Post by aka on Dec 9, 2007 15:59:58 GMT -5
So I've been around for going on year 6 now...surfing all over these message boards, making friends and sharing experiences and hope and ideas with my MANY fellow sufferers. I first noticed the strangeness of a newly incubating morgellons infection in 2001, when I suddenly became severely infected with what my then M.D. diagnosed as Scabies. It was an uphill battle since that time- I have been diagnosed with a variety of different things by a variety of so called medical professionals who never heard a word I said. Those who listened at all, used my complaints against me and deemed me delusional. I have struggled through this nightmare solely through the support and strength of the only people on the face of this earth who believe and understand what I endure---YOU GUYS.
My daughter was taken away from me 3 1/2 years ago as a result of the psychiatric condition I supposedly have, which meant I was unable to care for my own little girl I guess. I hit rock bottom at that time in every aspect- my illness was at it's very worst stage so far, I was alienated and isolated, I was terrified of my own body and the unworldly things that would happen to and in it and I was stripped of my only child and ended up homeless. I attempted suicide by slicing my wrists in someone's garage. (Luckily) I was found by a neighbor who was returning a tool and found me unconscious within minutes of my passing out, and was hospitalized for a few days then sent "home" with some psych meds and a list of support groups for suicidal people. I acquired a very gnarly Staph infection in both wounds and was literally fighting for my life by the following week. I was hospitalized again and miraculously, that's where I was introduced to a woman who helped me get on my feet in every way. I since then have become very politically active with Morgellons in my state, and have also won custody of my daughter back. I have recovered about 50% to date in terms of the main morgs symptoms, and am currently backsliding for some unknown reason.
My daughter began to show symptoms during our time apart and wasn't cared for properly so her illness has been very hard to get a handle on so far, but it's an everyday process that we are having to live through. She's only 10 and it's so unfair to have to watch her lose so much of her childhood because of this crap. That is the ONE AND ONLYreason that I am able and willing to roll out of bed every morning---the kids who have to be tortured while the idiots who have the power to bust a grape on this problem sit around on their' thumbs!
Anyway, I could go on and on...but I just wanted to let you all know that I am here should anyone need me for anything I might be able to offer help with. I don't know what I would've done without the support of these boards when I was freshly infected and scared beyond description...so I would like to be there for anyone who might be where I was 6 years ago.