Post by aussie on Jan 15, 2007 2:01:09 GMT -5
This is not really meant to be “my” story , in the sense of a historical revelation, but rather the background information in the quest for some happy endings for people who are “out there” suffering in the same way I did, only worse, from the personal stories I have read so far. I recognize that, because of this fact, the treatment that helped me so much, may not help others to the same degree, but it’s a good start, worthy of consideration. And also, with her permission, I am posting the present status quo of our dear friend and Board member, “Joyfullee”, who was brave enough to use the same method I did, to help herself to try and overcome this affliction, called Morgellons. I would not telling this if it were not for her letter received recently, and I appreciate so much what she has said, for your discernment.
I will briefly include my history for reference. It all started back in ‘83 after my son was born. I had just arrived home from hospital, when I noticed both of my lower legs had a burning, itchy sensation around the ankles and looked red. It used to come and go for a few months and then disappeared. I had no energy. This is not unusual after the birth of a child, but it was for me, having had other children. I believe this was the beginning, and was somehow connected with that hospital visit of only 3 days.
A couple of years later my mother, father and brother all came down with the flu. It wasn’t a normal flu, and my Mum and Dad did not recover in the normal fashion. I was living with them, and at exactly the same time, I started having strange pains all over my body, night sweats, palpitations, panic attacks, cold extremities, nausea, photophobia, frequency (kidneys), chest pains, difficulty in swallowing, nightmares so bad I was afraid to go to sleep, and my life became hell. It lasted several years, during which time I thought I would die. My father did die because of it, and my mother never fully recovered. I believe it was also the initial cause of what should have been a simple exploratory operation…a “day “visit in hospital, that almost ended my life and caused me to have liver damage.
I was never completely “well”, but managed, with the help of good natural health practitioners, to keep on an even keel, with a fairly strict diet regime and expensive supplements and other regimes. I discovered I had also inherited iron overload syndrome, “mycoplasma”, and Coxsackie B2 virus(from glandular fever, which is one of the herpes virus group). I do not ever remember ever having had glandular fever and I have never had a “cold” sore in my life. I had blood tests at the time I was having the “flu” above but they came back negative for everything.
In 1999, I developed a small pimple on my arm which was burning, sore and itchy. It would not go away. I used an alternative treatment on it, which worked. I was told it was possibly pre cancerous or shingles, nothing showed up in a biopsy. Then I got one on each of my legs in almost the same position. Used the treatment again, (anti cancer salve), which got rid of them but was extremely painful. You could not imagine the pain of such a small thing reacting with the salve. I can see the reason why, now. All of them, when they healed had the thick callous like skin covering.
Every year after that, I noticed I would get a couple of tiny burning, itchy lesions on my back, which would annoy me for months..
Then about a year ago I was bitten by one tick and then 3 others in rapid succession. I became so ill, I do not wish to revisit that time, which only lasted a couple of months in reality.
Having always been a happy person, I could not understand the black mood of total apathy and depression that overtook my life. I had no motivation to do anything whatsoever. I lost interest in everything, everything….until that is, I was referred to Cliff’s wonderful articles and helpful information.
I could simply not believe, when I looked at the lesions under a magnifying glass, the fibres that were growing there, and the fact that after you removed them, it only took about 20 minutes for them to grow back. It seemed like something out of a science fiction movie. The more you plucked them out, the bigger the lesions grew and multiplied, not to mention the specks around them. I spent a lot of time in the bathroom and was horrified when I looked into a full length mirror.
I was “guided” to go to a brilliant naturopath who knew exactly what my problem was.
He told me how to do the tea tree oil and tansy tincture protocol for 4 weeks. The tea tree oil and the tansy tincture together, have a synergistic effect. The fibres ceased to grow anymore just before the 4 weeks had finished, and the lesions then healed. Of course I still had to take large doses of colloidal minerals and acidophilus for several months. I still take supplements.
The apathy and depression lifted like a black cloud being dispersed by magic, and I could think with far greater clarity than I had ever been able to. I had/have spiritual guidance.
I felt that I had to post my “Simple Natural Cure that Really Works” (in the Remedies Discussion Section of this Board , p 3.), in case it can helped somebody…anybody, else….and that person was Joyfullee…and here is her letter received this morning….I cannot say more than this, except that I feel deeply for you all.
