Post by brrights on Jan 12, 2012 21:36:06 GMT -5
I really hate this... It is a life that truly almost duplicates a dream in which you scream and no one hears...
I started symptoms about 3 yrs ago, about 2 mos. after I had moved to Houston... I thought it was an allergy or something, I lived the next almost 3 yrs in Texas. My symptoms continued to worsen- largely! I have seen at least 20 doctors (no exaggeration): a general practitioner, infectious disease specialist, dermatologist, immunologists, neurologists, cornea/retina specialists at a very high regarded university, I have had to travel via ambulance to the emergency room for my head swelling accompanied with the most severe pain I have ever endured. I have been in several other emergency rooms, doctors offices. I have spent the night in the hospital with parasite eliminating cream from the top of my head, to the bottoms of my feet- with the responses ranging from, "hmmmm, could be thyroid..." (checked, it's fine), could be autoimmune (vials and vials of blood work, complete lab work shows nothing from the infectious disease center. I've been blind, then had vision restored after 2 weeks, seeing a cornea specialist daily- in which the cause, according to her- was the skin surrounding the eyes... The dermatologist's biopsy report stated the sever chronic dermatitis was a symptom- that I was the cause... Cat scan shows nothing, I lost feeling in most of my left hand, only to find that the nerves in my elbows were somehow being choked, and had to be relocated. 3 surgeries later, that was completed; about 1 year later, it is doing it again. My right hand intermittently does the same thing... I am exceptionally tired, there have been way too many things happening to me physically and mentally to even put all out here right now. But I will say, I can't leave the house- perhaps on a rare occasion, when the flare-ups are more subdued. I really don't know what to do, I have done colloidal silver when this first started, I have done 3 colon cleanses, I have done basil oil, some tea tree oil treatment, acupuncture... I am so exhausted over the attitudes of the medical peoples that I have come into contact with- seriously! I fear that one time they will want to "put me away", just because they truly think it is delusional, and if they see something, they have some "off the wall explanation" for that also! I always end up leaving their centers as the "loon" in their eyes. Even when I went to the dentist, I had something explode in my mouth behind my last tooth, that had strange things in it, and filled my mouth with the worst tasting clear liquid- a taste of urine/bile.... When I saw him, he called an ambulance and said that he couldn't touch me, he thought I had tuberculosis.... TUBERCULOSIS? *sigh*
I thought that when I left TX, it would miraculously just disappear... no such luck.
I am glad that I found this place, and hope to talk with others, even if it's just for companionship down this dark, dirty, and lonely road.