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Post by whiterose on Oct 20, 2006 11:27:07 GMT -5
We have had many posts on the affects of the disease itself both on our body and our world. We have neglected the toll it takes on relationships and families. Most persons with Morgellons find it near impossible to get across to the ones we love how encompassing this disease actually is. We as suffers have become knowledgeable about the condition. We have realized that it is contagious. We either isolate ourselves or spend hours on different cleaning techniques.
We are sorry that you do not understand. We know you are busy living the life we used to live. We understand that. Many of of us out of a lack of medical help of any consequence have educated ourselves. We have done the best we could with what we had and finding ourselves in the predicament we are in. We want you to know that we love you, we don't want you to have what we have.
whiterose
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Post by sickandtired on Oct 20, 2006 12:49:16 GMT -5
Amen, Whiterose......
We have lost so much more than just our health.....
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Post by aussie on Oct 20, 2006 19:55:45 GMT -5
Yes, Whiterose, you are so-o-o right.
People who do not have this affliction either do not understand/do not want to know(99%), and the other 1% who do believe it and think it's contagious most likely won't want to you anyway, for fear they'll get it, too. And you don't want to be near them as you're also afraid they'll get it. How awful is that?
If they wrote it up in the newsapapers the way it truly is, instead making it sound like something so far removed from the person reading the paper, that they're not likely to think it's going to affect them, then there would be more credibility. They always write up the same old story of Travis and his mother and make it sound totally unbelievable- like it's a UFO story, something out of the X Files.
Why don't they say something like: There is an epidemic of people having small lesions that are itchy, refuse to heal and appear to have fibres growing from them(quite often so small you can't see them). If you think you might have this problem, go buy a magnifying glass and have a look, and if the answer is "yes", start hounding the your local doctor and state rep.
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Post by aussie on Oct 20, 2006 20:01:01 GMT -5
P s Do not go to local doctor too often, as you might start to believe his b*****t non- answers!
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Post by spring on Oct 20, 2006 20:25:48 GMT -5
There is mini study going on in Brooksville Florida at the end of the month. Dr Vadala Sastry an Infectious disease Doctor and 2 other internal medicine Drs. Will be there along with a group of Registered Nurse Practicioners and help. If you live anywhere near there Tampa, Orlando, St Pete, Daytona or within a few hours. This group is studying the effects of a non invasive treatment that is showing incredible results. It has no toxins and is completely free. We are a group of persons dedicated to your disease and want to show you what to use instead of toxins and Doctors guessing that the disease exists. We have seen and believe that this disease is real and want to prove it to others. Your names will not be used. There will be a microscope there and we will imediately slide your results. You may email back with a phone number and will need a change of clothes. It must be someone from Florida, so we can follow you closely due to the immediate Response. sincerely Dr and Mrs Spring
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Post by aussie on Oct 20, 2006 20:53:06 GMT -5
Well, thank you Dr and Mrs Spring....that sounds very encouraging. Would it be possible to give us a teensie bit more info about what you mean by a "non invasive treatment', so that members will be encouraged to contact you?
Is this something that could be available later in other states(if not countries)? Wish you every success in your endeavours.
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Post by sickandtired on Oct 21, 2006 11:26:12 GMT -5
Thank you Dr. amd Mrs. Spring
This is the start of more good things to come....we pray....take good notes for us....
Kindest Regards SickandTired
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Post by whiterose on Nov 25, 2006 12:45:10 GMT -5
WARNING!
To all those with small children or you know of someone that suspects they have morgellons. I am not the only one that couldn't feel the heat from the water, while bathing my child. If your child can't speak and begins to cry, get them out of the water. Perhaps you should use a thermometer to test the heat.
Any ideas folks? Lets keep the little ones that can't speak up for themselves safe. Often by the time you realize what is wrong with you, you have already experienced this. Thinking hats on please?
whiterose
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Post by sarahconnor on Nov 25, 2006 16:43:25 GMT -5
I don't have children, but I am aware that my fingers now have "asbestos tips" sometimes I can pick up really hot plates and even put my hands in hot dishwashing water? Maybe my nerves are all just slowly dying.....
