|
Post by sufferinginsilence on Jun 17, 2009 10:21:03 GMT -5
Had the affliction for about 9 years. At least in it's current "strain" Hit my head on a nail in basement causing a slight bleed while chasing flies out of the basement because of opened soda cans in a bag. Maybe a connection there? About a week later I felt the worms/fibers crawling under my skin. Then fibers everywhere, all the time. Wore a hat at work to try to hide them. People noticed flies always around my head. One person asked if I put jelly in my hair, being a smartass. Others think I had lice. Doctors were worthless. Family think I was nuts and I haven't mentioned it since. Shaved head. Didn't work. Tried the mayonnaise and suran wrap trick. Failed. I have learned to cope and it is hard with the ridicule and the physical demands of me being a firefighter.
|
|
|
Post by junknira on Jun 18, 2009 1:46:01 GMT -5
I'm sorry for what you have been and are and will go through. the forums and my bf are the only solace i have. you are right, docs are nuts..totally worthless..hard not to feel there is a total conspiracy going on when they act as they do..jerks. I cannot fathom how you can have the energy to do your work. one thing we have to do as morgies... do NOT worry about what other people think.. if they are not empathetic..then they are not worth it. it's enuf what we deal with everyday, why add to that? i am not totally there yet.. a lot of days i don't leave the house cause of the lesions on my face, tho my friends say..it's not that bad..right (but i'm on disability..guess i'm 'lucky' that way). it's not your fault, it's not my fault.. i am glad you are coping..but i hope you have someone close to lean on...if not..come here and vent, we're with ya.
i HATE those friggin flies! aaaaggghhh ...
|
|
greggo
Junior Member
Posts: 57
|
Post by greggo on Jun 20, 2009 16:33:06 GMT -5
Hi Sufferinginsilence You don't have to suffer alone there are lots of fellow suffers who understand what is going on with your life as a person with Morgellons. But at the end of the day you know who are your true Friends are and trying to explain whats going on is tough I know its not much but this web site has helped me cope and is a reminder I'm not alone. wish you well.Greggo.
|
|
|
Post by sufferinginsilence on Jun 22, 2009 22:31:13 GMT -5
I can't believe we have flies living in/on our scalps! I catch one floating away every now and again. I hope this thing doesn't kill us. I am so alone. No one even knows what I have. I don't have the lesions, thank God. My wife doesn't say anything to me. I feel the bastards crawling all over me, all the time. Head, legs, arms, privates. My wife doesn't say a thing. Even during sex. How could she not notice? I don't scratch at all, I have learned to cope with all the sensations.
|
|
|
Post by depressed on Jun 29, 2009 1:04:27 GMT -5
you know i live in silence every day.............. im so sad and alone .... ive gone threw this bs for 4 years.............. read every ones storys...... over and over.... im at loss i feel ur pain............................ im sorry ur hurting................ im lost and just want to end it all but havent yet................just lets take it one day at a time.. i cant even buy any medicine to even help... im broke.. my friend sugessested taking a bath in bleach what do u think take care ok dawn
|
|
|
Post by depressed on Jun 29, 2009 1:06:23 GMT -5
my boyfriend wants me commited he dont think anything is wrong,, he dont show any signs yet but my 18 year old daughter is ................. im freaking out.......................................help
|
|
|
Post by crystalriver on Jun 29, 2009 9:42:46 GMT -5
Hi depressed, When one has no money than the best I can advise is to go on a fast---just water--good water. Clean your house as best as possible. It doesn't like salt and Ascorbic Acid will help as well--yeast fighters keep one from getting Cancer---Well Max from Biochem Country Life will help --has a mushroom complex in it that targets this stuff---Thisilyn --Natures Way helps clean the liver, Soverign Silver will help with sores if you have them and also helps build the system. Sometimes the males and females are hit differently I suggest you read Cliff Mickelsons article on this about a parasite--albeit it is more than just a parasite it has been constructed. morgellonsgroup.proboards.com/index.cgi?board=articles&action=display&thread=2118I'm still not sure if this is in whole what I was looking for ---males will often become more aggressive (happens with females also but in a different way) . Some people have it as perhaps your boyfriend does and doesn't realize as they don't manifest physical signs--but be sure they are affected and often they will be filled with rage and it can be turned onto the female. Many Blessings, CrystalRiver
|
|
awake
Full Member
For nation will rise against nation, and kingdom against kingdom.
Posts: 191
|
Post by awake on Jun 29, 2009 15:26:31 GMT -5
Hello there, I understand the suffering in slience bit. The best thing to do if just to block out unwanted "noise" People and family don't understand our condition...It is not that they deliberately think we are insance it just that they can't comprehend such a hidious and bizarre disease.
