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Post by silentlamb on May 23, 2007 8:17:01 GMT -5
Well, you would know what it says if you participate. Please add your information on the survey site. They have been working very hard to make this endeavor work for all infected and need everyone’s participation for it to be successful. Please support this effort by sufferers for sufferers. All information is kept private. Thanks for your help. “Who is the Database for? - The data collected here is for the exclusive use of people with symptoms of "Morgellons" disease as described by the Case Definition at Morgellons Research Foundation or as described by the National Unidentified Skin Parasite Association. All the information gathered here is kept private. It can only be viewed by people who contributed their data to the database. A username and password will be required to view the results. Access for research is permitted by request." usp-db.com/Index.aspTHANK YOU ALEX! Thanks, sl
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Post by 0happyday on May 24, 2007 0:09:42 GMT -5
Oh man I am going to like this one! We get to name all those incompetent Dr's who suffer from DOHTT (Delusions of Holier than Thou) LOL ;D ;D
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Post by silentlamb on May 24, 2007 8:32:36 GMT -5
Yes, Ohappyday, finally a way to reveal some more truth and this time about the poor treatment we have had to pay for. You know those letters the CDC sends out that says, “Work with your doctor……” How I would love to see every sufferer give their information so we could show exactly what happens time and time again when we try to follow that advice. We know that they know what happens but when it is documented the rules seem to change for some reason. Thank you for your participation and please encourage any one else you know of that qualifies to fill this out. There is power in numbers and that is exactly what this survey represents. If anyone reading this has previously filled this out then please take the time to update your information. And, thank you all for your support. sl
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