tanya
New Member
Posts: 17
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Post by tanya on Mar 7, 2010 7:16:22 GMT -5
Does any one know of any doctors in and around Modesto, CA that I can go to for some type of treatment. I have already been put through hell and them some by a local dermatologist along with his UCSF buddy. I cry every day. Never leave my house. And think about the end of me everyday. I can't live like this anymore and i have a 17 yr old son going to uc Irvine next year and a 23 year old daughter in grand school. but i am truly alone. so one really understands or cares to.i too live in California. i will travel anywhere for help. any luck with the doctors mentioned? I'm scared of getting scammed. I'm also so tired of living this way and want to go to sleep until they figure it all out and make it go away which seems to be never. i cry everyday and live in isolation. i am missing out on so much of the life i have - death - I'm a living dead so why not just be....... i am freaking out again - the worms poking and coming out of my face are toooo much to handle. its happening again and of course I'm alone as always even when there here. i losing it. its too much. someone please help me  . I'm in the midst of losing it. i feel sick and so creeped out. i hate myself so much and wonder and ask what terrible thing did i do in life to be punished like this. i believe in god even tho my family goes to church - i quit - how can there be a god when all i experience everyday is this loneliness, isolation and hell i am freaking out again - the worms poking and coming out of my face are toooo much to handle. its happening again and of course I'm alone as always even when there here. i losing it. its too much. someone please help me I thought it was just me. I have had and still may have the glass like shards in my hand, one on my face that i thought was just a small bump but opened up wide to a nickel size spread of the glass like substance - right on my cheek - bright as day and hard - which then eventually decided to sprout a (I'm getting sick thinking of it) worm, which I totally freaked, and while having a nervous break down extracted it and then right after the group on my neck and lower cheek. If the lesion was open they would pop out for a quick view (a least the two I thought and tried to tell someone I had). Low and behold in the same area, the day, about the same time one tried to pop out through unbroken skin and as I looked in the mirror and saw this large lump protruding on my face. i had no idea how worse it was going to get and got.....when i saw this, of course i knew what I had to do...... which was to gave him or her a little help (no way was i going to let them be all comfy, cozy and warm under my skin) But what I ended up finding was a large group of these so called words partying it up in there under my skin. I continued my nervous breakdown, screaming, crying hysterically and so creeped out wanting to throw up and oh soo soo alone. I was home alone when it started and even though my son and husband came home I was still so totally alone but this time with the extra pain of not being acknowledged and ignored. They went to bed and I was left with the sickening thought of more of these things coming out during my sleep. It has been the worst part and I am so afraid to even touch my skin, it makes me sick. I constantly worry they are creeping out again and forever keep looking in the mirror hoping for none. the hair issue is one i dealt with in the beginning. i have long brown hair and thought it was coming from my head each time i washed my hair. I hate hair. I was dumbfounded each time i took a shower and kept finding hair all twisted up and yes i did see it move. it took a while but i finally figured it out is was coming from somewhere on my back. And yes I too saw things come right through my skin and evaporate into my skin - I thought I was seeing things at first when I would see black specks melt into my skin. Two weeks ago I was going to take my son to San Francisco for the day. I decided to use my regular antibacterial soap vs. the peppermint & menthol cleanser. I felt fine getting in but when i got out I didn't feel right and started to feel itchy & when i looked down at my body - there was so much of everything (except the worms) all over me and not stopping so I had to jump back in and take another with the peppermint soap which worked but didn't work for my poor soon who I couldn't take to SF. He was devastated. Thank you for confirming that I am not crazy, there is something that hurts and feels like glass, there is pieces of hair that look like their tied up in the middle and about those worms?   one more ugly thing about me, I have scars everywhere.
