Post by bellaluna515 on Jun 5, 2012 12:48:28 GMT -5
Hi, My name is Mia and i'm a newbie. i'm gonna try to tell my story and than share what has been working for me.
Well first of all, up until sunday evening I would have sworn on everything that what i have been dealing with for the past 10years, was fiberglass/asbestos mixed, and here is why.
I was 25, ran 3 circle k's, did pro bono paralegal worried to k, walked 5 miles a day and cherished my 2 girls, ages 7 & 5. and I went and got myself my 1st, (and only) new car. it was so new it rolled off the plant 2days before and only had the 3test miles on it. 14days later i got called into an emergancy and left home not even saying goodbye to my girls and told my boyfriend be back soon. i was driving 5 over the speed limit going 60 when someone tried to race traffic and cross. I ended up with my heart stopped for over a minute, pinned by the engine, tranny in the back seat. i only have 4 memories of the next few years, 1 the crash. 2 my boyfriend singing "we belong" as i lay covered in glass, him carrying me up 2flights of stairs with my girls, and sitting at my desk with my hand in hot water to try to bring out a shard of glass that was hurting five minutes later as i looked down pulling my hand out, the bowl of water was black and as i watched the blackness condenced into a round ball at the bottom of the bowl.
my life of hell just got worse next memory i have is my girls were 10 and 12. i guess it hadnt been that long since the "bowl" but thats when my new life began. laying in bed at night i wud wake up on what looked like gravel, giant sores everywhere and fibers that floated and glittered and would shoollt toward, lightbulbs and electronics. and pain oh my gosh the pain. and this was on top of all my other inguries, i was still learning to walk again.
new personality, mild tramatic brain injury, and my once cherished abilities of a photographic memory and my gift of playing instrments gone. just gone.
using what was left of my brain i put 2 and 2 together and realized that i had been covered by the hoodliner of the engine in the pictures i saw of my accident, and knew the headliner was made of fiberglass. so all my research on healing stems from that assumption.
I have all the symptoms you all do, (same as toxic exsposure to fiberglass) and everything i heard about morgellons was... you all crazy! NOT
i cant be in the sun, sun plus any temp over 80 and im in hell, seizures, im now so tired i have my 1st bed sore (of course complicated by fibers) i put $600 away last year, that we really need now... and i don't remember where i put my phone, 'darnitt i just had it!'
I can not eat or have a bowel movement with medication. and if i forget i'm throwing up everywhere. i'm never hungry and i have gained a pound a day since november.
the middle of april i had my first full blown outbreak in over a year, and for the first time ever i was able to get pictures of everything with my cell of all things! (every outbreak i have tried to get real proof trying to take pics or video, and if the fibers did show up, u couldn't tell they where coming OUT of me.)
I have to admit i may have gone a little nuts with the taking of pics, but i even caought an awesome one of a fiber in my eye.
anyway i had been wanting to look at them under a microscope forever but lost the slides, and the scope until the past 2 weeks. right around my birthday (5/15) i not only felt good enough to think, but i even got to clean alittle! and found the slides. on the 21st i had to go into town, i took 4 caffine pills and drank a pot of coffee and while gone, lost my wallett. and ended up not home when the temp reached 115. i was starting to swell and rash and i ran to circle k bought ice, dumped half the bag down my front and put the rest at my back.
i still dont know how i made it home safe. by the time i reached safety my right eye was swollen shut with fibers bursting out, sores everywhere, and i cudnt stop screaming until an hour later with my youngest having me lay on icepacks.
ii'm just now starting to feel ok. as in laying here so tired...
anyway found the scope sunday and looked. i stared awestruck.
i desidied to put up a page with my symtpons hoping there were others to help me proove fiberglass," cuz no doctor believed me, and the 20+ including the cdc ever responeded back, and honestly i seriously thought of suicde this past week" and for the first time typed in fibers not fiberglass, coming out of skin. Morgellons came up (which i dismissed) and started to scroll down until i saw the photo and froze. and right after that the headline "new report shows its real not delusional" last night i finally stopped reading and cryed my eyes out. all i could and still think is i d**ned my family. my husband has fibers, my eldest has fibers still and shes been at collage for 3years, and my brother who lived with us when all my hair fell out, has them too, and he now has twin 2year old boys. are they too gonna have their bodies shut down because of me? i'm terrified!
i am sorry to feel and say i'm glad there are you guys out there, but i'm more scared now than ever.
