Post by sally on Apr 5, 2020 13:47:34 GMT -5
Hi Friends, I’m Sally and have been dealing with disabling symptoms for almost 20 years, very extreme for 5 (in “clearing process”) Maybe some have seen a video or two of mine on Youtube?
I live in Montana mostly but was born in Granger Utah in September of 1976. My dad worked turn-around “nuke-house” jobs for the first 5 years of my life. (Sister born in Hermiston/Umatilla and brother in Pheonix for the Paleo Verde) I am the one with Morgellons. My dad built those proving grounds / nuclear plants and something along the way, most likely from Dugway, got to me?
We lived in Tulsa several years as well and I got a tick bite in Arkansas on the lake visiting grandparents. I also was bit in Tulsa in College. Before college I went on a missionary trip to Nicaragua (1993) I got pregnant just after and had my first and only son on 8/1/1994. My aunt and uncle adopted him and their family moved to Omsk the year after the Tomsk spill and when he was 1 year old. Josiah had a “mysterious and unknown” spot on his heart seen from the first ultrasound, it hadn’t appeared to progress until they moved to Siberia and then he got really sick, he was flown to Helsinki Finland for what they thought would be a heart surgery. However, when they went to operate they found infections and growths to completely fill his body, organs and brain especially and he couldn’t be saved. Josiah passed on 4-4-1996 at 20 months old and he has a missionary and medical supply boat (welded by my dad!) that operates on the Amazon River in Peru! But oddly, besides a “puffy” body and really cute “puffy” cheeks, he only ever showed mild Bartonella mouth area rashes as a baby.
My life has been very hellish all along the way up until 43 years old. I’m getting better, doing reasonable sound natural stuff and know of all the “remedies” but still plan to take the advice to get treatment from a Lyme literate ND and there is a good Morgellons ND near me. I need disability to get the IGeneX (Medicare B is now covering if you can get your Nurse Practicioner (sorry lost spelling skills) or Doctor to work with ND to order them!!) I got a bit of vague validation from an ENT that has diagnosed me with mold mycotoxins and also electrical sensitivity and referred me to The Environmental Health Center in Dallas?
Now my only other surviving child is 20, has had many misdiagnosis related to, and is having a baby! Exciting because I feared she would become infertile as I have, but still super concerning!
I have a telephone hearing for SSDI on April 17, 2020, afternoon Mountain Time (1ish? I think?) but I NEED THE PRAYERS of my fellow Morgies so much and would appreciate any! All the doctors reports conflicting of course and now they’re giving me the blame for a fluctuating thyroid problem!
Thank you again and I will try to be more involved and hope to find the other “Dugway Proving Ground” victims with Morgellons Disease that brought me back to this forum!! I saw there was a “Nelson” family in an article and that is a family line from a grandparent. Josiah and many of our boys favor the Swedish Gene?? Is there a connection there I wonder?
Y’all Be BLESSED Now and HANG in there! Good and Pure peoples needed on this earth!!
💚💚Sally
I live in Montana mostly but was born in Granger Utah in September of 1976. My dad worked turn-around “nuke-house” jobs for the first 5 years of my life. (Sister born in Hermiston/Umatilla and brother in Pheonix for the Paleo Verde) I am the one with Morgellons. My dad built those proving grounds / nuclear plants and something along the way, most likely from Dugway, got to me?
We lived in Tulsa several years as well and I got a tick bite in Arkansas on the lake visiting grandparents. I also was bit in Tulsa in College. Before college I went on a missionary trip to Nicaragua (1993) I got pregnant just after and had my first and only son on 8/1/1994. My aunt and uncle adopted him and their family moved to Omsk the year after the Tomsk spill and when he was 1 year old. Josiah had a “mysterious and unknown” spot on his heart seen from the first ultrasound, it hadn’t appeared to progress until they moved to Siberia and then he got really sick, he was flown to Helsinki Finland for what they thought would be a heart surgery. However, when they went to operate they found infections and growths to completely fill his body, organs and brain especially and he couldn’t be saved. Josiah passed on 4-4-1996 at 20 months old and he has a missionary and medical supply boat (welded by my dad!) that operates on the Amazon River in Peru! But oddly, besides a “puffy” body and really cute “puffy” cheeks, he only ever showed mild Bartonella mouth area rashes as a baby.
My life has been very hellish all along the way up until 43 years old. I’m getting better, doing reasonable sound natural stuff and know of all the “remedies” but still plan to take the advice to get treatment from a Lyme literate ND and there is a good Morgellons ND near me. I need disability to get the IGeneX (Medicare B is now covering if you can get your Nurse Practicioner (sorry lost spelling skills) or Doctor to work with ND to order them!!) I got a bit of vague validation from an ENT that has diagnosed me with mold mycotoxins and also electrical sensitivity and referred me to The Environmental Health Center in Dallas?
Now my only other surviving child is 20, has had many misdiagnosis related to, and is having a baby! Exciting because I feared she would become infertile as I have, but still super concerning!
I have a telephone hearing for SSDI on April 17, 2020, afternoon Mountain Time (1ish? I think?) but I NEED THE PRAYERS of my fellow Morgies so much and would appreciate any! All the doctors reports conflicting of course and now they’re giving me the blame for a fluctuating thyroid problem!
Thank you again and I will try to be more involved and hope to find the other “Dugway Proving Ground” victims with Morgellons Disease that brought me back to this forum!! I saw there was a “Nelson” family in an article and that is a family line from a grandparent. Josiah and many of our boys favor the Swedish Gene?? Is there a connection there I wonder?
Y’all Be BLESSED Now and HANG in there! Good and Pure peoples needed on this earth!!
💚💚Sally