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Post by amron on Mar 8, 2010 5:29:09 GMT -5
Oh....I really feel your pain. Emotionaly the fact that an invader has taken over your skin, it is so frightening. My major quarter sized hole's or canyons, on my Tush, refuse to go. I work on them everyday. The junk and stuff that has come out, mystifys me. I try to talk with my son, but he wont have any part in recognizing morgellon's as anything, but that I am seriously nut's. I am like a alcoholic hiding a bottle when he comes over. I feel guilty for picking, but morgie's gives me pains if I dont take the pressure off the hive. I get relief from the net, studying all the information out there. Then reading others story's. This sight has so many wonderful researcher's. You know when things get unbarable I go to my shrink. He doesn't believe, but he is mental health expert. I take what I want, of every situation, and leave the rest. I need to be mentaly fortified to deal with disease. Its ok to be mentaly bankrupt, there are plenty of professionals out there ready and willing to help. There are times when I cant accept what come's out of me, I need to give others their time to see clearly. Remember they are frightened too. We are the canary's, denial is their only defense. When I talk to you, I am talking to my self ,gathering courage to face my day. Hang in there Dear One, we really care. amron
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Post by healinggrapevine on Mar 14, 2010 13:03:43 GMT -5
Dr Hildegarde Staninger, leading Morgellons expert now has an online patient intake liaison Toni Wright. You can have an appointment with Toni by phone and she can direct you to Dr Staninger (requires Doctors referral). Dr Staninger does a ARS analysis detox test and follow-up consultation by phone also. See: www.healinggrapevine.com/recover-now.html
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Post by sunnydaze on May 22, 2010 20:14:48 GMT -5
Wow, Toots!
Lots of us got well using Dr. Staninger's protocol! And most of us got no help from colloidal silver - that is a RIP OFF!!
sunnydaze
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nojjy
New Member
Posts: 6
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Post by nojjy on Jul 17, 2010 13:05:28 GMT -5
"Lots of us got well" using Dr. Staninger's treatment. Why is it that I am unable to get the name and telelphone number of 1 person who got well using Dr. Staninger's treatment? You infer that you are aware of "Lots" of people who got well. Can you give me two names and numbers or are you just blowing hot air? I've personally written to Dr. Staninger's office on two occasions requesting referrals to a few cured Morgellon patients on the promise of making a donation. I haven't even received a courteous reply. In addition, not one person from this Morgellons Group has stood up to be counted as a "person who got well using Dr. Staninger's treatment." That says a lot more to me than any of your comments.
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Post by depressed on Jul 18, 2010 0:09:43 GMT -5
geeze some one help this girl and respond............. i noticed i wrote something on may 24 and no one said a damm thing back..........whats up with that. arnt we here to help each other............ and nojjy im not cured............
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Post by depressed on Jul 18, 2010 0:10:58 GMT -5
hope you feel better soon ...........
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Post by depressed on Jul 18, 2010 0:11:38 GMT -5
geeze some one help this girl and respond............. i noticed i wrote something on may 24 and no one said a damm thing back..........whats up with that. arnt we here to help each other............ and nojjy im not cured............
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Post by depressed on Jul 18, 2010 0:13:21 GMT -5
hope you feel better soon......nojjy, the only thing that has helped me is metro gel............. i look better and feel better.....its for rosacia and i put it all over my body and my sores healed, now ive been swimming in a pool that probably dont have enough clorine, and its comeing back...........damm
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Post by depressed on Jul 18, 2010 0:14:10 GMT -5
i check this board pretty much every day, im here if you need to talk
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Post by morph on Jul 18, 2010 17:49:01 GMT -5
Depressed, clorine never helped me get any better, it made me worse, while salt water and some sun had good effect.
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Post by mymorgie on Jul 19, 2010 14:19:02 GMT -5
Tanya, I just wanted to share a technique that is not well known but was designed specifically for Morgellons. It is a chiropractic technique, eg, TBM (total body modulation). It should be easy to find in your part of the world. I found this for my friend, Mr Morgy, and he has benefited. I also taught him how to EFT tap himself and give certain instructions to his body. (He told his tissues to generate certain frequencies.) This allowed for instant relief of the crawling, sticking, biting! At this point, he is 90% improved over a period of 6 weeks. I want to help someone else with this. If these techniques work for other people, I hope to be "on to something" that will benefit many, many Morgies.
