Post by alphamare on Oct 15, 2010 1:11:34 GMT -5
Hi, I finally figured out last night that I had Morgellan's disease. I have been quite ill for almost 20 years now and have what seems to be turning into end stage liver disease, am recovering from a lumbar fusion, my second fusion, and have unexplained vitiligo and hyperpigmentation.
My earliest problems were with broken glass or fiberglass I thought. My family became so frustrated with me that if anyone broke glass or had fiberglass around, extra precautions are taken because they believe somehoe I get in on me and in me spread it around. It is this disease. I've got sores and two lesion that grew fibers but the fibers broke off and all there is is a small scarred and discolored spot with a dark fiber center, but no more fiber growth. I had many under my arms at one point and glass like fibers in my eyes, dark fibers in my eyes I thought were hairs, and now suffer with eye trouble and recognition of letters, they change before my eyes, a u to an a, an l to an i and back again. My brain cannot seem to decide. Last night, sand came out of my chest.
I have been exposed to silica and other toxins in my young years. My worst outbreaks have been here in the south. Near the cotton fields. Used to pick up stray puffs. Lots of gall here too in my yard.
I need to find a doc soon, while this outbreak is going on. Since I'm recovering from major surgery with metal implants I am weak and need consultation. Last night, my whole face and chest broke out in small red pimples and felt like fiberglass or glass slivers were coming out. Also on my fingertips. I could rub them against the area and feel them hurt like glass. On rubbing, grains of sand came out of my chest. I assumed I must have somehowgot these on me and they hurt me, I still didn't know about this disease. My face was really getting bad so I put a vasoline based antibiotic cream on it, then gently wiped it off, trying to get some of the slivers or hairs off, it was so widespread. Hydrocortisone helped the pain. By morning, it was better except for the larger sore I have near my mouth. It was a pimple hard thing that hurt and bugged me alot then it turned into this slow healing sore. sometimes I see the bristles in them and feel it if I wipe my hand against them. I assumed they were hair even though it hurt.
I have kept some of the rice like things I find in my hair and skin on a piece of tape, I thought they were some kind of nit from an insect.
I have pretty much all the symptoms on the foundations website and am betting pretty gravely ill with organ involved problems. I need help soon.
My mother's doctor saw one of her sores and said it looked like Morgellans but since she was going to a rheumatologist he would wait ans see what he said, because it would sound "far-fetched".
I know I have this, whatever it is. It may be responsible for my sudden onset of acute liver disease, autoimmune disease and vitiligo and hyperpigment that all occured at once almost 20 years ago.
If anyone knows any doctors who would not lock me up as crazy that I could attempt to explain this too and might be willing to attempt treatment, please let me know. My liver is so bad that if they wait a whole lot longer I may not be able to tolerate the antibiotics. My heart is also affected with hypertrophy and I seem to have vasculititis along with neuropathy, spasms and now I'm really droopy compared to normal. I don't know if this can affect your lungs but it seems to be in eyes, nasal passages and possibly lungs. I had unexplained pneumonia that almost killed me and was in quarantee. The chalked it up to aspiratino pneumonia because no cause could be found.
I have lived in connecticut and massachusetts before lyme was known about and wandered the woods and got bit by plenty of ticks. Bit quite alot down here, my ex brought a slewof them home every day as he was clearing woods chock full of deer and boggy.
Any help finding docs near brunswick, waycross, jesup, or surrounding areaas even savannah or north, or in jacksonville, fl that would possibly try treatment. Thanks for any help you can give. I thank you for the chance to tell this and maybe find a doctor really soon. I'm bad off.
My earliest problems were with broken glass or fiberglass I thought. My family became so frustrated with me that if anyone broke glass or had fiberglass around, extra precautions are taken because they believe somehoe I get in on me and in me spread it around. It is this disease. I've got sores and two lesion that grew fibers but the fibers broke off and all there is is a small scarred and discolored spot with a dark fiber center, but no more fiber growth. I had many under my arms at one point and glass like fibers in my eyes, dark fibers in my eyes I thought were hairs, and now suffer with eye trouble and recognition of letters, they change before my eyes, a u to an a, an l to an i and back again. My brain cannot seem to decide. Last night, sand came out of my chest.
I have been exposed to silica and other toxins in my young years. My worst outbreaks have been here in the south. Near the cotton fields. Used to pick up stray puffs. Lots of gall here too in my yard.
I need to find a doc soon, while this outbreak is going on. Since I'm recovering from major surgery with metal implants I am weak and need consultation. Last night, my whole face and chest broke out in small red pimples and felt like fiberglass or glass slivers were coming out. Also on my fingertips. I could rub them against the area and feel them hurt like glass. On rubbing, grains of sand came out of my chest. I assumed I must have somehowgot these on me and they hurt me, I still didn't know about this disease. My face was really getting bad so I put a vasoline based antibiotic cream on it, then gently wiped it off, trying to get some of the slivers or hairs off, it was so widespread. Hydrocortisone helped the pain. By morning, it was better except for the larger sore I have near my mouth. It was a pimple hard thing that hurt and bugged me alot then it turned into this slow healing sore. sometimes I see the bristles in them and feel it if I wipe my hand against them. I assumed they were hair even though it hurt.
I have kept some of the rice like things I find in my hair and skin on a piece of tape, I thought they were some kind of nit from an insect.
I have pretty much all the symptoms on the foundations website and am betting pretty gravely ill with organ involved problems. I need help soon.
My mother's doctor saw one of her sores and said it looked like Morgellans but since she was going to a rheumatologist he would wait ans see what he said, because it would sound "far-fetched".
I know I have this, whatever it is. It may be responsible for my sudden onset of acute liver disease, autoimmune disease and vitiligo and hyperpigment that all occured at once almost 20 years ago.
If anyone knows any doctors who would not lock me up as crazy that I could attempt to explain this too and might be willing to attempt treatment, please let me know. My liver is so bad that if they wait a whole lot longer I may not be able to tolerate the antibiotics. My heart is also affected with hypertrophy and I seem to have vasculititis along with neuropathy, spasms and now I'm really droopy compared to normal. I don't know if this can affect your lungs but it seems to be in eyes, nasal passages and possibly lungs. I had unexplained pneumonia that almost killed me and was in quarantee. The chalked it up to aspiratino pneumonia because no cause could be found.
I have lived in connecticut and massachusetts before lyme was known about and wandered the woods and got bit by plenty of ticks. Bit quite alot down here, my ex brought a slewof them home every day as he was clearing woods chock full of deer and boggy.
Any help finding docs near brunswick, waycross, jesup, or surrounding areaas even savannah or north, or in jacksonville, fl that would possibly try treatment. Thanks for any help you can give. I thank you for the chance to tell this and maybe find a doctor really soon. I'm bad off.