Post by texasrose on Sept 15, 2006 13:43:12 GMT -5
If you find anything else on the net that someone said they "talked" to Mr. Rutz at the CDC please copy and past it here. Mr. Rutz looks to be talking to a lot of folks - lets see if he says the same thing to each of them.
Here is the first one I have found:
NEWS:
I talked to Rutz and had a very polite and controlled conversation. He
really does not know all that much.
I only had 20 minutes before he had to rush off so I was not able to go into
fine detail and say all that I wanted to say. I let him talk quite a bit. He
also listened.
He stated that;
Scientists at the CDC are setting up a study which would include recording
symptoms and taking biopsies. I told him that most biopsies only show dead
skin and to see the fibers one must look at a live arm under a microscope
and dissect in person . He stated that such invasive measures requires
different standards of consent and permission, which I know to be true and
would take longer so they are just scratching the surface for now.
He stated that the CDC can compare the fibers to the FBI database as was
done in the show Medical Mysteries that I reminded him had that segment on
it.. The CDC can also do a DNA analysis to find out what the fibers actually
are, animal,mineral, vegetable, organic, non-organic etc.
I told him that the study group should consists of those individuals with no
drug or alcohol abuse and those with no mental conditions that take
medications for their condition.
I told him that most autoimmune disease have fatigue, brain fog, malaise,
etc and that the criteria for investigation should be non-healing skin
lesions with fibers.
I explained to him my thought on the fact that if your immune system is
compromised that this "disease" will strike you and that lyme, MS, sarcoid
etc is not part of the disease but conditions prior to this disease
attacking and that the element for this disease may be environmental and
only those with compromised immune systems catch it or show it.
I told him I had this for 5 years and that it went into remission for 10
years and that I had it for three years before it went into remission, an
illness of 18 years so far.
I told him it was contagious but those with darker skin seem to not be
susceptible to it and that most of us are women between 30 and 50 years of
age. He argued this point and stated that the female to male ratio is even
and I agreed to disagree.
I told him I believed it to be systemic, possibly stem cell related.
He stated that the scientist at the CDC are extremely interested, that the
investigation will be located in Southern California and that the CDC could
do an intensive invasive investigation which would take much longer but they
are concerned about public health and would like to do a primary
investigation with biopsies first. I told him that this type of research
will find nothing.
I told him that our main concern was that the CDC was a mouthpiece for the
Government and that their main goal was to disprove our "disease" and he
assured me that that was not the case and that those calling him and stating
that they know what this is and that they believe the government has
something to do with it will get a hang up response from him.
He stated that science works from the premise of not knowing and finding out
and not the other way around.( knowing and proving a point, as Mary has done
by connecting it to lyme and naming it before it was discovered.) . This is
true and I could not argue with him about this fact.
There is no number for a doctor to call and find out about the disease until
the study is completed.
He has no idea where and when and how the trials will be run, except that
they will be done as all investigations are done with the SOP of the CDC in
regard to yet unknown syndromes and compare reports and biopsies from
individuals taken by doctors involved in the investigation.
He only knows that the people involved are honestly concerned about finding
out what we have and that DNA and Fiber analysis will be one of the things
that does happen. He assured me that disproving it is not the goal. The CDC
is more concerned about seeing if this is of a contagious nature and if so
containing and/or managing it and then deciding what is the next plan of
action.
The CDC has one of the most advanced labs in the nation and if samples can
be taken from live people at the lab rather than being transported we may
have step one and two of our long walk towards recognition and a cure. That
does not appear to be happening.
He had to go to a "meeting" and I was not able ask the rest of the questions
I had which included if the CDC is working with the European CDC on this
matter. I will write him and ask him that when I send my "Thank you for
your time" letter.
I feel it is best to keep him on our side and for us not to alienate the CDC
but keep in close contact with him and find out if the things he has stated
do evolve into an actual investigation and then get repots of the
investigation after completion.
He knows very little other than what he is told by the scientists working on
this project, some of which are clinicians according to him. He is not a
doctor but a reporter, a NEWS guy.
I am willing to watch this step by step and to keep in contact with him
holding his hands to the fire about the very vague details he relayed to me.
My gut is that he is sincere in his beliefs that the CDC will do their best.
He may be in for a disappointment as we may be..but we have to play a wait
and see game right now.
He mentioned an EPI-A , I think it is which is the standard investigative
tool the CDC uses to investigate new diseases which will give it a case
definition. It is not designed for us, it is a standard tool that is in
place for all investigations and they are using this protocol/methodolog y to
investigate our syndrome.
I told him of our concerns. He is limited to what the CDC is doing and how
much they are telling him.
That is all they can do for now. I will keep asking for progress reports at
the beginning of each month and we will then be able to tell if I have been
lied to and if he is being told the truth. He seemed very sincere today.
That is my gut feeling. He was a Health reporter for CNN before he started
to work for the CDC.
My best bet is to call him each month and ask for a progress report. I had
no time to give him my political spin about how reporting at the State level
for this type of problem is useless and how are asses are bare to
bioterrorism. But I have next month to tell him that when I call him for a
progress report.
