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Post by jamesinaustin on Nov 26, 2006 9:56:37 GMT -5
Hello my name is James In Austin Texas Janruary of 2006 I was in vegas for 2 days, after drinking wine for several days and nights and sleeping little and then walking to the airport my heartrate went to 180 bps where it stayed there for 6 hours, I was taken by ambulance to the hospital where they checked me for cardiac problems which showed to be “grossly negotive” but found leisons on my liver. I returned to Austin and started flushing, or puritus that would not stop, or would only happen when I drank alcohol. Does anyone have such a problem with Alcohol??? Scans of the liver again showed 3 leisons in Feb 2006. I started support for liver and checked into carciniod cancer info and then mastocytosis information. The flushing would usually only happen after a little wine, In March no more wine or alcohol, but still puritus and the creepy crawly felling, almost and electrical sensation on my skin, itching etc. I fasted 2 times did liver cleanses, colon cleanses and by June the liver spots had resolved were gone. When I use valium I have no flushing or puritus at all. Now a small red spot on my lower left side, doctor said it was H Zoster, that was 4 months ago, it never itched, but hurt at first. Still red, a couple of other smaller ones, but no sensation at all, no fibers at all. Biggest problem is with the rapid heartbeat after eating, or with heat, or exercise of any king, or stress. this I had before the valium. Allergist put me on testosterone cream, then I found small white fatty like globules on my scalp, which he said was subasus debris from the testosterone,,, Hmmm Looking for Virginia Savel, but cannot find her. Dr Swartz says he can cure me, but how can he know for sure what this is. I was thinking Mastocytosis before, and some call him a quack, and to me that means a doctor that is willing to thinkoutside the box and not fall in line with big pharma/ Also pain in left shoulder, right ear itching contantly inside sometimes more than other times, sometimes unbearable Anyway, got to take out the dog for a walk, need a doctor in Austin asap. Any one can help?? Thanks, James in Austin
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Post by whiterose on Nov 26, 2006 11:23:30 GMT -5
Yes, alcohol is a no-no if you have Morgellons. It will bring it on, if you are in remission. If you are in the throes of it, it will make you violently ill, not worth it. I've had five drinks in 10 years, 3 in one night and boy did it remind me, why I do not drink.
As for the heart racing, ears itching and pain that moves through your body focusing itself on specific points at different times. Do you go to sleep with clean nails and wake up with them looking a light blueish color? Where you sleep at night, look at the sheets when you wake up, are there black flecks on your sheets? Is there a lot of dust in your house, more than usual? Did you think you had lice on your head and then scabies on your body?
Are you unable to tell the temperature of water by feeling it? You are convinced the hot water heater is going out. Everything electrical around you seems to be going crazy. You start to avoid them because what is the point, you turn the tv on and adjust the channel. You sit down and it goes off or switches the channel on you.
Then you probably have Morgellons.
Run a search for Lyme doctors as they are known to treat Morgellons.
Good Luck whiterose
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Post by jamesinaustin on Nov 26, 2006 11:53:40 GMT -5
Thank you whiterose alcohol is a no no for mastocytosis as well, Pain throughout my body, only a little slight shoulder pain occasionally Nails never change color or otherwise. no black flecks on sheets, my sheets are white I have air purifyers throughout my home including a $4000 Ozone generator. never lice or scabies that I know of My water heater did go out by the way and was fixed 3 weeks ago, the water feels hot to me, I cannot take heat nor can I sit in my steam cabinet as it causes my heart to race and causes flushing and puritus. No problems with anything electrical On the other hand, the early stages of Of morgs could still be a fit. I will be tested for Lymes soon. I have a beam ray machine that I use 3 hours per day as well as a Vibe machine. Taking tea tree oil 3 x per day now, we will see what happens. also taking AIM injections, I give to my self, 4cc per week It costs about $2500 per month www.awakeninghealth.com/aim.aspThanks for the response
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Post by sickandtired on Nov 26, 2006 11:55:32 GMT -5
Hello James in Austin
We also have the alcohol NO NO's in this house tooo....we were the good old BBQ and Beer Sundays a time for good food and good friends......all that has gone by the wayside.....except the BBQ
Alcohol has done the same to us as for Whiterose.....either vioently ill.....the worst case hangover you can imagine....or more lesions and lesion activity.......
