MORGELLONS..WHAT WE KNOW ABOUT THE FIBER DISEASE!

[CLIFF MICKELSON]

Morgellons - What We Do
And Don't Know About
The 'Fiber' Disease
By Cliff Mickelson
[e-mail]
5-19-6





To the question, "What is Known of Morgellons" the only possible answer is: "Not Much"
Excerpt from section V...The Callus

***

It should be clearly stated that among the few certainties extant about Morgellons that are absolutely provable is that there exists a nematode-like life form who's role is central to the affliction.

This fact can be irrefutably summoned into any court of evidence. The worm is a changeling. It is but one of several incarnations documented as complicit actors in a tragi-drama intent on opening to ever-wider numbers of audiences around the world.

As each successful actor has his own unique foil, so too does this peculiar creature have a proprietary shield.

This shield is what we know as the "callus."

Masked behind the security of an artificially manufactured "callus" the Morgellon's nematomorphic worm is master of the host's corporal stage. Hence it remains free to summon forth all the allied sounds of its diseased fury. And ... at curtain fall, it will leave in its wake only the grist of ruined lives and shattered dreams as evidentiary grounds for judgment by its unhappy audience of unwilling reviewers.

It is the organism's creation and composition of the callus and the nematomorph method of utilizing and dermo-forming the callus that begs understanding. To do so is to take the first step on the path that hold a promise of gaining the offensive and of an eventual cure.

My recent research indicates that the callus is more a product of the creature than a reaction of the host. This is more important of a distinction that it may at first appear. The callus, although it mimics skin to a phenomenal degree is, (IMO) NOT skin, or is at best a mixture of plasma and other body fluids chemically transformed by a specialized secretion of the nematomorph.

We know that the finished product is anchored with a tenacity that defies normal convention.

The callus usually makes its debut as a thick clear semi-sticky fluid extruded directly from the endodermis regions. Its consistency is comparable to a clear corn syrup. It has a drying time measured in minutes and at times in seconds. As a result, it is not uncommon for it to escape initial notice.

(This liquid also has other proto-funtions more apropos to other chapters)

The above described secretion is the cement from which the organism builds its callused fortress. It serves the creature well in both a defensive and offensive capacity. As the callus forms and hardens the adult nematomorph often integrates itself into it.

The secretion is also utilized to wash away the caustic effect of chemical attack and to reestablish its dominion within a perimeter where it may have suffered reverses due to enzyme attack or even cases of zealous tweezer tenacity.

More significantly, upwellings of this liquid are also found in previously uninfected areas of the host's body immediately prior to new or expanding colonization.

When left to pursue its natural course, the callus often exhibits a number of "flaps" or skinlike flakes extruding from its edge. When this leading or extruding flap is successfully grasped by tweezers and removed without the aid of being softened by enzyme action or 91% alcohol saturation, It tends to take its leave from the host body in the form of strips that are skin-like in appearance and are generally longer than they are wide.

As the strip is removed it will often appear to rip through the adjoining and/or connected callused areas much like a string through a bag of dog food.

Pain however, is usually minimal along the horizontal length being removed. It is only sharp at the point where the far end section of the nematomorph may be accessing the blood of the host.

The removed section of callus exhibits one interesting characteristic well worth noting. It, as well as any other removable sections in the immediate vicinity, will always only be completely removable in the same direction!

Once that direction is determined, the targeted strips of callus must always be peeled backwards against themselves. They cannot be entirely removed in any other manner or direction and will only break off if contrary removal is attempted.

As stated previously, this may be due to the fact that at there are nematomorphic forms that have physically embedded themselves within the matrix of the callus liquid prior to complete hardening. This tends to form lines of fracture that appear as strips whose borders are defined by a mutual point where other embedded objects are encountered or meshed with.

One additional result of this embedding is that each "strip" of callus has great tensile strength in a horizontal or linear direction. The strength is directly proportional to its length. It is more evident for older and longer embedded creatures and less for younger and therefore shorter ones.