Quote “Re: Are you okay?... from Joyfullee
« Message sent on Yesterday at 10:39pm
Please forgive me…etc…………………………….............................................................................................
The Tansy/Tea Tree Oil protocol works so I no longer have the concerns of being contagious and frees me in terms of my social activities. With the liquid collodial minerals twice a day, I'm strong again and no longer melt into the bed and couch.
I still have a few breakouts and some itching, but am vastly improved...can actually embrace life again. The fact that I did not heal entirely with the four-week Tansy/Tea Tree Oil protocol only further confirms how very infested and ill I was at the time of treatment.
Today marks the 4th day of one more month protocol; but, I have no doubt that I will improve with this because I am so vastly improved now over the beginning of my first protocol.
Also, in the 6 weeks between the two protocols, I have been on a high pro-biotic supplement, rebuilding the the good fauna in my digestive tract. I continue to see the infectious disease doctor who says that I am 'a little crazy' because one, I hate to give up, and two, I know if I walk away from him, many others who see him with this disorder, will not be treated either. Each of us must do what we can to leave doctors knowing more about this, than before we were their patients. (Only my belief, some of us may not feel that way and that's got to be okay, too.)
When I last saw him, two weeks before Christmas, he saw for himself that about every inch of my skin was broken out (This was two weeks into the Tansy treatment and the fibers were profuse.); he gave me another prescription of Doxycycline (He had previously determined not to do.) in hopes that the lesions could heal enough to travel to Chicago for a family Christmas. I did, though my face, neck and ears were still active and visibly marred.) It was somewhat embarrasing, but that's the least problem with this illness. This doctor doesn't grasp that the holes in our skin are because the skin is being consumed...not our 'digging'. I'm about to give up on him.
I don't have an argument with the 'crazy' diagnosis in that I am having a heck of a time, sticking to a 'normal' schedule of sleep. Some nights I am not able to sleep until 3, 4 and even as late as 6AM. I'm very aware that if we humans do not get our R.E.M. sleep (dreams that can only occur only after a min. of 4 or 5 hours of continuous sleep), one can begin to manifest abnormal behavior. I do have more anxious and hyper-active behavior; I do have a serious problem with memory, I seem to have difficulty with comprehension, my thought patterns can at times skip lightly from one subject to the next and I am more clumsy, i.e. dropping, spilling, tripping, bumping, etc...I am also aware that in my driving, I have made some poor choices. Until the success of the Tansy/Tea Tree Oil, I isolated myself, etc.
But, I am not psychotic...i.e. imagining the fibers, itches, etc. I see them jump from my face to the mirror (which streaks the mirrors when I wash them off.). Well, you guys know. I just get so tired of being with this, 24/7 without professional support.
One thing that I noticed with the travel: I threw up, the day after I flew to Chicago and then, extremely nauseated again, the day after the flight home. One MORE thing I don't understand about this disease. I've never been sick from flying. And what was with the hours delay? Why not sick WHILE on the plane? If the two are connected. More craziness to contend with...
I do continue to have more energy than I've had for over two years, since discovering the illness connected to the fibers and lesions. I also feel reasurred that should anyone I infect with this take the Tansy/Tea Tree Oil protocol, they will not suffer as I have. I realize we do not know if this is a cure...but, I know it reduces suffering to a manageable thing and the lesions disappear. I was so infested that most every pore has had fibers emerge. (black, white, purple, blue, red)
I shudder to think what my other organs looked like before the treatment! I believe that this infestation, without treatment, would have been fatal for me. My body was shutting down...I was swelling, no longer digesting, breathing was labored and shallow and I had great difficulty remaining up and about. Thank you Aussie and thank God for the timing of her post and my joining this forum.
I think I'm back with you guys; but, I don't know me, anymore. I'm looking forward to catching up and wonder if Drs. Staninger and Karjoo have discovered any treatment. Also, I hope to hear from you that you are doing okay. This is the most horrible thing...to be so sick and not be believed. Just to read these Dermatologists who have made up their minds with no information... The Denial in the medical field is unforgivable.
Hugs to you all, especially to you who have sent good thoughts my way in the last three or so weeks.
