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Post by gypsyknows on May 24, 2008 16:11:40 GMT -5
Hi my name is Robyn I have been suffering through this nightmare for a year and am exhausted. I have no family but am strongly supported by close friends. Still they have no idea. Im holding on only for them and at this point am wondering why? I don't know why im sacrificing my mind and body for others. Just frusterated.
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Post by sadsack on May 28, 2008 14:01:24 GMT -5
Robyn - Your friends don't know, or family? I can relate to what you are saying, but I feel differently now. It hasn't even been a year, but it HAS been a l-o-n-g one. One thing that has helped is to define a place in my recovery that I feel I can live with it. I have had a remarkable physical recovery, but the mental part was overwhelming. I have gotten past that, and my goal is now to 1) continue to do what helps me (supplements, cleansing,etc) 2) PRAY 3) try to live as normal a life as I can & not obsess about this. We can't control it - we have to turn all of this over to God & to trust Him. After talking to many people with this, I have found that the people who have the best recoveries and quality of life do the 3 things outlined above. My best to you, Robyn....improvement IS possible, as is acceptance. B
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Post by Awake on May 28, 2008 16:03:37 GMT -5
I know this is really sad, but we must have faith! A lot of us are and are going to go though some very testing times... I have my own conclusions why people don't recognize the suffering of others especially the people closest to us like our families. My answer is that it's the way sociality is made up. I mean people are "programed" by sociality with certain beliefs. most of our "medical doctors" are taught not to look at or treat people with morgellons type symptoms because that is how they are trained in medical school. Instead doctors tell there patients it's purely a state of mind or even worse they attribute there symptoms to a false belief of infections of parasites called delusions of parasitosos or DOP for short which is a mental illness.
The world we live in is really so sad and there is a LOT of falseness in this world and in my opinion is a world run by evil... and if i can help out i will by offering others information and opening there eyes to the TRUTH...
I myself are only 21 and i live with my parents. I have had morgellons for about a year now. I believe the most destructive symptoms are the affect on our minds and brains both emotionally and physically are completely devastating...It made me give up on the opportunity to study physics at college. I was always the bright one at school and also a very caring person always trying to help out were i could. All that has changed now as the crawling sensations keep me awake at night and can be extremely itchy just seeming to bite me at random and will not let me sleep. I can even feel them under my scalp and can pull things from my scalp at times...I makes me feel so depressed.
Please have faith and try to stay positive it is a very tough time for a lot of us.
-Awakening2012-
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Post by morph on May 28, 2008 19:45:38 GMT -5
Hello comrad gyspyknows, its time to refocus your mind, I know this has robbed your self esteem, forget about self esteem right now. Work on your inner being, it is your job to stay well untill they find something to curtail the symptoms, if not a cure. Here we are all in some form of pain and suffering, some are worse that others. We all care about you as we know some of your pain, some more then others, I myself feel I am the KING of Pain but another standing along side me may feel he or she is the king or queen of pain. One thing I do know, when you think you are the most lonely, sad, and worthless, think about the child that is born with some symptom of this affliction and the mother of that child also afflicted, imagine her pain, imagine her thoughts, she carries the fear and pain of many. There is one woman that comes to this site, she and her two children are afflicted. It is best at this time to count our blessings, however small they are, do you have shelter, food, friends, thats wonderful, do you hear that everyone, this girl has friends that support her, ones that understand, how lucky she is, I want to send thouse friends a thankyou card myself. most of these people on here have been beat down by friend and family. I wish I was you.
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Post by luvbuny on Jun 17, 2008 14:10:02 GMT -5
Just to let you know you are not alone. Suffering all most a year my self. And every 1 I know thinks its in my head. That im crazy .... I assure you i am not or any one else that has this. BUT WHAT CAN WE DO...... HAVE FAITH AND BELIEVE IN GOD > PRAY DAILY I want to die but some force keeps me going . And you will to.
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Post by morgellonsdude on Sept 26, 2009 20:24:10 GMT -5
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Post by ghettogirl on Sept 26, 2009 21:12:38 GMT -5
Hi everyone! I am a new member and have never been on any type of chat so please excuse my "in-experience". I am reading these posts and crying. This infliction, disease, whatever it is, is so enormous to our bodies, our minds, and our lives. I am so sorry for each and everyone of you who is being affected by morgellons. I have been suffering from what i believe to be morgellons for several months. It is a nightmare! So hard to comprehend, describe and to accept. I am having a really difficult time right now dealing with this. Last week I colored my hair ( i have dark brn/blk hair) to get rid of those ugly grey hairs. And i noticed just 2 days after coloring, which looked great , all dark auburn, all kinds of what looked like grey hair throughout my head. Realizing, that this can't be gray hair already, its the morgellons. Since this first started for me, my head has been the most effected area. I can feel bites, crawling, itching. And my hair feels different. It looks terrible. It looks like i have broken hair. It looks like just a bunch of split ends every where. ( I have always taken good care of my hair, by good shampoos, condition,etc.) It seems to have a mind of its own. I can't style it. I read somewhere someone wrote"every day is a bad hair day with morgellons" and i got so excited because that is exactly what i feel and think and are going through. My hair looks like a really bad wig. Anyways, if u saw my hair right now you would think i need to color it. That grosses me out. I have all these fibers growing out of my head and it makes me sick. It makes me think i have it really bad. I feel so desperate for help and information. I have read so much on the internet but when do i know what i can and can't believe?
Plucking my hair out, ghettogirl
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Post by scarredangel on Jan 18, 2010 2:53:20 GMT -5
I have lived with not knowing what this is since 1992. I have scars on my face, arms, legs and behind.
I recently bought a microscope and examined these things and discovered Morgellon's. My mother-in-law suffered from Lupus for 30 years and did everything she could to get healthy. She's well informed about alot of things so when she suggested apple cider vinegar as an astringent, I tried it.
These little buggers fall out within SECONDS!!!!! No longer globby or wormlike, they fall out dry and crystal-like! My face is usually bumpy under the skin, mottled and lesioned. It happens to get worse every month when my estrogen levels rise.....and it retreats after my cycle ends. My face is clean, clear and pink where it used to blaze red! I am a happy gal!
Next up: do a body/liver cleanse and then drink warm water with 2 tbsps apple cider vinegar and honey each morning. These 'bugs' hate the change in alkaline!! It kills them dead...thank goodness!
Try it and let me know how it goes!
Put a half bottle apple cider vinegar in your bath water and watch in shock. Fibers are red, blue, white and black. I find that so ironic that people are claiming this is man made...and the colors are ironically red, white and blue.
Things that make you go hmmmmm.....
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Post by amron on Jan 18, 2010 8:25:48 GMT -5
Hi, scarredangel Thank's for the apple cider vin. idea, I'll try it today, and put it in my list's to get at the store. What ever works! In the very sick stage I racked up 50,000 in medical, doc.s clinic's, travel's to larger medical facilites, mri's etc. But I am delussional,and digging out morgies. Plain and simple anything you can get at the local grocery store is for me. I've had the best, of the best, but the net has helped me. Thanks
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