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Post by 0happyday on Mar 21, 2008 0:54:50 GMT -5
To my dear friends,
I have been very fortunate in that I now have a team of Doctors who are supporting Morgellons.
I now know of 2 General Physicians (very good ones I might add) my therapist along with an LPN (my heros who helped to find out what was wrong with me) My psychiatrist who never doubted my sanity, my Dermatologist, and also the plastic surgeon who said he had never heard of it. (the one who did my implants) yet listed it on the medical diagnosis sheet.
The one Doctor, The LPN, and my Therapist have agreed to see anyone who is suffering from Morgellons. If interested let me know.
On at least 4 discharge papers or Medical Diagnosis sheets they have listed my condition as Morgellons, One as Morgellons and Silicone poisoning. We are being validated. Slowly but surely.
God Bless Them
Big Hugs
0happyday
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Post by bugsy on Mar 22, 2008 14:09:59 GMT -5
A big THANKS to you for reporting this Ohappyday!!!
Faith
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trudy
New Member
Posts: 3
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Post by trudy on Jan 5, 2009 20:23:19 GMT -5
OHAPPYDAY, I WOULD BE INTERESTED IN MEETING WITH YOUR DOCTORS. WHAT STATE ARE THEY IN, I LIVE IN MISSOURI BUT WOULD TRAVEL JUST TO GET SOME VALIDATION AND SANITY BACK. TRUDY
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Post by alankey on Jan 6, 2009 1:24:57 GMT -5
sadly things changed for 0happyday once she visted the doctors, morgellonsgroup.proboards23.com/index.cgi?action=display&board=stories&thread=2602&page=1#10131seems they lulled her into a false sense of security twas the last post mode,wonder what becameof her. another post on april 30 someone who doesnt operate on smokers?,what on earth kind of doctor is that?,what has smoking got to do with silicone implants!? oh and trudy you said you lived in clearwater florida to me in a pm on dec 5th,youve moved? some more morgellonsgroup.proboards23.com/index.cgi?action=userrecentposts&user=0happydaystrange i had a similiar occurance,one of my professions invloved phoning up an organisation to pass something on to another person,i didnt mention what that thing was,but the telephone operator somehow knew what it was"why dont you send xxx to me and ile give it to her" never contacted them or her before,never mentioned what i wanted to pass on,only asked for contact details but she knew what it was i wanted to pass on! a clear attempt at interception!,impossible for any human to do so given the random nature of what i was doing! there you go,its them ais! an after thought,in most countries its free to check your medical records,why an attorney would demand $1500 just to check them suggests he was blowing her off, he didnt want to stand for her in any way. it took her a year and a half to find a surgeon willing to remove silicone implants,its a simple procedure for christs sake!,add it with all the other problems she had withthe medical profession once again its evident they dont have certain peoples interests at heart at all,usually those folks involving thier secrets such as mind control and morgs,they actually seem to want to cause them problems on purpose.
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Post by marychristinedunn on Jan 8, 2009 19:38:11 GMT -5
I have been dealing with Morgellons seen 1997. Doctor's and Insurance Carrier don't want to help. Getting an attorney makes it even more impossible to get help. I am not willing to just be sent home saying I must be delusional and self hurting myself. Randy S. Wymore, Ph.D. Director of OSU-CHS wrote a extremly good report regarding Morgellons and there is enough information to get (us) Morgellons sufferer help??? I am in Colorado, has anyone even close had any success with help?
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Post by kelly1 on Jan 9, 2009 13:07:43 GMT -5
Some Drs. will not operate on smokers because smoking negatively affects healing . I would assume in an emergency situation this would not take precedence.
Twice I have been told this same thing, regarding surgery and smoking. Whether a Dr. legally can do this I do not know. However, the 2nd time a Dr. told me this I should have sued. It was for surgery regarding pelvic prolapse. It had already been validated via Urology Dept. that the surgery was indeed necessary so I was then set up for an appointment with a Dr. in Gynecology who did this type surgery. The Dr. talked with me first, and during this talking ASKED ME IF I SMOKED, TO WHICH I ANSWERED YES. That is in Caps due to its significance.
