Post by jolieanderson on Nov 23, 2015 16:40:41 GMT -5
Hi, I was dx with Lyme by IgeneX this past spring but about a year ago I began to develop these pin size whit solid filled sores on my gums and lips. My lips also became swollen and my mouth burned. This went on for a few months then it let up but the sores and swollen lip never went away. Then a few months later it came back with a venegence and began to cause severe dryness of the mouth, furrowing of the tongue, chronic swollen lips, painful pin prick spots on palate, gums and lips. It feels like these things are hooked to nerves and mouth burns. I also began to have severe itching of the scalp and my hair began falling out and it became dry and staticky. My eyes dried up to and my vision to focus has deteriorated. I am very tired all the time but suffer from insomnia, might be from the anxiety of pain and not know what is going on. I now have developed these white sores around the one side of the rectum, they feel like shards of glass when touched but the area itches intensly. The skin has dried up very badly and it is now cracking open and flaking. In this same area I am noticing very long hairs that are growing there but not on other side that is not infected. I have been to dozens of doctors who have no clue what this is and no way of helping me. They have tried drugs for Lyme treatment but everytime I try one I have to quit within days because they cause the mouth to become even drier and the pain becomes to intolerable. I have also been tried on Valtrax for viral but again it dried me up and made the situation worse. I have been tried on nystatin and fluconazole but they did nothing. My husband is now experiencing the same symptoms too but just not to the same degree yet. I have seen an LLMD but he has never seen a case of Morgellons and does not know if this is what it is, however he has said the treatment is usually Lyme drugs, but they make things worse so no one knows how to treat this. I am very scared and very alone can anyone on here please tell me if my symptoms sound like morgellons because I have looked it up and I don't fit much of the criteria. Here again are my symptoms- pin prick solid filled sores on gums, palate and lips. Burning mouth and lips, chronically swollen lips, extreme dry mouth, furrowing dried tongue, hair loss, dry staticky hair, a focculitis like rash around one side of rectum that causes intense itching and flaking white specs with excessive hair growth that is longer than usual hair, also area kind of burns as well as itchs. Over all fatigue, loss of visual acuity, dry eyes. That's it, no fibers or cotton balls, no sores anywhere else, no feeling like things are crawling on me or biting except the itchy area around anus, no peripheral neuropathy, no headaches or brain fog or memory issues, no black specs, etc.. It has now been thirteen months with this and no relief. So, does anyone else have symptoms like this especially with the mouth? Does it sound like Morgellons? Thank you for anyone who answers.