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Post by sarahconnor on Apr 14, 2011 4:54:56 GMT -5
...and I just wanted to say that I'm thinking of everyone. We are nearly half way through April & still no word from the CDC. Most days I have to pinch myself as I can't believe what has happened to us & what is still happening to us. I feel so blessed that I have met such wonderful, caring & compassionate friends - that really is the only "good" part about having Morgellons.
God bless Love Gillian (aka sarah)
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Post by amron on Apr 14, 2011 20:18:08 GMT -5
Thanks Sarah, we are so blessed to have you. I did your fiber post it was wonderful. I've been in retirement mode, and trying to quiet the beast, I am tiptoeing around. I know I had this THING for a long time in disguise of MS, I realized that nothing has really changed, except FIBERS, so I'll paddle along in this old canoe. I can put my imagination to good use here, I can make believe, that it is a quiet peacefull sunny day, even in the heart of the rapids.
The spiritual gift of patience, in the quiet knowledge of God knowing exactly what He is doing. I forgot I had the gift of imagination, and I will put it to good work here. Love you! amron
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Post by sarahconnor on Apr 16, 2011 4:28:33 GMT -5
Thank you amron & ditto!
I had an "OMG" moment just this evening. I put my son in the bath (he has just turned 4yrs). I could see something on his arm, near the crease of his elbow. From a distance I knew what they were, but didn't want to believe it. I put some water on my hand & wiped the black fiber bundles off his arm, as I was doing this I felt 2 bundles exit his skin. I did go weak at knees. All I can do is monitor him closely & pray to God this disease doesn't take a hold.
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