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Post by chair58 on Jun 6, 2007 11:06:21 GMT -5
I have tried the suggestions,many,the saly vita c I believe works,but when I did the tea tree soap followed by the antimicrobial gel I almost fainted to see all of those things come out of my skin,this is a nightmare.I went to my Doctor yesterday forsomething not related because I could not get the courage up to mention morgellons for fear of being labeled DOP.I finaly at the end of our sestion asked him for a lymes disease test,he asked me why I thought I had Lymes,I said because I did think that,he asked again,and I blurted out that I actually think I have something he hasnt heard of,he said shoot,I said I believe I have something they asre calling morgellons,he said.....o,yes I have been treating one of my patients for that with what the cdc recomends which is mebedazole or theabedazole he said its experimental and he had great results with his patient.I thought the cdc has not recognized this as a legitement disease as of yet? Any comments appreciated,SCARED.
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Post by chair58 on Jun 6, 2007 11:08:24 GMT -5
salt.....excuse my spelling please.
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Post by skytroll on Jun 6, 2007 11:30:44 GMT -5
You are kidding me Chair58, You are right the CDC has never told us that there is an experimental med out there. You have gotten further than most of us. CONGRATS. Will have to dig into this. You have a good doc, sound like. Were you prescribed the meds? Hang in there. What does Mebedazole treat? note this is 1977: abstract: "Mebendazole was given to four patients with hepatic hydatid disease. In three patients hydatidosis had remained after surgery, and in the fourth it could not be treated surgically. Mebendazole was given orally in maximum doses of 400-600 mg three times a day during courses lasting 21 to 30 days. Ultrasonic echotomography showed a complete regression of the intrahepatic cysts after four to 13 months in all four cases. In three patients the course of treatment had to be repeated. Mebendazole also induced clinical improvement and a progressive lowering of the concentration of specific IgE of Echinococcus granulosus. During treatment circulating blood levels of specific immune complexes of antigen 5 were increased. These observations indicate that mebendazole has a lethal effect on E granulosus cysts in primary hydatid disease in man and that the efficacy of chemotherapy can be assessed with ultrasonography and by measuring changes in the concentration of specific IgE of E granulosus and circulating immune complexes" www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=922416Skytroll
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Post by mfromcanada on Jun 6, 2007 11:38:30 GMT -5
Hi chair 58 and welcome. Thanks for letting us know about your success. Can you please describe what you think made the stuff come out of your skin? Also, could you please describe what comes out and how it comes out? Do you have to squeeze it or does it come out on its own. I want to try the soap and the gel. Can you get these things from a vitamin store?
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Post by skytroll on Jun 6, 2007 12:40:52 GMT -5
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Post by chair58 on Jun 6, 2007 14:30:41 GMT -5
Dr.Hildy recomended pedfix funga soap press into the skin then put the anti microbial gel directly on top and sort of massage and press,these white things are popping out some by themselves and some you can work to lightly press and squeeze...Warning may freak you out!I wanted to die when I saw this
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Post by chair58 on Jun 6, 2007 14:31:47 GMT -5
also you can use 2 percent milk followed by the gel works almost as well
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Post by chair58 on Jun 6, 2007 14:39:58 GMT -5
Skytroll Thankyou for the links,,very helpful,I havent been prescribed the meds yet,
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Post by whiterose on Jun 6, 2007 15:17:21 GMT -5
I was supposed to post about the soap, my apologies, I do know the main ingredient in the soap is tea tree oil. I must ask again where he orders it from. Will post as soon as I get the information, sorry.
