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Post by 0happyday on Mar 12, 2010 3:48:53 GMT -5
Dear friends, I want to again mention the 3rd Annual Scientific/Medical Conference on Morgellons. March 27. 2010 in Austin Texas. My plans are finalized I will arrive on Wednesday the 25th with hopes of spending more time with all the lifelong friends I have met through this site and who I was blessed to meet last year while I was there. The time I spent there last year provided such validation for our disease. If there is anyway you can scrape together enough to go I believe you will be blessed as was I. Thank you all for all you do. God bless you all. Sincerely 0 happyday.
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Post by rjmeyer123 on Jun 17, 2010 20:44:35 GMT -5
Ohappyday I have a wife with the disease and she thinks shes all alone with it were from Spokane WA and the doctors here don't take her seriuos. I found this Chat site so she could talk to others who have the disease or know someone who does. So could you or some body on this site be willing to talk to her I woul like to know. rjmeyer123
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Post by amron on Jun 19, 2010 1:26:46 GMT -5
Hi rjmeyer123 welcome, you've come to the right place. The medical proffessionals keep us up tight, because they are unable to step outside the box. Sure their scared, its an ugly unforgiving condition.I really dont think they know how much heart ache they cause by calling us nuts. We are lonley and isolated with this thing anyway, we could use a lift up not a kick down. Bless you for reaching out!
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Post by figureight on Jun 27, 2010 20:36:13 GMT -5
rJ,
I live not too far from you guys, If she needs to talk, I'd be willing to lend an ear. I've been in The Clarkston Valley for almost 4 years now and I've had morgellons forever, and I can tell you that I have found no one but dr. staninger to help me. And one of my best and trusted clients is the administrator at Tri-State Hospital over here. Even she can do nothing for me. PM me if your wife needs help. I'll do what I can.
Ali
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