Post by whiterose on Nov 18, 2007 14:30:45 GMT -5
Voices of Pain---
mundo
Los Angeles, CA
#7
Aug 14, 2007
I too am dying of this disease. My neighbor died just this past March and the family was so disturbed and shocked, they demanded an autopsy. They would not admit to the Morgellons, as it hasn't been formally categorized, but she did test positive for both Legionaire's and Lyme Disease. Quite a coincidence considering Legionaire's is very rare in Southern California...especially when you consider the fact that So Cal had the driest year in 130 years of rainfall recording.
The cover-up must end. People are dying and I'm too young to die. My daughter is only 16 and I was just beginning to live life. Please do something. Please!
R.R.
mundo
Los Angeles, CA
#8
Aug 14, 2007
Oh and one more thing, 85% of those woith Morgellons are also testing positive with Lyme disease. eVEN pRES. Bush had Lyme. Why can't we of the middle class receive the same treatment as the elite like Bush?
Scientists seek better tests for Lyme;Bush suffered from Lyme disease
news.yahoo.com/s/ap/20070813/ap_on_he_...
Bessie
AOL
#9
Sep 20, 2007
Lance -
We share a most terrifying and isolating condition. I cry almost every day, as the torment of these bites continues and friends, family, and the medical community views us as crazy. I have begged God for answers to why, WHY am I so afflicted? I'm nearly 60 years old and had a successful career supervising & developing mental health and addictions programming. I started getting tired & confused a few years ago, thought it was due to the MS I've had for 40 years. In the last few months I started getting itchy in the groin area, then realized that I had a "colony" of something breeding inside my intestinal tract. As I began an assault on that issue with anti-parasitic treatments, they started attacking me from the outside in.
Some days I get my hopes up as I try different remedies, only to have them dashed with another, far more intense assault. I think about death often, have even started putting my affairs in order.
I graduated Phi Beta Kappa and was beautiful, a professional who taught fitness and aerobics on the side, and an excellent golfer. I had everything going for me. Now I'm a recluse, and can't wait for death.
My next door neighbor, a nurse, worked full time. She suddenly stopped working and her car never moves. The door on her mailbox doesn't stay up, and I can see that she lets it pile up for 2 or 3 days. Just like me. My bedroom window faces her house, with some bushes in-between. I think she has it, too, and we both got it from something in-between our houses.
I am terrified and incredibly alone.
Lance Marshall wrote:
This (Letter from Dr. Smith) is probably the most credible piece of literature which I have read concerning the subject..
I am not a medical professional but a Mechanical Engineer in South Africa and I too have Morgellons.I contracted it from a friend who had returned from a spell in the USA. I had no idea what it was that I had contracted but I knew that it was an unwelcome guest. Long before I did any research on the subject or found the word "Morgellons", I studied this affliction within my own body (for the last 18 months)and without explaining the "how", I have determined physically, pathalogically and to a limited extent chemically)just about all there is to know about this most horrible disease. I have recorded much of my "experimentation" on video or still photography. I have extracetd from my own body and have (in frozen storage) the actual "bugs" (there is more than one variation), It is extremely contagious (at times) and has a number of methods of transfer. It in fact, has a number of "defenses" when it determines that it is threatened within the host. There are very legitimate pathalogical reasons why the host (patient) reports felling "fuzzy" in the head etc. and the reasons for these I have determined.
The skin manifestation is but a fraction of the actual complete picture and merely a confirmation of infection. This symptom has absolutely nothing to do with a dermatological conditio. As I stated earlier, I am not a medical practitioner but I do have sufficient knowledge, appropriate intellect and more than sufficient competent capability, to have conducted these experiments on myself.
Dr. Smith, I am more than willing to share my knowledge under respected conditions with similar-minded individuals. I do not subscribe to conspiracy theories or other such nonsense distractions.
<quoted text>
Romy Geissler
AOL
#10
Yesterday
I too suffer from this disease.
Although I reside in NC, I have traveled the world, and did live in the Bay area for a number of years, so I could have picked this up anywhere!
I have been laughed at, ridiculed, and even escorted out of a dermatologists office by a police officer, two police dogs, and an ambulance.
I have never felt more humiliated, and devastated in my life.
I went into the office fully prepared for some ridicule.
I had every article, web address, and any and all info on this. I also had an arsenal of photos of the progression of the disease over one years time.
I went from a pretty vivacious woman, who was conscious of my body and practiced yoga,took my vitamins, and thought I was doing fine.
That was until I started breaking out with these huge lesions all over my head , face, feet and legs.
I have also been findind random pieces of hair just coming to the suface of my skin, if I don't get them with tweezers they will go BACK INTO MY SKIN!
Two young med techs at my Dr.s office acctually saw this happen!
The Dr. did not believe them either!
I have tried every kind of cure that anyone has mentioned on these chat rooms for the disease, now after spending my life's savings, and dealing with the fact that I have been bald with no eye brows or lashes for the past 8mos. Then to know that there is no mention from anyone that there may be any glimmer of hope for a cure for this, I must say that I have seriously contemplated suicide OFTEN!
Can anyone offer any hope?
--------------------------------------------------------------------------------
Well I guess none of us are replying to this because it is so horrendous. I can't get this thread out of my mind. It just makes me wonder about how many are out there that have no clue what they have or where to turn.
The recent CDC "next spring" comment had me angry but after I read this I was fuming.
