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Post by simplynikki on Oct 24, 2006 12:19:48 GMT -5
I am visiting here.....Have had this "mess" over ten years....yuck. Anyway I am posting this because I read something here that really upset me. I was looking for a place to MAYBE share my probs and such and this is not very inviting...
Re: Simple natural cure that really works « Reply #10 on Sept 6, 2006, 6:32am »
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Post by thinker on Oct 24, 2006 14:50:06 GMT -5
Hi simplynikki - We're very glad you're here - honest. LOL
If you're familiar with Morgellons then you probably know that: * It affects your brain, causing all kinds of emotional things * It is absolutely frightening due to some of its symptoms and no competent med help in sight, often with no support from friends or loved ones * It seems to be the target of people who don't want Morgs sufferers to know what they have or what to do about it * It attracts all kinds of people online because it affects all kinds of people around the world
So, with that in mind, sometimes people say things or whatever that isn't necessarily who they truly are - it's just a symptom rearing its ugly head. Then there are the other kinds of posts - for disruption, mainly.
Even if you disagree with folks here, please, please do not be afraid to post. We learn from all comments - not just the group-huggy ones. And most of the time, this board is very congenial. Honest. We're just all looking for answers.
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Post by aussie on Oct 24, 2006 16:33:29 GMT -5
Hi Simplynikki
Welcome to the board.
Please don't be "put off" by SarahC's old postings to me.....I wasn't insulted....my sense of humour always stands me in good stead. However, I do not suffer fools gladly.
Mind you, I am not putting Sarah in this catagory at all. She tried her best to help others in her own way, and felt unappreciated, plus she was very sick so she just lashed out at me. I do not bear her any ill feelings and I hope she is feeling better. As Thinker said, Morgellons can cause all sorts of odd manifestations, both physically and mentally. She does not post here any more.
We are here to help each other and if occasionally a fly "gets in the ointment" it is soon terminated for the better good of all. We appreciate your comments and look forward to hearing from you again. Please don't hesitate to ask for our support and share your problems.
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Post by whiterose on Oct 26, 2006 18:50:46 GMT -5
Hi simplynikki,
Being kind and considerate for the most part has helped this board move into directions and thought processes that have helped many that have come here.
We have had a few detractors that came here for nothing more then their own selfish entertainment.
I have never been involved in a discussion board before. I carried the weight and knowledge of the affects of this affliction by myself with the help of God. Good Humor helps also. It is hard when you have something like this and even your own family has a hard time coping with it. That is probably the saddest, hardest part of it all. If you have cancer, diabetes or other illnesses your family calls with concerns, with this, they quit calling because they don't know what to say and often times you quit calling them because all they want to here is a lie.
The weather is beautiful, the children are doing wonderfully, & I feel awesome. May I just suggest they print it out on a card and they can read it, instead of calling. That way they will only here what they want to here and it will save them money and those of us with this affliction grief.
Just in case you have experienced this, as most of us have. Perhaps if there is ever a test that says, yes this is what they have, others will treat us differently. Or maybe not. Right now it is those of us with this affliction that are careful when dealing with others, they don't know to be careful. Once everything about this is confirmed, then they will know to be careful. The positive part of this is perhaps they will call and ask with concern and understanding.
Take care,
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bc
Full Member
Posts: 178
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Post by bc on Oct 27, 2006 19:03:13 GMT -5
HI, simplynikki I think for the most part it just people helping people . I lean on jesus a lot and a lot of peolpe cant under stand that .most people that i have came across that have this are very understanding of what you are going through beacouse they been there one way or notther . I hope you come back take care god bless
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Post by sarahconnor on Oct 27, 2006 19:17:55 GMT -5
Hi Simplynikki - It is me "SarahC", please don't be scared!!
Everyone is right with what they write - this is what having Morgellons can do.
Yes I lashed out at Aussie and I was wrong. I had never done that to anyone in the Morgellons community before. I can not explain what happened to me all I know is that I was and still am very ill and there was certainly a lot of people hard at work on the internet trying to hurt me (not this site).
Please come here for support, I have my mouth wired shut!! lol.
We really feel in the dark in Aussie and I get so so d**n frustrated as you can imagine.
Please take care and write me anytime if you want to chat.
God bless and love to you.
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