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Post by amron on Jul 19, 2010 23:39:05 GMT -5
Hi.. Has anyone got this problem- swelling, leisons-tumors to twice the size when I go on computer? The tumors get so hard they feel like solid bone. Its weird to say the least. In the middle of a couple leisons sits an object like a sponge, that looks like a perminate housing hotel for morgies, I have found all sizes and ages of inhabitants pop out. The ability's of fibers has increased, they can now pop and jump more than 24" to be safe. Its a battle because I dont look for them up close, Its so like a chess game. I think I am losing some times.
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Post by rlwheavenbound on Oct 12, 2010 18:21:51 GMT -5
I want to speak with someone who used nutra silver.Some of lesions have gone away but now I see recurrences of past pain and sores.I thot bug stuff went away.But some is surfacing with the nutrasilver.Iwant to hear from pppppeople who have used it.I'm truly relying on God because I can't do anything.The drs. say I do this on purpose so I stopped mentioning it the sores.My email; is godsgirlrlw1975@ hotmail.com. Please write me if using this pure form of silver. rlwheaven bound
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Post by Admin on Oct 12, 2010 23:36:39 GMT -5
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sudio
New Member
Posts: 5
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Post by sudio on Dec 17, 2010 1:47:57 GMT -5
I pour 3 cups of 28% Hydrogyn peroxide in my tub, 1/2 a containor of sea salt, and a a few tabs of alfalfa. Then I get in and GO UNDER with a snorkal. I bubble away, as the hydrogyn works on the infection and the sea salt helps healing. Parasites jump ship because the alfalfa makes the water very high alkaline and they hATE it and dont know what else to do...the leave the body and die in the water. A little dish soap doesnt hurt either. as the bubbles seperate, you will see everything morgy floating in them. This heals leisons. When I wash my face, I go over it many, many times afterward with cottonballs and 3% hydrogyn until I can see all of the hidden morgellons. Then I put GrapeFRUITseed Extract on my face with cotton and let it dry. Not Grape seed. GrapeFRUITseed. I have also doe this. When I get a whelt, I use a B-12 needle and suck up 3%peroxide and insert the needle ever so slightly under the edge and insert 1-2 drops of peroxide. The whelt doubles in size and it is painful as heck for a second or two and then it goes flat as the body resorbs the dead infection. All I get is a tiny needle prick to deal with. And I do deal with it, because it wants to become a sore. more cottonballs and more peroxide. So far I managed to stay ahead of the sores, with a LOT of effort. I had An eye DR remove glass from the back of my eyeball and lots has come from my back. My husband exises it fore me. I glitter when I sweat and it burns...back to the bath....Almost 4 years now, no scars other than the few on my wrists when they got ahead of me and I had bone deep sores. took Months to heal but they DID HEAL. I guess thats all I have....also, gluten free diet, no flour or sugar.....Sudio
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Post by amron on Dec 23, 2010 21:57:32 GMT -5
I dont know when my toxins started to build up, but I see that I had a problem from the gate detoxing the waste. The body I guess stores up each dangerous toxin in a gummy case, and then are sent to empty spaces to stack up, like a warehouse. I have many storehouses that hold an amazing amount of debri. For some reason my right hand has been the major sight, and its the portal that dumps excess stacked up morgies. Tea bags work very well for me. Lemon or orange added to green tea, gets it all moving out of my body. I do this twice a day. I stopped drinking diet pop, and it was a little tuff for a couple days.
I wish my balance would return it makes getting around so darn hard. Being awake all night is a killer. Now I take sleeping pills, I've never in my life found it necessary to medicate for sleep.