From chasonline at lymebusters; I brought it over---
whiterose
mundo
Los Angeles, CA
#7
Aug 14, 2007
I too am dying of this disease. My neighbor died just this past March and the family was so disturbed and shocked, they demanded an autopsy. They would not admit to the Morgellons, as it hasn't been formally categorized, but she did test positive for both Legionaire's and Lyme Disease. Quite a coincidence considering Legionaire's is very rare in Southern California...especially when you consider the fact that So Cal had the driest year in 130 years of rainfall recording.
The cover-up must end. People are dying and I'm too young to die. My daughter is only 16 and I was just beginning to live life. Please do something. Please!
R.R.
mundo
Los Angeles, CA
#8
Aug 14, 2007
Oh and one more thing, 85% of those woith Morgellons are also testing positive with Lyme disease. eVEN pRES. Bush had Lyme. Why can't we of the middle class receive the same treatment as the elite like Bush?
Scientists seek better tests for Lyme;Bush suffered from Lyme disease
news.yahoo.com/s/ap/20070813/ap_on_he_...
Bessie
AOL
#9
Sep 20, 2007
Lance -
We share a most terrifying and isolating condition. I cry almost every day, as the torment of these bites continues and friends, family, and the medical community views us as crazy. I have begged God for answers to why, WHY am I so afflicted? I'm nearly 60 years old and had a successful career supervising & developing mental health and addictions programming. I started getting tired & confused a few years ago, thought it was due to the MS I've had for 40 years. In the last few months I started getting itchy in the groin area, then realized that I had a "colony" of something breeding inside my intestinal tract. As I began an assault on that issue with anti-parasitic treatments, they started attacking me from the outside in.
Some days I get my hopes up as I try different remedies, only to have them dashed with another, far more intense assault. I think about death often, have even started putting my affairs in order.
I graduated Phi Beta Kappa and was beautiful, a professional who taught fitness and aerobics on the side, and an excellent golfer. I had everything going for me. Now I'm a recluse, and can't wait for death.
My next door neighbor, a nurse, worked full time. She suddenly stopped working and her car never moves. The door on her mailbox doesn't stay up, and I can see that she lets it pile up for 2 or 3 days. Just like me. My bedroom window faces her house, with some bushes in-between. I think she has it, too, and we both got it from something in-between our houses.
I am terrified and incredibly alone.
Lance Marshall wrote:
This (Letter from Dr. Smith) is probably the most credible piece of literature which I have read concerning the subject..
I am not a medical professional but a Mechanical Engineer in South Africa and I too have Morgellons.I contracted it from a friend who had returned from a spell in the USA. I had no idea what it was that I had contracted but I knew that it was an unwelcome guest. Long before I did any research on the subject or found the word "Morgellons", I studied this affliction within my own body (for the last 18 months)and without explaining the "how", I have determined physically, pathalogically and to a limited extent chemically)just about all there is to know about this most horrible disease. I have recorded much of my "experimentation" on video or still photography. I have extracetd from my own body and have (in frozen storage) the actual "bugs" (there is more than one variation), It is extremely contagious (at times) and has a number of methods of transfer. It in fact, has a number of "defenses" when it determines that it is threatened within the host. There are very legitimate pathalogical reasons why the host (patient) reports felling "fuzzy" in the head etc. and the reasons for these I have determined.
The skin manifestation is but a fraction of the actual complete picture and merely a confirmation of infection. This symptom has absolutely nothing to do with a dermatological conditio. As I stated earlier, I am not a medical practitioner but I do have sufficient knowledge, appropriate intellect and more than sufficient competent capability, to have conducted these experiments on myself.
Dr. Smith, I am more than willing to share my knowledge under respected conditions with similar-minded individuals. I do not subscribe to conspiracy theories or other such nonsense distractions.
<quoted text>
Romy Geissler
AOL
#10
Yesterday
I too suffer from this disease.
Although I reside in NC, I have traveled the world, and did live in the Bay area for a number of years, so I could have picked this up anywhere!
I have been laughed at, ridiculed, and even escorted out of a dermatologists office by a police officer, two police dogs, and an ambulance.
I have never felt more humiliated, and devastated in my life.
I went into the office fully prepared for some ridicule.
I had every article, web address, and any and all info on this. I also had an arsenal of photos of the progression of the disease over one years time.
I went from a pretty vivacious woman, who was conscious of my body and practiced yoga,took my vitamins, and thought I was doing fine.
That was until I started breaking out with these huge lesions all over my head , face, feet and legs.
I have also been findind random pieces of hair just coming to the suface of my skin, if I don't get them with tweezers they will go BACK INTO MY SKIN!
Two young med techs at my Dr.s office acctually saw this happen!
The Dr. did not believe them either!
I have tried every kind of cure that anyone has mentioned on these chat rooms for the disease, now after spending my life's savings, and dealing with the fact that I have been bald with no eye brows or lashes for the past 8mos. Then to know that there is no mention from anyone that there may be any glimmer of hope for a cure for this, I must say that I have seriously contemplated suicide OFTEN!
Can anyone offer any hope?
--------------------------------------------------------------------------------
Well I guess none of us are replying to this because it is so horrendous. I can't get this thread out of my mind. It just makes me wonder about how many are out there that have no clue what they have or where to turn.
The recent CDC "next spring" comment had me angry but after I read this I was fuming.
From chasonline at lymebusters; I brought it over---
whiterose