HOW ABOUT BEGINNING A PHONE CAMPAIGN AND/OR ONLINE CONTACT (at each individual website where there is email contact info) TO ALERT THE CANDIDATES TO THE MORGELLONS PROBLEM AND NOT ONLY DO SOME EDUCATION, BUT LET THEM KNOW THIS IS HUGE AND IS NOT GOING AWAY - SHORT PERSONAL STORIES, LINKS TO PAGES WHERE YOU FEEL THE INFORMATION IS FAIRLY REPRESENTED on the email contact pages, and phone calls alerting the Offices of the problem, and to watch for the emails................. This can only help with Awareness!
Of course, it matters not where you are, these are Presidential Candidates and they will be looking for votes across the board.
Great idea!!! I'll do ya one better. I don't want to seem lazy but is there someone in here who is a skilled letter writer who could maybe put together a form type letter for those who don't have time to put pen to paper? Maybe more would participate....hee hee..
Dear Mr. Obama or (Insert name)
My name is _________ an I have been suffering with a serious medical medical condition for ________ years. This affliction has affected me and my family and every aspect of my personal and professional life. All I want is for it to be acknowleged by the medical community and the CDC as a distinguishable (sp?) medical condition so me and many like me can receive the medical care we so sorely need. Until that time, until this condition is acknowledged by the medical community and the insurance companies, the untold thousands like me will be left to on our own to deal with this condition. The condition is most widely known as "Morgellon's Disease" and it can ruin ones life. So I implore you to please.................hmmmmm What do we want Shoshanna? We need to be clear and speak with one voice??
I have thought this a good idea, because they will have to deal with it sooner or later.
So to gently lead them and to request some kinds of answers as to how this should be dealt with, and to hear the people and the one we see willing to do that will get our votes. And that is mucho votes!
Admin: payoff. They will get to us in the next lifetime. I'm sorry for your pain, it is horrible pain and terrible when you do it alone, most of us do.
Apr 30, 2020 0:11:50 GMT -5
Admin: I see so many good people treated like crap by doctors who have been very poorly informed as to what is really going on and have been given big incentives to put us on psych meds, which is bs. Some of us end up with issues in that area bt was biologically
Apr 30, 2020 0:13:37 GMT -5
Admin: created mental issues not the other way around like they attempt to say. I'll keep you in my prayers
Apr 30, 2020 0:14:31 GMT -5
Admin: kratom is good for pain, it has a thing on it not to be ingested by humans after they sell it to you, they do this to get by the FDA
Apr 30, 2020 0:17:22 GMT -5
Admin: kratom comes from the dogwood tree, not sure h ow much of active ingredient is in leaves of all dogwoods but saw the leaves and knew I had one in my yard.
Apr 30, 2020 0:18:05 GMT -5
Admin: can give to dogs as well
Apr 30, 2020 0:18:32 GMT -5
paincriros: Thank you , I am used to the pain, its my partner and is always there to keep ,feels like someone put KRPTONITE n my jeans,, have a pysc appt next week ,, cannot wait to see what she thinks about morgellons ,,, my eyesight is magoo like , God Bless you
Apr 30, 2020 23:19:34 GMT -5
paincriros: i also wondering does this cause immune deficiency ? i feel pretty weak and run down ,, harder to care for myself and memory is dull, 60years old , live in the woods self sufficient , and the ability to keep working full time is getting to be a concern
Apr 30, 2020 23:32:01 GMT -5
paincriros: i cannot get any worse and work at my job,, i am scared of my future and quality of existence ,, i want to better, ok, ,, so i did hear that UV light and disinfectants are effective on unknown things , but i will wait for a smarter idea,,
Apr 30, 2020 23:46:37 GMT -5
Admin: Far Infrared really helped me, I was a bit nervous about it at first but it really did help. What I did and sure you can too, get on SSI for three years and then retire. You can take part time jobs later on, once you get it under control.
May 1, 2020 1:12:39 GMT -5
Admin: Also take vitamins that help both my hair and my eyesight they are from Springtree health. I take the super multi, methl Bs and should be taking the adrenaquell.
May 1, 2020 1:15:08 GMT -5
Admin: Don't use parasite kill stuff unless you are absolute you have it, scabies (what I'm dealing with at the moment). Most just want to give you psych meds which is often a problem with many of us because we end up having bipolar from the Lyme/Morgellons
May 1, 2020 1:16:40 GMT -5
Admin: so folks end up in a mania state and cause much more damage to their own lives as well as others lives
May 1, 2020 1:17:17 GMT -5
Admin: Make sure this is a vetted shrink, in other words, you know they won't do you more harm than good. Ask around, make sure you have and make sure and view the movie before you go, 3.99 on Amazon
May 1, 2020 1:18:37 GMT -5
Cured: I got a can of "Super cold" I sprayed directly on the lesions. They went away and did not come back. 1 can $16.00 symptom-free in three days after 15 years of pain. I hope someone hears this.
May 24, 2020 13:40:13 GMT -5
Admin: I don't know about the can of super cold caution is in order,
May 28, 2020 19:13:22 GMT -5
Osweetp: Is Morgallons contagious? My husband has locked me out of our home because he says he has Morgallons and I could catch it. Not sure what to do.
Sept 19, 2020 14:27:34 GMT -5
Admin: There are different coinfections that may be contagious, it is also thought that Lyme is spread by sexual contact. I believe strongly that Lyme is a part of what Morgellons is, plus genetics, plus co infections. Might be worth your effort to speak to an
Sept 20, 2020 9:18:06 GMT -5
Admin: attorney to find out where to go from here. During the first couple years of this affliction, it is beyond frightening and I didn't hug anyone for about 5 years. Especially not my children as I was afraid I would give it to them. At this point I would
Sept 20, 2020 9:20:28 GMT -5
Admin: Speak to an attorney, to cover your bases, possibly find out through evaluation by outside sources what is really happening to your husband? Always cover your own butt!
Sept 20, 2020 9:21:26 GMT -5