The entire callus is further secured on the underside, (or skin side) not only by the super glue effect of the secretions of the creature, but also by dozens of protuberances that are somehow created as the callus forms and that appear to serve in the capacity of anchors. These "podia"give the undercarriage of the callus an appearance similar to that of the exoskeleton of a millipede or similar creature

(Note)

It is the "peeled back against itself" motion of callus removal that best enables the curved scimitar shaped podia to release their formidable hold on the flesh of the host.

Discerning observers will also note that there are often numbers of small nematomorph forms to be found among these podia.

To sum up: It is my contention to date that the callus is composed not only of the extruded secretion alone, but also that the adult worm is fond of encasing itself in this matrix.

Once embedded, it will remain fixed along its entire length with only a small flap of material protruding from just under the top leading edge of the callus. From these many points along the perimeter, the callus will often grow. These are the allegorical gates of the city. It is from here that one of the methods of creeping expansion are accomplished by the aid of further secretion by the creature as it grows and moves outwards in a horizontal and semicircular manner.

SECTION 5 ACTIVITY WITHIN THE CALLUS

New or juvenile forms found entering the above described callus life stage can be removed embedded in commensurately tiny strips of callus. Interestingly, and to the best of my knowledge, there appears to be no predetermined limit to the length that they may eventually attain.

I have removed such strips that have exceeded an inch or more and many new or small ones of less than a 1/32 of an inch. These strips tend to be very flat and almost "dry" at the leading edge, but much more moist at the end farthest from the leading edge of the callus.

A great majority of these objects that are not completely integrated together in a common secretion with others of their kind will exhibit two horn-like projections on the outer or forward leading edge. These "horns" give the removed object a look resembling a flatworm or fluke with the antennae of a slug or snail. (hence the original designation of "fluke form)

It is these extrusions or prior mentioned flaps that can be grasped by tweezers if one is quick enough. They will often slightly extend beyond the edge of the advancing, (growing) callus or lesion and will noticeably extend themselves even further when stimulated by outside pressure slightly behind their location.

The pressure required to achieve this end is that which occurs when the callus is repeatedly and lightly stroked or rubbed with any foreign object.

Should one attempt to seize this flap but then miss in the attempt, the extrusion will likely retract or curl back under the callus with impressive speed.

The far end of this form, when successfully removed, is anchored in the flesh of the host. It is at this point that the creature is accessing the blood stream. Following successful removal, it is at this point that the host will often bleed profusely. However, such a flow often suddenly stops as suddenly as it begins.

I suspect that this may be due to the fact that the blood is substantially thinned and "pooled" in this location and is serving as a reservoir for feeding reasons and/or larval nursery purposes.

The exiting blood can usually be seen to contain a number of amorphous fleshy objects that will manifest themselves in the flow. These are larvae. If this blood contaminates surrounding uninfected areas the infection is vectored and a new callus will begin to form within an exceptionally short period of time.

In advanced infections these calluses are highly overlaid in a scalelike manner, overlapping one upon the other in great number.

This trait greatly complicates eradication.

Individually the parasites and their shields can be seen as tiny white spots against the skin.

It is often necessary to rub or otherwise irritate the skin in order to highlight parasites at this level of development.

Collectively as the creatures mature, (grow) they merge to form large callused areas. This is due to the fact that when left undisturbed these individual parasites tend to grow in a slightly radial and forward manner. They soon connect with adjoining formations and eventually the mass assumes the appearance of a noticeable callus or they simply appear to the observer as would thickened, aged skin. The latter appearance is an indicator of young callus or (Newly colonized) regions.

No known limit has yet been established as to the attainable proportions of the size of a colony of embedded nematomorphic forms. In fact, there appears to be no arbitrary natural check to just how much or how wide an area of the host's skin surface this sheath of creatures can extend its colonizing activity.

The only difference between a callus and a lesion can be considered one of seniority with the lesion having precedence. A further definition would be that the callus is an enclosed wounding of the host while the lesion is an open wound that, due to suspected but yet to be identified abilities of the parasite, heals poorly, if at all.

- CliffMickelson

[Cliff Mickelson]

Hmmmm......Looks like we have some kind of problem with the board here?

I will see what we can find out as to what is going on.

-Cliff

[bc]

TO CLIFF, The things that float in the air do you know were they might fit in this puzzle . Seem like when we started to get better there less of them now . thank you

[Cliff Mickelson]

Hi BC:

Good question!

