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Post by bugsy on Apr 10, 2007 15:58:45 GMT -5
Hey Guys, Bugsy here. Well I've just received word back on the tests I was given and all they found was Anemia. Isn't it odd that I wished for a parasite to be found so at least this condition would have an identifiable "approved" medical name. Then treatment, then move on. But heck no. That would be too easy. The worst part is the indignity of it. I am terribly embarassed and ashamed. And the nurse seemed to be smug and giggling with my diagnosis over the phone. If I was someones grandmother or even their OWN mother they would not treat me like I was on trial or a criminal or something. What is my crime? What gives someone the right to give me such disrespect and indignity!!!? I would be treated better if I had a SINUS INFECTION or even hemorhoids.HA I guess it all boils down to this......all it takes is one doctor at a med-center to give a DOP diagnosis and from there on out you will be behind the eight ball......and trying to "prove" your condition from there on out....the domino effect. Well.....I'm not buying what their selling. Maybe the particular tests I was given were inconclusive....but I will NEVER pretend and go into DENIAL about what I know to be true EVER!!!! I'm just too strong willed for that. It is tantamont to someone telling you "the sky is yellow" and you look up and you know it's blue......but they just keep insisting. Well I guess I'm left to my own devices at this point. The thing is...should I pretend to "go along" with...."there is nothing there"..insistance...just to keep a relationship with my family dr. or should I just not go back...? At some point I will need medical attention again......"ah $#@&" I've never settled for being in the postion of being meek and abused....and in my opinion...subjecting myself to a dr. who IS NOT LISTENING is basically a form of abuse....to thine self be true..I cannot be fake!!! Sorry for the rambling.......I'm just VERY upset right now and feel kinda.......powerless. Ya know. Hate that!! Blah blah blah....lol Thanks. ~Bugsy
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Post by bugsy on Apr 10, 2007 16:33:30 GMT -5
P.S. I tried an enzyme cleaner all over the house and car today "Natures Miracle." Even if it doesn't have the desired effect of killing bug eggs....at least my home smells really fresh and good..without a perfumy odor. I've also been washing everything with a little Amonia in it...thanks for whoever suggested this because it is a LOT less expensive than Borax as a long term solution. Thanks ~Bugsy
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Post by aligator on Apr 10, 2007 20:24:35 GMT -5
dear bugsy,
the way I see it we have a couple of options.
1) go to a mainstream doc and just report the symptoms. like chronic fatigue, and panic attacks, night sweats, brain fog, etc...pick a few symptoms that are in dire need of attention, and pray to God you rolled the dice right and have a doc that says "hey wait a minute....somethings not right here......otherwise if you spout off morgellons to an unknowledgable doc, you will get nowhere. For starters, most wont aknowledge "M" because there is no billing code. there are lots more reasons not to mention morgellons to docs, that I wont go into, I'm sure if you read all the old posts, you'll figure it out.
2) go see a natural doctor. Personally this is probably your best bet and I can bet you can guess the deductive reasoning behind it.
but.....there is honestly nothing in any doctors office be it natural/or western medicine that you won't find here.
There is a search engine on this site, familiarize yourself with it. Build relationships here, listen to what everyone says. Be open to all posibilities.
Usually I don't comment on people's behaviour here, and for the most part everyone gets along really here, but on occasion there are differences of opinion on how to "fix" this.
Just remember, there is no "one" fix. Everyone has a different makeup, so this affects them differently. we all here, every one of us has gone the trial and error route. Some with sucess, some not.
This thing is so bizzare that even the best and smartest people in the world (that have a heart left) are baffled.
