Post by Admin on Feb 6, 2013 21:29:05 GMT -5
Celebrate: This message just released. Please read and go to link .
a very ... Sunny
(Gwen)
===================================
Evidence Mounting that Morgellons Disease is an Emerging Infectious Illness, Contrary to CDC Report
Latest Scientific Findings Announced by The Charles E. Holman Foundation Show that a Spirochete is Associated with Controversial Disease
READ MORE HERE: tinyurl.com/aayrv7l
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Hello,
Great strides are being made in the Morgellons arena! Hats off to Marianne Middelveen, Raphael Stricker, Peter Mayne, Douglas Kahn and Eva Sapi and the incredible students of Eva's...Divya Burugo and Akhilia Poruri. For those of you who attended the Boston ILADS meeting and heard Eva's students present their findings on biofilms, you understand the potential of these young fresh minds. Their presentations were a favorite of mine second only to Marianne Middelveen's talk at ILADS 2012.
I think that one of the most exciting aspects of this new research on Morgellons is the fact that it proves persistent spirochetal infection! It also serves to prove that the current two tiered testing methods for Lyme Disease leave a whole lot to be desired! Spirochetes are easily detected in the dermatological samples from Morgellons patients! This is huge! How could the CDC have missed this in their 5 year, $400,000 plus investigation of Morgellons Disease? One reason for starters...might be because they selected patients by searching the word "delusional" in electronic medical records kept by an HMO which we had warned Morgellons patients not to subject themselves to. Another reason is because they relied upon the ELISA and the Western Blot to rule out spirochetal infection! Yet, another reason is that the CDC declined any input from the clinicians and scientists who are seeing these patients in their clinics and working on solving this mystery.
The CEHF has provided a very modest amt of funding to these researchers who are bringing us answers because we struggle for funding in a world where the CDC and NIH has done their best to silence us about this tragic illness which has driven many patients to suicide. For decades, Morgellons patients have been labelled as delusional and forced to take powerful and dangerous antipsychotics. They not only lose their health, but lose their jobs, their homes, the support of their families and friends; they lose custody of their children and eventually lose hope. This has caused far too many to lose their desire to live and the result has been a large number of suicides associated with Morgellons Disease, a spirochetal infection which could have been treated early if only physicians would listen to their patients and look at the evidence.
I am extremely excited and feel that we are turning some major corners in moving the huge mountains and making the world a better place for those who suffer from Lyme/Morgellons.
I want to thank all of you for supporting us along this journey to realization that Morgellons Disease is a serious spirochetal infection that warrants long term antibiotic treatment!
Please read the press release that went out today as well as the paper which is hot off the press as of January 28, 2013 from the esteemed F1000 Research! Please consider attending our conference on April 13 and 14, 2013 in Austin, Texas and hear more from these amazing Morgellons researchers! Please share these amazing strides with the Morgellons patients which many of you are seeing in your practices!
It is with great enthusiasm and pride that I bring you this joyous news today.
Cindy Casey Holman, RN
Executive Director
The Charles E. Holman Foundation
www.thecehf.org
a very ... Sunny
(Gwen)
===================================
Evidence Mounting that Morgellons Disease is an Emerging Infectious Illness, Contrary to CDC Report
Latest Scientific Findings Announced by The Charles E. Holman Foundation Show that a Spirochete is Associated with Controversial Disease
READ MORE HERE: tinyurl.com/aayrv7l
----------
Hello,
Great strides are being made in the Morgellons arena! Hats off to Marianne Middelveen, Raphael Stricker, Peter Mayne, Douglas Kahn and Eva Sapi and the incredible students of Eva's...Divya Burugo and Akhilia Poruri. For those of you who attended the Boston ILADS meeting and heard Eva's students present their findings on biofilms, you understand the potential of these young fresh minds. Their presentations were a favorite of mine second only to Marianne Middelveen's talk at ILADS 2012.
I think that one of the most exciting aspects of this new research on Morgellons is the fact that it proves persistent spirochetal infection! It also serves to prove that the current two tiered testing methods for Lyme Disease leave a whole lot to be desired! Spirochetes are easily detected in the dermatological samples from Morgellons patients! This is huge! How could the CDC have missed this in their 5 year, $400,000 plus investigation of Morgellons Disease? One reason for starters...might be because they selected patients by searching the word "delusional" in electronic medical records kept by an HMO which we had warned Morgellons patients not to subject themselves to. Another reason is because they relied upon the ELISA and the Western Blot to rule out spirochetal infection! Yet, another reason is that the CDC declined any input from the clinicians and scientists who are seeing these patients in their clinics and working on solving this mystery.
The CEHF has provided a very modest amt of funding to these researchers who are bringing us answers because we struggle for funding in a world where the CDC and NIH has done their best to silence us about this tragic illness which has driven many patients to suicide. For decades, Morgellons patients have been labelled as delusional and forced to take powerful and dangerous antipsychotics. They not only lose their health, but lose their jobs, their homes, the support of their families and friends; they lose custody of their children and eventually lose hope. This has caused far too many to lose their desire to live and the result has been a large number of suicides associated with Morgellons Disease, a spirochetal infection which could have been treated early if only physicians would listen to their patients and look at the evidence.
I am extremely excited and feel that we are turning some major corners in moving the huge mountains and making the world a better place for those who suffer from Lyme/Morgellons.
I want to thank all of you for supporting us along this journey to realization that Morgellons Disease is a serious spirochetal infection that warrants long term antibiotic treatment!
Please read the press release that went out today as well as the paper which is hot off the press as of January 28, 2013 from the esteemed F1000 Research! Please consider attending our conference on April 13 and 14, 2013 in Austin, Texas and hear more from these amazing Morgellons researchers! Please share these amazing strides with the Morgellons patients which many of you are seeing in your practices!
It is with great enthusiasm and pride that I bring you this joyous news today.
Cindy Casey Holman, RN
Executive Director
The Charles E. Holman Foundation
www.thecehf.org