wr
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Post by chair58 on Jun 6, 2007 19:38:01 GMT -5
I am so happy to find you all,I have been so alone in this nightmare,I have been to numerous dermatologist for the past 13 or more years,from the first sighns of this,they said I had cystic acne,all of the sudden,I had never had a skin problem before,another said roseacea another who took a punch graph said contact dermatitis.I have been on antibiotics akk of these years except for a 6 month period when I was prescribed accutane,blood test every month with that because it can damage the liver,What brought me to think this was a parasite problem was all the intesyinal problems I have had,My doc took a blood test and tested me for hpylori which came back very high,I was prescribed an assortment of meds for that for a month,it defintly worked,and now here I am,working hard to find an answer to this,,,,God help us all
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Post by Admin on Jun 7, 2007 1:38:18 GMT -5
Mebendazole (Vermox/Ovex) - Wikipedia, the free encyclopedia en.wikipedia.org/wiki/Mebendazole What is Vermox/Ovex used for? Ovex is used to treat threadworms (sometimes known as pinworms). Vermox is used for treatment of threadworms and other common worm infections (e.g. whipworm, pinworm, roundworm, hookworm). ======================== Thiabendazole - Wikipedia, the free encyclopedia en.wikipedia.org/wiki/Thiabendazole Talks about it being antiparasitic, antifungal and a preservative. It is normally used on fruit and vegetables to prevent mold.....
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Post by skytroll on Jun 8, 2007 0:26:42 GMT -5
So, Vermox is OTC now?
Have had before and does work.
Skytroll
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Post by ridgewalker on Jun 17, 2007 2:10:18 GMT -5
Hi gang! I'm new to this site but not to the nightmare. I thought I'd chime in on my experiences with Mebendazole. Its pros and it's cons. First your doctor (unless you've got a VERY pro-Morgellons physician) will question the necessity of the prescription in the first place. I was lucky. My doc plucked some type of critter right off my arm himself and being a young doc just out of medschool was quite excited. It has a fang! He exclaimed from the microscope in the other room. Don't know where the other one went but this thing has a fang or a hook. He first prescribed Abendazole which is similar but was way too hard on my overbloated, overloaded body. About a week and a half into the Abendazole I told him I couldn't take it anymore. I lay on the couch curled in a ball just moaning from the stomach pain. He switched me to a six week treatment of Mebendazole that, come to find out is quite lengthy. Again, I writhed in pain and told my husband I would rather birth all three of my children at one time than to go through this. At times it was crawling to the bathroom and back. The diarrhea was continual. THIS IS NOT A HERX. You will suffer from the drug for the duration of the prescription. Your doctor will do thorough, very thorough blood workup, sed rates, cbc, liver function, etc. etc. It takes about two to three weeks for the physician (if he's a good one) to determine if you are well enough and your body able to properly handle the detoxification.
I lived and worked on a farm and fully expected parasites regardless of Morgellons. At the time of receiving this prescription both legs were partially paralyzed, my right arm was totally paralyzed from the shoulder down and bound to my body so as not to injure it, I had drop foot in both feet, horrible vision, no depth perception, I could not communicate a single sentence clearly and had a memory about 10 seconds long.....among many, many other things. I had nearly as much lesion as skin. Soooo.....I figured that since the cramps were not quite as severe with the Mebendazole I would give it my best and made the six weeks. I passed threadworms, pinworms, hookworms, roundworms that were so entangled in my intestine that pieces of my intestinal flesh would pass in my stools about half dollar size with many, many worms attached, I passed an S. Mansoni (mating pair) and many, many smaller things that zoomed and skittered around the stool.
Would I do it again? Most definitely. But ONLY and I EMPHASIZE.....ONLY if my current physician, who is much more experienced, tested me again thoroughly. This IS NOT something that can be DONE ALONE !!!!!!!! You must have help getting to and from the bathroom. There were many times I did not make it if my husband had run an errand. I could not even get a drink of water for myself. He prepared what food I COULD eat, most of it being chicken broth and ensures. The entire time was spent literally writhing in pain, moaning, in a fetal position. I have NEVER felt such pain. I've had numerous surgeries and three children and nothing compares to the pain of this treatment. Now, I imagine it would depend on the parasitical burden that one carries. However, the drug itself causes spasms of the intestine and bowels. I would recommend forcing oneself to gain an extra 15 to 20 lbs. before even thinking of taking this treatment as YOU WILL lose it.
