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Post by brindalee on Mar 28, 2007 14:19:08 GMT -5
I am so glad I found this site!! I have had Morgellons for 9 months. I have been to numerous doctors-GP, internist, dermatologist, rheumotologist etc. I have major med insurance only so meds and dr visits are not covered. I have tried so many treatments that just do not help. I have open crater sores on my face, neck, both arms and both legs, one foot and now both hands. The sores do not heal. They bleed and ooze a yellowish, sticky, cloudy fluid. I constantly rub what look like eggs and egg sacs from them. The white and colored fibres are apparent to the naked eye. Worms are emerging from my chin. I no longer leave my home except for more doctor appts. My husband has been a saint but is showing signs of being tired of dealing with this. I don't blame him. I am tired of this too. Today I have been unable to do anything. The brain fog is awful. I get so depressed. "They" are biting and moving around a lot. The pain is terrible. The itching is severe. I have spent a fortune on pills, lotions creams and ointments that only help short-term. The first time a doctor called me delusional, he didn't even have the guts to say it to my face. He took my husband aside and suggested my mental health be addressed. I am so angry. I need support. Very few understand. I need your help. I am not delusional. I need someone to talk too. Thanks! Brinda threechihuahuas@hotmail.com
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Post by whiterose on Mar 28, 2007 15:01:18 GMT -5
Dear Brindalee,
I'm whiterose, I can give you some hints to get it under control, take all sugar out of the diet, drink only purified water, shower in soft water, or shower in hard and dump about a 1/2 gallon of purified water for rinsing. There is a vitamin that helped me especially the first 10 years called well max from biochem country life. Not having it as long will be a blessing, I would look into the far infrared treatments. Remember most doctors will be hazardous to your health as long as they have the attitude that this isn't real. If you have candida you will need to get that under control, a good probiotic helps here, the best ones you usually have to ask for from the pharmacy but no prescription required. There is one from Twinlabs yeast control that I take.
Chamomille tea will also help with the yeast but you must use it as flowers, not tea bags, they aren't strong enough. Only take baths if you are putting something in the bath for medicinal, otherwise showers will benefit you. Aloe gel helps to heal on the outside, a good betonite clay can be for the skin, I also have one mentioned on the board that you can take internally. Under remedies. Stop discussing this with folks that don't understand, unless they have this in them, they cannot even imagine.
Cherokeechas has a power point on how DOP has come to be and why it is wrong. Dr.'s are being threatened, most won't look and test are made for things they already know. We do have more information that we are hoping to come out on rense (www.rense.com Thursday). A lot of us are experiencing more pain than usual, I don't know why, this would suggest something in the air. Reading about Haarp and electromagnetic energy would be beneficial. If you can't read right now don't worry, it will come back. Most likely you are in the rewiring stage, read Cliff Mickelson's articles, they will give you a great deal of information. Most likely your husband has it, be aware that it often appears in men in different ways, this can increase aggression. If you have children, at some point you will not be able to feel the heat of water, be cautious when bathing them, if steam is coming out of the tap and the water feels cool, go with what you see.
Many Blessings, Big Hug, whiterose
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Post by whiterose on Mar 28, 2007 17:43:00 GMT -5
Couple more things to add, ph balance of the body is important, also before you get out of the shower, splash hydrogen peroxide, on face, hands, feet, elbows and knees and anyplace that has sores. Pat dry with towel washed in ammonia and borax, and dryed in dryer.
Also notice house cleaning tips, very important.
Many Blessings, whiterose
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Post by bugsy on Mar 29, 2007 9:02:52 GMT -5
Dear Brindalee,
Welcome...I am new here myself and boy does your story sound every so familiar. My husband was also in the room when a dr at an immediate care facility tried to tell me and him that I had delusional....parasites. Well me and hubby just kinda looked at eachother and smiled...and I said "He thinks I'm nuts" lol. I then said..."I guess I dreamed up all these sores on my skin as well....and these black dots" as I pulled one off and handed it to him. He then left the room to allegedly look at it under a microscope....he came back into the room and said "That was just a fiber of some kind..nothing to worry about." I did say "Is it possible I have something you are unfamiliar with...Perhaps..? He gave me a prescription for elimite as a profrolactic...and sent me on my way. We then noticed the diagnosis on the receipt....Delusional Parasitosis...me and husband then gave this dr the nickname of "Mr. Magoo." It all seemed kind of insulting yet funny at the time until I realized...this is going to be on my permanent medical records...and from there on out....all dr.'s I go to with this condition will have been given a seed of doubt as to my sanity...not to mention....the insurance company......geesh.