Thinker or Aussie, if you think any of this note will help others, you may post it or part of it on the general board.
Take care you guys and know that you are not alone. There continues to be more and more of us who suffer with this disabling challenge. I just pray that no one gives up. Try the Tansy/Tea Tree Oil 4 wk treatment, first. It's such a relief in so many ways.
Joyfullee ” End of quote.
I will briefly include my history for reference. It all started back in ‘83 after my son was born. I had just arrived home from hospital, when I noticed both of my lower legs had a burning, itchy sensation around the ankles and looked red. It used to come and go for a few months and then disappeared. I had no energy. This is not unusual after the birth of a child, but it was for me, having had other children. I believe this was the beginning, and was somehow connected with that hospital visit of only 3 days.
A couple of years later my mother, father and brother all came down with the flu. It wasn’t a normal flu, and my Mum and Dad did not recover in the normal fashion. I was living with them, and at exactly the same time, I started having strange pains all over my body, night sweats, palpitations, panic attacks, cold extremities, nausea, photophobia, frequency (kidneys), chest pains, difficulty in swallowing, nightmares so bad I was afraid to go to sleep, and my life became hell. It lasted several years, during which time I thought I would die. My father did die because of it, and my mother never fully recovered. I believe it was also the initial cause of what should have been a simple exploratory operation…a “day “visit in hospital, that almost ended my life and caused me to have liver damage.
I was never completely “well”, but managed, with the help of good natural health practitioners, to keep on an even keel, with a fairly strict diet regime and expensive supplements and other regimes. I discovered I had also inherited iron overload syndrome, “mycoplasma”, and Coxsackie B2 virus(from glandular fever, which is one of the herpes virus group). I do not ever remember ever having had glandular fever and I have never had a “cold” sore in my life. I had blood tests at the time I was having the “flu” above but they came back negative for everything.
In 1999, I developed a small pimple on my arm which was burning, sore and itchy. It would not go away. I used an alternative treatment on it, which worked. I was told it was possibly pre cancerous or shingles, nothing showed up in a biopsy. Then I got one on each of my legs in almost the same position. Used the treatment again, (anti cancer salve), which got rid of them but was extremely painful. You could not imagine the pain of such a small thing reacting with the salve. I can see the reason why, now. All of them, when they healed had the thick callous like skin covering.
Every year after that, I noticed I would get a couple of tiny burning, itchy lesions on my back, which would annoy me for months..
Then about a year ago I was bitten by one tick and then 3 others in rapid succession. I became so ill, I do not wish to revisit that time, which only lasted a couple of months in reality.
Having always been a happy person, I could not understand the black mood of total apathy and depression that overtook my life. I had no motivation to do anything whatsoever. I lost interest in everything, everything….until that is, I was referred to Cliff’s wonderful articles and helpful information.
I could simply not believe, when I looked at the lesions under a magnifying glass, the fibres that were growing there, and the fact that after you removed them, it only took about 20 minutes for them to grow back. It seemed like something out of a science fiction movie. The more you plucked them out, the bigger the lesions grew and multiplied, not to mention the specks around them. I spent a lot of time in the bathroom and was horrified when I looked into a full length mirror.
I was “guided” to go to a brilliant naturopath who knew exactly what my problem was.
He told me how to do the tea tree oil and tansy tincture protocol for 4 weeks. The tea tree oil and the tansy tincture together, have a synergistic effect. The fibres ceased to grow anymore just before the 4 weeks had finished, and the lesions then healed. Of course I still had to take large doses of colloidal minerals and acidophilus for several months. I still take supplements.
The apathy and depression lifted like a black cloud being dispersed by magic, and I could think with far greater clarity than I had ever been able to. I had/have spiritual guidance.
I felt that I had to post my “Simple Natural Cure that Really Works” (in the Remedies Discussion Section of this Board , p 3.), in case it can helped somebody…anybody, else….and that person was Joyfullee…and here is her letter received this morning….I cannot say more than this, except that I feel deeply for you all.
Quote “Re: Are you okay?... from Joyfullee
« Message sent on Yesterday at 10:39pm
Please forgive me…etc…………………………….............................................................................................