This was the best I could do. We left the conversation respecting one
another. It is best to keep your friends close and your enemies closer. I am
going by that credo.
Randy
(Got this off a Yahoo Group)
Here is the first one I have found:
NEWS:
I talked to Rutz and had a very polite and controlled conversation. He
really does not know all that much.
I only had 20 minutes before he had to rush off so I was not able to go into
fine detail and say all that I wanted to say. I let him talk quite a bit. He
also listened.
He stated that;
Scientists at the CDC are setting up a study which would include recording
symptoms and taking biopsies. I told him that most biopsies only show dead
skin and to see the fibers one must look at a live arm under a microscope
and dissect in person . He stated that such invasive measures requires
different standards of consent and permission, which I know to be true and
would take longer so they are just scratching the surface for now.
He stated that the CDC can compare the fibers to the FBI database as was
done in the show Medical Mysteries that I reminded him had that segment on
it.. The CDC can also do a DNA analysis to find out what the fibers actually
are, animal,mineral, vegetable, organic, non-organic etc.
I told him that the study group should consists of those individuals with no
drug or alcohol abuse and those with no mental conditions that take
medications for their condition.
I told him that most autoimmune disease have fatigue, brain fog, malaise,
etc and that the criteria for investigation should be non-healing skin
lesions with fibers.
I explained to him my thought on the fact that if your immune system is
compromised that this "disease" will strike you and that lyme, MS, sarcoid
etc is not part of the disease but conditions prior to this disease
attacking and that the element for this disease may be environmental and
only those with compromised immune systems catch it or show it.
I told him I had this for 5 years and that it went into remission for 10
years and that I had it for three years before it went into remission, an
illness of 18 years so far.
I told him it was contagious but those with darker skin seem to not be
susceptible to it and that most of us are women between 30 and 50 years of
age. He argued this point and stated that the female to male ratio is even
and I agreed to disagree.
I told him I believed it to be systemic, possibly stem cell related.
He stated that the scientist at the CDC are extremely interested, that the
investigation will be located in Southern California and that the CDC could
do an intensive invasive investigation which would take much longer but they
are concerned about public health and would like to do a primary
investigation with biopsies first. I told him that this type of research
will find nothing.
I told him that our main concern was that the CDC was a mouthpiece for the
Government and that their main goal was to disprove our "disease" and he
assured me that that was not the case and that those calling him and stating
that they know what this is and that they believe the government has
something to do with it will get a hang up response from him.
He stated that science works from the premise of not knowing and finding out
and not the other way around.( knowing and proving a point, as Mary has done
by connecting it to lyme and naming it before it was discovered.) . This is
true and I could not argue with him about this fact.
There is no number for a doctor to call and find out about the disease until
the study is completed.
He has no idea where and when and how the trials will be run, except that
they will be done as all investigations are done with the SOP of the CDC in
regard to yet unknown syndromes and compare reports and biopsies from
individuals taken by doctors involved in the investigation.
He only knows that the people involved are honestly concerned about finding
out what we have and that DNA and Fiber analysis will be one of the things
that does happen. He assured me that disproving it is not the goal. The CDC
is more concerned about seeing if this is of a contagious nature and if so
containing and/or managing it and then deciding what is the next plan of
action.
The CDC has one of the most advanced labs in the nation and if samples can
be taken from live people at the lab rather than being transported we may
have step one and two of our long walk towards recognition and a cure. That
does not appear to be happening.
He had to go to a "meeting" and I was not able ask the rest of the questions
I had which included if the CDC is working with the European CDC on this
matter. I will write him and ask him that when I send my "Thank you for
your time" letter.
I feel it is best to keep him on our side and for us not to alienate the CDC
but keep in close contact with him and find out if the things he has stated
do evolve into an actual investigation and then get repots of the
investigation after completion.
He knows very little other than what he is told by the scientists working on
this project, some of which are clinicians according to him. He is not a
doctor but a reporter, a NEWS guy.
I am willing to watch this step by step and to keep in contact with him
holding his hands to the fire about the very vague details he relayed to me.
My gut is that he is sincere in his beliefs that the CDC will do their best.
He may be in for a disappointment as we may be..but we have to play a wait
and see game right now.
He mentioned an EPI-A , I think it is which is the standard investigative
tool the CDC uses to investigate new diseases which will give it a case
definition. It is not designed for us, it is a standard tool that is in
place for all investigations and they are using this protocol/methodolog y to
investigate our syndrome.
I told him of our concerns. He is limited to what the CDC is doing and how
much they are telling him.
That is all they can do for now. I will keep asking for progress reports at
the beginning of each month and we will then be able to tell if I have been
lied to and if he is being told the truth. He seemed very sincere today.
That is my gut feeling. He was a Health reporter for CNN before he started
to work for the CDC.
My best bet is to call him each month and ask for a progress report. I had
no time to give him my political spin about how reporting at the State level
for this type of problem is useless and how are asses are bare to
bioterrorism. But I have next month to tell him that when I call him for a
progress report.
This was the best I could do. We left the conversation respecting one
another. It is best to keep your friends close and your enemies closer. I am
going by that credo.
Randy
(Got this off a Yahoo Group)