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Post by Gwen "sunnyand7777" Simmons on Jun 17, 2009 17:29:16 GMT -5
Hello everyone,
I am one of the many RNs with this dread disease. Early on, I had an MI scan done (head) that revealed lesions in the white matter of the brain. These could never be explained. I have always felt this was a significate finding in Morgellons Disease. Presently, I am trying to get a neurologist to review as many MRI scans as possible to see if there are any commonalities or other issues within them.
If anyone has had a MRI Scan of the brain (head) since or even prior to contracting Morgellons and would be intersted in taking part, please send me an email at sunnyand7777@yahoo.com. If this works out, there should not even be a cost since most medical facilities will send scans, reports, etc. to another medical provider at no charge to the patient. I sure hope this continues to be true.
Please pass this request on to others who might be interested.
Thanks!
Sunny
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greggo
Junior Member
Posts: 57
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Post by greggo on Jun 20, 2009 0:40:14 GMT -5
Hi sunnyand777 Greggo here wow that so warring because ever since I got this cursed disease I know I'm not as sharp and quick witted these days I have trouble stringing a sentence together I'm going to try to get a M.R.I. see what happens I will print your post and anything to support your Post wish you well keep smilin  |
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Post by Gwen "sunnyand7777" Simmons on Jun 20, 2009 6:18:53 GMT -5
Thanks Greggo!
If you can get the MRI done, try to get the brain and cervical neck area. Contrast medium is very important. CT Scans do not seem to show this stuff well; only MRI Scans.
My first lesion started at the base of my skull, where it meets the neck. Began as a large lump that moved, turning into a horrible lesion, later. The headaches that came about that time were unimaginable. I slept with my head covered with ice paks.
The cervical neck area might show something, too, but most are just cranial. Doesn't hurt to ask!
Good luck and we will keep intouch.
Sunny
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awake
Full Member
For nation will rise against nation, and kingdom against kingdom.
Posts: 191
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Post by awake on Jun 20, 2009 8:43:05 GMT -5
Hello there, I've had this hidious affliction for aprox two years now. I am twenty two years old. The brain issues involved with this are one of the hardest things to get across to people. It's one of the most isolating aspects about this affliction other than the overt signs. I am gald you brought this up because it's so life altering and the least understood by the majority. People have such irrational responses toward anything to do with brain function what ever the cause. In my own cause i now morgellons has got into my nervous system. I noticed it very early on in the affliction. The way it's affected me is with communication and problems with forming sentences. I know where i go wrong, but i have to back track all the time while wirting something out. It's like i will forget to add last letter onto word and i only notice it after prove reading for errors. There is certainly a dyslexic quality about what this does. I also occasionally miss out letters all together which can be very annoying or i transpose them. On some days I'm just in a fog wondering what i have to do next and back then i was at collage i was studying to be a software disigner for computers. Now i can't even think about the next step i need to take even in simple tasks. I have had appointment with doctors, but was too afraid to associate my skin problems with my thinking difficulties. I would of been asking them to label me as DOP if i did that... for that i would be impossible for me to request an mri. Theres just to much stigma surrounding it especiality regarding my family. Anyway thanks for bringing up this important subject. Awake |
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Post by Gwen "sunnyand7777" Simmons on Jun 20, 2009 14:13:47 GMT -5
Awake, You have described, perfectly, what most "morgies" experience when they have the head, scalp involvement. I do believe that the severe scalp symptoms are an indicator of CNS infection. You are correct about trying to get any Dr to connect a "skin rash" with CNS problems. I hope this little project might just shed some light and open a few eyes. I am hoping we can just show that Morgellons patients, as a group, demonstrate a higher percentage of very similar abnormalities in MRI Scans. In any "research" the first step is to have a theory. The subsequent work either proves or disproves the original theory. Whatever the final outcome of this effort, it is important to know. Our neuro symptoms are too significantly similar. I have high hopes that any information gained will provide guidance and direction for others to follow. Ultimately, we will all benefit. God's blessings, Sunny |
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Post by ddddyyyy on Jun 24, 2009 22:08:20 GMT -5
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Post by junknira on Jun 25, 2009 3:48:27 GMT -5
Gwen.. I had one some years back, maybe 93, not sure. i first noticed lesions in 93/94, can't recall for sure. the mri was head/neck ..for c5/6 disk impaction.. so i will look into getting it to you
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Post by junknira on Jun 25, 2009 3:49:34 GMT -5
btw..ditto on the brain fog/function
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