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Post by anirishvoice on Nov 28, 2006 16:33:25 GMT -5
Please please spread this message: use ENZYME CLEANERS totally natural and so safe you can use them in the bath and spray on your skin. They break down protein and this thing is made of protein. I have almost cleared this thing from my house, I have 2 very young children I was desperately worried about, just beginning to feel safer. How to clear it pasted below & thanks to Michelle from a site I cannot remember. I believe this thing is a form of COLLEMBOLA, often associated with horses and those working with them. A type of soil yeast-cum-insect parasite. Ants use static electricity somehow, they are also 'fungus factories' and may harness these things naturally? The tiny black phase of this creature definitely thrives on static and works it's way into fibres, so it's not the fibre that's alive. Spray fibres with the ENZYME CLEANER... Spray everything.
HOPE! I found the message below from a woman who has been free for 3 years. I am almost clear after months of despair... USE AN ENZYME CLEANER LIKE KLEEN FREE THIS WILL CLEAR UP THE PROBLEM as long as you keep spraying and vaccuming. Also very important to do something about your clothes dryer - replace the vent pipe and pour something like borax into the vent in the machine. Better still dump it and buy a condenser dryer so you can wash all lint and eggs (like tiny pieces of glitter) out of it after every use. Clean every single thing in your house and watch out for wood, paper, rubber, spray every crevice, inside cupboards, mattresses, etc. Also using FUMERS as if treating a very bad bed bug problem is a help in controlling this. Useful for the car which I couldn't clean regularly but you can spray it with the enzyme cleaner. Wash clothes regularly after the problem abates and keep spraying, spraying, spraying and wet dusting inside clothes storage areas.
Here's the message that saved my sanity: I don't know if this will work for everyone, but it worked for me. I was going NUTS with Morgellon's about 2-3 years ago, to the point where I wanted to kill myself. I had ALL of the symptoms everyone describes... the lesions with fibers, specks, etc.... I went to every doctor, dermatologist, etc. and nearly killed myself with their toxic treatments. I was bathing 2-3 x a day and washing everything in my house - every day- to no avail.
Finally I came across something that seems to have helped....
1. I completely cleaned my house, and then I bought a liquid enzyme treatment - they sell them on the internet or you can buy some such as "Nature's Miracle" in any pet supply store. I sprayed it all over my house, on my clothes, my bed, my pets, in my tub and sink etc.
I don't know if this actually killed the disease, but the enzymes kill eggs and it certainly stopped whatever it is from reproducing and it began to go away.
2. I took Digestive Enzymes orally to help with internal cleansing.
3. I took Co-Q 10 and L-Lysine to help strengthen my immune system and skin.
4. I took an anti-itching medicine (Benadryl works, too) just to keep from scratching, and possibly spreading or reinfecting.
5. I washed my clothes with Borax which also kills eggs, etc. (Don't use too much or it will shred your clothes!)
Finally, I began to experience relief. Thank God!!! Please post this at the top of your site so that other people can try it. Michele
GOOD LUCK FROM LEONA AND PLEASE SPREAD THIS MESSAGE. I have two babies and worry about them all the time but I really think this will work for all of you.
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Post by sarahconnor on Nov 28, 2006 17:14:59 GMT -5
Thanks Michele!!
I am going to buy a new vacum cleaner very soon. The one I have here is clapped out, and the bending over is no good for my back.
I used to love doing the house work, and I am trying to slowly work my way back into this.
Good luck to you too.
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bc
Full Member
Posts: 178
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Post by bc on Nov 28, 2006 21:08:35 GMT -5
WE have gone through 3 vac in 2 years. I think we are going to need a new one soon . MY wood floors are all scratch up from vac so much . my tile floors stay dirty looking from spraying enzyme cleaner on then ever day and the rest of house are cement floors . I use baking soda to wash the clothes .It is cheaper then borax . I have heard that they are having god results in brooksville with new hope . take care god loves us
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