These things are likely one of the manifestations of this disease that have escaped more than a passing mention by nearly everyone, including myself.

I have seen some pretty interesting things zipping through the air, but have not researched them due to focus in other areas. Jan Smith has done a bit of work in this area, perhaps you might want to ask her?

Thanks for bringing up a neglected but important issue:

-Cliff

[P]

Hello,

I may have some helpful infomation for you. In 1976,,,I was 21 and developed this burning horrible rash. It felt like razors in my skin.
I had extreme exhaustion. I did have an emminent physician that did several biopsies. Most outstanding was the changes to the hair follicle itself and various atypical cell structure.

The best diagnosis at the time was a prodromal non hodgkins lymphoma.

I was treated with a Nitrogen Mustard topically. I would open two vials and mix with distilled water in a 4oz bottle and apply to the lesions.

After several weeks, the lesions began to cavitate and there was some wild looking stuff that came out. Fibers were the least of what was in there.

Within 5 months I had what my physician described as a miraculous remission. I used the Nitrogen Mustard on and off for several years on any lesion that might appear.

I think I have had a mild form of these fibers since then. On and off, but not nearly as bad as what is described. Honestly, I never bothered to look at the stuff up close. I can tell you that the moment that the fiber and the white thingy comes out, the lesion heals at light speed. Overnight sometimes.

I have read about Morgellons and it has been very hard for me to confront the possibility that I might have or have had this.

I am putting all of my own fear aside because there really may be a treatment here.

Good luck, God Bless and God speed a cure.

P

[P]

Cliff,

I applaud your own research and have been thinking that the various forms are suggestive of a colony and perhaps the presence of a queen. That would explain quite a bit in terms of the liklihood of contaigon. It might also be helpful in delivering a treatment.

Also, I think that some research should be done looking for anecdotal entries of strangle animal skin illness. It would be egotistical to think that it exists only in humans. All mammals should be fair game.

P

[whiterose]

P, I believe you are correct, the queen resides in the brain, right before she gives birth, at least with me, that is when there are the most seizures.

whiterose

[P]

Rose,

I believe that you believe that. I think that this is a parasite that needs oxygen at a higher level then can be delivered at a cellular level, thus the existance in the upper layers of the skin.

It may also need light...which also could support the theory that this is some type of parasitic cross in kingdoms.

When I said queen, I meant more like a herald patch...a place from which all things progress

[whiterose]

P, what a very condescending thing to say. Yes it does start in the skin, yes there are those that enjoy the light and yes it does start with a herald patch rash. It doesn't stop there and if you were a Morgellons sufferer you would know that, perhaps you are a medical person, perhaps not. It is obvious, at least to me, that you have a closed mind.

My name is whiterose, have a nice day.

[P]

Whiterose,

Perhaps it was condescending but I really was trying to be polite.
Yes, I am in the medical community, but I also believe that there may be a real disease here that people are suffering from.

Now, whether you like it or not there are a few perception problems you have here that will only hamper and delay real research and treatment. That becomes the problem for anyone who has this.

First, medicine is science. It is pragmatic and not based on a hunch.
Without slides, showing various slices of the brain and clear evidence of parasites, your statement is unsubstantiated.

Some very good research is being done that is showing clear evidence that this is a here-to-fore unrecognized syndrome.
You need to win hearts and minds and the best way to do that is stick with facts.

Second and this is important whiterose; There is going to be a percentage of people claiming to have Morgellons that are plain old garden variety scizophrenics. They are not going to help to advance this and I do believe there are many people that are afflicted.

These people are up against a rock wall and unsubstantiated statements of neuro nematodes just adds the hard place.

I hope to God this does not cross the blood brain barrier, but if it does then each second that ticks by is even that more precious.

p

[thinker]

P -

You will find some very discerning folks here. It is easy for us to pick out a whole handful of statements you have made that harkens back to another recent visitor or two.

We do not spend a lot of time on folks who contradict themselves or who apparently haven't done their homework well enough to fit in seamlessly.

If your purpose is that of distraction, we've already been there and aren't going back.

Blessings to you.

