Post by scarredangel on Jan 17, 2010 14:40:19 GMT -5
I live in Manitoba, Canada and although I had heard of Morgellon's (and was completely freaked out by the idea of it), I never in my life thought my journey would eventually lead me to its door.
I am 37 years old. In 1992, I noticed that I had a pimple on my face but it wasn't healing. I wasn't a picker (I LOVED my face!) but this thing hurt inside and bothered me almost constantly. I noticed when I put creams or lotions on my face, that instead of healing me quickly as most skin issues I'd had, it spread it. The sore was getting bigger!
I went to a doctor when I noticed the same thing was occuring on other parts of my body. Behind my ears, upper legs, butt, scalp. I was baffled - and the doctor told me I had Exczema. I was given 2 creams and sent home. I used them but they continued to spread. I tried Polysporin - it healed the sores up but they always came back either in the same spots or near them.
Years passed and I 'just lived with it.' I used Polysporin almost daily (sometimes three times a day if the breakout was bad). Nothing ever rid me of it altogether. I was always one to wear makeup and I began having trouble covering up the scars and sores. I was devastated!
Later, I moved to the country after meeting my husband, had a child and life was good - the skin regimine continued. I can't really recall how bad it was during my pregnancy, so it mustn't have changed that much.
When our child turned 2 years old, I started to lose weight. I was thrilled and attributed this to finally losing my baby weight! I had gained 80 pounds while pregnant and at my heaviest (9 months pregnant) I weighed 266 pounds. My pre-baby weight was 186 pounds.
When I stepped on the scale one day and saw that I was 185 pounds with zero effort, I was shocked! I thought my body had reset itself and I was stabilizing my metabolism even though I wasn't making any effort to do so. My diet wasn't that much different but it didn't really occur to me that the skin issue and the weight loss were at all connected.
In the last year, symptoms included:
1.> Rapid weight loss (I am now 164 pounds and still losing as of today).
2.> Memory loss and confusion
3.> Weakness and rapid heart rate at times that lead to shortness of breath.
4.> Lesions that don't heal (and they can be painful!!)
5.> Tired almost all of the time but I generally have excessive energy.
6.> Root-like gelatenous 'stuff' that is attached to any scab I remove (due to pain) and once removed, the pain is gone.
7.> Lack of appetite (this is in the last 2 months).
8.> Clumsiness - although I am now 100 pounds lighter, I still can't seem to navigate through a doorway without hitting my elbow!).
9.> Extreme joint pain - especially in my hands.
10.> Difficulty communicating (stumbling over words, stuttering, lost thoughts, brain fog).
11.> Never been a 'moody' person but find myself getting to the point of frustrated much quicker.
12.> Lack of libido-although believe me I try to push throught his one!
13.> Change in hair - I have very thick long hair - now it seems to have lost elasticity somewhat and I can do nothing more with it than put it up in a ponytail.
14.> Gritty feeling on my skin (sometimes) like small salt particles.
15.> Weakened eyesight
I could post more but that's the general overview.
Lately (past week) I thought I had an eyelash in my eye. Many attempts to retrieve it failed and I could barely open my eye. I was on my way to work so when I got there, I went to a mirror. I opened my eye up as wide as I could (without touching it) and I could see a thin white line running from the top of my eye (attached to the top lashes) and down over my eyeball and beyond my lower lid. That thin white/clear line was surrounded by a long thin black line very similar but not clear. I used a tissue to remove it and was grateful for the relief, but never gave it much thought. My hair is chocolate brown with blonde underneath, so I naturally assumed two hairs (one of each color) had gotten into my eye somehow. Again - never thought the skin and this could be connected.
My husband has found me in the bathtub on several occasions sobbing because I couldn't figure this out. The pain is what usually drives me to becoming emotional. I can feel a very localized pain in these lesions, and if left alone, it becomes unbearable. I began (years ago) pulling these small globby white/clear roots out of the lesion. It became almost an obsession to keep them clean (especially once I realized these were the contagious aspects of the lesion!).
Before, when I would pull one of these roots out of a lesion, they would be thin and fine if pulled early (first onset of pain) and if left in there (and if I fought through the localized pain) they would appear the same consistency but they were fatter, globby and wider. They no longer resembled a root but more of a blob.