I'M SO SORRY ITS SO LONG!
TIPS: My ritual is based off of fiberglass removal, and it helps, alot so..
1. get rid of all cotton clothes, sheets, blankets.
satin, sateen sheets keep the fibers from embeding themselves, they just lay on top.
i even covered my walls in satin cloth.
2.do not sauna unless you want the sores to appear.
3. no hot showers, baths. lukewarm at the hottest
same with dishes, you can soak them until the water cools
4. cover up as much as possible when outside, the suns uv rays start an outbreak for me everytime. I bought tight leggings and made sleeves.
5. when starting to overheat squirt self with water on mist.
and i use the "wax on/ paint the fence " method for fibby sores.
(a) either apply lidocain cream or spray to sore. if using spray, than put a liberal application of body butter or cream to sore,
(b) wait until cream gets crusty looking than either take a washcloth (which gets expesive replacing) towlett paper or paper towel *scott & brawney work best, yoou do not want the soft kind* and start rubbing curcular. first 1 way than reverse. repete 2xs than go up and down, one way than the other.
(c) if it starts feeling to dry, repete cream step.
-i hurts, bad, but it works
(d) you can pause and look, take twizzers to the fibers that are half in and out and are stuck and than repete above.
(e) i do it until the pain changes from kill me please to ow its raw.
and repete per sore let it heal overnight.
for me 90% of the time the next day it looks like its has been healing for over a week and the scars are not as bad
if you have the ones that got smaller overnight but formed that hard shell, u have to pull all the shell off before repeating above steps.
(i have pics.)
and last after showering and before bed, apply, body butter or cream to entire self get it in there, than powder yourself up
i do not know why but it helps the fibers just coming out instead of ripping out.
again sorry im sorry its so long.
Mia
Well first of all, up until sunday evening I would have sworn on everything that what i have been dealing with for the past 10years, was fiberglass/asbestos mixed, and here is why.
I was 25, ran 3 circle k's, did pro bono paralegal worried to k, walked 5 miles a day and cherished my 2 girls, ages 7 & 5. and I went and got myself my 1st, (and only) new car. it was so new it rolled off the plant 2days before and only had the 3test miles on it. 14days later i got called into an emergancy and left home not even saying goodbye to my girls and told my boyfriend be back soon. i was driving 5 over the speed limit going 60 when someone tried to race traffic and cross. I ended up with my heart stopped for over a minute, pinned by the engine, tranny in the back seat. i only have 4 memories of the next few years, 1 the crash. 2 my boyfriend singing "we belong" as i lay covered in glass, him carrying me up 2flights of stairs with my girls, and sitting at my desk with my hand in hot water to try to bring out a shard of glass that was hurting five minutes later as i looked down pulling my hand out, the bowl of water was black and as i watched the blackness condenced into a round ball at the bottom of the bowl.
my life of hell just got worse next memory i have is my girls were 10 and 12. i guess it hadnt been that long since the "bowl" but thats when my new life began. laying in bed at night i wud wake up on what looked like gravel, giant sores everywhere and fibers that floated and glittered and would shoollt toward, lightbulbs and electronics. and pain oh my gosh the pain. and this was on top of all my other inguries, i was still learning to walk again.
new personality, mild tramatic brain injury, and my once cherished abilities of a photographic memory and my gift of playing instrments gone. just gone.
using what was left of my brain i put 2 and 2 together and realized that i had been covered by the hoodliner of the engine in the pictures i saw of my accident, and knew the headliner was made of fiberglass. so all my research on healing stems from that assumption.