[whiterose]

Apology accepted, I understand science and I also understand being pragmatic.

In my opinion, one of the problems with the the medical community is that it has cut the body into pieces to diagnose and from personal experience I know you can cut one place and have it hurt someplace else.

I believe in a Holistic approach to medicine because we are more than just a physical body. We are always welcoming help in the scientific area of this research. The good folks involved in the discovery of this affliction and the ongoing search for a test that will be conclusive and will weed out the schizophrenics.

You go to a drs office and often times it is simply an educated guess.

My statements are not as an observer, but as a person afflicted with Morgellons.

It is sad that many doctors do not see, when a person suffers with something like this it is like a domino that ravages first the body, then the mind, and it even tests your soul. I do not expect you to comprehend what I have said, at least from the point of having Morgellons.

It is time the medical community LISTENS to the patients. I understand your statement in regards to tests in a lab, but we are people, can't you see, won't you hear.

I was at a town meeting once and there was a man hired by the opposition, they called him a moderator. It was so only what they wanted us to talk about was talked about. I stood up and said no, we are going to look at the whole picture and everyone behind me was shaking their heads in agreement.

Today I say this place is for the suffers of Morgellons to talk about the whole picture.

whiterose

[P]

thinker,

I think I was offering someone who is doing research an opportunity to test a drug and measure efficacy.

I doubt sincerely that the drug I mentioned has been tested.

I think that there is a better then good chance that it might work.

That is what you should be focusing on.

Reagrds,

P

[P]

Whiterose,

I am sorry for the way that the medical community has treated all of you. When I got sick, I was 20 tuning 21.

I saw one of the best MD's perhaps in the US and was treated with respect and dignity.

I was hospitalized for many weeks while they tried to figure out just what I had. Thankfully they looked with their eyes at my symptoms and not with closed minds.

They had the good sense to biopsy. At the time it was disconcerting that they did not match up to any one disease. There were a few follicular changes similiar to this one lymphoma.
They choose to treat with topical chemo.

Now, in 6 months, I was better and the lymphoma they said it was has a 90 % mortality in 18 months.

That was 30 years ago.

There are too many similarities to what all you describe.

P

[P]

Whiterose,

Do you know anyone that has had a biopsy done of a lesion?

I would love to see the reports...

I will dig to see if I can find something as well.

I am sorry for your suffering.

I think that the CDC and perhaps the government is trying to figure out a way to deal with this without creating mass hysteria.

There is a possibility that those of you who are symptomatic actually
have some sensitivity to this and your bodies are trying to reject it.
That would mean that there exists a large population that is infected and showing no symptoms.

I am wondering if there are any anecdotal reports floatng around from Medical Examiners and autopsies that have some findings.
I will look for that too.

P

[thinker]

Well, one thing is true...you certainly are from the medical/scientific community, because you are focusing on a topical treatment for a singular symptom, and we already know it's something much deeper than that.

I consider that if you had what we have, you would automatically know that...you can't help BUT know it.

So, ditto the homework comment. Just listen to one stinking radio show if you're going to come here and act like you know this situation.

Your comments make it crystal clear that you haven't sought much info at all. Or is it your job to disseminate (dis)info?

And you have no idea - and are in no position to tell me - what I should be focusing on. Not me or anyone else here.

You gonna pitch mustard snake oil next? Easy pay through Pay Pal? Cut to the chase, buddy.

[p]

Thinker,

You want to know what I know? Ok...I was told at 21, that I had 18 months to live. If someone told me that chewing the bark of a tree would heal me then I would have chewed it.

You don't know what you are talking about but I am sure there is someone here who does.

You really need to think about what type of secondary gain you are getting from this, so much so that you dismiss any type of help.

[aussie]

Hello P

I see that things are getting somewhat lively here and nobody will mind if I enter the discussion.

You say that in the 70's you had a biopsy done...so what excatly were the changes you mention to the hair follicles? Since the type of technology we now have for these processes wasn't available then, I gather is must have been somewhat cursory?

There are a number of agents which will cause the lesions to cavitate and expel the contents including fibres. Ganoderma toothpaste and a cream containing sulphur and boric acid worked for me, others have mentioned in posts what works best for them, without resorting to nitrogen mustard.

