|
Post by depressed on Jan 10, 2008 18:32:45 GMT -5
hi everyone ive been reading this group for over a year couldnt get to post well i tryed and still dont no if this is gonna work. i cant figure it out. well im one of u i ho i have morgellons , ive been going threw this for 2 years. i live in illinois and im miserable.... of course my boyfriend and daughter think im nuts... and i worry every day they are gonna get this, big stress on my life, my daughter is only 14 and so far they dont have it. well they do have some signs . i see them itch. and i cringe... and just stare at them and they laught at me... my daughter has some bumps on her legs . she wont let me look . and says they dont bother her..well ill fil u in more if i no this works.. i need to talk to u . i have the crawlies, sores and little goose bump things all over my legs chest stomach and legs... help thanks dawn
|
|
praying4usall
Full Member
He shall cover you with His Feathers, under His Wings you will find Refuge.
Posts: 244
|
Post by praying4usall on Jan 10, 2008 21:02:29 GMT -5
Hello there!
If you want to talk, I'm here for you! I understand what you're going through!
I'll be thinking of you! Bless you, Celia
|
|
|
Post by depressed on Jan 11, 2008 0:21:04 GMT -5
thanks celia and boonies boy , ive read so much on this site and what ive told u dont even , tell a dent in what ive been going threw, last year i was ready to give up. but to chicken.. i dont no how to deal with this physically and emotionally, like all of u . i just want to be normal again. i know i have to be strong but its hard... i just moved from chicago to a little town called buda in ill. and thank god i work from home. but i get the worst anxiety in the world and noting that its in my clothes and everywhere else and i probably cant get rid of this is very sad.... and i dont no what to do.... the first thing i do in the morning is go to ur sight or lyme busters . tryed to sign up there last night waiting for aproval from admin... well thank god i dont really have it on my face except white things that i tweeze out every day. im waiting for some money to go back on the clense. and get more echo vie and dsp.... i dont even no if it helped. i did it for a short time... i do take baths with peroxide. but now only have a 10 gal water heater... lol soon hopfully get a new one, well i think u are all great people from reading ur missery .... well talk soon take care dawn please write back/.
|
|
|
Post by depressed on Jan 11, 2008 0:24:06 GMT -5
ps im so glad im finally able to talk to u guys . u are all so sweet and thank you... even though i havent been able to talk to u until now. i have read all ur pain. i feel like i no u all.... thanks again.
|
|
|
Post by depressed on Jan 11, 2008 8:22:15 GMT -5
thnaks boonies boy, your real sweet, i do try to take this one day at a time but its so hard, and i do pray but dont seem to get me anywhare. sorry about the spelling... this is just so hard and i no u no it to. why i ask my self every day... i look at people every day and see how normal they are, and when i lived in chicago i would be on the train with hundreds of people and get so jealous at people laughing , whereing shorts and tank tops in the summer, i cant that sux. i think i no how i got this. well 2 years ago my bathroom radiator was broke and blowing steam and never had it fixed.. well i started seeing lots of mold. and fuzzi mold or what ever it was, and walls were constantly damp like when u get out of the shower, well thats when i got all these bumps on my legs, i was going threw someother health problems at the time, women stuff... well anyway had a fever low grade, and rash , with my other problems i couldnt take the pain, i had alot of tests done even had a hiv test cause i had some symtoms, well thank god negative... well as the months went buy my women problems got better but then my bumps got worse and i broke out in a real bad rash. of course they thought it was scabies,,, used urax nothing.... no help... ill tell u i hear all u guys talk about no doctors diagnosing u ... welll i went to northwestern university, my drinking alchol was getting pretty bad and that was the only way i could ease the pain, well i went to northwestern univesity derm around a year ago and went there drunk... well i cryed and cryed to to doctor and told him i thought i had morgellons, he took one look at me and said yes u do, and told me he had some medicine but he wouldnt give it to me because i was drunk and he said it would kill me if i drank, and to go to the crisis center, well i didnt, he gave me vitamin b , folic acid ayears worth and a years worth of eurax he said that will kill anything, well it didnt,,, cant go back to him unless i go to a rehab . cant do that, ive cut down alot on my dringking , at that time i was drinking jack and coke, now just beer, i no its not good for me but i have to live. sorry so long write back soon \ i have so much to say ps does any one have those little goose bump things alll over there arms and legs and stomach? what are they eggs, or someting , i also get so cold real easy and they get worse and sting and burn
|
|
|
Post by depressed on Jan 11, 2008 8:50:55 GMT -5
