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Post by sarahconnor on Nov 26, 2006 4:39:50 GMT -5
Debbie I wish I could help you, but I have no idea!! I'm sorry. I hope some of the big guns on the board can help you out, they're all very helpful here.
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Post by thinker on Nov 26, 2006 5:18:59 GMT -5
Hi Debbie!
It's all so confusing, isn't it? We want to make it go away, to get better and go back to normal, and we don't know how to do it.
You'll see interspersed throughout the forum all of the things people have tried, or warned others not to try. To make it more complicated, some things work on some people and not others.
We're not even sure if we all have the same type of invaders because there appear to be multiple sources, types, etc. across a number of years and locations.
You'll also see posts pertaining to the fact that we're not sure how to qualify "getting better" yet.
Is it a good or bad thing that the fibers are wanting to come out?
If we upset one, another one on some other body part gets upset. They're apparently connected and communicate and may be agitated and growing inside like crazy when we pull one out of our skin.
So it's all a big question mark for all of us. Since we have no medical doctors welcoming us into their offices, we just have to do what we think is best on an individual basis.
I know it's a lot of reading here, but keep at it. You're bound to learn a lot about the predicament of "treatment."
Each time Dr. Hildy and Dr. Karjoo release more findings, we get closer to determining what to do. Hopefully there's more info coming soon.
Can you imagine if we had some big bureaucratic group working on this? It would take them 15 years and billions of dollars to determine and divulge to us whatever they would finally tell us.
I know waiting is hard, but I also know help is coming much sooner than it would be if someone else was at the helm.
By the way, has anyone heard if the CDC has retooled and reached consensus yet on what kind of investigative committee they're going to set up? And how many years has it been? Good God. What a mess.
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Post by sarahconnor on Nov 26, 2006 20:26:54 GMT -5
I don't know nothin I'm sorry, this entire siutation is a mess, it's written all over my face
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Post by sarahconnor on Nov 26, 2006 20:28:19 GMT -5
Do the "morons" out there think this is some sort of game?
Think again big nose it's real
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