Its a challange to function mentaly some times, I hate those time periods when the inhabitants of my body tell me they are in control. Its then when I reach out to the board, to get some encouragement, and peace of mind. Trying to help others can be a bright spot in a very dismal morgie day. I've learned to keep my big mouth shut about this condition to freinds and family. It makes for peace, they dont want to know about the real world. I cant blame them, if I didn't have this, I'd feel the same way. They dont want me to rock their boat, in this stressfull time. Thanks for posting.
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brim
Junior Member

Posts: 83
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Post by brim on Dec 24, 2010 6:23:47 GMT -5
Merry Christmas, Amron! To you and to everybody!
Brim
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Post by morph on Jan 6, 2011 18:38:58 GMT -5
Hey there Sudio, hows it going, you disapered for awhile, I see you have used the GSE and the hydrogen peoxide.
I would like to know about the use of the needle, peroxide and under the skin, PM me.
It sounds promising but it must hurt a bit.
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sudio
New Member
Posts: 5
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Post by sudio on Jan 7, 2011 17:03:45 GMT -5
hi! I have missed you! I am going to California in 3 months. Im doing ok. Lyme has subsided with Doxy and Morgs WAS under control but now I have Celiac Disease and everything I eat turns into yeast and leaks through my stomach. I have meurological allergical reaction to the yeast. So I am still having trouble walking and a lot of malnourishment. My colon has just obout died and the DR has me on a bag of white cells onnce a month. My white cells try to fight the yeast and the yeast eats them. So the yeast is destroying my immune system now. I am doing a 3 week yeast cleanse, and then I will introduce gluten free foods in moderation.That should get things under control. The leisons on my face, I finally figured out, were yeast leisions. The were bumps that didnt open and if they did they were really girl thingy, like athletes foot. itchy to. so I took a syringe with 3% peroxide and got under the bumps and injected just a drop or 2 and the bump immidiely doubled in size (owwwww) and I just left it alone. The infection went down overnight and in the morning it was nothing.I think we are all loaded with yeast, and need to stop flour, sugar, and gluten completly for 3 weeks to rid ourselves of the yeast, and then just eat gluten free and only in moderation. I have noticed a huge difference in my morgellons since doing this. It feeds on the yeast. no yeast, white cells increase, ph goes up and morgs goes down. I hope your doing ok. i will never forget you taking me for help when I was a stupid jerk and relapsed. I am involved with a wonderful bible group here, and I know thats not for everyone, but it fills the hole in my soul. I am doing pretty well.  I wish I could have another cup of coffee with you.....
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Post by morph on Jan 7, 2011 20:34:40 GMT -5
It is always good to have someone close to you that knows what it is your going thru.
I am glad your getting a grip on the issues, you are not the first to have walking problems with this.
Hope all goes well with your recovery.
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Post by lennie58tn on Apr 27, 2011 18:05:38 GMT -5
Hello to everyone I'm new to the group and would just like to say thanks for letting me join I have something to ask if anyone knows i would really appreciate any suggestions. I'm sceduled to have surgery in 2 days and i'm terrified i will die from the morgellons when they cut me open you know a very bad infection, which will be unknown why to the neurosurgeon cause he doesn't know anything about my disease after so many docs in the past think i'm crazy i stopped trying to tell another. DON'T KNOW WHAT TO DO BESIDES PRAY HARD
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Post by sarahconnor on Apr 27, 2011 18:18:44 GMT -5
Hello to everyone I'm new to the group and would just like to say thanks for letting me join I have something to ask if anyone knows i would really appreciate any suggestions. I'm sceduled to have surgery in 2 days and i'm terrified i will die from the morgellons when they cut me open you know a very bad infection, which will be unknown why to the neurosurgeon cause he doesn't know anything about my disease after so many docs in the past think i'm crazy i stopped trying to tell another. DON'T KNOW WHAT TO DO BESIDES PRAY HARD Hey lennie  I'm sorry I can't give you advice on that, I have zip medical experience. I can pray for you though & I will. Good luck & God Bless sarah
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Post by ladyoflight on Apr 27, 2011 20:42:03 GMT -5
Hello, Lennie, I would consider expressing my fears to the doctor regardless of what he may think of me. Most doctors have been made aware of the growing epidemic of morgellons, but they are reluctant to treat it because they are clueless about it, like everyone else. At least he will be aware of your concerns before doing the surgery. If it is any comfort to you, many of us have occasional minor surgery and do just fine.
