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Post by kelly1 on Dec 19, 2008 15:49:45 GMT -5
Well, as you very well may guess, I have lots of questions. However, I won't fit them all into one post. That wouldn't be any fun for anyone.
My biggest question is what does everyone do? I have seen the the tiny v shaped fibers that are on some of my hair and I have had the hook like fibers come from my face. I also feel like I am dusty.
I am interested in how you deal with clothes and bedding. I have slept in my recliner, just throwing a clean sheet and blanket on each night, and never ever wear anything twice. I didn't realize I had Morgellons in the beginning so I was thinking demodex, human flea or something. I am really burnt out from all this because Ihave other health issues.
I would be so happy to hear what anyone else does regarding their ADL (Activities f Daily Living, as you probably know).
Anyone here from WI?
Thanks so much.
kelly1
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Post by sadsack on Dec 19, 2008 16:34:45 GMT -5
Kelly1 Are you also new to Morgellons? You mentioned you've had other health issues...could you list them? There are a number that are very commonly seen in association with Morgellons. Do you live alone? Having other people in the environment, with or without this, makes a difference in how you approach things. And I too wish we could have met under different circumstances. It seems new people are showing up all the time...it is spreading. anewday
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Post by kelly1 on Dec 19, 2008 17:56:10 GMT -5
Nice to meet you anewday!
I have FMS, Deg. Disc Disease, Low Back Pain (goes along with the DDD), FATIGUE, had Lyme few years ago
I live with husband and he says he does not have anything. However, I'm not sure he believes I do and I don't want to ask him for fear of his answer. That sure is a huge issue when you have no support.
Yes I am new to it. When I first came to the realization of Morgellons, I had a "roll of paper towel cry" and not a kleenex tissue one , during which I was also thinking how I can't believe I have another illness the Drs. will not believe. When I was going through the beginning of looking for medical help for Fibro, it was at the infancy stage when Drs. did not believe in it yet. So once again I feel like I present myself to be some kinda nut due to the way my appointments have gone s far.
Thank you for replying so quick. I'm having a bad day today and it is nice to hear from you. I feel like I don't know how to live anymore. That's not meant to sound suicidal. I'm just so unorganized and uneverything since this has began.
How can one handle hugs with relatives, especially now with the Holidays here. I have young grandchildren too. I don't want to give this to anyone, an how do I mention to them that I might have this? I can't say that do because I don't have a Dr. diagnosis and we all know why that is.
I appreciate any inut you might have. Like I said, I just feel "un".
Wishing you God's Blessings, kelly1
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Post by sadsack on Dec 19, 2008 18:27:54 GMT -5
Oh, Gosh Kelly - I surely can relate to what you are saying - and probably just about everyone on this board can, too. Yup - you have the associated diseases - fibro, Lyme, DDD, and I don't know if you have an "official" Chronic Fatigue Syndrome, but fatigue is definitely a part of it. It is also very difficult if you have a partner who doesn't believe you. Most of my friends and family did not; they are a bit more on board with it, but then it is almost worse sometimes. I know it doesn't help to say there are many thousands of people with this. So many that it is breaking through into mainstream, and more doctors are finally acknowledging it (though they don't know what to do about it). You probably know that the CDC is supposed to come out with their findings next month. We are all praying that they at least acknowledge that this is a real affliction, though many of us don't even expect that. Have you seen the show on Discovery Health Channel "Emergency ER" about Morgellons? The name of that episode is "Nothing to Sneeze at" but there are 2 shows on this episode. It is the first one, called "String Theory". Although the doctor's statements about it may not be accurate, at LEAST it is proof that many, including that prestigious series, know that it is true. If you get that channel, watch it with your husband. As far as hugging, etc....I hate to tell you this, but you have probably had this a long time before you actually saw evidence of it. Everyone has already been exposed. Most doctors who work with this do not believe it is contagious - if it were, wouldn't your husband have it, too? Another thing that most of us believe is that the agent that is causing this is EVERYWHERE. There are cases all over the world. You can't control the spread of this or protect people. Do you take vitamins or other supplements? How is your diet? anewday
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Post by kelly1 on Dec 28, 2008 11:01:26 GMT -5
Well another Christmas has come and gone. All the anxiety over whether the house is ready for company gone. What a relief!!. But now I am trying to decide if I am "untired" enough to drive to church, so this might be short. My husband counts money this weekend so he is there for both Services and I would have to drive. As it worked out, my son's wife got the flu so they didn't come. What a relief this was for me because I am so afraid of this being a communicable disease. I was just bawling Christmas Eve Day because I didn't want them to come, plus my 2 yr. old granddaughter and stay in this house overnight. My husband does not understand this. A person without this illness calls it an obsession when a person's mind who does have it, is continuously filled with thoughts about it with the where, when, why, who, what, etc. It's so hideous I can't help but think back on the past 5 years and think about my life and what I did. But, I do know these fibers are all over. Because of how they look it is quite easy to make the distinction of them from dust or other things and I see them everywhere, even in the grocery store. Last night I was reading a PDF document from the rense.com sight about nanotechnology and medical devices as well as other medical stuff. This got me thinking to an operation I had in 2004 for Pelvic Prolapse. I think it was 3 different choices of material to use for a pelvic floor, with pig skin being the best. So I chose the pig skin. Although I have not grown a curly pig's tail. Just a little humor slid in, if that's even possible. Plus, who knows what the medical tools and supplies which they use are made of, including anesthesiologists. I had surgery on my spine 2 years later. I was just trying to find the link for it but now I remember it took me awhile to get the link found via searches or via browser. The title is: Nanotechnology in medical applications-state_of_the_art in materials and devices. It is 123 pages long. The Rense page I got it from is: www.rense.com/Datapages/morgdat1.htmMore later, be well. kelly1
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