If you still have the fibres now, on and off, do you still use the nitrogen mustard or some other formula?

If the stuff cured you and you do not think the problem is systemic, why do you have any personal fear to put aside? Can it be because, deep down you don't really think you are cured?

Do you have a wife and/or children that you think may be affected as well?

As far as animals go, many people have noted that their pets are suffering the same symptoms as themselves.

Also, P, you must know that nematodes, flukes, worms etc exist happily in peoples organs and not just on the skin. We are most likely talking about multiple parasitic infestation as well as spirochettes from ticks and mycoplasma just for a start. At one time I had 3 types of parasites plus the spirochettes plus mycoplasma ....so.....

As you are in the medical community, without being specific(don't need no name tags or pack drill!), would you mind sharing with us what is your forte? Are you in research?

It doesn't really matter to the esteemed board members here, whether YOU believe there is a real disease or not- the fact is, people are suffering and have a common denominator, and your beliefs are just that, until you have some real proof to offer.

Were you actually offering yourself as a candidate for research on your findings? If so, why don't you contact our research doctors? Would you be willing to put yourself on the line with a brain biopsy if that's what you feel is necessary?

This forum doesn't exist or need to prove itself or "win hearts and minds". Those who need us will know to come here.

P, you mention "plain old garden variety schizophrenics".....what plain old garden do you think breeds them??? Anyone who is in the medical field would know that many so called mental illnesses are caused by parasitic, bacterial, and viral infections.

Toxoplasma gondii(exposure to cats) can cause people to become schizophrenic and other severe psychiatric disorders. Not to mention the 'in vitro' effect and exposure to cats in early childhood can cause schizophrenia to develop in later life. (T. gondii is a single cell parasite)

As you have noticed, members of this forum really get "the irrits" when they are told what they "should" be doing as if the author is an expert, and has all the answers. We do not exist to tell others what they should be doing.

My dear, we are all just "seekeers" in this journey, and the journey of life, at the present time.
If you want to be part of that journey, then I'm sure you are most welcome, but please, don't talk down to members, for in truth, you know us not - but "WE shall know THEM by their deeds"and their words.

Ps It's okay for you to say this happened 30 years ago and you think you have the cure, but you aren't really sure, are you ??

[P]

Honestly, I posted here because I thought that sharing some information might help all of you.

You all should care about perception. What if this is an orphan disease? Perception is reality and you do need to win hearts and minds of the public to get $$$ for research.

I was in NYC at the forefront of Aids in the early 1980's. I was there when we pieced it all together and it took everyone working together.
We had gay and Haitian men presenting with opportunistic infection that was only seen in the animal kingdom. It was frightening, but those effected were as concerned as we were and sharing of information was key. Those men were dying.

When you see an emerging disease, you have to look to the past for cases that were misdiagnosed or treated.

You need case studies of all who are symptomatic looking for some commonality. Possibly a weakened immune system? There must be a common thread. Pythium insidiosum seems to present in the animal kingdom with some similiar symptoms although fulminating.
Perhaps this is a hybrid?

There is a lot of misdirected anger here.

As for myself, I have never felt 100% about the lymphoma diagnosis. I did research in the late 70's that led me to look at wood ticks as a possible vector. No, I didn't have lyme.
My skin has remained fragile and any small cut/pimple will heal slowly. I do not have any other symptoms that you describe but I did when I was sick.

btw..i am a woman, married three kids and have had dogs my whole life. Everyone is healthy.

It just struck me that my symptoms when I was sick were so similiar
that I thought someone might drop some nitrogen mustard on some samples in a lab. Also remember that medicine is absorbed systemically through the skin. Nitrogen mustard is form of the mustard gas that was used in WW1. It is quite toxic.

As for a brain biopsy, well if I had all the syptoms you have, I would have it done. I know how I was when I was sick and I signed on for experimental treatments right off the bat. But that is me.

My pathology stated that the cells were atypical with changes to the hair follicle not unlike that of mycoses fungoides. It is a nasty lymphoma and a very horrible death. I don't think treatment has to this day moved beyond palliative.

I wish you all the best of luck...you are going to need it.