i guess im not done, well does any one have little white things all over them i pull little whtie things out of my arms , legs and stomach and chest, what are they , i think there eggs, i also tweese little things off of my face like sand... and i see alot under my skin, i dont have any black specs like alot of u and never see real bugs,,, just feel them mostly on my feet, and occational bite, here and there,, especially when i where jeans,,, witch sometimes i cant because it hurts when it rubs on my skin, i got new ones for xmas, there cute , but cant where them very long,,, i always usually where pajama pants, well my boyfriend just dont get this whole thing and has a hard time believing me, we argue alot because of this and when i get real crabby and depressed, it drives him nuts, and he tells me there is no such thing as morgellons or bugs,,, i cry and cry i try not to complain to much and bottle this all inside and do the best to try to be normal. and have fun once in a while ,,,,im blessed i get to work from home, i do sales, when i left chicago my boss said i could call from home because i was his best salesperson,, now i was trying to sell this stuff to someone this cleaning service, and he offered my a job too, i start monday,, ill be calling busnesses to try to sell office cleaning and rug cleaning,,,, i havemy own office , fax and my phone,,,, im lucky, but its just not the same having this desease..... i keep thinking maybe when i finally get some real money i could buy every thing people suggest, borax, echovie and dsp and start a different herbal clense the herbal lady i talk to is real nice, and keeps telling me not to worry and it is a parisitic infection and its internal,,, she went on line and read about morgellons,,, she told my to get a colonic,, ever heard of it,,, well i did it and i didnt think it helped much, but the lady told me i had to get one once a week for 5 weeks, to get all the toxins out. well a colonic is a advanced enema, not pleasant and cost 70.00 a pop. well only had it once, maybe when i get more money i will again,,, i was taking alot of garlic, vingera , armetisa, fiber, alpha lipotic acid, l lycine, cascara sagrada, an erbal laxitive , black walnut and only ate vegies, and chicken and eggs,, she said i needed my blood type to be able to put me on a strickt diet, i tried to cut ou t sugar as much as posible she said parisites trive on sugar,,, oh yea i also took liquid cloraphil for my blood and benitite clay liquid.. well did all that for about 3 months felt somewhat better, then ran out, then she put me on somthing sronger, this stuff called paw paw cell reg, imune stimulator , and high piotency protease,,, only did that for a month kinda of expencive, about 140.00 for all three, and noni juice,, have u heard of it,,, well now i need to call here and see if she has anyother suggestions, for me,,, that stuff paw paw cell reg, she treats her cancer paitients with, and i was supposed to be on that for 3 months,,,, well im broke,, and now my eating, ive screwed that up ive been eating pizza, and junk,,., i need to get more medicine so i could start fresh... i figure now with my other job i should have money in the next two week, any way shes real nice to talk to maybe ill call here today, she always gives me some hope.. u no how they way there is no cure for lupus... welll she cured herself, with clenising and lots of different herbs,,, i have this big book of herbs, i wish i had the money to buy them all... well i cant wait to start some kind of program again, hope it helps, me there is also this pamplet i have about olive leafe extrat and how it is a clensing thing too.... well getting tired l thanks for listning much love dawn
|
|
praying4usall
Full Member
He shall cover you with His Feathers, under His Wings you will find Refuge.
Posts: 244
|
Post by praying4usall on Jan 12, 2008 0:49:39 GMT -5
Hi Dawn!
Sorry I hadn't been back on before now. Haven't felt good the last few days. I'm sorry that you are going through so much, and that your boyfriend doesn't understand. We know all too well about being misunderstood, & thought of as nuts. But we all know we aren't! If I were going to nut up, I'd come up with something more clever than THIS crud to be delusional about! LOL!
Anyway, it is very late and my arm is numb, so I'm going to have to go. Hard to type. But I will check back on here tomorrow if I feel good enough to. I may end up going to the Dr. because of something else, but if not, I'll stop in to see if you at least got to read this!
There are others who DO understand and we DO CARE too! Prayers & hugs for you Dawn! Celia
|
|
praying4usall
Full Member
He shall cover you with His Feathers, under His Wings you will find Refuge.
Posts: 244
|
Post by praying4usall on Jan 12, 2008 0:59:42 GMT -5
PS: Please don't give up! And yes, I've had those little white things that come out of your skin when you rub it, especially when wet. Bathing in Sea Salt, or Epsoms Salts at least 2 cups of them, and 2 bottles of peroxide helps to make your skin feel clean again after you scrub. Don't scrub so hard that you irriate your skin, but scrub everwhere you can reach.