I thought we had food poisoning the last time we really enjoyed a few drinks.....we both were so sick but the others we were with ate the same meal and were not sick so it was NOT FOOD POISONING........just Morgellons and alcohol mixed......
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Post by sickandtired on Nov 26, 2006 11:59:32 GMT -5
and I forgot to mention James in Austin that my husband and I have both had liver problems since being infected.....liver counts off the charts.....and one co-worker died from liver failure.....unexplained liver failure....so this has proof it can effect the liver.....
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Post by jamesinaustin on Nov 26, 2006 12:00:09 GMT -5
The alcohol only gives me puritus, itching and rapid heart rate,
the morgs critters love sugar and alcohol is pure suger, this could be a big cause with what little I know.
Thanks for your responsse ;D
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Post by jamesinaustin on Nov 26, 2006 12:03:49 GMT -5
and I forgot to mention James in Austin that my husband and I have both had liver problems since being infected.....liver counts off the charts.....and one co-worker died from liver failure.....unexplained liver failure....so this has proof it can effect the liver..... My liver enzymes are and have been normal after the beam ray and the AIM, the spots have all but gone, but does not mean that it will not come right back, for sure. Mastocytosis attacks the Liver first, then the spleen, then the bones and teeth, just giving a bit of info about that one, interesting the very very close symptoms of these two diseases.
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Post by thinker on Nov 26, 2006 12:43:26 GMT -5
Hi, James in Austin!
I'm sorry to hear about your situation. It sounds almost identical to what's happening to someone I know.
Can you tell me please if this involves mood swings, lack of emotional control, almost like something's trying to take over the person you used to be?
Are you having vision problems, hearing problems and appetite loss?
If yes to any of these things, how long have you been noticing these changes?
Thank you. We'll all get through this!
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Post by jamesinaustin on Nov 26, 2006 12:57:18 GMT -5
Hi, James in Austin! I'm sorry to hear about your situation. It sounds almost identical to what's happening to someone I know. Can you tell me please if this involves mood swings, lack of emotional control, almost like something's trying to take over the person you used to be? Are you having vision problems, hearing problems and appetite loss? If yes to any of these things, how long have you been noticing these changes? Thank you. We'll all get through this! Mood swings yes, emotional control yes for about one year, vision problems with near vision, need reading glasses now, for about 1 year or so. No hearing problems, appetite is gone as a result of valium, which I am slowly coming off of now. Before appetite was ravenous.
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Post by jamesinaustin on Nov 26, 2006 12:59:03 GMT -5
AS far as the mood swings, my temper would become unbelievable at times, this has not happened now since I have been using AIM. FYI
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Post by thinker on Nov 26, 2006 13:06:42 GMT -5
I'm afraid the only AIM I know is AOL Instant Messenger. LOL
Can you fill me in, please? I can't tell you how happy I am to be speaking with you.
I think my friend is in absolute torment and would love to help.
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Post by thinker on Nov 26, 2006 13:08:36 GMT -5
By the way. My friend lives not far from Austin and is in Vegas multiple times every year.
But as far as I know, he does not drink at all and has not for years.
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Post by jamesinaustin on Nov 26, 2006 13:15:51 GMT -5
By the way. My friend lives not far from Austin and is in Vegas multiple times every year. But as far as I know, he does not drink at all and has not for years. Information on AIM is found here www.awakeninghealth.com/aim.aspthe success rate for aids patients is almost 100%, so they say, and from what I can see. It rejuvinates the liver and kills virtually all viruses. IT is expensive.