The 'jelly-root' as I call them were sticky to the touch and if I held a scab with one on it, the scab appeared to be securing it.
I could wait until the pain returned (they always came back) and I would lift the scab off. Easy to say - tough to do! These things rooted themselves between the scab and some blood source (has to be) because when I would go to pull one out, often my entire area of skin could be suspended by it alone - it was really stuck in there! It hurt like nothing I have ever felt (very localized still) but once out, the relief was immediate. The blood was also immediate - but just from where that root had been pulled. the rest of the scabless area never really bled or oozed anything.
There have been times when I have lifted a large scab and could actually see hundreds of tiny white dots just visible in the scab. Sometimes, when I tried to pull one of them out, they looked like they retracted back into the skin but I always attributed that to my having to manipulate my skin to try to pull these out.
I have scars on my face - eyebrow area, chin, forehead, cheeks. They are all over the backs of my upper legs and butt, my scalp (I can feel them!) and behind my ears.
Last summer, it got so bad that I had an open wound (blazing red and liquidy constantly) that extended from the bottom of my lower lip all the way down to my chin. I couldn't leave the house - I couldn't see anyone - I couldn't cover it up!
I went to a local town doctor (we have 4, all are useless) who told me (as soon as I mentioned my face) that he knew what this was. He told me it was "follicilitis" - I assured him it wasn't and tried to explain. I had seen one of the other doctors in the building the year before and he gave me a topical ointment and sent me home.
When I was trying to explain, the doctor kept talking over me and making it impossible to hear me. he said I appeared "anxious' and I told him I was kind of excited because I think (after all these years) that I was figuring out what this was!
He basicaly kept talking about the follicle issue and when I just couldn't sit there any longer and listen to his line of complete crap (he wasn't listening!), I stood up, turned my back to him and removed my pants. I showed him three large lesions on my thighs/legs/glutes and told him what I knew about them. He lept out of his chair and wouldn't come near me!
He got on his phone and called next door to another doctor who came in (I had pulled my pants up by this point) and they both started in with the folliclitis. I was furious! I asked if follicilitis had the roots and he assured me it did. He tried to tell me it could be collagen that couldn't 'escape or move' and I explained that if collagen was as contagious as this was, women wouldn't inject it into their faces! He laughed me off and continued to explain what he KNEW it to be. I continued to fume.
I sat there fuming (inside) - knowing nothing I could say would convince him this wasn't a follicle issue. He prescribed Novo-Doxylin (100 mg to be taken twice a day) and Fucidin Cream. The cream did work temporarily until the month after, but it came back with a vengeance! The Novo-Doxylin tasted like butane or gasoline and made me vomit so I had to stop taking it. Keep in mind I still work full time and raise a child! I can't really afford to 'be sick.'
My husband had convinced me to go back to a doctor - but by this point I was sure I would never go back again. I had to do this on my own, obviously. I was ticked off!
I started tracking when I had these lesion flare-ups and realized they happened about a week before I would get my period. Once my cycle ended, my skin (although still fighting the sores) would not appear so "bumpy" or "pimply."
I got really concerned because of the other symptoms though - the weight loss, confusion, clumsiness.....it all made me very aware that my body was slowly degenerating on some level. I needed to hurry!
About three years ago we thought this was ringworm, but they told us ringworm was easy to clear up - so I got the cream etc. That didn't work either - but the scars/lesions were similar to ringworm. It didn't explain the gel-roots though and the pain!
I spotted a kids microscope one day and out of desperation bought it and took it home. It cost me $10.00.
Before I had the chance to use the scope, I spent the evening looking things up online. As I said, I had heard of Morgellon's but dismissed it because I didn't think any of the symptoms were related to me (I didn't have colored fibers coming out of my skin).
I was directed to a YouTube video where I sat in stunned silence as I watched a guy's skin being rubbed with apple cider vinegar, and then releasing all of these hair-like fibers!! I couldn't believe it!
I had some apple cider vinegar and not believing this was the same thing, applied it to my skin. What happened was phenominal.