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Post by sarahconnor on Apr 27, 2011 22:59:36 GMT -5
Hello, Lennie, I would consider expressing my fears to the doctor regardless of what he may think of me. Most doctors have been made aware of the growing epidemic of morgellons, but they are reluctant to treat it because they are clueless about it, like everyone else. At least he will be aware of your concerns before doing the surgery. If it is any comfort to you, many of us have occasional minor surgery and do just fine. Speaking on behalf of the AU sufferers. Doctors have only been made aware of Morgellons by their patients, whether they believe it or not is another thing. The majority label DOP. ladyoflight, I think we're past a growing epidemic. This article is from 2009 & back then they said it was reaching pandemic status. www.prisonplanet.com/morgellons-terrifying-new-disease-reaching-pandemic-status.html
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gras
New Member
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Post by gras on Oct 11, 2011 17:25:44 GMT -5
Call Dr Stricker in SF Ca he is the only Lyme Morg Dr I know of. I know eveybody is selling something to sooth our "unexplained dermopathy"......DO NOT FALL FOR TOPICAL "CURES" this disease is systemic and affects all organs.... i was at the end of my rope and was contemplating suicide........i had not eaten in a week and was so full that i could not force a glass of water in me. I came to the conclusion that if i had no food and defaecate pure yellow slime that the biofilm finds the stomach a happy place to grow. So I started eating beans of all sorts and found that the bacteria loves it and it cleared my full stomach of bacteria and regulated my bowels once again. I eat (don't laugh) 3 cans of Dennissons chilli in addition to my other food and it has softened my stools gotten rid of the anxiety and finally can sleep at night. I still have the biofilm and lesions on my scalp.... but that can be scrubed........To show you how much this biofilm in your stomach plays a part in this..... When you are full of the bacteria you start to loose your mind.....I took a whole prescription 120 30mg Oxycontin and the bio-film surrounded the pills and went through me with out even putting me to sleep....... I know people wont believe that but the more bio-film in your gut the sicker you will be. Fill your stomach so that the bio-film surrounds it and goes through your system you will feel better i promise ..... don't buy the crap people sell unless it is naturally good for you anyway... but don't look for cures from these charlatans. For those about to lecture me on the value of life have not dealt with the worst of this...... to me a bag of water sitting in bed just firing off neurons is not living.... right now i feel ok and hope it continues .....keep your stomach full!!!!!!
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Post by glegengen on Mar 27, 2012 11:00:58 GMT -5
I have recently started experiencing these symptoms. It is completely overwhelming. Has anyone experienced memory loss, disorientation, irritability, visual and auditory hallucinations? I am wondering. Has anyone recently moved, rented or bought a new home, apartment or condo? I am trying to find a link. The research that I have read is unacceptable, and I am tired of doctors saying "I don't know."
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brim
Junior Member

Posts: 83
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Post by brim on Mar 27, 2012 12:58:49 GMT -5
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camiga
New Member
I found the factors that determine Morgellons. I heal!
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Post by camiga on Dec 20, 2014 23:25:53 GMT -5
Dear Tanya, Please see that MY SKIN and then read and please try to understand that you read explanations. If you have that in one Year you will be cleaned on your skin if you stay away of some harmful factors. Be healthy.
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Post by Admin on Dec 21, 2014 5:16:17 GMT -5
There are many gimmicks that folks put forward so walk carefully. I still don't see the science in the above post?
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