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Post by sunnydaze on Dec 18, 2009 15:07:33 GMT -5
Cindy Casey is looking for people as described below:
Looking for Morgellon patients in the Dallas-Fort Worth area of Texas for public awareness opportunities Please if anyone lives in that area, please send me an EMAIL at ccaseyrn@hughes.net
Hope to hear from someone!
Cindy
Sunnydaze
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Post by mrodriguez on Nov 3, 2013 6:41:10 GMT -5
Cindy Casey is looking for people as described below: Looking for Morgellon patients in the Dallas-Fort Worth area of Texas for public awareness opportunities Please if anyone lives in that area, please send me an EMAIL at ccaseyrn@hughes.net
Hope to hear from someone!
CindySunnydaze Hi Cindy, I realize your post is around four yrs. old but I am new and to this board and I have so wanted to hear that I was not the only Dallas Morgie! My dark & lonely battle begin Mar. Of 2011 wirh what I thought was my first cold sore @ the age of 50; oh how I wish it would have been a cold sore!!! I have never felt so all alone. Unable to get any medical relief or any moral support from friends or family.
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Post by Admin on Nov 3, 2013 10:59:34 GMT -5
Hopefully, someone else at the board will contact you. The board has been very quiet on an inter personal level. I have brought forth information but due to my own crisis (which is Morgellons related), I'm unable to contact and converse with others. May God help you through this difficult time.
You may also find help at the Charles E. Holman foundation which was originally the New Morgellons Order. There is a nurses section that does allow for contact and help.
There are others that come to this board but as far as reaching out, some do, most don't.
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Post by Admin on Nov 3, 2013 10:59:43 GMT -5
Hopefully, someone else at the board will contact you. The board has been very quiet on an inter personal level. I have brought forth information but due to my own crisis (which is Morgellons related), I'm unable to contact and converse with others. May God help you through this difficult time.
You may also find help at the Charles E. Holman foundation which was originally the New Morgellons Order. There is a nurses section that does allow for contact and help.
There are others that come to this board but as far as reaching out, some do, most don't.
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Post by Admin on Nov 3, 2013 10:59:50 GMT -5
Hopefully, someone else at the board will contact you. The board has been very quiet on an inter personal level. I have brought forth information but due to my own crisis (which is Morgellons related), I'm unable to contact and converse with others. May God help you through this difficult time.
You may also find help at the Charles E. Holman foundation which was originally the New Morgellons Order. There is a nurses section that does allow for contact and help.
There are others that come to this board but as far as reaching out, some do, most don't.
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Post by estelle on Nov 5, 2013 19:21:31 GMT -5
I'm new to forums, don't know who will see this request, but I'm looking to chat with anyone who has had personal experience with the Morgellons and the NutraSilver product. My daughter has the disease, we just identified it. As you know the allopathic medical community does not recognize it as a real disease. Thank you,
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