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May 19, 2008 14:25:07 GMT -5
Post by luvbuny on May 19, 2008 14:25:07 GMT -5
I'm living a life of hell. heard about this mogellons thing . was treated 4 scabies 6 times . almost a year now Dr dint know what to do. AS a matter of fact they don't even try any more. i got no money my insurance sucks . Cant even get skin test. I'm going insane ..... Think it is morgellons cant bear it much longer. longer it goes on the worse i feel. from the top of my head to my feet. not sure about fibers . got strange bumps sores and a clawing and crawling biting stinging etc.... feel like i may just kill my self soon... Help make it go away fast
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May 19, 2008 16:55:50 GMT -5
Post by whiterose on May 19, 2008 16:55:50 GMT -5
Hi Luv Bunny,
I like your name--. Most importantly is you must relax--I know it is difficult but this thing called Morgellons feeds on fear and if you find courage in self it will be your greatest benefit.
Remove anything not simple from diet, go low carb--you need extra vitamins and pure water---the first couple years are undoubtedly the worst; I have had it 27 years; so it can be done.
A simple life will help, less is more. All that have this conditon end up saying goodbye to our old self. It is hard, like morning a death--yet on the other side there is hope. Write hope on a business card and keep it with you so you know all is not lost, you always have hope.
I have heard that the Opaline Oxy helps get it out and I would think of all things this would be the best in the begining. There is a vitamin I found that helps a great deal, it is called Well Max from biochem country life; it has a mushroom grouping in it that is very healing.
There are these words that also helped me in the begining:
I am relaxed and renewed, every cell communicating, I am a vision of lovliness, a vessel of love and open to wisdom--say it with meaning --your body will comply once things settle down.
You are going to need every ounce of courage you can muster and the genetic code that is showing up with this, is also showing a very strong group of people.
Big Hug, whiterose
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May 19, 2008 19:48:03 GMT -5
Post by shubot on May 19, 2008 19:48:03 GMT -5
Welcome Here, luvbunny,
It is good to meet you. I am so very sorry this has happened to you. It can be like a nightmare in the beginning. It will get better. It is a terrible thing to go through, but remember, YOU CAN DO IT! Do not give in to the enemy. That is what he wants, don't let him win, BE STRONG, BE BRAVE! This is a battle you can win.
Pray as much as possible and ask GOD to help you through this. He will. He will give you strength and hope, and get you through the worst times and to the place where you will feel better.
There are a number of things you need to do to help relieve the symptoms and get them out as much as possible. Go to the boards on remedies, house cleaning, and diet tips.
** shower or bathe at least once or twice a day. ** change into clean clothes every day. ** change your bedding every day. ** run your bedding and pillows in the dryer on high every day for about 20 minutes. ** improve your immune system with vitamins, minerals, herbs. ** avoid sweet foods, high carbs, or anything that makes it worse. ** use good oral care products more often. ** avoid, digging in soil and being in areas where bugs like to hang out. ** read the posts of others on this board that have greatly improved, bygraceofgod, jesusheals, morph, whiterose. These wonderful people have been dealing with this for a long time and they know what products and tips really work.
Right now, there is no easy answer, just please, do not give up. Your life will be better and happy again. It may never be as it was before morgs, but it can still be very fun and rewarding.
Stay in touch with the wonderful people on this board. We are your friends and we care. Let us know how you are doing.
May God bless you and keep His hand over you. shubot
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May 24, 2008 17:27:27 GMT -5
Post by gypsyknows on May 24, 2008 17:27:27 GMT -5
I totally understand what your feeling call me and ill call you back my name is Robyn im 29 years old female and need to talk to somone who doesnt just say hold on im half dead already and need to express that .... ~~~~~~~~~~~~~~~~~ Phone number removed for the safety of our member. Please contact her by PERSONAL MESSAGE at the top of the ProBoard Screen..... Thanks! Admin
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May 24, 2008 20:56:02 GMT -5
Post by shubot on May 24, 2008 20:56:02 GMT -5
Welcome, gypsyknows
Please check you pm emails. I sent you an urgent message.
shubot
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Jun 4, 2008 1:09:05 GMT -5
Post by bygraceofgod on Jun 4, 2008 1:09:05 GMT -5
Welcome LuvBuny,
You have arrived. Here you will find friends, advice, suggestions, support, and answers.