After studying the action of both of these meds....Mebendazole and , IF the CDC is recommending it, there has been NO verification of such a recommendation, although it is being researched this next week, if it is a COMBO, I would be terrified. If it is a choice, I believe I would choose the Thiabendazole as it has also chelation of metals from the body, both heavy and possibly any metals used in nanotechnology. It would be worth a try. But I am in a fairly stable condition after being hospitalized in Feb. for nutritional therapy that was mainlined directly into my heart artery and infusion of a pint and a half of blood. I managed to gain back 30 lbs. of the 100 I lost after whatever this monster is that is eating us alive, ate all the fat and much cartiledge from my body.
So obviously, one dose was not completely effective. It gave me back my arm and legs. It gave me back my speech and memory. It stopped the spasms and kicking and flailing of my limbs. But it is NOT, I repeat, NOT for those in a severely weakened state with any compromised kidney or liver function. It IS a decision to be made between you and your physician, and if you choose these medications, INSIST if your doc doesn't that complete and thorough testing be performed prior to dosing. Imagine food poisoning multiplied by ten for the entire time of dosing. It does not let up until the dosing is finished. PLEASE....this is something not to be taken lightly, it is quite dangerous and NEVER, EVER alone. And if one dosing was a cure-all, I would not have Morgellons today. Yes, I am better but I am NOT cured.
ps. Here in Oklahoma you can still obtain pin-x over the counter. I have some in my 'arsenal' now. So you might want to shop around or talk to your pharmacist as I did indeed have pinworms and self-dosed with that prior to the Mebendazole. The result of that little venture left me with let's just say 'two openings' where there should have been one. It took nearly a year to heal. So please folks, be careful with these terribly powerful medications. If you intend on giving it a try, build yourself up first with nutritionals, probiotics and diet. You must be in the best of health that a Morgie can possibly be in.
I pray, along with the rest of you, that there IS an answer. But take the time to know what you are getting yourself into. It's a tough road. I've never had chemo, but I imagine it's a similar feeling. The difference is, you don't get a break, a respite, or relief from the pain and the horrid things your body passes until it's over. Heal carefully and blessings to all!
Ridge
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Post by mfromcanada on Jun 17, 2007 9:25:59 GMT -5
WOW , Thanks so much for telling us about this treatment. I am too scared to try it.
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Post by joyfullee on Jun 19, 2007 1:19:01 GMT -5
Sorry Ridge for what you've been through...it's so much worse than anything I've suffered so far. I've taken a 90 day prescription of Albendazole (Albenza 200 MG) and did not suffer with it. Well, maybe a mild occasional stomach pang, but I'm not cured, either. The doctor chose not to give me another prescription of it, even though I'm still sick. He too, has plucked one of these machines from my skin and seen the fang. He was very excited and asked me if I wanted to see it. NO THANKS. I live with them 24/7 and I don't need to get any more 'up close and personal'. I've seen the pics on our site, that's enough. Take care everyone, but don't be afraid to try treatments. We're being eaten alive and anything that slows this process is worth our discomfort, don't you think?
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Post by sarahconnor on Jun 19, 2007 1:59:42 GMT -5
Cure?? Well in today's society that would mean cured to death
medicine is a joke hahahaha - NOT funny, but medicine is still a JOKE
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Post by england on Nov 4, 2007 10:59:14 GMT -5
Hi am in UK and I was prescribed this a month ago (Vermox) I had to take 15mls and then 15mls 2 weeks later.I have to say I had no stomach ache at all.I did however start to lose tiny worms out of the side of my nose and around my mouth.It just started with a tickly feeling and there they were.I have also been given and taken ivermectin with no ill effects but I have been taking probiotic at the same time (acidophilus) and i really think you need to take this at the same time as wormers.
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Post by michellenh on Dec 31, 2007 22:13:41 GMT -5
IT HAS NOT BEEN RECOGNIZED.I DID NOT KNOW WHAT I HAD. BUT MY DOCTER WAS WILLING TO HELP ME. I THOUGHT I HAD CREEPING ERUPTIONS.