I have all the symptoms you all do, (same as toxic exsposure to fiberglass) and everything i heard about morgellons was... you all crazy! NOT
i cant be in the sun, sun plus any temp over 80 and im in hell, seizures, im now so tired i have my 1st bed sore (of course complicated by fibers) i put $600 away last year, that we really need now... and i don't remember where i put my phone, 'darnitt i just had it!'
I can not eat or have a bowel movement with medication. and if i forget i'm throwing up everywhere. i'm never hungry and i have gained a pound a day since november.
the middle of april i had my first full blown outbreak in over a year, and for the first time ever i was able to get pictures of everything with my cell of all things! (every outbreak i have tried to get real proof trying to take pics or video, and if the fibers did show up, u couldn't tell they where coming OUT of me.)
I have to admit i may have gone a little nuts with the taking of pics, but i even caought an awesome one of a fiber in my eye.
anyway i had been wanting to look at them under a microscope forever but lost the slides, and the scope until the past 2 weeks. right around my birthday (5/15) i not only felt good enough to think, but i even got to clean alittle! and found the slides. on the 21st i had to go into town, i took 4 caffine pills and drank a pot of coffee and while gone, lost my wallett. and ended up not home when the temp reached 115. i was starting to swell and rash and i ran to circle k bought ice, dumped half the bag down my front and put the rest at my back.
i still dont know how i made it home safe. by the time i reached safety my right eye was swollen shut with fibers bursting out, sores everywhere, and i cudnt stop screaming until an hour later with my youngest having me lay on icepacks.
ii'm just now starting to feel ok. as in laying here so tired...
anyway found the scope sunday and looked. i stared awestruck.
i desidied to put up a page with my symtpons hoping there were others to help me proove fiberglass," cuz no doctor believed me, and the 20+ including the cdc ever responeded back, and honestly i seriously thought of suicde this past week" and for the first time typed in fibers not fiberglass, coming out of skin. Morgellons came up (which i dismissed) and started to scroll down until i saw the photo and froze. and right after that the headline "new report shows its real not delusional" last night i finally stopped reading and cryed my eyes out. all i could and still think is i d**ned my family. my husband has fibers, my eldest has fibers still and shes been at collage for 3years, and my brother who lived with us when all my hair fell out, has them too, and he now has twin 2year old boys. are they too gonna have their bodies shut down because of me? i'm terrified!
i am sorry to feel and say i'm glad there are you guys out there, but i'm more scared now than ever.
I'M SO SORRY ITS SO LONG!
TIPS: My ritual is based off of fiberglass removal, and it helps, alot so..
1. get rid of all cotton clothes, sheets, blankets.
satin, sateen sheets keep the fibers from embeding themselves, they just lay on top.
i even covered my walls in satin cloth.
2.do not sauna unless you want the sores to appear.
3. no hot showers, baths. lukewarm at the hottest
same with dishes, you can soak them until the water cools
4. cover up as much as possible when outside, the suns uv rays start an outbreak for me everytime. I bought tight leggings and made sleeves.
5. when starting to overheat squirt self with water on mist.
and i use the "wax on/ paint the fence " method for fibby sores.
(a) either apply lidocain cream or spray to sore. if using spray, than put a liberal application of body butter or cream to sore,
(b) wait until cream gets crusty looking than either take a washcloth (which gets expesive replacing) towlett paper or paper towel *scott & brawney work best, yoou do not want the soft kind* and start rubbing curcular. first 1 way than reverse. repete 2xs than go up and down, one way than the other.
(c) if it starts feeling to dry, repete cream step.
-i hurts, bad, but it works
(d) you can pause and look, take twizzers to the fibers that are half in and out and are stuck and than repete above.
(e) i do it until the pain changes from kill me please to ow its raw.
and repete per sore let it heal overnight.
for me 90% of the time the next day it looks like its has been healing for over a week and the scars are not as bad
if you have the ones that got smaller overnight but formed that hard shell, u have to pull all the shell off before repeating above steps.
(i have pics.)
and last after showering and before bed, apply, body butter or cream to entire self get it in there, than powder yourself up
i do not know why but it helps the fibers just coming out instead of ripping out.
again sorry im sorry its so long.
Mia