The Tansy/Tea Tree Oil protocol works so I no longer have the concerns of being contagious and frees me in terms of my social activities. With the liquid collodial minerals twice a day, I'm strong again and no longer melt into the bed and couch.
I still have a few breakouts and some itching, but am vastly improved...can actually embrace life again. The fact that I did not heal entirely with the four-week Tansy/Tea Tree Oil protocol only further confirms how very infested and ill I was at the time of treatment.
Today marks the 4th day of one more month protocol; but, I have no doubt that I will improve with this because I am so vastly improved now over the beginning of my first protocol.
Also, in the 6 weeks between the two protocols, I have been on a high pro-biotic supplement, rebuilding the the good fauna in my digestive tract. I continue to see the infectious disease doctor who says that I am 'a little crazy' because one, I hate to give up, and two, I know if I walk away from him, many others who see him with this disorder, will not be treated either. Each of us must do what we can to leave doctors knowing more about this, than before we were their patients. (Only my belief, some of us may not feel that way and that's got to be okay, too.)
When I last saw him, two weeks before Christmas, he saw for himself that about every inch of my skin was broken out (This was two weeks into the Tansy treatment and the fibers were profuse.); he gave me another prescription of Doxycycline (He had previously determined not to do.) in hopes that the lesions could heal enough to travel to Chicago for a family Christmas. I did, though my face, neck and ears were still active and visibly marred.) It was somewhat embarrasing, but that's the least problem with this illness. This doctor doesn't grasp that the holes in our skin are because the skin is being consumed...not our 'digging'. I'm about to give up on him.
I don't have an argument with the 'crazy' diagnosis in that I am having a heck of a time, sticking to a 'normal' schedule of sleep. Some nights I am not able to sleep until 3, 4 and even as late as 6AM. I'm very aware that if we humans do not get our R.E.M. sleep (dreams that can only occur only after a min. of 4 or 5 hours of continuous sleep), one can begin to manifest abnormal behavior. I do have more anxious and hyper-active behavior; I do have a serious problem with memory, I seem to have difficulty with comprehension, my thought patterns can at times skip lightly from one subject to the next and I am more clumsy, i.e. dropping, spilling, tripping, bumping, etc...I am also aware that in my driving, I have made some poor choices. Until the success of the Tansy/Tea Tree Oil, I isolated myself, etc.
But, I am not psychotic...i.e. imagining the fibers, itches, etc. I see them jump from my face to the mirror (which streaks the mirrors when I wash them off.). Well, you guys know. I just get so tired of being with this, 24/7 without professional support.
One thing that I noticed with the travel: I threw up, the day after I flew to Chicago and then, extremely nauseated again, the day after the flight home. One MORE thing I don't understand about this disease. I've never been sick from flying. And what was with the hours delay? Why not sick WHILE on the plane? If the two are connected. More craziness to contend with...
I do continue to have more energy than I've had for over two years, since discovering the illness connected to the fibers and lesions. I also feel reasurred that should anyone I infect with this take the Tansy/Tea Tree Oil protocol, they will not suffer as I have. I realize we do not know if this is a cure...but, I know it reduces suffering to a manageable thing and the lesions disappear. I was so infested that most every pore has had fibers emerge. (black, white, purple, blue, red)
I shudder to think what my other organs looked like before the treatment! I believe that this infestation, without treatment, would have been fatal for me. My body was shutting down...I was swelling, no longer digesting, breathing was labored and shallow and I had great difficulty remaining up and about. Thank you Aussie and thank God for the timing of her post and my joining this forum.
I think I'm back with you guys; but, I don't know me, anymore. I'm looking forward to catching up and wonder if Drs. Staninger and Karjoo have discovered any treatment. Also, I hope to hear from you that you are doing okay. This is the most horrible thing...to be so sick and not be believed. Just to read these Dermatologists who have made up their minds with no information... The Denial in the medical field is unforgivable.
Hugs to you all, especially to you who have sent good thoughts my way in the last three or so weeks.
Thinker or Aussie, if you think any of this note will help others, you may post it or part of it on the general board.
Take care you guys and know that you are not alone. There continues to be more and more of us who suffer with this disabling challenge. I just pray that no one gives up. Try the Tansy/Tea Tree Oil 4 wk treatment, first. It's such a relief in so many ways.
Joyfullee ” End of quote.