Post by Admin on Jan 22, 2012 18:59:54 GMT -5
I just received this from Gwen Simmons at NMO and we must be careful with the media as they have intent to make us look nuts when we suffer from something physical--hear what she is saying.
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Hello Everyone,
I am posting a email communication that was just sent to radio reporter, Laura Mayer, with WNYC in New York. The CEHF is contacted frequently by news media for people to interview. It is necessary to determine the focus of any media story before we assist in any connections. Many of you may recall the Will Storr reporter from the UK and Sara Bione, "medical Student". Both of these individuals extended offers of help to our plight, when indeed, they were snakes in disguise.
We have communicated with Ms. Mayers, however, received no response when asked the details/focus of her radio program. Instead, a notice, seemingly, has been placed on Morgellons forums by yet another reporter, Audrey Quinn. When doing a quick Google search, it seems these two reporters are connected.
I, personally, caution anyone when considering doing media with these reporters or any other. Many times their motives are less than professional and certainly not to help us. Remember the Mayo article from May, 2011? Please know that I am here as well as the entire Charles E. Holman Foundation, if anyone needs assistance in dealing with media. Just use caution!!
Sincerely,
Gwen "Sunny" Simmons
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Jan 22, 2012
Laura,
Do you happen to know an Audrey Quinn? Did you happen to put her up to this?
You have obviously misunderstood Morgellons Disease and have exhibited no desire
to enhance your understanding of the physiological manifestations.
I strongly urge both of you to read the peer reviewed publications in Medical
journals on the Morgellons topic ASAP.
I've seen some solicitation of unsuspecting Morgellons patients on forums that
sounds very suspicious.
Not sure what the plan is with you as you were unable to describe any plans for
a REAL program on Morgellons.
It appears that you learned little from our previous correspondence and are
lacking in your knowledge of the subject. If your intent Is to prey on these
very ill and desperate individuals then I'm concerned that your brain may be
working against you.
Unless you can somehow explain your intent, a message of caution will be
necessary to protect these patients in the Morgellons community.
Morgellons is very real and very debilitating. It is NOT of psychiatric origin,
but rather a serious medical condition that over long term can cause some
behavioral and psychiatric issues.
I hope I am wrong but this does not set well. Morgellons patients have suffered
enough. People who have Morgellons are very sick but I can assure you that we
are not stupid.
Accurate portrayal and sincerity will be key in reporting on this subject. You
might have been better off had you taken my advice on the necessity of accuracy
in reporting.
A message will be widely distributed describing in detail your sinister intent.
Get Real,
Cindy (Casey)
-----------------------------------------
-----------------------------------------------------
Hello Everyone,
I am posting a email communication that was just sent to radio reporter, Laura Mayer, with WNYC in New York. The CEHF is contacted frequently by news media for people to interview. It is necessary to determine the focus of any media story before we assist in any connections. Many of you may recall the Will Storr reporter from the UK and Sara Bione, "medical Student". Both of these individuals extended offers of help to our plight, when indeed, they were snakes in disguise.
We have communicated with Ms. Mayers, however, received no response when asked the details/focus of her radio program. Instead, a notice, seemingly, has been placed on Morgellons forums by yet another reporter, Audrey Quinn. When doing a quick Google search, it seems these two reporters are connected.
I, personally, caution anyone when considering doing media with these reporters or any other. Many times their motives are less than professional and certainly not to help us. Remember the Mayo article from May, 2011? Please know that I am here as well as the entire Charles E. Holman Foundation, if anyone needs assistance in dealing with media. Just use caution!!
Sincerely,
Gwen "Sunny" Simmons
---------------
Jan 22, 2012
Laura,
Do you happen to know an Audrey Quinn? Did you happen to put her up to this?
You have obviously misunderstood Morgellons Disease and have exhibited no desire
to enhance your understanding of the physiological manifestations.
I strongly urge both of you to read the peer reviewed publications in Medical
journals on the Morgellons topic ASAP.
I've seen some solicitation of unsuspecting Morgellons patients on forums that
sounds very suspicious.
Not sure what the plan is with you as you were unable to describe any plans for
a REAL program on Morgellons.
It appears that you learned little from our previous correspondence and are
lacking in your knowledge of the subject. If your intent Is to prey on these
very ill and desperate individuals then I'm concerned that your brain may be
working against you.
Unless you can somehow explain your intent, a message of caution will be
necessary to protect these patients in the Morgellons community.
Morgellons is very real and very debilitating. It is NOT of psychiatric origin,
but rather a serious medical condition that over long term can cause some
behavioral and psychiatric issues.
I hope I am wrong but this does not set well. Morgellons patients have suffered
enough. People who have Morgellons are very sick but I can assure you that we
are not stupid.
Accurate portrayal and sincerity will be key in reporting on this subject. You
might have been better off had you taken my advice on the necessity of accuracy
in reporting.
A message will be widely distributed describing in detail your sinister intent.
Get Real,
Cindy (Casey)