When I can use my arm better, I'll share anything else I can think of that has helped me. And yes, like Booniesboy told you, Jesus loves you! HE is THE reason I haven't given up myself! And the Wonderful Friends I've made, like Booniesboy & his precious Wife, and others from this board. We all help each other.
So, we will keep checkin in on any word from you Dawn! We all need each other! Blessings & prayers, Celia
|
|
|
Post by skytroll on Jan 12, 2008 2:28:23 GMT -5
Dawn,
You are not alone. Wash with sea salt and if you have noxema wash with that. Your skin will feel better. Take each thing one at a time until you feel you have control over the itchies for instance, then if you have lesions, cover them use noxema on them to soothe them.
Vinegar baths are good.
Clean surroundings and vacuum, the best you can.
But, do not panic, or let it get you down. Drinking only kicks in the itchies more and will not raise your positiveness. Try to take Vit C, Vit B, folic acid, these things will get you feeling better.
We have all been through this, and yet we go down, we come up, we start getting angry and kickin some butt, then we go a litte further and we get closer to what this is.
We have many barriers to face, but, we get past them, and we keep on searching for what this could be, many things are happening, and in some places this is being taken seriously.
Some will treat us, know what to treat us with, and some doctors will acknowledge this and will treat us the best they can.
We are here and you are most welcome on this board.
Take care and post as much as you want.
Skytroll
|
|
|
Post by depressed on Jan 12, 2008 8:39:42 GMT -5
thanks u guys so much , i cant belive ive been reading all ur stories for over a year and finaaly figured out how to reach u guys im computer literate.lol well yes this is the hardest thing ive ever gone threw. and somedays are worse than others like u all no. and some days i just dont no how to cope.. my daughter is only 14 and like u have i just moved a couple months ago in a small town of 600 . il love it here.well anyway she made some new freinds and they always come over or sleep over i cant tell her no but worry they are gonna get this..then what do i do.... im srewed...do u no what those white things are?are they eggs.... and what about the goose bump things i have thousands.... permanant goose bumps. when i had my boiopsy i was diagnosed with hyperkeritosis. ive been reading that on line... i think i have morgs and that, i think thats why i have those bumps,, any feedback? have u herrd of hyperkeritisosis. ?i have alot of white things on my stomach and i pull them out , im obsessed with it... i cant stop it drives me nuts and when i do i give myself more sores.... my arms a covered with pick marks.... help how do i stop..... my legs are getting pretty bad to.and they take forever to heal. and now i have scars when they do....and as for laundry i dont have a washer or dryer yet, and only a ten gallon watter tank, cant take baths.... i no these things are in my clothes,, and i try to keep my stuff away from theres but its imposible..... my boyfriend has been with me the hole time since ive had this 2yrs. and he only show symtoms of itching now and again, and he blows it off when i say to him your feeling it arnt u, he says everyone itches.. im never gonna get it. for his sake i hope hes right. or i no he wont beable to handle this... and hell hate me... and my daughters life willl be ruiened,, also i have a 17 year old still in chicago. she dont have it so far either or any one else ive come in contact with.....as far as i no... but u no what this girl i used to work with in chicago we came to talking and she said she has a skin problem and showed me her arms, they looked kinda like mine. i told her what i think i have and she heard of it and says she thinks she has it, and she feels things biting her, but she thinks its fleas she has 7 cats.. any way she said there is a show on wls radio 720 am and its all about morgellons, and there is this doctor that treats it with sulfer pills, i havent heard the show yet, it comes on at midnight and havent listened yet.. and u no i had all the sores and bumps and burning not so much itchies, but never had the crawlies until i started working at that place in march.... and after my cast came off, maybe she has it the girl from work and i picked up what she has too... i dont think anyone else has it there... she went to derm a couple monthes ago and they gave her a cream helped her somewhat. i dont think she has it , shes always in a good mood, anyway im looking forward to meeting u all and thanks for the support.... like i said i feel ive known u all for a long time ive read all ur storys more then once. some times its overwhelming how much suffering there is.....its so sad... ill try to make this a good day, my boyfriend is coming home today from chicago from working... ill try not to be crabby,,, i cant wait to get some dsp and echo vie, and some new herbs.. and next month im gonna try to find a new doctor.. yeah right. lol maybe ill get lucky ive been to alot , no luck..... well have to go clean,, thanks again.. love dawn have a good day ill check in later.....
|
|
|
Post by depressed on Jan 12, 2008 10:18:10 GMT -5
celia i hope u feel better soon ill be thinking of u dawn
|
|
praying4usall
Full Member
He shall cover you with His Feathers, under His Wings you will find Refuge.
