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Post by ccooks2 on Jan 9, 2009 11:57:52 GMT -5
Hello everyone: first, let me wish all of us a much more hopeful, much better Morgellons year, given all the work now being done, no matter how uncollaborated. As I say, I'm new to the site, but I've been dealing with this distressing business, in the same way as all of you, for 9 years now. I'm curious--has anyone yet looked at the Morgellons Research Foundation's recently published Phase I study results? Interesting. Though I haven't given it a close read, I'm wondering about this antibiotic-producing whatever that's repeatedly mentioned--wondering if that might account for the lack of serious infection in our extremely slow-healing lesions. For 9 years, my fingers and nails have been my unending torture. And because I've spent much of those 9 years yanking stuff out of my fingers and nails and bleeding a lot, my friends and family often comment on how amazed they are that I haven't yet developed gangrene or something. Indeed, why don't these sore get infected, ever? One friend who has been especially amazed was such a bad nail biter when he was younger that he, in fact, got gangrene in a finger and had to have part of it amputated. What I've been doing to my fingers for 9 years goes far beyond mere nail-biting. Anyway, that whatever causes Morgellons also has an antibiotic-producing element to it would seem to make sense. If anyone else has read the results and is scientifically savvy, I'd love to know what you think. Thanks, Catherine
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Post by sadsack on Jan 9, 2009 16:27:58 GMT -5
Catherine - That's a very interesting hypothesis. I have heard that some people have had MRSA cultured from their lesions, though. I have a problem with the way that srudy was presented. They listed things that were found in the hot water tank , but failed to say whether these things were also found in a Morgie. Without establishing a clear-cut connection, what's the point?? I will give them the benefit of the doubt that they HAD done this, but they lose points on communication. Part 2 is focussing on samples from a Morgie. Now, isn't that the cart before the horse? anewday
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Post by ccooks2 on Jan 10, 2009 11:33:43 GMT -5
Thanks, Anewday, for your thoughts. Indeed, that the MRF's Phase I study focussed on hot water tank studies first was disappointing, though it does on occasion mention that the same phenomena are found in Morgies. Let's hope that there's a method to the cart-before-the-horse madness, like perhaps proving that we're drinking this in. Who knows. I'd never heard of of MRSA, so I appreciate learning about this other thing. Today, interestingly, I had to renew my anti-depressant prescriptions in an Arab country that I'm very new to. Only psychiatrists can prescribe those here. After many questions, my new psychiatrist took my blood pressure, etc., which required me to lift up my sleeves, at which point he noticed 2 lesions on my wrist and asked about them. Also showing him my fingers and nails, I explained that my doctors at home in Canada don't know what it is but insist that I have "nothing." "Does it come and go?" he asked. No, I informed him, I've had it for 9 years. He didn't like the sound of all that, but I didn't dare mention Morgellons to him, not yet, for fear of the good old DOP diagnosis or who knows what else in this foreign country that I don't yet know enough about to take such risks. I do feel, however, that perhaps countries not involved in creating this problem might be more open to solving it. Years ago I saw a dermatologist in Mexico about the same problems--and though he wasn't sure what it was, he knew that it was something. In fact, I told him before leaving that my Canadian doctors insist that it's all in my head, that I'm creating the problem and mentally ill. His response: I could never reach that conclusion myself. Anyway, now that I'm in these here parts, far from the maddening madness, I'll be looking into possibly interested researchers. Why not try? - Catherine
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Post by sadsack on Jan 10, 2009 13:11:46 GMT -5
Catherine - Some very good thoughts! You might try something like "you know, I saw something on the news when I was in Canada about a condition - I think they called it "Morgellons" - and really wondered at the time if that was what I had, but I never pursued it with a doctor. Do you think that's a possibility? I do think you'll find more open-mindedness abroad. anewday
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