terry
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Posts: 7
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Post by terry on Jan 7, 2009 15:08:45 GMT -5
Hi, I haven't had access to a home computer in a year, so I'm just returning my attention back to morgellons again so see what's new. I briefly looked at this website and see that there is much new. I will read what's new, and possibly have some of my questions answered, and also I will keep in touch. Thanks, Terry
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Post by sadsack on Jan 7, 2009 15:23:04 GMT -5
Terry - Can you tell us a little about yourself? I think the main think right now is waiting for the cdc's announcement - this month? Of course, we are all nervous that they will make things even worse for us. After all this time, the only journal publication (that doesn't trash us) is the one that Ginger Savely did a few years ago. It is really disheartening. Even Wymore hasn't published his fiber work!!! anewday anewday
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terry
New Member
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Post by terry on Jan 7, 2009 21:23:43 GMT -5
Hi anewday, Thank you for your response, even though when I logged on it said I have 0 messages. I am unaware of the CDC's announcement this month, but I know It can't be good. I have been a long time afflicted person, and I don't even feel comfortable logging onto a m-site, however I just can't sit back. I am now listening to the last few Rense series I've missed not having computer access for a year now. It is disheartening that when one tries to research morgellons that the top websites are all about the skin factor. I myself had early on researched morgellons only to be confused or mislead. I am not so much as looking for publication of morgellons per say, more I'm just looking for many answers as to the what and why of it. I am not looking for cure anwers, since I know there are none. It is just so mindboggling of an affliction and such a strange resistance to it that I am just happy to be able to log on just to be able to communicate to others who haven't got there head somewhere where it shouldn't be which is the case of every person who I even mention morgellons to, noone listens, and yes I have DOP on my file for when I used to go to doctors, but they couldn't even help if they wanted to, but why they don't want to is the mystery. I am hoping to meet other morgs in my town, not that I don't see them all over the place (obvious lesions and other signs) but people just don't know. I am hoping just to ask a few questions at a time. Also I was wondering if people have thought about getting everyone in each town together to help educate the populace, since singularly we are so ignored and abused? Like I said I've been out of the loop with no research in a year. Sincerely, Terry
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Post by Awake on Jan 8, 2009 11:27:58 GMT -5
There just not educating the public on any of this and they never will either..the CDC as a madate to keep this hidden. This affiction is so strange and outside of the box that nobody can begin to understand it. The ones who do try and do research are heroic in my opinion in trynig to get awareness of it. It's take your pick of possible causes whatever it be nanotechnology, GMO's, plant bacteria or even ET's. All of these theories are perfectly reasonable for such as affliction like morgellons.
The symptoms are broad and affect all body systems to different degrees as it is a systemic disease. Probably the most worrying aspect of it is it's affect on the central nervous system. I Believe everyone with morgellons will experience a significant amount of neruo symptoms including cognitive impairments. I think the fibers penerate the whole body and emerge out of the skin and cause the lesions.
I consider myself lucky so far as i have had very few skin lesions. The main problem with me is the crawling and stinging which is cyclical and i have episodes of intence itching and stinging seneations all most always at night. Strangely it is alot more active at night and seems to take "advantage" of your sleeping hours. I have experienced this behaviour over and over again with this thing. It's almost like it has a program and instruction which would go will wtih the nanotech theory. The other symptoms i have are fatigue and nuero related or what you would call "brain fog" trouble with memory, concentration and word finding are common neuro symptoms which are similar to MS.
My believe is that morgellons is far more bizzare than anything that's been published yet...
I hope that helps with questions.