[thinker]

Apparently, you have read nothing here or anywhere else nor do you care to - no homework at all before starting and continuing your posts, yet you keep at it.

And I question your intelligence - or at least sound judgment. The rest of us will not be putting toxic mustard on our skin, because it MAKES NO SENSE AT ALL - whether we are going to DIE OR NOT. And we don't need doctors to use our common sense. You're lucky the doctors didn't kill you.

What makes you think it would have an effect on optical fiber anyway? Your comments do not reflect any comprehension whatsoever of what we are dealing with here. Perhaps you can find a forum that deals with whatever it is you had or have. I hope you're able to find it.

Your comments don't shake out at all and you've been rude from the git-go, so please, go. If you are indeed a female, get the hormones checked - testosterone imbalance, perhaps, because you come off as a blinder-wearing, so-stuck-inside-the-box scientist or doctor of the most male type.

And that last line - "I wish you all the best of luck ... you are going to need it," is that a genuine sentiment or threat? How dare you tell us about a very horrible death. You're nothing more than a fear monger and we have moved so far beyond that I'm surprised that even you haven't perceived it.

The commonality - you want to know the commonality? How about frankenscience? The stuff you obviously work right in the middle of. Tell your bosses it's time to do some WHAT IF TESTS, to get some morality and ethics before it's too late. It's a matter of time till this stuff turns around and goes home to roost in YOUR organs.

[aussie]

Dear P

Obviously you regard yourself as not being part of the group(is that why you didn't join as a member?).....when you write, "you should" and "you need" to do this and that....what you are really saying is, "You people", aren't you? We see the separation.

If you were involved in the AIDS story, can you tell us what the conclusions you and your group came to in your exhaustive study? I would be really very interested to hear that.

Perhaps when you see an emerging disease, it maybe more appropriate to know what our little "men in white coats" have been up to in their funded laboratories?

And, maybe you are correct in saying our little imp could be a hybrid. We are all looking for answers and the research doctors we have working on it will tell us as soon as they can. If you know anyone more qualified to help, please say so. Are you qualified?

The members of this board aren't angry, just protective and dislike being patronised by a "Johnny."..sorry..... "Jane Come Lately". If you could perhaps adopt a different style of prose it might be more user friendly.

To whom are you referring when you say "If I had all the symptoms you have, I would have it done" (brain biopsy)? I assume you are not referring to myself, as if you have read my previous posts you willl know that I have my own cure, but I don't try to tell others what they should do....I just put it "out there" to take or to leave.

Whre is the "misdirected anger" you mention? I just asked a few questions and I don't believe you answered them.

Perhaps you are a sufferer who is "in denial"?

[P]

Final Post

I posted here to respond to a Mr. Michelson who is doing quite a bit of good research. If a medicine could be identified that is effective then it needs to be broken down to see which compound it is. Toxicity must be weighed but there are no drugs for parasites that are without side effects.


I was not suggesting any person use Nitrogen Mustard, I was suggesting someone look at it in a Lab. This was obviously the wrong forum.

When a pharmaceutical company looks at a new and emerging illness, they are going to throw everything on the shelves at it.
It is a time consuming process. If they started today and got lucky, it would be 3 to 5 years to see a drug.

You may not like the scientific process but it works.

[thinker]

You don't get it at all, do you?

It is the scientific process that put this into our systems in the first place.

You are definitely male. And look at your symptoms again - they do not match the M's profile. Nor does your rhetoric match someone whose motivation is what you claim it is.

[whiterose]

thinker is correct, sir. Your post does not appear to be of the motivation that you claim. We are working very hard here to help those in need. I suggest if you think you really have something to offer you should write Cliff personally. I'm sure he would reply.

whiterose

[bc]

I was watching some thing on tv . about this guy who never got aids but was doing ever thing usle that his friends were doing who were dying . What the reseacher came up with is some one in his family had gotten the black death and did knot die and pass gene or something down to him that sheild him from getting aid . I think the cdc is working on something we just are not going to know untell they come up with something . I was told that cdc has a few things going on for this but they never tell you what there doing . THE cdc has always been nice to me . I hope someone know what this is soon or maybe they allready do .you know what they say smiling is contagaious so lets pass it on . take care god loves us

[0happyday]

Hello, I haven't had time to read a lot of the posts and I am new to this forum. I have known something was wrong for 4 years. I had read an article a couple of months ago where someone mentioned 4 stages to Morgellons. I don't have very much strength anymore and my memory is getting worse each day. I have always been a great speller and am having difficulty in the last week. Any information would be greatly appreciated. 0happyday

[thinker]

Hi! We're so happy you found us.