My husband actually found this site.......He's seen the fibers, and the springtails under our little microscope......he's even see the black dots and bugs.....pop out from under my skin after bathing.....but still after a person of authority says that....it plants a seed of doubt in your own mind let alone your spouses. THANKS alot MAGOO!!!!
~Bugsy
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Post by bugsy on Mar 29, 2007 9:15:33 GMT -5
Hey Whiterose,
NO sugar in your diet....OMG....!!!! I'll die...no marshmallow peeps....or jellybeans....oh my.
~Bugsy
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Post by sickandtired on Mar 29, 2007 9:19:00 GMT -5
This is the criminal part about this disease.......what we are experiencing from doctors all across the country and other nations as well.....the ignorance and denial......we have seen more than our fair share of doctors in the last 13 years with this disease and not one doctor ever showed concern that this might be infectious.....it astounds me really.....
We have lost respect for the medical community.....when you are this sick with something so debilatating for them to WRITE US OFF AS DELUSIONAL IS A CRIME.....and why I call this disease THE SILENT EPIDEMIC....because the medical community has made it that way.....little did they know they would be contributing to the BLUNDER OF THE CENTURY.....with their so called expert evaluations of looking at someone with this disease from across the room and declaring DELUSIONAL......boy oh boy if the tables were turned and it was them suffering......all though that won't be far behind.....soon many many doctors will be suffering our delusions for themselves......and I won't feel much pitty for them either.....
Minty type ointments help with itching.....like noxema or find a ointment you really like and add some minty drops to your ointment you can find these at health food stores.....and I have seen quite a bit of relief from taking Acidolphulus for over a month now and this takes time to show improvement as I was taking this for almost a month when I started to see things happening in a good way....old lesions healing that had been on my arms for over 2 years.....it seems the older lesions responded better than the newer ones but I take 2 capsules a day and this is a GREAT immune system support too.....
Salts baths give temporary relief (epsom salts) and vitamin E oil helps with healing and dry skin issues....take a look at our remedies section there is a lot of very good information there.....and keep posting as this has helped me so much.....being able to discuss this with others that understand what we are going through.....
Welcome and together we can make a difference!!! and boy does the medical community need a HUGE change right now....
SickandTired
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Post by steves9090 on Apr 28, 2007 20:56:40 GMT -5
hello my wife and i have had this for almost a year go to dermatech rx order the sulphur soap and mitactin my doctor also prescribes bactrim no affiliation or compensation also email whiterose and gracebeours and shoshana God Bless You steves9090
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Post by nadie on Apr 30, 2007 21:54:54 GMT -5
HI All,
I'm Nadie.
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Post by whiterose on Apr 30, 2007 22:00:32 GMT -5
Hi Nadie, I'm whiterose, and I wanted to let you and all the new members know they can click on the blue numbers down at the right to check messages. Once you do that another screen will come up and it is pretty self- explanatory. If you need help let me know on the front board if you can't figure it out. When I first became infected with Morgellons, I couldn't even find a number in a phone book, so I understand the confusion completely.
Big Hug, whiterose
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Post by skytroll on Apr 30, 2007 22:23:06 GMT -5
Welcome all newbies.......you are entitled to speak your mind, within reason.....and to bring up ideas as pertaining to threads or threads with new concepts etc etc etc.
We sure enjoy all the thinking folks, the humorous folks, the info folks, everyone suffering from this thing called Morgellons. Together we shall reach that highest star, or that smallest dot and we shall converge with answers for this conundrum called Morgellons.
Welcome,
Skytroll
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Post by nadie on May 1, 2007 17:05:50 GMT -5
Thank you Whiterose for your warm welcome and kindness.
Nadie
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Post by nadie on May 1, 2007 17:25:24 GMT -5
Skytroll,
Your welcome seems to have a twist to it. Maybe I might be reading into it to much.
The Hi Newbies welcome gave me that impression. I been around and know the game. I like yourself is trying to find answers . Should I address you as 3 star ? LOL.
Nadie
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Post by aligator on May 1, 2007 20:38:31 GMT -5
Hi Nadie, and welcome.......
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Post by nadie on May 2, 2007 11:42:53 GMT -5
Thank you Aligator, that was very kind of you to take the time and say Hi and welcome.
I like the quote under your photo.