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Post by thinker on Nov 26, 2006 13:18:42 GMT -5
Thank you!!!
Looks like I get to learn something new again today - just like every day now - just like we all do.
Going there now.
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Post by jamesinaustin on Nov 26, 2006 13:27:17 GMT -5
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Post by sickandtired on Nov 26, 2006 13:35:49 GMT -5
James in Austin
yes, our liver counts have now been nornal since.....although every now and then I do feel some pinching like sensations coming from that region.....my husband has his blood work done every month the past several years to monitor these counts.....he also had scans done that sort of thing....
I can have the mood swings....the emotional roller coaster and stress very easily at the stupid things.....eyesight the same for near things and reading I need glasses it is like the page is not focused properly looking through a haze..............far eyesight seems fine......but I don't tolerate the light very well anymore.....hearing well of course the ringing and thumping........and right now having a terrible time with my left leg and sciatica that hurts all the way to the bottom of my foot.....but we both suffered severe lower back pain as well......and painful joints.....and everything else on the symptoms list of course...
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Post by thinker on Nov 26, 2006 13:50:04 GMT -5
Thank you so very much!
I'll copy all of this into an email and send it to him!!
Good luck to you, too.
If you're interested, we have a group meditation at 8 p.m. (central time) on each Sunday where we all focus on "the higher good for all."
You, and all of our new members are very welcome to join us!!
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Post by jamesinaustin on Nov 26, 2006 13:50:50 GMT -5
James in Austin yes, our liver counts have now been nornal since.....although every now and then I do feel some pinching like sensations coming from that region.....my husband has his blood work done every month the past several years to monitor these counts.....he also had scans done that sort of thing.... I can have the mood swings....the emotional roller coaster and stress very easily at the stupid things.....eyesight the same for near things and reading I need glasses it is like the page is not focused properly looking through a haze..............far eyesight seems fine......but I don't tolerate the light very well anymore.....hearing well of course the ringing and thumping........and right now having a terrible time with my left leg and sciatica that hurts all the way to the bottom of my foot.....but we both suffered severe lower back pain as well......and painful joints.....and everything else on the symptoms list of course... I wonder where to go for a test for Lyme disease and what test is the best and most reliable?
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Post by jamesinaustin on Nov 26, 2006 13:52:05 GMT -5
Thank you so very much! I'll copy all of this into an email and send it to him!! Good luck to you, too. If you're interested, we have a group meditation at 8 p.m. (central time) on each Sunday where we all focus on "the higher good for all." You, and all of our new members are very welcome to join us!! Yes I am interested, is it over the telephone or what, thanks
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Post by thinker on Nov 26, 2006 13:59:01 GMT -5
Nope. ;D It's over the free airwaves of our minds. Just a little meditating connection and some harmonic convergence.
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Post by thinker on Nov 26, 2006 14:00:25 GMT -5
If we all got on the phone, we'd be on for weeks - what a call it would be!!! ROTF ROTF ROTF
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Post by jamesinaustin on Nov 26, 2006 14:02:44 GMT -5
If we all got on the phone, we'd be on for weeks - what a call it would be!!! ROTF ROTF ROTF OK 8 pm central, the focus of energy can be life changing in groups thinking the same thoughts.
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Post by thinker on Nov 26, 2006 14:04:28 GMT -5
Yes, sireeee. You're so right, as we have happily discovered.
We look forward to it like a holiday or special outing or something. LOL
So glad you're on board.
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Post by aussie on Nov 26, 2006 22:38:10 GMT -5
Hi there James,
Yours is a very interesting story. Thank you for going into detail with your symptoms.
I had never heard the term "mastocytosis" before and I'm willing to bet not many others here have either. I guess if it's a rare disease with no positive outcome, as the search engines show, that's not surprising.
Of course, the term "Morgellons" is also just the lately acquired name of a syndrome relating back to something apparently similar, long, long ago. Perhaps there is a connection between the two, they certainly sound very alike in many respects.