Posts: 244
|
Post by praying4usall on Jan 12, 2008 19:19:55 GMT -5
Well, thank you! I appreciate the kind thoguhts & words! Hello SkyTroll! Ya wanna give me a call today? PRAISE GOD everyone! I'm actually having a GODD DAY!!!I feel good, have enegery, and am cleaning the apt and still feel great! Not dizzy once! Took a bath last night with great results! 1 box of Epsoms Salts ( I usually use 2) 3 bottles of Peroxide ( I usually use only 2) And then...I used my new Soap It was 2 Bars for only around $1.29 At Trader Joes It is White, and has Tea Tree Oil in it. After soaking for a bit, I started to wash with that SOAP, and WOW! TONS of sand like stuff starting coming out of my chest & neck and face & arms & mid section! Not the squishy little white things that look like a form of larva under a magnifying glass, but ity bity little grainy things. I kept scrubbing with it, and it kept bringing out more! So, needless to say, I kept rubbing it all over me until the stuff stopped coming out! So much came out of my breast & arm pit ares, and my neck and face...it was weird. (like ANY of this Twighlight Zone isn't)! LOL! But, I'm wondering, I feel so good today...maybe I got something out hat was making me feel like a toxic half alive person? Well, that and everyone's PRAYERS! Sometimes it may feel like God doesn't heard us or care, but it is a lie from the devil. I still feel FRESH and CLEAN today! Even after vacuuming half the apt so far. I've done 2 loads of laundry, cleaned most all of the kitchen...I sure miss my Swiffer Vacuume. The first of next month, I'm getting one again! To keep the kitchen & bathroom floors clean so easily, that was such a blessing before! I didn't keep it when I moved, cuz U thought I had bird mites, and I was at that point in time afraid of keeping anything!! Well, the devil can go to hell where he belongs, I'm taking my life back by the grace of GOD! One step at a time, and for today, 2 or 3 at a time! Here's my love & best wishes & prayers for you all! Blessings in Jesus Name! And D, just do your best, like SkyTroll said. THAT is KEY to fighting this! ANd try to rest & relax and tell yourself that YOU CAN DO THIS...WITH GOD'S HELP, AND THE HELP OF YOUR FRIENDS: US! ;D
|
|
|
Post by depressed on Jan 16, 2008 17:53:27 GMT -5
hi guys its dawn, how are u guys doing, well im not doing so goood, had a real bad day yesturday... today so-so.. ive been working alot .....my new job is going well. making some money... but cant take this any more i was so crabby and despressed yesturday... i feel lost.... welll talke with u soon.] love dawn
|
|
praying4usall
Full Member
He shall cover you with His Feathers, under His Wings you will find Refuge.
Posts: 244
|
Post by praying4usall on Jan 16, 2008 18:33:17 GMT -5
Nightline is supposed to be covering todays earlier CDC 's report on this stuff tonight, at 11:30 Pacific Coast time
|
|
|
Post by depressed on Jan 17, 2008 10:59:30 GMT -5
thanks for the update , how are u doing , can i ask u guys something, did u give this to any one, im still very concerned about contagiosness, im scared to death about my boy friend and daughter ,,,, now my daughter in chgo, she thout she had herpes, went to doc has some sores on genital area, and a couple on butt... they said it looked very unusual,, and didnt think it is herpes,, im worried its a early sighn, but its been 2 years since i stated this,, and never had any crawlies until about april, only sores and burning,,, and the goose bump things alll over,,,, did any of u experience that,,, with no crawlies the first year >? write back soon dawn
|
|
praying4usall
Full Member
He shall cover you with His Feathers, under His Wings you will find Refuge.
Posts: 244
|
Post by praying4usall on Jan 17, 2008 17:22:17 GMT -5
I'll try to comment on this later. Brain and hands too tired rioght now. Up all night, and got up early. Gotta get some real rest first!
ttys, C
|
|
praying4usall
Full Member
He shall cover you with His Feathers, under His Wings you will find Refuge.