Awake
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Post by sadsack on Jan 8, 2009 17:57:41 GMT -5
Terry - When you logged on, what you saw was that you have no "personal" messages (you have a mailbox here). It doesn't tell you whether anyone responded to you publicly. I identify with many of the feelings you expressed. I, too, desperately want to know WHAT IS THIS CRAP. Ooops, lost it there for a moment. I have heard of a few people getting so well that they think they are cured. Wouldn't that be nice??? I don't think that is possible myself, but I sure would like to be "deluded" into thinking I was and just go back to the life I had. The reason I think a scientific publication is important is because we have no real defense against what I fear the CDC will announce. The scientists working on this just won't collaborate, a loss to all of us (including them). Keep the faith, and stick close! anewday
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terry
New Member
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Post by terry on Jan 9, 2009 13:35:27 GMT -5
Hi Awake, Thank you for your response. and talking about symptons, well I have many, but some can come and go and some is permanent. An example would be 6 months of a runny nose, or skin attacks that may last 6 months or a year, and by permanent I mean like damage to my right parietal lobe, which was discovered when I had a MRI to try to find a possible cause as to a unusual symptom I have of my right eyebrow raising unvoluntarily. They were looking at possible MS, found the damage to the right lobe, but this has nothing to do with the eyebrow symptom, in which the doctors says they just don't know. This is'nt the greatest of concerns to me as I have lots of ailments. My main point here is we never know what will change, go away, return, much less what is next, as I am sure you know. I agree that M is systemic, and I have pondered as to when it first began in myself. For myself my best quess is 1975-76, however some authorities seem to think it's more recent, and they may be right, hard to know. I did get a bit more confused listening to last 3 Rense series, and it talking about the fibers in the fibers. So with the need of the highest of microscopes to see them, then how are they made, and if so easy to make, why so hard to say find out what a fiber is programmed to do? I admit to not being a scientist, but sometimes the information conflicts in my mind, probably because I am so uneducated in the sciences. Well enough for now. Terry
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terry
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Posts: 7
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Post by terry on Jan 9, 2009 13:37:17 GMT -5
Hi anewday, So where would messages come from? Thank You, Terry
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Post by sadsack on Jan 9, 2009 16:09:41 GMT -5
Terry - If I wanted to send you a private message (that I didn't want to share with anyone who might be looking at the posts here) I would send it to you privately. Only other members can send you PM's. An example woud be phone numbers, etc. anewday
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Post by ccooks2 on Jan 11, 2009 13:06:43 GMT -5
Ahhhhhhhhhh: finally, people who are feeling and thinking what I am: thanks for this place. I think that my main issue with Morgellons, besides the actual physical pain, is the suggestion, the accusation, that I'm nuts: it's highly offensive since I"m not. People can see my symptoms yet rationalize them away, with me always to blame, of course. I'm biting my nails, which I don't do unless yanking out things that must be yanked out; I'm too nervous, too stressed; I'm drinking too much; I'm self-mutilating; I'm screwed up, as I've always been: now I'm physical proof for them of that! Arghhh. I too want only one thing, since I know that I'll never see a cure in what's left of my life: an understanding and acknowledgment of the how and why of my 9-year reality, which is real. That's all I want. And not just for myself: my reality is that of thousands of us, and who knows what that means for the future of the human race? My nephews? They've already inherited a bad enough world without this. Do I care past them? Not really. By then the human race would deserve this, if they do nothing. Sorry, but the indifference also makes I'm mad. I'm just thankful to have a place to vent that won't patronize or pity me.
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Post by sadsack on Jan 11, 2009 13:40:39 GMT -5
Hi, CCooks - I feel the same way. I just want vindication. I want Mick West and those derms interviewed by cnn, all the freaken doctors who only made us feel worse, the family & friends who rejected us, etc etc to have a rude awakening. I don't want others to get this, but I don't see how that can be avoided. The longer this is swept under the rug the more likely a world-wide total pandemic will occur. Thank you very much, CDC, NIH, EPA, FDA, etc etc. The future of the world is in your hands, but like Nero who fiddled while Rome burned, so the planet will go down in flames. anewday
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Post by Awake on Jan 11, 2009 16:42:23 GMT -5
I totally agree, this is the most disgusting disease to have ever to exist. I would rather have cancer or some ancient plague then this particular affliction. I hate the one tracked mindness of our modern health care system. They only do what they are told and only believe what they are taught in med school. They seem to believe if you stop sctatching yourself then the problem will go away. Also, If you mention nervous system problems they always say depression or anxiety or maybe fatigue or whatever other trival cr*p they can come out with. They give anti-depressents for everything. Even giving them for a brain tumor. Hiding the fact that most "emeging" bacterial and parasitic infections attack the CNS -lyme disease, Trichinosis and now morgellons. It's a world wide plauge of stealth diseases which is slowly crippeling the population. I also believe the muscle pain in chronic diseases like fibromyalgia which just means "muscle pain" is actually parasitic infection caused by Trichinosis or other parasites. They are not helping us with any of these emerging diseases. GOD save us!