They are also alike in that no one so far, has found any officially accepted cure.
I am wondering, when you say you have several small lesions but no fibres......are you sure?? I was like you, already with a compromised immune system, liver problems, mycoplasma in residence and several small itchy lesions. To the naked eye they just looked like a small sore...the only diference being that they itched and refused to heal for ages. It was only after I acquired a strong(20x I think) magnifying glass that I could see the fibres growing. If it were not for the fact that you can see them on a piece of white paper after you've plucked them out, you would doubt yourself. Of course people have larger fibres growing, too, that are easily seen with the naked eye.
If you start plucking the fibres out the lesions grow and also multiply in the surrounding area.
You are absolutely right about sugar and alcohol. Dairy products are not helpful either. The critters seem to thrive in a candida rich environment.
I have used vibrational machine therapies quite a lot over the past 10 years, too. They seem to help but for me it was only for about 3 days. When I tried to get a diagnosis for my original lesion, which started out as a red rash on my arm and then a small pimple for about a year, the machine first said it was pre cancerous and then later said it was shingles(herpes virus).
As you own a machine though, you wouldn't have a problem with accessing it, would you? Do you just use it to give yourself a giant "zap"?
You've probably noticed from other postings that it is important to get your pH balanced, acidic doesn't help(sugar, flour, dairy).
Several of us are investigating the possible benefits of the far infrared radiant therapy machines. They appear to be very beneficial from initial investigation. Affordability is another thing. I am wondering whether the ones you see on Ebay produce the same benefits as the more expensive ones.
If you are going to try the tea tree oil protocol, I wish you the best of luck, and I hope you are going to do it under the care of a qualified practitioner. If you log on you can access a personal message I shall send you.
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Post by jamesinaustin on Nov 26, 2006 23:11:07 GMT -5
Hi there James, Yours is a very interesting story. Thank you for going into detail with your symptoms. I had never heard the term "mastocytosis" before and I'm willing to bet not many others here have either. I guess if it's a rare disease with no positive outcome, as the search engines show, that's not surprising. Of course, the term "Morgellons" is also just the lately acquired name of a syndrome relating back to something apparently similar, long, long ago. Perhaps there is a connection between the two, they certainly sound very alike in many respects. They are also alike in that no one so far, has found any officially accepted cure. I am wondering, when you say you have several small lesions but no fibres......are you sure?? I was like you, already with a compromised immune system, liver problems, mycoplasma in residence and several small itchy lesions. To the naked eye they just looked like a small sore...the only diference being that they itched and refused to heal for ages. It was only after I acquired a strong(20x I think) magnifying glass that I could see the fibres growing. If it were not for the fact that you can see them on a piece of white paper after you've plucked them out, you would doubt yourself. Of course people have larger fibres growing, too, that are easily seen with the naked eye. If you start plucking the fibres out the lesions grow and also multiply in the surrounding area. You are absolutely right about sugar and alcohol. Dairy products are not helpful either. The critters seem to thrive in a candida rich environment. I have used vibrational machine therapies quite a lot over the past 10 years, too. They seem to help but for me it was only for about 3 days. When I tried to get a diagnosis for my original lesion, which started out as a red rash on my arm and then a small pimple for about a year, the machine first said it was pre cancerous and then later said it was shingles(herpes virus). As you own a machine though, you wouldn't have a problem with accessing it, would you? Do you just use it to give yourself a giant "zap"? You've probably noticed from other postings that it is important to get your pH balanced, acidic doesn't help(sugar, flour, dairy). Several of us are investigating the possible benefits of the far infrared radiant therapy machines. They appear to be very beneficial from initial investigation. Affordability is another thing. I am wondering whether the ones you see on Ebay produce the same benefits as the more expensive ones. If you are going to try the tea tree oil protocol, I wish you the best of luck, and I hope you are going to do it under the care of a qualified practitioner. If you log on you can access a personal message I shall send you. Well it seems it has changed a bit, see my latest new thread, no pun intended. I have just started using the vibe machine now 10 min/ day the max usiing the beam ray for nanobacteria, parasites and mycoplasma amoung others. 90 minutes 2 x per day, there are over 652 frequency combinations in the computer that comes with the machine. Going to a complete alkaline diet now, will be doing a few fasts, then several, 5-10 liver flushes over 3 months, along with a lot more things I am starting MSM, Hymalan salt, bio bran, and many others, these things I aquired when I thought I had carcinoid cancer. So we will see. I do not have lesions per se, but red spots, I will try to see if there is any fibers.