Nadie
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dkb
New Member
Posts: 8
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Post by dkb on May 10, 2007 22:30:23 GMT -5
wow. i have had this since the 80's and am really surprised to find such a large # of people with this. i really didn't know.... in the 80's i had an excellent physician and he knew what this was and how to treat it. unfortunately he has passed on. i am with different doctors now and the crap has flared up again.
my dr from the 80's wrote a script for a lotion called Alexander's Anti-P Lotion. Works EXCELLENT. it has to be mixed by a pharmacist. unfortunately the pharmacist who mixed it has passed on so i am having a difficult time trying to deal with this.
i have essentially been taking a lot of baths since the 80's. physician had me take baths with either baking soda, epsom salts, salt, oatmeal, etc. will let you know if i think of anything else.
right now i am headed to bathtub for a baking soda bath.
hope you find this useful. will let you know anything else i find out.
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dkb
New Member
Posts: 8
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Post by dkb on May 10, 2007 22:35:35 GMT -5
it seems different people have different colors coming out of them. i have little black balls. i am not sure if there is anything under my skin a different color. has anybody else noticed this?
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dkb
New Member
Posts: 8
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Post by dkb on May 10, 2007 22:40:52 GMT -5
oh well good night all.
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Post by whiterose on May 11, 2007 8:57:11 GMT -5
Welcome dkb, many folks have found different things that work for them and perhaps for a few others but not for everyone.
I also have been afflicted with this since the 80's, the treatment you told of is for scabies and indeed there is one phase of this affliction called morgellons that resembles scabies. We have a nanotech mimic here and perhaps there are a few other organisms that find us as a good host because of the nanotechnology or perhaps the biological components have been put in place to make it more easily available to the human body.
I took baths at first soaking in water with strong chamomile, usually a half a bag brewed as a strong tea. I have found that showers seem to work best for me.
I don't see many fibers anymore, a few, mostly blue and white, I don't fight them, simply build my immune system, as fighting them simply brings on their wrath, I work with the way my body feels and accommodate my life that way, I don't feed it, in other words limited carbohydrates.
The last time I fought it was last summer, big mistake, brought it on full force, but it did allow me to remember the whole of the experience to better help those that come here.
There was a show on rense last night and that was the reason for the wait for response. Often we listen to the shows and go into thought process to assimilate what we have heard.
One thing that was brought to my attention, and I had only mentioned this to thinker, was the echoing of a different voice, sometimes I find myself speaking with a different accent or brogue, if you will, sometimes it can be startling. It is not a purposeful action, it simply happens.
Many Blessings, whiterose
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dkb
New Member
Posts: 8
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Post by dkb on May 11, 2007 14:45:08 GMT -5
hello whiterose. thanks for the detailed response. i really appreciate it. this crap has flared up again. i started asking about the alexanders anti p lotion and couldn't find anybody who knew what i was talking about. the dermatologist and pharmacist who mixed it passed on a couple years ago. the lotion would clear it right up quickly. you wouldn't happen to know what all is in alexanders anti p would you? i feel really..... hmmmmmm.... not coping really well right now. i didn't realize anybody else had this or that there was a name for it. when did this get this name? i thought i had some type of mold which kept popping up. cornstarch baths are also excellent for this. will have to replenish my supplies. i hadn't tried chamomile yet. i will have to see if i have any left. i notice there are a lot of us in florida. Prayers of Blessings for a Life of Heaven in 2007, dkb
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Post by whiterose on May 11, 2007 17:09:25 GMT -5
Hi dbk,
Yes there are many in Florida, California and Texas. The stuff you ask about, I do not know the ingredients, but perhaps you could get another pharmacist to mix it up, maybe.
I do know what you are dealing with is nanotechnology, and some of the best things I can tell you are this, first, my thoughts on what will get rid of it, most likely nanotechnology itself. Could be a bit of a wait.
Helps for now are, use soft water, no carbohydrates except complex, which means whole grain, personally I find that oat is the best. Take internal clay as this works on pulling things out magnetically and what you are dealing with is a machine.
I often suggest well max from biochem country life, it helps to build the immune system (if you have high blood pressure which most folks here don't than it shouldn't be used. ) Negative emotions feed it, stay calm and relax, sometimes hard I know. Look for the positive in all things, it can be found if one looks with the heart.
Use ammonia and borax for cleaning.