If the affiction becomes to overwheleming just more onto something else instend of trying to keep the status quo. No one should feel alone... It's just the affects this disease has on us that makes us withdrawn and isolated.
Awake
|
|
|
Post by depressed on Jul 1, 2009 0:35:43 GMT -5
hi awake, i feel i know you very well ive been reading all your posts on morgellons message board lyme busters,, ive tried to join i cant seem to get aproved.... i feel so bad for you and im sorry.... im freeking misserable too...... this is the worst , it just keeps getting worse every day and by boyfriend is in total denial...................... im just so so so discusted.... welll sweetie keep in touch and take care dawn
|
|
awake
Full Member
For nation will rise against nation, and kingdom against kingdom.
Posts: 191
|
Post by awake on Jul 1, 2009 8:02:37 GMT -5
Thanks, I'm just glad my posts have been of some assistance to you. I've had to find my own ways of coping. I don't know when i'm going to be getting worse or better. I feel i personally are somwhat stabilized at the moment. I have had very little activity this month. compared to previous months my symptoms have been minimal...I am glad for that and thank god that i'm still managing to mantain some level of function. It's the mental and emotion symptoms that are the most isolating out of all of them. I can completely understand. Don't let this horred disease destory you.
Awake
|
|
|
Post by amron on Sept 26, 2009 8:25:54 GMT -5
Suffering in silence, thats a reality for all of us, you are not alone... I wonder if the UFO alien abduction thing has been explored, with morgies? Are we some experiment, for future cultivations? You know Morgellons is so off the wall, mentioning the abduction thing isn't that nutty. My skin is changing it looks polished, and blotchy, and on the sides of my arms, there are dark defined small patches, also on my thighs. Its been there for at least five years, I never wanted to mentaly process it, its so creepy. Its so hard to hide the exhaustion, I worked for years sick as a dog. I drink gallons and gallons of water every day to keep hydrated. I haven't even told my best friends, only three family members, and that hasn't worked out so well. Guess what they dont really want to know. I feel their need to know is not there, and thats how I handle it. Bless you
|
|
|
Post by crystalriver on Sept 26, 2009 13:59:09 GMT -5
Amron, it is very difficult to get anyone that isn't dealing with this condition personally to attempt to comprehend--they can't. I'm not even sure if they are supposed to--
What we are dealing with is so dark and evil that those that can look the other way. If posed to the human mind--the human mind finds it easier to not believe. This is the advantage of the darkness that we are fighting. The best thing I know to compare it to is the when a pedaphile is taken into the court room--often folks are so taken back by the evidence that they do not wish to believe that a human could do such things--this is their power to get away as well--very sad and horrible.
And yes--the alien thought come to many of us and i believe it to be somehow connected. When one looks at abduction they see most folks are Rh negative--there is an Rh negative connect in the morgies. If someone says I am Rh positve --my reply is look to your parent or grandparent--it is on their DNA.
Many Blessings, CrystalRiver
|
|
|
Post by amron on Feb 17, 2010 2:12:59 GMT -5
This seems like a good place to post, Iv'e been off line for another month, computer problems. Time marches on and so does morgie's. Change's in the last six months, my nose hole's have been modifyed, its like they are protecting the lineing. I use vaseline to keep the fibre's from reaching the inside, also to keep the strange nasal things from hanging on for dear life. Had a large break out on hand, but I jumped right on it, its now in the healing proce ss. I hate to report anything new but I have no where to go, so your stuck with me. Iv'e been cleaning around my mouth in the cracks, carefully this week just because. To finish a good job I thought I'd use detergent, and then I put on Oil Of Oly, tiny white worms came from everywhere. Oh, please God, I thought, it cant be worms . I was so happy that I never experienced them. Well one good thing they leave no marks, and dont hurt coming out like crystal fibers. It's the black devils that drive me up a wall, plain and simple evil. It's hard to draw back when you get good at cleansing, I take at least three hours a day, and then some. I can see why they think us Phyco. I'd like to see how professionals would feel inhabited with these entity's. The interest seems to be wanning towards morgellons, I hope this is not so. We need all the coverage and help we can get. I use the cheap stuff now, salt soaks, good ole fashion scrubs with plenty of soap. Vinegar just in case it really works, and hydrogen proxide, for last application. Hope you have found CR, she cant vanish, we need each other, know matter what. amron
|
|
kckc
New Member
Posts: 7
|
Post by kckc on Feb 17, 2010 12:04:42 GMT -5
Am, don't ever stop posting what's going on with you body, we need to know what's going on with one another! keep up the good work!!! Love and blessings!!! kc
|
|