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Post by jamesinaustin on Nov 28, 2006 18:15:55 GMT -5
Please please spread this message: use ENZYME CLEANERS totally natural and so safe you can use them in the bath and spray on your skin. They break down protein and this thing is made of protein. Also try INTERNAL ENZYMES (see message below) which claim to break down candida in the gut and also parasites. I have almost cleared this thing from my house, I have 2 very young children I was desperately worried about, just beginning to feel safer. How to clear it pasted below & thanks to Michelle from a site I cannot remember. I believe this thing is a form of COLLEMBOLA, often associated with horses and those working with them. A type of soil yeast-cum-insect parasite. Ants use static electricity somehow, they are also 'fungus factories' and may harness these things naturally? The tiny black phase of this creature definitely thrives on static and works it's way into fibres, so it's not the fibre that's alive. Spray fibres with the ENZYME CLEANER... Spray everything. HOPE! I found the message below from a woman who has been free for 3 years. I am almost clear after months of despair... USE AN ENZYME CLEANER LIKE KLEEN FREE THIS WILL CLEAR UP THE PROBLEM as long as you keep spraying and vaccuming. Also very important to do something about your clothes dryer - replace the vent pipe and pour something like borax into the vent in the machine. Better still dump it and buy a condenser dryer so you can wash all lint and eggs (like tiny pieces of glitter) out of it after every use. Clean every single thing in your house and watch out for wood, paper, rubber, spray every crevice, inside cupboards, mattresses, etc. Also using FUMERS as if treating a very bad bed bug problem is a help in controlling this. Useful for the car which I couldn't clean regularly but you can spray it with the enzyme cleaner. Wash clothes regularly after the problem abates and keep spraying, spraying, spraying and wet dusting inside clothes storage areas. Here's the message that saved my sanity: I don't know if this will work for everyone, but it worked for me. I was going NUTS with Morgellon's about 2-3 years ago, to the point where I wanted to kill myself. I had ALL of the symptoms everyone describes... the lesions with fibers, specks, etc.... I went to every doctor, dermatologist, etc. and nearly killed myself with their toxic treatments. I was bathing 2-3 x a day and washing everything in my house - every day- to no avail. Finally I came across something that seems to have helped.... 1. I completely cleaned my house, and then I bought a liquid enzyme treatment - they sell them on the internet or you can buy some such as "Nature's Miracle" in any pet supply store. I sprayed it all over my house, on my clothes, my bed, my pets, in my tub and sink etc. I don't know if this actually killed the disease, but the enzymes kill eggs and it certainly stopped whatever it is from reproducing and it began to go away. 2. I took Digestive Enzymes orally to help with internal cleansing. 3. I took Co-Q 10 and L-Lysine to help strengthen my immune system and skin. 4. I took an anti-itching medicine (Benadryl works, too) just to keep from scratching, and possibly spreading or reinfecting. 5. I washed my clothes with Borax which also kills eggs, etc. (Don't use too much or it will shred your clothes!) Finally, I began to experience relief. Thank God!!! Please post this at the top of your site so that other people can try it. Michele GOOD LUCK EVERYONE Ok I am going to print that one thanks the Borax I have already heard of, now looks like my wife has this as well. Thank you so very much for your advice. Peace ;D
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