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Post by michellenh on Dec 31, 2007 22:22:03 GMT -5
THESE MEDS YOU ARE TALKING ABOUT THIABENADIZOLE DID NOT TOUCH THIS ONE BIT!VERY NASTY DRUG .THESE NEED TO BE SMOOTHERED OUT OF THE SKIN,BUT I CAN NOT GET TO EVERY STAGE OF IT.MY DOCTOR ASKED ME TO TRY AND STAY IN THE MAYONNAISE AS LONG AS POSSIBLE .I SLEPT IN IT.TALK ABOUT DEPERATION.
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ds40
New Member
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Post by ds40 on Jan 18, 2008 23:56:39 GMT -5
HI, My aunt has the crawling sensations, lesions, larva in her body. when she opens a new lesion, the hard scab starts to close. she has been to doctors, and they all say she am crasy. People doesnt believe her that she has these symptoms. I did research on her symptoms, what ever website I looked at, all came up with MORGELLONS DISEASE. I informed her about my findings. and she couldnt believe that what I was telling her, was everything, that was going on with her. and she pulled out larva, and fibers, and worms out of her face. She wants and needs help. She is going crazy. Can anyone please give me some advice? and she is desperatly seeking help.
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praying4usall
Full Member
He shall cover you with His Feathers, under His Wings you will find Refuge.
Posts: 244
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Post by praying4usall on Jan 19, 2008 1:41:34 GMT -5
Hello?
I'm so sorry about your Aunt! I'm glad she has you trying to help her out!
Does she have a computer too? We all that have been dealing with this have found that changing our diet helps.
We (most of us), have cut out: Sugar White flour Packaged/Processed foods Foods that are Genetically Modified (GM foods)
It helps to eat fresh vegetables & fruit and cut out meat that has hormones added to it same with eggs-'free range' chicken's eggs are best for you
And all of this is AS you can AFFORD to
in a way that is best for YOU
at a PACE that is easiest for you, unless you just have to or are willing and can afford the big change in your diet and lifestyle suddenly-which I did...but was more than willing to and already ate pretty much like this anyway.
I will PM you with more info, and will come back here tomorrow an finish the things I know have helped others. changing clothes each day, vacuuming with a hepa filter helps, and cleaning the entire house AS you CAN...
STRESS makes this worse, so it is important for her to be able to go a bit at a time with the changes, and cleaning, and to try to remain as calm as possible.
Changing into clean clothes daily is best Washing clothes with 1/2 cup of Borax added helps a lot. Changing bedding each day helps too, especially if she has a heavy problem right now. AND can AFFORD to! Otherwise, don't use up energy to do TOO much or money too fast, IF it will make it so that you can't do laundry later! Defeats the whole purpose!
Taking a bath with 2 boxes or at least 1 of Epsom Salts (you can get them at the dollar store) and 2 bottles of Hydrogen Peroxide in a regular amount of bath water will help to cleanse and soothe the skin. *CAUTION: Do NOT get Peroxide in your eyes-and do NOT use full strength-or in mucus membrane areas full strength).
Using Trader Joe's White Soap with Tee Tree Oil added to it has helped me a LOT while in that tub, after soaking after several minutes! And anti fungal soap will help too! If you have a Trader Joe's Grocery, you will be able to find healthier food there than most stores, yet at a very good price!
I hope this helps, and I'll Private Message you too. You & your Aunt will be in my prayers! Celia in Washington State
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ds40
New Member
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Post by ds40 on Jan 19, 2008 18:51:42 GMT -5
Hi (Celia in Washington State)
Thankyou for your reply. In 2003 my kids and I had stayed in a motel room, while trying to find a place to call home. I picked up these bugs in the room. I have been through so much, in the last few years. My problem area is my face. I have had larva swimming inside my body, and worms comming out of my face. I am familier with some of the solutions you had mentioned. For the laundy I used to use ammonia. I have been to a dermataligist, and he gave me a pill called orap to get some of the bugs off of me. but it no longer works with the worms i am now dealing with. I am afraid to go back to the doctor because I think he will call me crazy. I am so desperate to find a way to get these off of me. I pick them off my face, and then as soon as i get the hard surface off, the bugs build it back up using fibers ect.. I am not able to get into the bathtube to sit, because of my artheritis, do you have any other suggestions, as far as the bath. I know showering daily is ver important to this situation. The diat I am not real sure about. Can you share with me, on what you had been through. Thankyou again for your reply. Please write me back with more INFO. I am so desperate to get help.
sincerely Deborah (ds40)
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praying4usall
Full Member
He shall cover you with His Feathers, under His Wings you will find Refuge.