Posts: 244
|
Post by praying4usall on Jan 18, 2008 5:35:29 GMT -5
thanks for the update , how are u doing , can i ask u guys something, did u give this to any one, im still very concerned about contagiosness, im scared to death about my boy friend and daughter ,,,, now my daughter in chgo, she thout she had herpes, went to doc has some sores on genital area, and a couple on butt... they said it looked very unusual,, and didnt think it is herpes,, im worried its a early sighn, but its been 2 years since i stated this,, and never had any crawlies until about april, only sores and burning,,, and the goose bump things alll over,,,, did any of u experience that,,, with no crawlies the first year >? write back soon dawn Dawn? Can you PM me when you get back on here? Last April, eh? That's when my stuff started...at least the biting and stinging...right around Easter! Or maybe the day after? Anyway, I'd be glad to talk with you about the situation with your Daughter, if you'll PM me? Or better yet, you can contact me through my main email...I will PM that to you. Celia
|
|
|
Post by nomad4answers on Jan 22, 2008 23:04:08 GMT -5
|
|
|
Post by depressed on Jan 23, 2008 9:47:29 GMT -5
hi its dawn well my lesions are more from me picking my skin, sorta looks like that, do u have the crawlies,,, does it look like u have a thousand goose bumps all over. i pick little white things out of my skin all the time... where in ill do u live. i use to live in chicago, now i moved 3 hours away from there to a small town called buda il, wbs dawn
|
|
|
Post by depressed on Jan 31, 2008 8:38:07 GMT -5
hi guys havents heard from u in a while , how are u all feeling, me so.so. hoping to get my incom tax check soon some i could start a herbal clense,, and get some echo vie or kleen free enzyme stuff and i found alot more stuff on line i want to purchase... has any one ever tried niem oil soap.. it sounds interesting... and i read some where some one well wbs thinking of u all dawn
|
|
|
Post by depressed on Mar 14, 2008 14:24:28 GMT -5
hi guys how are u ? i dont no what im gonna do im loozing it , i just bought some dsp and ecoivie and i think its making it worse , im so misserable all i do is cry ,. my life is over i think my boyfriend is cheating on me,, i feel so ugly and unloved and un wanted.. he wants me to move out , he moved me to a little town 4 months ago with no friends and i sit here everyday alone... he leaves me for a week or two to work in chicago... and he thinks im stupid... i no =what hes up to.. all we do is fight everyday... and he dont believe anything is wrong// i dont no what to do... i swear if it wasnt for my daughter i would end it. i cant taKE IT ANYMORE.... I HAVE NO ONE ,. AND IM ONLY EXISTING . BARELY... ANY INPUT.. THE BITEING IS GETTING WORSE AND THE WHITE THINGS ARE COMEING OUT ALL THE TIME.... I NEVER REALLY USE TO ITCH BUT NO THATS HAPPENING .... AND NO BLOTCHES ON MY FACE... THATS ONE THING THAT I CANT EXCEPT... I HAVE ALL THE WHITE THINGS ON MY FACE TOO.... PLEASE HELP LOVE DAWN
|
|
praying4usall
Full Member
He shall cover you with His Feathers, under His Wings you will find Refuge.
Posts: 244
|
Post by praying4usall on Mar 14, 2008 16:33:45 GMT -5
Wrote you an email Dawn. I need your phone number to call you later? I'm leaving in a bit for my Daughters.
You are being prayed for right now! Love you...and you HANG in there! Stop using those things that you feel are making it worse! Can you go buy some Natural Calm? It is powdered magnesium, and it has SAVED my SANITY!!! I take a teaspoon in the morning, and one at bedtime!! MADE ALL the DIFFERENCE in the world, and is something Dr. Staninger has told people to take!
IT WORKS!!! Calms you down, helps you get better sleep! I will check back as soon as i can. Have to b after Daughters business hours...her phone & comp are what she has to run business from her home! But I WILL check back on you! GET the NATURAL CALM!!!!! At local healthfood store.
Love, Celia Borrow if you have to to get it!
|
|
|
Post by depressed on Mar 14, 2008 18:17:58 GMT -5
ps got a question, i just talked to gene from genes all natural products, any one heard
ps just talked to gene from genes all natural product, any one heard of him? i ordered echo vie and dsp , it told him what i was goingthres.. does any one no anything about mms . mieracale mineral soulution, clorine dioxide.? has any one tryed it, well im trying it > let me no please if any one tryed it? thanks dawn
|
|