Maybe the best thing to do is keep reading through the threads at this point.

You definitely sound like you've got some of the awful symptoms, and different folks have found different things that help.

I guess one of our golden rules here is: First do no harm.

And that's the slippery slope - Dr. Hildy is working on coming up with a treatment for this stuff. No one is sure if you treat yourself and stop some of the symptoms whether you're doing more harm internally or not. The "Chain Reactions" thread hits on that topic (in the General board).

So it's really hard to say what to do right now. Do some reading and see if anything hits home. Before you try anything you can always post and ask what the members' comments are on what you are thinking of trying.

There are some really experienced people here, and they have lots to share, so just hang on and we'll all get through this together.

Happy reading!!

P.S. You can also send a PM (personal message) to someone if you'd like.

[sarahconnor]

It should be clearly stated that among the few certainties extant about Morgellons that are absolutely provable is that there exists a nematode-like life form who's role is central to the affliction.

This fact can be irrefutably summoned into any court of evidence. The worm is a changeling. It is but one of several incarnations documented as complicit actors in a tragi-drama intent on opening to ever-wider numbers of audiences around the world.

As each successful actor has his own unique foil, so too does this peculiar creature have a proprietary shield.

This shield is what we know as the "callus."

I guess that makes me a "callus" then hey?

[beverlybdmd]

P said:

Final Post

Good GOD.
I am new to this board and I must admit that I am shocked by what I read. Your membership reacted violently and harshly to this woman, and yet I have read TOTALLY contradictory "Facts" baldy stated in different locations, such as by Thinker & Cliff. Now I don't pretend to know who has the inside track on the TRUTH about this illness, but the idea that you would come down so hard on this lady because she talks like a doctor who we have all once seen and had a bad experience with in our OWN pasts, seems just a little short-sighted.

How can it hurt for our community to build bridges with established medical personnel? Lord, she was actually attempting to have an open mind! Not very many of MY doctors would have bothered to come on-line here and then return AT ALL, after that treatment, let alone make several attempts to apologize and explain herself!

If this is how you-all treat medical personnel, then I obviously do not belong here either, I suppose. Just because I have had this illness for 25 years, and happen to have been actively treating myself alone for most of that time, doesn't mean that I can't learn from others' experience. Can you?

-Beverlybdmd

[aussie]

Dear Beverlybdmd,

I see you have md at the end of your name. Does that mean you are a member of the medical profession?

Your comments are obviously referring to some discussions on the Board with Guest "P", some time back.

It's a funny thing but members of this Board really dislike being "spoken down" to by guests, who offer no proof of their credentials. Who do not even respect us enough to register as members of the Board. It is a very easy exercise, as you know.

Can you tell me what "totally contradictory facts baldly stated in different locations by Thinker and Cliff" you are referring to?

Anyone can "talk like a doctor". That doesn't mean they are one. And, for that matter, have you read lately the death statistics caused by mistakes of the medical profession?

Most members of this board have been shunned or given a ridiculous diagnosis by members of the medical community.

If you think so much of the medical community, how come you have been treating yourself alone for 25 years?

And yes, we have learnt many things and we have shared them with each other and we do have very open minds. We are forced to think outside the box.

This Board has a very close rapport with Dr Hildegarde Staninger and Dr Karjoo, who are working on our behalf, as I write. Now, they are credible....maybe "incredible" would be a better word. If you have any doubts go to www.rense.com and read about them, and their ground breaking research on Morgellons.

We have a very supportive Forum here....it has literally been a lifesaver for many of us and I am sure the other members will back me up when I say this.

Believe me Beverlybdmd, when I say that we are learning all the time from the experiences of others, and if you care to join us in our shared experience that is great!