Posts: 244
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Post by praying4usall on Jan 20, 2008 1:15:53 GMT -5
Sent you a PM Deborah....
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Post by stardestroyer on Mar 11, 2008 12:43:50 GMT -5
Can anyone help me too once i overcome this infection i promise ill try to do my best to help all the humans around in all conditions.But now i need help and it must be quick i cant fall asleep anymore.I think i have the early stages of the infection so i should act quickly!Any coming helps or suggestions for medicines are appreciated..
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praying4usall
Full Member
He shall cover you with His Feathers, under His Wings you will find Refuge.
Posts: 244
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Post by praying4usall on Mar 11, 2008 13:36:15 GMT -5
Can you get a natural product called Melatonin where you live? It is what our bodies use to help us sleep at night. And you can buy it in a bottle from stores that sell vitamins. I don't know if you live in the country or city in Turkey, so I am not sure if you'd have a store to get it from?
I'd better get off of here so I can get some sleep and think good to try to help you!! Try to listen to your favorite soft relaxing music, and know that you now have others who understand and care about you.
Talk to you soon, Celia
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Post by stardestroyer on Mar 11, 2008 13:55:18 GMT -5
Thank you Celia i live in the center of the most populated city of turkey it is called istanbul if u heard of.Anyways i need some killing medicines to kill the worms inside.Here is a site says some medicines for advice=http://www.xenacarpenter.info/2006/10/cure_for_morgel.html Ý dont understand everything in there i asked the the medicine store but they told me there is no salt pills..U take a look there...
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Post by gypsyknows on May 24, 2008 17:12:00 GMT -5
Im sorry but I hear lots of talk of worms Morgellons are not worms we have to remember we may have similar symptoms but not same disease as far as treatment. Doctors love to prescribe pills does not mean they know or understand. Our bodies produce this nightmarish ailment and in 300 years no type of prescription has helped. We need to be looking for somthing natural or well all lose our minds and health due to doctor prescribed medication. Why are we waiting for these so called professionals to tell us what we need to feel better. Are we that desperate that we are just willing to believe anything? I realized a couple years back that the only important thing in life is to be happy, how many of you are truley happy with who and what you are experience. I understand positive thinking it is half the battle but when do we decide to be realistic.
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Post by jreamus on Jul 27, 2008 23:04:17 GMT -5
when i first came down with this a few years ago, if i read on a forum that someone went to a doctor they always said the doc wouldn't help them.
it is nice to see people are getting help from doctors now, but those drugs looked horrible and i personally couldn't tolerate that cause i have a weak stomach
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Post by bugsy on Jul 28, 2008 4:13:53 GMT -5
Hello all,
This is the first time I've noticed this post and I must interject something. I'm currently taking Albendazole in low doses for over thirty days with positive results. As ridgewalker said, I believe the side effects would probably be dependant on the worm load at the time of treatment. The first few days it had a laxative effect which subsided and now there are virtually no side effects. Everyone is different with perhaps different variables.
I've tried most everything on the market and this one seems to be my mainstay for maintenance. I no longer take any kind of anti itch meds. No longer live in the bath tub. It took about thirty days to really see results however. Not a quick fix. Takes patience and time.
Faith
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Post by morph on Jul 28, 2008 9:29:59 GMT -5
I am sorry gyspy knows the DISEASE we have is all the same, its syptoms are varried, there may be other problems involved or assocciated with its attack on our whole body. Make no mistake it is the same central irritant, and it is NOT a skin disease, people are dying.
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