Post by needhelpky on Aug 28, 2013 2:14:50 GMT -5
I am looking for some support and recommendations. Has anyone been dx Morgellons due to their breast implants? If so, I would love to hear from you. I had my implants removed 5 months ago. After being very ill with so many symptoms for past 6 years with no answers, I recently found out my implants were the cause. They were sent to a lab in Canada. Aspergillus mold along with other fungi and bacteria. My lymph nodes that were removed had silicone in them from the implant shell. My doctor in Atlanta dx me with Morgellons. Finally after having these bloody lesions for 13 yrs , that takes months to heal I had a name!!!!! My doctor is 5 hours away and in my area no one has heard of Morgellons. Then to find out most think it is in your head!!!!! In 2000 I started getting these lesions on my back and chest. I always have to soak my clothes and bed linens. Itching seems worse at night. My back is severely scarred. The multitude of Dermatologist had no idea what it was. Of course since they didn't know it had to be stress. At that time I felt healthy and was very active other than chronic sinusitis . I was loving life so I knew it wasn't stress. 6 years ago life as I knew it was over. I became very ill will a list of symptoms as long as Santa's list. I ended up dx myself in regards to implants by watching Monsters Inside Me. I now have a wonderful physician in Atlanta , Ga. Whom has written a book regarding breast implants making women sick. There is a chapter on Morgellons disease. Now I have found out that I have several metals and toxins due to the silicone. My lesions have spread to scalp, stomach and legs. Has anyone had any success with anything topical for scalp lesions?
I look forward to finally being able to talk with people whom understand this horrible disease. I have been very depressed as I am sure all of you have. I am so thankful that I finally know what I am dealing with. The not knowing was the worst. People would always ask " what is wrong with you?" And you can't tell them a dx. Many people begin to think it is all in your head. I have been very lucky to have my Mother. She has been there every step of the way even driving me so I wouldn't loose my job. She would tell the 60 +physicians with tears in her eyes "this is not my daughter, something is terribly wrong with her!" I hope you all have a health care cheerleader on your side, it makes all the difference. Sorry I wrote a book, I still have so much more to say. I wish you all the best and pray we get the recognition and respect we deserve.
I look forward to finally being able to talk with people whom understand this horrible disease. I have been very depressed as I am sure all of you have. I am so thankful that I finally know what I am dealing with. The not knowing was the worst. People would always ask " what is wrong with you?" And you can't tell them a dx. Many people begin to think it is all in your head. I have been very lucky to have my Mother. She has been there every step of the way even driving me so I wouldn't loose my job. She would tell the 60 +physicians with tears in her eyes "this is not my daughter, something is terribly wrong with her!" I hope you all have a health care cheerleader on your side, it makes all the difference. Sorry I wrote a book, I still have so much more to say. I wish you all the best and pray we get the recognition and respect we deserve.