Within seconds, these white and black (very fine) hairs started expelling themselves from my skin!
I spent the afternoon taking these fibers off of my skin and looking at them under the scope. I had become fascinated with discovering what was wrong with me - my husband thought it was odd, but when you haven't known for as long as I haven't....it becomes an obsession of sorts!
What I did notice is that when PULLED out, the roots are sticky and gel-like. When forced out with the apple cider vinegar, they are like crystals or salt grains or solid...and not sticky to touch. They can be brushed or blown off the skin easily.
Back to the microscope....
What I saw under the microscope was so disturbing! The fibrous hairs were there - blue red, white and black! There were long hairs connected to other long hairs (and they looked SMALL magnified at 450X!). It looked like a network at times. I looked at slide after slide - then I'd run back to my computer to compare my findings with listed Morgellon's photos. They were EXACT!!
My husband did a cleanse his mom showed him (his mom HAD Lupus and numerous ailments) and his face is CLEAR!!!
I put apple cider vinegar all over my face three times yesterday and watched as these roots slipped from my skin. I was fascinated (and so grateful to know!). I did my legs and saw a network of octagon shapes appear all over my skin (like a grid). My legs were COVERED! My hips/thighs were expelling...my legs/glutes....it was stunning to watch! Scary as hell...but seriously stunning. My skin is smooth where it used to be bumpy underneath (you could feel the next generation!). I cannot believe the glow my skin has today!
I will be starting the cleanse tonight as well to purge my body of whatever this is. Hubby knows the routine of it so if anyone is interested let me know! His skin is absolutely clear!! Mine is no longer blazing red lesions (lesions are healing and not red at all!). I am so happy to have finally figured this out!
I am also going to a homeopathic doctor next Saturday with all of my findings (AND my microscope!). He is very interested in what I have done so far. This appears to be a larvae, worm, parasite or something. I've seen it move and I can feel them. They gotta go!
I haven't cried yet. I want to, but I still have work to do to make myself healthy. I will cry absolute tears of joy when the time comes. For now, I want all of my energy focussing on the issue at hand.
I was wrong about one thing. I will be returning to see a medical doctor. I will be returning to show him what I have found, what I have done....and how I'm curing MYSELF.
I am 37 years old. In 1992, I noticed that I had a pimple on my face but it wasn't healing. I wasn't a picker (I LOVED my face!) but this thing hurt inside and bothered me almost constantly. I noticed when I put creams or lotions on my face, that instead of healing me quickly as most skin issues I'd had, it spread it. The sore was getting bigger!
I went to a doctor when I noticed the same thing was occuring on other parts of my body. Behind my ears, upper legs, butt, scalp. I was baffled - and the doctor told me I had Exczema. I was given 2 creams and sent home. I used them but they continued to spread. I tried Polysporin - it healed the sores up but they always came back either in the same spots or near them.
Years passed and I 'just lived with it.' I used Polysporin almost daily (sometimes three times a day if the breakout was bad). Nothing ever rid me of it altogether. I was always one to wear makeup and I began having trouble covering up the scars and sores. I was devastated!
Later, I moved to the country after meeting my husband, had a child and life was good - the skin regimine continued. I can't really recall how bad it was during my pregnancy, so it mustn't have changed that much.
When our child turned 2 years old, I started to lose weight. I was thrilled and attributed this to finally losing my baby weight! I had gained 80 pounds while pregnant and at my heaviest (9 months pregnant) I weighed 266 pounds. My pre-baby weight was 186 pounds.
When I stepped on the scale one day and saw that I was 185 pounds with zero effort, I was shocked! I thought my body had reset itself and I was stabilizing my metabolism even though I wasn't making any effort to do so. My diet wasn't that much different but it didn't really occur to me that the skin issue and the weight loss were at all connected.
In the last year, symptoms included:
1.> Rapid weight loss (I am now 164 pounds and still losing as of today).
2.> Memory loss and confusion
3.> Weakness and rapid heart rate at times that lead to shortness of breath.
4.> Lesions that don't heal (and they can be painful!!)
5.> Tired almost all of the time but I generally have excessive energy.
