ash
New Member
Posts: 1
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Post by ash on Apr 2, 2018 10:15:52 GMT -5
First time on here so a little hesitant, please bear with me ! Ive been to my GP several times over the last 3 years, when all this nightmare began. I cant even get them o recognise i have a problem, let alone help me! My health has suffered externally rapidliy, so i hate to think what is happening inside. I need to talk to anyone who has this or knows of this, because at the moment i feel i cant talk to anyone, no one is willing to except there is a problem, almost feel like giving up!
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Post by Admin on Apr 2, 2018 18:43:57 GMT -5
First be careful what you say online as I've known folks to get adult timeouts. The best place I can send you to speak with someone is the Charles e holman group, one of the nurses. At this point in time I can no longer take calls as my own health as dwindled. u t My problem is I don't look as ill as I am and getting help is difficult. Need the right tests that actually look for what is wrong. Not cover their eyes and say nothing they can see. Do call the nurses as they will be more able to help you than I am at this moment. www.thecehf.org/nurses-and-morgellons-disease.html
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mea2
New Member
Posts: 5
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Post by mea2 on May 29, 2018 3:48:38 GMT -5
Hi Ash and admin, so sorry for your suffering! This doesn't seem to be the easiest way to communicate, does it? Is anything you are doing helping at all? One of the worst things for all of just seems to be the terrible isolation we all feel, so I am thankful to have found this group, although it doesn't seem to be very active unfortunately.
I am myself in the medical field but find that the only real benefit to that for myself is my ability to research, analyse and weed out the bullnuts.
I've had this for the past 6 months and have tried just just about everything! My symptoms are now under control using a topical MMS spray 40:40 + 1 tsp DMSO for 250ml bottle, dark glass keeps it lasting longer. I use this for the stinging sensations and itching whenever needed throughout the day. I have one at home, in my purse and at the office. Other than that I lather myself with pure (bio) coconut oil 2x a day. Keeps my skin baby soft and isn't offensive. 2x a week I bathe in either MMS 40:40 with 1 tsp DMSO or a combination of 1 cup borax/ 1 cup baking soda. It seems to work best when alternated.I also use 1/2 cup borax for my laundry and wash most everything at 90 degrees celcius. I wash my bedding every 2-3 days in the same, in between I vacuum the sheets. I also clean my shoes every day with natural green soap. Other people don't even notice the lesions anymore even though i still get them, they are fewer. For my fingers and nails i use pure MMS then 30 minutes later coconut oil. I wash my hair with sulfur shampoo for dogs (ebay) wich smells but after letting it sit for 5-10 minutes I rinse and use regular, nice smelling shampoo and conditioner. Hope this helps you. Dont give up!for the anxiety i use a mindfulness app. Try to use similar things. Stress breaks down your your immune system!eat as healthy as you can using food that reduces inflammation, such as cucina (curcumin latte with coconut milk, cinnamon and a tea spoon of honey is great or curcumin, lemmon juice and water, etc), apple cider vinegar.
It's not gone, but it's under control! I at least have part of my life back and am participating in society again. I hope this helps! Bless you both.
Marcia
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