There are things that will help to pull it from your body, far infrared is one, taurox another. The ph balance of your body is important. It is known that a high acid producing body creates disease, however our little machine friends like high alkaline. So what a balancing act we must do. Personally I don't fight with it, forgot and attempted to last year about this time, I paid. Sometimes if you do get it out the energy level returns for a time I have heard. I think these things just go into repair mode and thus leave you alone for awhile. Keep in mind they learn and you often have to change your way to address them, it takes an arsenal of vitamins, a good diet, sleep and a strong spirit.
Hope this helps, Many Blessings, whiterose
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Post by aligator on May 12, 2007 9:19:27 GMT -5
good advice wr, best yet!
ali
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dkb
New Member
Posts: 8
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Post by dkb on May 12, 2007 13:13:32 GMT -5
thanks for the great response. Prayers of Blessings for a Life of Heaven in 2007, Debby
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dkb
New Member
Posts: 8
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Post by dkb on May 12, 2007 13:56:37 GMT -5
what is the theory behind borax and ammonia? is this for all cleaning?
betonite clay as in my Now Fuller's earth which i make facial masks out of??? are you taking this internally??? or just using it on the skin???
taurox? how much of this are you taking??? where do you buy this?
not really calm this week at all. will be doing great and then bam i am down again.
Prayers of Blessings for a Life of Heaven in 2007, Debby
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dkb
New Member
Posts: 8
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Post by dkb on May 12, 2007 14:27:53 GMT -5
which type of bentonite are you using??? not aluminum i hope? calcium or sodium? how often are you using it??? i just put some on this rash and it is helping. i hadn't thought of this before.
really having a bad time coping right now. you know i even looked up the guy who came up with this delusional diagnosis. it is really heavy. apparently this has been going on for some time. has anybody else looked into this? have to question what kind of nutcase would come up with this type of a diagnosis in the first place? what is his motivation? to cover for whoever did ths or does he have something to do with this?
the thing you said about scabies has real meaning unfortunately. i got them in the early 80's and couldn't get rid of them. this is really scary stuff.
Prayers of Blessings for a Life of Heaven in 2007, Debby
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dkb
New Member
Posts: 8
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Post by dkb on May 12, 2007 14:29:02 GMT -5
i found chlorellas helps also. anybody else notice this??? i need to replenish all my supplies. Prayers of Blessings for a Life of Heaven in 2007, Debby
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Post by cliffmickelson on Jul 20, 2007 1:20:47 GMT -5
Welcome to all newcomers! It's certainly a pleasure to meet so many wonderful folks! Looking forward to reading all your posts as time permits.
-Cliff Mickelson
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tess
New Member
Posts: 6
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Post by tess on Aug 1, 2007 21:12:40 GMT -5
Hello my name is Tess. Being new with a computor and no teachers I cound'nt find anywhere to just introduce myself. I believe that I'm supposed to be making a reply here. I will say how much I enjoyed the Jeff Rense series. I only acknowledged a couple of weeks ago that my 4 year struggle is morgellons. Strange that I should feel excited to become a part of anything social since I've been isolating for years now, must be nano magnetism. Also I have been wondering why {lisening to the Rense series} that all the focus is on the fibers and not the bugs? Blessings and Love, Tess
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Post by whiterose on Aug 1, 2007 21:31:42 GMT -5
Hello Tess,
If you have been listening to rense, you would have heard them speak of nanotechnology. When you break organisms down to the nano size they act differently than the would as a whole.
They are capable of mimicking things we touch. The key word here is mimicking, they are not bugs, they have been tested (forgive I can't recall the name) on at the top parasite organization. They are not biological, although they do contain some biological and that would be in fungus area. The things you call bugs are machines.
Hope that helps, Big Hug, Be Well whiterose
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Post by whiterose on Aug 1, 2007 21:48:31 GMT -5
A Morgie having a "weird" thought, sounds like us!
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praying4usall
Full Member
He shall cover you with His Feathers, under His Wings you will find Refuge.
Posts: 244
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Post by praying4usall on Aug 4, 2007 2:40:03 GMT -5
Hello everyone! My name is Celia, and I live in the Pacific North West. I've only recently (within the last couple of weeks) come to find out what my 3 month long problem has been or at least ended up being. What a twighlight zone, eh? I'm going to make this real short, as I didn't get any sleep last night, so I'll be looking forward to talking with you soon!
Perhaps tomorrow I can share my story, and get to know yours as well, and get to know you too. Have a blessed night inspite of it all! Gob bless, Celia
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