DON'T PANIC! I mean, don't panic. whiterose couldn't have expressed it better.
You will have to make changes, and you will learn what you need to change in your life to make it better. Those choices and changes were easy for me. Feel like HELL or change my shampoo, hmmmm...
Hang on, we have all been where you are, and some worse. You can get through this. You will find amazing strength in the smallest bit of energy when well placed. We are all here for you.
I agree that the Opaline Oxy does wonders. And so would some organic calming tea.
The only thing this Monster can't touch is your spirituality. Have faith.
God Bless You, Grace
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Jul 23, 2008 20:14:15 GMT -5
Post by downunder on Jul 23, 2008 20:14:15 GMT -5
Hi Luv Bunny Here are some cheap ways to attack the problem I know how costly this thing is - spent a fortune over last few months thinking it was scabies etc. Have thrown out so many clothes/manchester products.
Hair: * Coal tar shampoo, Tea Tree Shampoo, Manuka Honey Shampoo Pantene Shampoo. * Straighten your hair after each wash with a hot hair straightener. * Soak your combs after each comb in a container holding hot water and a few drops of either tea tree oil or eucalyptus il -change daily.
Body: * I have used all the above on my body also. After showering, talc body down to brush off any fibres. Then apply Palmers Coconut Butter to entire body - this will begin to crumble on body after 2-3mins when you rub it again (if there is anything on body). Brush off all bits to clear skin.
Bedding: Soak sheets etc in following combination in hot water over night: * a little borax - e.g. in large bucket approx teaspoon * a little empsom salts - in a bucket approx 1/4 teaspoon * a couple squirts Coal tar shampoo * a couple drops tea tree oil
Do the above with all clothing and then put in machine next day as a normal wash using any washing powder/liquid you wish
House/environment/car * vacuum regularly
Rear end irritation - if it applies I used normal wormer tablets for intestinal worms - took 2-3 lots over a period of 2-3months: * one lot had mebanzadole as the active ingredient + one lot had pyrantel as the active ingredient
They definitely helped.
Keep focused on the future and remember I think the whole world if affected in some way with this problem and eventually someone up high will have the guts to address it. In the meantime we are all with you fighting this battle.
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Jul 23, 2008 21:45:31 GMT -5
Post by morph on Jul 23, 2008 21:45:31 GMT -5
You are quite right about this being part of man, part of man for a long time, for some reason it is changing quickly, stronger, faster acting, more diverse. Try corn starch instead of talc. Ozone up the ass kills them all and it is not poison to your body. I had two parasite tests done which said I had no infestation. I read somthing about infusing ozone inside the body and tried it, well soon after I SAW the parasites I did not have. Why could they not be found in my tests? They were long and skinny but they were all DEAD, no poison!!!
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Jul 29, 2008 2:20:23 GMT -5
Post by luvbuny on Jul 29, 2008 2:20:23 GMT -5
Thank u all so much for ur support cant believe im going this from my cell fone.
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mlc
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Feb 1, 2009 19:30:52 GMT -5
Post by mlc on Feb 1, 2009 19:30:52 GMT -5
i know this is a scary time in your life getting this horrible disease....one thing to keep in mind is.... your not alone. ask god for help. he's the only one you can count on. i've had this disease for 7 years. what's worked for me is spraying my bedding and furniture with amonia and water, bathing (daily) with hydrogen peroxide (2 bottles) & 1/2 cup of salt and taking MMS (jim humble miracle mineral solution) humblemiraclemineral.com/jim-humble/miracle-mineral-solution/ i tried just about everything it's the best. i also used menthol crystals in a diffuser to clean the air and did liver and colon cleanses regularly. to keeping everything functioing i took bromelain, milk thistle, cranberry & magnesium. selsum blue is real good for hair. but out of everything what really helped me was putting god back in my life.