Awake
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Post by sadsack on Jan 11, 2009 18:40:07 GMT -5
Awake - The other side of this is - would you have believed this if you hadn't lived it??? It's un-freaken-believable...how can we expect people to believe that we have all stepped into the twilight zone??? But the big agencies - shame on them - they've been hearing about this too long, from too many people, to ignore it. anewday
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Post by Awake on Jan 11, 2009 21:03:40 GMT -5
I've always had an open mind actually. Even before contracting this sick thing i considered things like this to be a possibility. I had an healthy balance of reason and speculation. To actually be living this has completely blown me away though. Who would of ever thought? One things for certain though and that is i will never view life in the same way again. I really don't know what to think of this. what this particular affiction does is just so unique and set apart form any other disease. There is nothing else like it. I don't now of any other disease that will react to an attemp to remove it. It morphs and changes too - perhaps to better adapt to it's host's environment. perhaps it has different forms for inhabiting different places in the body. An hair form for exampe for the surface of the skin (which is known) Maybe each form has a specific purpose in the body. I believe the ones that exist in the intestises take on the slug apperance and from because it is adpting to it's einvironment. That is the best "form" it can be in for that place in the body. The fiber forms job might be to mantain lesions and only be pesent just under the skin. They are all some how linked together and also respond as a single organism or nano machine of some sort.
Awake
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Post by ccooks2 on Jan 12, 2009 12:24:19 GMT -5
Hi everyone. Yes, the "one-tracked mindedness of our modern health care system": yeesh. My patronizing doctor, after I forced the issue with him this past summer by giving him a long letter summarizing the situation and present research findings published on the net by Carnicom, Staninger, etc., along with a copy of Jan Smith's essay "Living with a Nightmare," responded by giving me an outdated DOP handout with ancient source dates (!) and telling me that, perhaps in 20 years, medical students will routinely learn about Morgellons--but until then, DOP is all that they have to go by!!! And it's all that he and "they" are willing to go by, the non-independent thinkers that they are, given our classic "match box" collecting of "silly" samples that they never test to prove that they're silly, of course. In my letter, I pretty much begged him to use his medical education to be a pioneer: he wouldn't so much as nibble on my bait. Diagnosing and treating me as nuts is so much easier. I'll tell you all something, though. I would rather have Morgellons than be as willingly and unconscionably ignorant and unconscious as he and everyone like him is. I even went so far as warning him that he, his daughter, his family, everyone he works with, and everyone he knows is likely affected, given Carnicom's blood tests, but he didn't even flinch. I'm just nuts. Oh well.
As for the hard-to-swallow point that we can't expect others who haven't experienced all this freakiness to believe what even we ourselves we can't believe, day after endless day, you make a very good point, Awake. After 9 years, I'm still collecting extractions because I still can't believe it. I still use the any magnification device that I have or can think of because I still can't believe, don't want to. I keep hoping that I'm wrong, that we're all wrong: but day after day I see that we're not. Yet I still can't really believe it! So, yes, how can we expect the non-afflicted to readily believe us? I guess the hardest part of it all is being diagnosed and treated as mentally ill, which we're clearly not. The people who know us, however, should know better, but they too easily side with the mentally ill stance, which really hurts. Really, really, really hurts. That's the biggest problem, I think. As I've said elsewhere, but not on this post, that is why I've left Canada for good, fled my family and friends and hometown and all of North America because it needlessly hurts too much. While it's all very hard to believe, I nonetheless think that it could also be easy to believe too, if one wants to or has good reason to. The people who know us best should have reason to, hence the hurt.
All that we can do, I think, is keep pushing the issue while, above all, supporting each other: because we DO know. So again, thank you guys for being here. - Catherine
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