6.> Root-like gelatenous 'stuff' that is attached to any scab I remove (due to pain) and once removed, the pain is gone.
7.> Lack of appetite (this is in the last 2 months).
8.> Clumsiness - although I am now 100 pounds lighter, I still can't seem to navigate through a doorway without hitting my elbow!).
9.> Extreme joint pain - especially in my hands.
10.> Difficulty communicating (stumbling over words, stuttering, lost thoughts, brain fog).
11.> Never been a 'moody' person but find myself getting to the point of frustrated much quicker.
12.> Lack of libido-although believe me I try to push throught his one!
13.> Change in hair - I have very thick long hair - now it seems to have lost elasticity somewhat and I can do nothing more with it than put it up in a ponytail.
14.> Gritty feeling on my skin (sometimes) like small salt particles.
15.> Weakened eyesight
I could post more but that's the general overview.
Lately (past week) I thought I had an eyelash in my eye. Many attempts to retrieve it failed and I could barely open my eye. I was on my way to work so when I got there, I went to a mirror. I opened my eye up as wide as I could (without touching it) and I could see a thin white line running from the top of my eye (attached to the top lashes) and down over my eyeball and beyond my lower lid. That thin white/clear line was surrounded by a long thin black line very similar but not clear. I used a tissue to remove it and was grateful for the relief, but never gave it much thought. My hair is chocolate brown with blonde underneath, so I naturally assumed two hairs (one of each color) had gotten into my eye somehow. Again - never thought the skin and this could be connected.
My husband has found me in the bathtub on several occasions sobbing because I couldn't figure this out. The pain is what usually drives me to becoming emotional. I can feel a very localized pain in these lesions, and if left alone, it becomes unbearable. I began (years ago) pulling these small globby white/clear roots out of the lesion. It became almost an obsession to keep them clean (especially once I realized these were the contagious aspects of the lesion!).
Before, when I would pull one of these roots out of a lesion, they would be thin and fine if pulled early (first onset of pain) and if left in there (and if I fought through the localized pain) they would appear the same consistency but they were fatter, globby and wider. They no longer resembled a root but more of a blob.
The 'jelly-root' as I call them were sticky to the touch and if I held a scab with one on it, the scab appeared to be securing it.
I could wait until the pain returned (they always came back) and I would lift the scab off. Easy to say - tough to do! These things rooted themselves between the scab and some blood source (has to be) because when I would go to pull one out, often my entire area of skin could be suspended by it alone - it was really stuck in there! It hurt like nothing I have ever felt (very localized still) but once out, the relief was immediate. The blood was also immediate - but just from where that root had been pulled. the rest of the scabless area never really bled or oozed anything.
There have been times when I have lifted a large scab and could actually see hundreds of tiny white dots just visible in the scab. Sometimes, when I tried to pull one of them out, they looked like they retracted back into the skin but I always attributed that to my having to manipulate my skin to try to pull these out.
I have scars on my face - eyebrow area, chin, forehead, cheeks. They are all over the backs of my upper legs and butt, my scalp (I can feel them!) and behind my ears.
Last summer, it got so bad that I had an open wound (blazing red and liquidy constantly) that extended from the bottom of my lower lip all the way down to my chin. I couldn't leave the house - I couldn't see anyone - I couldn't cover it up!
I went to a local town doctor (we have 4, all are useless) who told me (as soon as I mentioned my face) that he knew what this was. He told me it was "follicilitis" - I assured him it wasn't and tried to explain. I had seen one of the other doctors in the building the year before and he gave me a topical ointment and sent me home.
When I was trying to explain, the doctor kept talking over me and making it impossible to hear me. he said I appeared "anxious' and I told him I was kind of excited because I think (after all these years) that I was figuring out what this was!
He basicaly kept talking about the follicle issue and when I just couldn't sit there any longer and listen to his line of complete crap (he wasn't listening!), I stood up, turned my back to him and removed my pants. I showed him three large lesions on my thighs/legs/glutes and told him what I knew about them. He lept out of his chair and wouldn't come near me!