so if you need some time to back off and wrap your head around the unbelievable, do so. I had to. You almost have to. Its all so much to under stand. They need to make a book just for me called
nano's for dummies
best of luck, Ali
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Post by 0happyday on Apr 10, 2007 22:29:44 GMT -5
Ok Ali there you go reading my mind again. You're starting to remind me of Thinker. Bugsy, I have had you on my mind, remembering all the times I have been Embarrassed and humiliated, ridiculed, taunted, ignored, discounted, turned away, neglected, have I left out any? I'm sure I have. The one good thing that they did to us was they "humbled us". I can't understand how any of us can have any pride or dignity left. Ali and I were talking about (stool), the one thing we never talk about on the board for some reason. I had to laugh, realizing that we are still proud after all they have done. I second what Ali has said and the only thing I will add is my personal experience. After seeing 3 General Practitioners, 6 Dermatologists, 4 Infectious Disease Doctors, a Neurologist, an Allergist, a PA, 5 ER Doctors, (who by the way called in Psychistric, who said I WAS NOT crazy, but the ER Doctors seemed not to believe them), The Jemsek Clinic, who specializes in Lymes and HIV. And I GUARANTEE I left someone out.; I decided to change my strategy: I got established with a Dermatologist and told her nothing about anything crawling or coming out of my skin. I just showed her the lesions that would not heal, and let her start treating me. She injected them with steroids. One started to heal up but another appeared. When I went back to her the 4th time I took the letter from Dr Wymore. Her response was "Oh my God! I don't know what to do to help you. I had built up a rapor at that time and she never doubted my sanity. The biggest problem I have now is I have developed " Doctorphobia". This condition IS UNCURABLE! We love you, 0happyday
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Post by 0happyday on Apr 11, 2007 6:20:16 GMT -5
Corrections to previous post; 4 Gen Pract. 4 ER Doctors,
and guess who I left out
The VET, the STATE ENTOMOLOGIST, and 2 EXTERMINATORS
as well as spoke to the CDC, and a Parasitologist that I saw on Animal Planet, A professor at UNCC, Who by the way was the sincerest of them all and we actually had a very intelligent conversation.
And from Harvard, I will have to post it seperately for I think he should get his just reward. I will post the correspondence between the 2 of us.
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Post by bugsy on Apr 11, 2007 7:28:02 GMT -5
I hear you!!! I've tried to keep my symptoms as "mainstream" as possible...without mentioning the odd parts like things crawling "out" of my skin. Where I got into trouble seems to be in the samples. The original DOP was at an immediate care facility where I brought in a sample (matchbox sign) lol and told him I had things crawling inside my nose....He just had a look on his face like ( does not compute) nothing in his experience ever crawled inside a persons nose.....then smoke came out of his ears....lol Just kidding. But seriously.....I wouldn't even give a skin sample if a Dr. begged me for one at this juncture...because I became trapped by my own words and certainty regarding this. It would have been much better to just show him my leisons and left it at that...and talked about the itching. Nothing more....just the dire symptoms!!! No future talk of worms or creatures to physicians and I actually never even mentioned Morgellon's. was afraid of the reaction. Funny thing.....since I've come here...the bugs have actually lessened in numbers. I have followed and appreciated the kernals of knowlege I've gleaned from you kind folks. *I've stopped or at least cut down on sugar. *Started cleaning more with amonia and use 1/2 cup in wash with reg. detergent. *I shower immediately upon waking and just before bed. *I have always vacuumed religiously. *send dog out for regular baths....for his comfort as well as my peace of mind. *Clean all dog bedding at laundry mat with amonia and detergent. *Wash dirty laundry ASAP.... *Only wear clothes once...including coats *Wash all glasses and and cell phone wipe down with peroxide...every day...land lines too. *Vacuum car religiously... *Just now trying......Enzyme cleaner for places I cannot use regular cleaners...lamp shades..etc..furniture....freshens everything up...dog bed...etc...between cleanings... etc.... Hopefully.....their numbers will stay low and managable......less bugs = less bites I've actually been treating this as if I have a nano nematode auto infection...working on the inside as well as out. I've not shared what I've taken for possible internal parasites..but it is an over the counter medicine....for people. Thanks for all of the practical advice and input....!!! ~Bugsy
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Post by 0happyday on Apr 11, 2007 23:31:13 GMT -5
Thanks for reminding me why I do these things and I am not alone. hehehe
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Post by sickandtired on Apr 12, 2007 9:10:56 GMT -5
I don't think that the DOCTORS have heard that DOP is not in the CDC volcabulary anymore...
they just decided that was not going to be used as a diagnosis anymore......didn't they put it there to begin with back in the early 80's the same time THEY started releasing these NANO designer bugs into our environment.......UHMMMMMM.........
and because these are NANO sized to start with until
they take up residence in lesions on our skin then you can peel them off breaking the crasp they have from their prongs in us feeding on us....
So that is why this disease is failing to show up in typical lab tests because they are NOT PREPARED FOR NANO DISEASES the testing they have used for years and years won't work for NANO....they need whole new testing which they NEVER DID....THEY never accomadated the medical community with proper tests for NANO diseases....
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