor statistics, and am still suffering because of it!!! And the woman who was told she would be cured of fungus, parasites etc with an "extract of black walnut".....Black walnut/wormwood combination has been around for ages as an antiparasitic---- but , no, wait for it---good Dr Dwyer diagnoses her with an anxiety disorder and she was treated by a psychiatrist. DOES THIS SOUND FAMILIAR???
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Post by sarahconnor on Sept 13, 2006 15:25:30 GMT -5
Yes sounds famliar - thats why I posted the link so you could have a read. I have read so much conflicting information about these machines, I was having trouble sorting out what was right and wrong. There seems to be a lot of antibiotic resistance around these days, and I guess people are turning to alternative therapy. It just doesn't seem to work for some, or perhaps some people it can have a terrible effect on, I am not sure. We sure need our health departments to step up to the plate and sort things out. I don't blame the doctors (entirely) when they are only given a certain amount of resources and treatment to go by, whatelse can they do? I wouldn't want to be a doctor for love nor money!! You know I learnt something interesting the other day - I asked the young chinese chemist at the chemist warehouse about a tonic wihich had ginseng in it - whether this would be good for rickettsia/lyme. He said NO! Ginseng is meant to balance the body, ie. the natural body, so if an infection is present in the body it will keep the infection going!! I had been using Ginseng for a while and thought I was getting better, but things just kicked into me even harder, seems to make sense now. There are a lot of products on the supermarket shelves etc with ginseng in them - I thought to myself - well if I am ? Lyme what about the rest of Australia. Sure seems to be a concern don't you think, all we want is to be a healthy country and we will do whatever we can to get well. Aussie - I don't want to argue with you either ok - you seem to have a very smart head on your shoulders - so that is why I put the link there, thanks for setting me straight. Have a good one - catch ya later.
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Post by aussie on Sept 13, 2006 20:20:33 GMT -5
G'Day Sarah
I think it was probably Cliff(not sure), that said in one of his articles, the same as you. In other words, if you think you're doing yourself a favour by boosting your immune system with lots of expensive tonics, all they do is give the critters that live off you a gorgeous smorgasbord. Not if you kill the d**ned things first, though, then you get the fulll benefit.
Actually, I agree with you. You have to very careful about what you put into your body, natural or otherwise, more so if self medicating.
I am deficient in magnesium and had run out of the brand my naturopath had prescribed. So after perusing the shelves of the local chemist shop, having about 3 brands to choose from, I just grabbed a bottle of magnesium oxide. I didn't read the small print on the side of the bottle, which said "magnesium oxide-heavy", i.e. heavy metal. I had only recently completed a nine month(expensive) course of EDTA chelation therapy to rid my body of heavy metals! Had to throw the lot out and get magnesium chelate/orotate/aspartate.
Cheers.....you have a nice day, too.
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