He got on his phone and called next door to another doctor who came in (I had pulled my pants up by this point) and they both started in with the folliclitis. I was furious! I asked if follicilitis had the roots and he assured me it did. He tried to tell me it could be collagen that couldn't 'escape or move' and I explained that if collagen was as contagious as this was, women wouldn't inject it into their faces! He laughed me off and continued to explain what he KNEW it to be. I continued to fume.
I sat there fuming (inside) - knowing nothing I could say would convince him this wasn't a follicle issue. He prescribed Novo-Doxylin (100 mg to be taken twice a day) and Fucidin Cream. The cream did work temporarily until the month after, but it came back with a vengeance! The Novo-Doxylin tasted like butane or gasoline and made me vomit so I had to stop taking it. Keep in mind I still work full time and raise a child! I can't really afford to 'be sick.'
My husband had convinced me to go back to a doctor - but by this point I was sure I would never go back again. I had to do this on my own, obviously. I was ticked off!
I started tracking when I had these lesion flare-ups and realized they happened about a week before I would get my period. Once my cycle ended, my skin (although still fighting the sores) would not appear so "bumpy" or "pimply."
I got really concerned because of the other symptoms though - the weight loss, confusion, clumsiness.....it all made me very aware that my body was slowly degenerating on some level. I needed to hurry!
About three years ago we thought this was ringworm, but they told us ringworm was easy to clear up - so I got the cream etc. That didn't work either - but the scars/lesions were similar to ringworm. It didn't explain the gel-roots though and the pain!
I spotted a kids microscope one day and out of desperation bought it and took it home. It cost me $10.00.
Before I had the chance to use the scope, I spent the evening looking things up online. As I said, I had heard of Morgellon's but dismissed it because I didn't think any of the symptoms were related to me (I didn't have colored fibers coming out of my skin).
I was directed to a YouTube video where I sat in stunned silence as I watched a guy's skin being rubbed with apple cider vinegar, and then releasing all of these hair-like fibers!! I couldn't believe it!
I had some apple cider vinegar and not believing this was the same thing, applied it to my skin. What happened was phenominal.
Within seconds, these white and black (very fine) hairs started expelling themselves from my skin!
I spent the afternoon taking these fibers off of my skin and looking at them under the scope. I had become fascinated with discovering what was wrong with me - my husband thought it was odd, but when you haven't known for as long as I haven't....it becomes an obsession of sorts!
What I did notice is that when PULLED out, the roots are sticky and gel-like. When forced out with the apple cider vinegar, they are like crystals or salt grains or solid...and not sticky to touch. They can be brushed or blown off the skin easily.
Back to the microscope....
What I saw under the microscope was so disturbing! The fibrous hairs were there - blue red, white and black! There were long hairs connected to other long hairs (and they looked SMALL magnified at 450X!). It looked like a network at times. I looked at slide after slide - then I'd run back to my computer to compare my findings with listed Morgellon's photos. They were EXACT!!
My husband did a cleanse his mom showed him (his mom HAD Lupus and numerous ailments) and his face is CLEAR!!!
I put apple cider vinegar all over my face three times yesterday and watched as these roots slipped from my skin. I was fascinated (and so grateful to know!). I did my legs and saw a network of octagon shapes appear all over my skin (like a grid). My legs were COVERED! My hips/thighs were expelling...my legs/glutes....it was stunning to watch! Scary as hell...but seriously stunning. My skin is smooth where it used to be bumpy underneath (you could feel the next generation!). I cannot believe the glow my skin has today!
I will be starting the cleanse tonight as well to purge my body of whatever this is. Hubby knows the routine of it so if anyone is interested let me know! His skin is absolutely clear!! Mine is no longer blazing red lesions (lesions are healing and not red at all!). I am so happy to have finally figured this out!
I am also going to a homeopathic doctor next Saturday with all of my findings (AND my microscope!). He is very interested in what I have done so far. This appears to be a larvae, worm, parasite or something. I've seen it move and I can feel them. They gotta go!
I haven't cried yet. I want to, but I still have work to do to make myself healthy. I will cry absolute tears of joy when the time comes. For now, I want all of my energy focussing on the issue at hand.
I was wrong about one thing. I will be returning to see a medical doctor. I will be returning to show him what I have found, what I have done....and how I'm curing MYSELF.