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Jan 18, 2010 2:46:14 GMT -5
Post by scarredangel on Jan 18, 2010 2:46:14 GMT -5
Rub apple cider vinegar on your skin (RAW apple cider vinegar) and watch them emerge from your skin hard crystal-like lumps. Add it to your bathwater and watch in shock. Then do a body/liver cleanse and drink a combo of warm water, honey and 2 tbsps apple cider vinegar a day. I have had this since 1992....I just figured the solution out and my skin is clearing...no more bumps under the skin and my lesions are healing fast! It's GREAT so far! Just do it........
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Jan 29, 2010 1:55:08 GMT -5
Post by luvbuny on Jan 29, 2010 1:55:08 GMT -5
Just a quick note im still alive . after several attemps to end it all.
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Jan 30, 2010 19:55:45 GMT -5
Post by sunnydaze on Jan 30, 2010 19:55:45 GMT -5
Hi, Luvbunny -
Glad you are hanging there. This has got to be the hardest thing a person has ever got to face; it would have been easier if I'd been diagnosed with terminal cancer than to discover the nature of my condition.
But things are different now. I still have some depression, some anxious times, and some symptoms (but few). I have finally realized - or come to the place - where living with this is possible.
I know there are many different protocols out there, and few of them are affordable. But you should look through the suggestions here and on other boards (liked scarredangel's in the post above yours) to find one you can afford.
I think I know of you from another board - or someone with the same name. That is good. Reach out in all directions for support and information.
Together we can get through this...
Sunnydaze
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Feb 8, 2010 23:40:28 GMT -5
Post by luvbuny on Feb 8, 2010 23:40:28 GMT -5
to be as vhonest as i can i cant afford much more. spent so much these past few years just to find nothing is helping me. It seems no one comes on here any more why is this. i wonder
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Feb 9, 2010 17:17:59 GMT -5
Post by sunnydaze on Feb 9, 2010 17:17:59 GMT -5
It isn't a very active board. It may be that it isn't well-moderated. Crystal River kept it going for awhile but has had other things she's had to attend to.
It's kind of too bad, because this is the ideal board to discuss Dr. Staninger's protocol, but that has been tried and very little response. Oh, well.
Sunnydaze
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greggo
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Feb 10, 2010 17:23:53 GMT -5
Post by greggo on Feb 10, 2010 17:23:53 GMT -5
Dr Muir told me to use zinc paste long pants and long sleeve shirt most of my affected areas are exposed to sunlight,Greggo
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Feb 11, 2010 11:17:31 GMT -5
Post by luvbuny on Feb 11, 2010 11:17:31 GMT -5
i cant even wear clothing most of the time let alone long pants. with long pants they crawl around more active. most of the little sores are on my uppper back. developing track like bumps om the back of my left leg. the biting on my back is killer. HOW ever i will try and find the zinc paste what do i got to losse more money that i dont got any more of. THE BAD SIDE IM STARTING TO THINK TRYING TO KILL MYSELF AGAIN IS BEST.
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awake
Full Member
For nation will rise against nation, and kingdom against kingdom.
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Feb 11, 2010 12:58:38 GMT -5
Post by awake on Feb 11, 2010 12:58:38 GMT -5
Don't ever think of suicide. It is never an option... in life there is ALLWAYS hope. No matter what the sitution is you have to fight this monster called morgellons. If it helps you a talk with god might be benefitical...even if you have no faith or think it is not going to help. you don't have to be a member of a church to get to "know" god. You know god by the friut of the spirit which is love, joy, peace etc...
pray to Yahushua which is jesus's actual hebrew name. The one in the orginal translation of the world of god in the bible. (the torah which is also known as the five books of moses, it's the first five books of the bible)
There is remadies which will reduce symptoms...Simply changing what you eat will improve things somewhat. thing is nowadays it's nearly impossible to find food which hasn't been modified or messed with some way. Eating organic and cutting out foods which you know you have bad reactions to is a option.
