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Post by sunnydaze on Sept 19, 2009 19:10:53 GMT -5
This gentleman posted on MDR, so I am bringing it over here:
Can anyone find me 20 or 30 Morgellons patients for study?
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Hi,
I work at a non-profit group that helps develop diagnostics and treatments for an infectious disease that has similarities to Morgellons.
I'd like to find 20 or 30 patients diagnosed with Morgellons disease who would be willing to participate in a study. Participants would need to fill out a questionnaire, and provide a stool (fecal) sample.
We would need the patients to be in Oregon to fall under our IRB protocol. It would be preferable if they were in driving distance to Tigard or Corvallis to drop off the specimen.
If the patients were in another state, that would be OK, but we would need a physician in that state who would be willing to get IRB approval for the study. It can usually be done through a local hospital at no cost, but it requires some time. The physician would also have to receive the stool samples and ship them to a lab. BRF will pay for the collection vials and shipping and lab analysis.
The interface to this message board will not allow me to post my e mail address in a standard format, but that is director at bhomcenter dot org. If you google Blastocystis Research, our web site is the first listed, and you can click on Contact.
I'll also check back on this message board in a few days.
Best Wishes,
Ken
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Blastocystis Research Foundation 5060 SW Philomath Blvd, #202 Corvallis, OR 97333
sunnydaze
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Post by sunnydaze on Sept 21, 2009 19:47:16 GMT -5
Here is the group's website if anyone wants to look further into it. I think this is a rare opportunity for some free non-governmental look at Morgellons: www.bhomcenter.org/sunnydaze
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Post by sunnydaze on Sept 21, 2009 20:09:06 GMT -5
From their website:
What We Do BRF works with scientists in more than 11 countries to help stop the what has become the world's fastest growing pandemic protozoal disease. We focus our efforts in these areas:
Advocacy We work to change policies and practices that keep people with chronic gastrointestinal illness sick and dependent on medical attention.
Clinically Relevant Research We are part of a global movement to address gastrointestinal illness using scientific methods. We help researchers in different countries communicate with each other, and we conduct original research in the United States.
Diagnostics and Treatment We work to make sure patients have access to reliable diagnostics and treatments for Blastocystis infection. We publish studies on the reliability of existing diagnostics and treatments, and work to develop ones that are more reliable.
Health Policy Research We do the research that helps understand the best places to spend medical research dollars.
sunnydaze
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