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Post by nomad4answers on Jan 22, 2008 22:59:28 GMT -5
My name is Britt Vineyard, I am 21 years old. I have been dealing with health "issues" for the past three years- but have been dealing more specifically with symptoms I now relate to Morgellons in the last nine months. In that time I have accumulated enough scars for a life time... I deal with fatigue, anxiety, depression and insomnia on an almost daily basis. I have lost two jobs in the past seven months, and have been accused of being the reason for my own demise. I have been to a number of different doctors (most low grade enough for the uninsured like myself) and had different blood and other such tests done. The dermatologist that i saw dubbed me with folliculitis. I'm on a medication (DOXYCYCL HYC) that I believe helps in the healing process of sores BUT does not prevent them from reoccuring. When I found out about this condition, I wrote anyone I could to find answers...even the cdc. I have found countless other stories like mine, and some so much more progressed- it makes it hard to believe that help still doesnt exsist... here is a video blog i made a bit ago www.youtube.com/swf/l.swf?video_id=K9qEZRnc-bg&rel=1&eurl=&iurl=http%3A//i.ytimg.com/vi/K9qEZRnc-bg/default.jpg&t=OEgsToPDskLEgoutRIIkK6wpJJmLaqfN&
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Post by depressed on Jan 24, 2008 9:08:27 GMT -5
hi how are u feeling lately . me my self i feel miserable and dont no how to deal with this.. has any one u have been in contact with have this,, ive had this for 2 years, and my daughter and boyfriend dont seen to have it . only little signs. that scares me.. they itch now and again like as if something bit them.. but they blow it off and they think im nuts and dont want to here me complain. so i cry everyday and try to act normal. but cant.. somedays are worse then others and my boyfriend has probably just about had it with me being so crabby... he hasnt a clue.... he wouldnt be able to handle this for one day, and my daughter is showing signs with little bumps but says they dont bother her and wont let me look.... hey do u have little bumps like goose bumps.. i have thousands... i had a byobsy and they said it was hyperkeritisis i think i have morgs and this, this is ruined my life... all i want to do is be normal... agian... do u itch? i do sometimes more burning than itch.... do u see little white things coming out of ur skin? i do and pck out everyday. sorry if im being nosey just wondering take care dawn wbs
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Post by nomad4answers on Jan 24, 2008 17:47:38 GMT -5
sometimes I itch, sometimes I dont sometimes I get white things but more often than not I get little red fibers or black specks ... the hardest thing to handle for myself is the non-healing part of it. I live with lesions and sores for months sometimes... its hard to have anyone understand what kind of toll this can take on us ... there is this part of me that wants to create world-wide activism and awareness for us ... but how, if even our own loved -ones wont acknowledge it? all we can do for now is be strong for eachother I suppose
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praying4usall
Full Member
He shall cover you with His Feathers, under His Wings you will find Refuge.
Posts: 244
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Post by praying4usall on Jan 24, 2008 18:40:04 GMT -5
I'm sorry that your family doesn't understand. I wish mine didn't still plead with me to come around them. It breaks my heart to hear how they need me in their lives, and I put them off and tell them why. They have read all about it, and know a lot of what I've been through especially since last April. They still say they'd rather take the risk, but I also see (hear anyway), what is happening to others, as well as the hell I've been through. So I keep as much distance as I can from the ones that don't have it.
I don't know what I'd do without the special friends I've made on here!
Thanks everybody, for all and any encouragement & information you've ever sent my way!
Blessings, Celia
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Post by gypsyknows on May 24, 2008 16:24:49 GMT -5
I hear you Celia my loved ones just want me close and me a once outgoing social butterfly prefers to be alone. Im consumed and wish for death everyday. What exactly are we being strong for? Just a question I ask myself everyday. Robyn
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Post by shubot on May 24, 2008 21:55:35 GMT -5
I hear you Celia my loved ones just want me close and me a once outgoing social butterfly prefers to be alone. Im consumed and wish for death everyday. What exactly are we being strong for? Just a question I ask myself everyday. Robyn Hi, gypsyknows, Welcome here, you will find great friends here, very kind, friendly, helpful people. Please do not give up. Pray, try what is helping others. I will send you a pm. shubot
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Post by bygraceofgod on Jun 4, 2008 0:50:04 GMT -5
Nomad, You are not alone. There are many wonderful people here willing to help and share anything that has worked for them. You're going to need God to help you through this too. Blessings, Grace
PS. your video no longer works.
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Post by Awake on Jun 4, 2008 19:40:23 GMT -5
Hi, there!
I am 21 and i know all about the denial of others especially of my own parents...O dear!...they basically think I've completely lost it. I do try to explain, but i find it difficult to say it in a way that doesn't instantly but me in a category of mental illness! and by the way this dos produce metal issues in it's own right. I have only recently had my twenty 1st birthday (18th of may) I think i got morgellons approximately a year ago. I think i had small symptoms going back about three years tho crawling sensations, itching and rashes were the first noticeable symptoms. Then it went into a new phase when i was at collage at the time. I found myself becoming fatigued and depressed I also noticed my personality changing and becoming more irratible about little things... I left my course and finished my time at collage.
At the moment this is were i am i have nights were i lay awake with the feelings of crawling in my skin and sometimes intense itching and involuntary spasms in my limbs when i get the bitting feelings - these can get very bad especially when you are tired and trying to sleep in my case anyway. As for support i have none from anyone including my family. It is not there fault tho that they don't understand this... when i look at it from there perspective it is completely understandable... morgellons in it's self is way beyond and quite unlike anything else...just who would believe you if you had red/blue fibers coming out of your skin with sores and goo. I recently got a students microscope with a magnification range of 50x to 1000x which i go round the house finding these "fibers" every were and i place them onto a glass specimen slide were i can view them under magnification (being the geek that i am!).
Don't worry we are all in the right place and the only place that everyone understands each other.
-Awakening2012-
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Post by wozlzl on Apr 22, 2010 21:43:17 GMT -5
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