Try and find small local farms who grow and sell their product directly... avoid big super markets where the source of the good is unknown. Do this only if you can find local growers... avoid fast foods and anything with artificial sweeteners in if you can... water is an issue too try getting a hard water filter to reduce anything which may be in the water that could aggrevate symptoms.
Awake
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greggo
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Feb 11, 2010 23:49:12 GMT -5
Post by greggo on Feb 11, 2010 23:49:12 GMT -5
Hang in there mate tomorrow I hope to get some answers to our questions as soon as I know whats going to happen all will be updated.Greggo.
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Feb 12, 2010 10:09:45 GMT -5
Post by morgellonsdude on Feb 12, 2010 10:09:45 GMT -5
I've had 'M' for approx. 2 years where crawling sensations were extreme and severe. Electro-shock treatments killed them off of the body, I found..... ----------------------------------- www.morgellonsgroup.proboards.com/index.cgi?action=display&board=alter&thread=3239&page=1----------------------------------- These days, it's more like bio-film.. some crawling...very little now. I am in the process of believing the Lord for a total healing (can't hurt to believe for this, I think). Symptoms are greatly reduced (as mentioned).... so far, so good... so to speak. Good Luck, God Bless, m....d.....
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tanya
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Feb 28, 2010 10:27:32 GMT -5
Post by tanya on Feb 28, 2010 10:27:32 GMT -5
i too live in california. i will travel anywhere for help. any luck with the doctors mentioned? i'm scared of getting scammed.
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tanya
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Feb 28, 2010 10:31:46 GMT -5
Post by tanya on Feb 28, 2010 10:31:46 GMT -5
i'm also so tired of living this way and want to go to sleep until they figure it all out and make it go away which seems to be never. i cry everyday and live in isolation. i am missing out on so much of the life i have - death - i'm a living dead so why not just be.......
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Feb 28, 2010 11:24:59 GMT -5
Post by depressed on Feb 28, 2010 11:24:59 GMT -5
hi every one, sorry to hear your hurting. dont give up. i felt like that too at one point. ive had this for 4 years. and im getting worse every day. my boyfriend and daughter think im nuts and dont believe any thing is wrong. so far they are not showing any signs. thank god. i really never had the biting but last couple months its bad. and the crawling is at its worst. from head to toe. im sorry to every one else i havent posted in a long time but read all your storys ever day. im lost and miserable too. like we all are. i am broke too but just bought some tea tree oil and borax and epsome salt. hope it helps. and ordered some neem lotion and oil and soap . should arive tomorrow. ive been reading alot on demodex mites. i think thats my problem. well take care everyone. i just wanted to let every one no. im still hear. and i hope one day we could get cured. me i cry every day too luv bunny . one day at a time. thats the best we could do. if you could afford it get some tea tree oil. it helps. and not to expensive and epsome salt for baths. take care all xoxo
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Feb 28, 2010 11:30:35 GMT -5
Post by depressed on Feb 28, 2010 11:30:35 GMT -5
one more thing. tanya please dont give up. ok . i no the pain your going through it has consumed my hole life. this is all i think about. and yes i want to sleep all the time thats when im out of pain. then i wake up and bamb the nightmear starts all over a gain. one day at a time. if that dont work one minute at a time..............if any one wants to call to talk pm me for my number................i could use a friend that understands..........................god knows no one in my life does. they all want me commited. and thats not happening. xoxo
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tanya
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Feb 28, 2010 17:48:47 GMT -5
Post by tanya on Feb 28, 2010 17:48:47 GMT -5
i am freaking out again - the worms poking and coming out of my face are toooo much to handle. its happening again anfd of course i'm alone as always even when there here. i losing it. its too much. someone please help me . i'm in the misdst of losing it. i feel sick and so creeped out. i hate myselfso much and wonder and ask what terrible thing did i do in life to be punished like this. i believe in god even tho my family goes to church - i quit - how can there be a god when all i experience everyday is this lonliness, isolation and hell
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