After this dialogue, he gave me a gown to undress so he could do the usual physical exam. I didn't think anything of it. This would be a normal thing. However, after the complete PHYSICAL exam which involves having hands and fingers prodding and poking all over and in me he has me get dressed and when he returns he THEN tells me HE DOES NOT DO SURGERY ON PEOPLE WHO SMOKE!
I was dumbfounded and could not speak. I left, and all the way to my car I kept thinking, "what just happened in there?" I just sat in my car thinking this same thing over and over until I came to the conclusion that I had just been "raped in some way".
I did contact Patient Business Services about this but I won't get into all that. I guess the question remains as to whether or not it is a legitimate reason for a Dr. to refuse to do surgery.
marychristinedunn, I'm sorry I don't live near you. I would love to contact you if I did.
I live in Wisconsin and I would be so happy just to have someone in Wisconsin to talk with. If anyone here would like to, please send me a message. When I first became unable to work, I went through a deep depression and anxiety because I loved to work and be out with people in the world. I seen a counselor for 2 years and this talking with her really helped me. I firmly believe I am going to have to do this again because this illness is the filthiest, most horrendous thing I have ever experienced, and like everyone else, no one believes me.
kelly1
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Post by kelly1 on Jan 9, 2009 13:15:52 GMT -5
0happyday, I am so very, very sorry to hear your sad situation. To be under the impression that finally someone believes in you and what you have, only to end up the way it did is a huge frustrating letdown. Having this illness, I can relate to how you must feel.
I am fortunate in one Dr. area. My pain Dr. believes in Morgellons. He has seen the threads or fibers in another patient of his. I am hoping he will work with me at trying different meds. I would like to do a try of Ivermectin.
Has anyone here tried this drug?
kelly1
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Post by kelly1 on Jan 9, 2009 13:22:50 GMT -5
One more thought I forgot to mention.
At a clinic or medical institution where they have lots of Medical Departments and many doctors in each one, the Drs. all stick together. I believe some of these Drs. believe in Morgellons but they just can't voice their opinions.
First, their colleagues that don't believe in it would belittle them. Second, they may lose their job where they work. Morgellons wouldn't even be on the diagnosis sheet for billing and they wouldn't want to put it in a patient medical history note for fear of their job and colleagues, which legally they would have to do.
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Post by alankey on Jan 9, 2009 14:19:53 GMT -5
Some Drs. will not operate on smokers because smoking negatively affects healing . I would assume in an emergency situation this would not take precedence. Twice I have been told this same thing, regarding surgery and smoking. Whether a Dr. legally can do this I do not know. However, the 2nd time a Dr. told me this I should have sued. It was for surgery regarding pelvic prolapse. It had already been validated via Urology Dept. that the surgery was indeed necessary so I was then set up for an appointment with a Dr. in Gynecology who did this type surgery. The Dr. talked with me first, and during this talking ASKED ME IF I SMOKED, TO WHICH I ANSWERED YES. That is in Caps due to its significance. After this dialogue, he gave me a gown to undress so he could do the usual physical exam. I didn't think anything of it. This would be a normal thing. However, after the complete PHYSICAL exam which involves having hands and fingers prodding and poking all over and in me he has me get dressed and when he returns he THEN tells me HE DOES NOT DO SURGERY ON PEOPLE WHO SMOKE!
I was dumbfounded and could not speak. I left, and all the way to my car I kept thinking, "what just happened in there?" I just sat in my car thinking this same thing over and over until I came to the conclusion that I had just been "raped in some way". I did contact Patient Business Services about this but I won't get into all that. I guess the question remains as to whether or not it is a legitimate reason for a Dr. to refuse to do surgery. marychristinedunn, I'm sorry I don't live near you. I would love to contact you if I did. I live in Wisconsin and I would be so happy just to have someone in Wisconsin to talk with. If anyone here would like to, please send me a message. When I first became unable to work, I went through a deep depression and anxiety because I loved to work and be out with people in the world. I seen a counselor for 2 years and this talking with her really helped me. I firmly believe I am going to have to do this again because this illness is the filthiest, most horrendous thing I have ever experienced, and like everyone else, no one believes me. kelly1 simple,just lie and say you dont smoke!,those behind morgs like to cheat and lie constantly so we gotta return the favour,be tactical and such! i would like to see the research regarding how smoking is considered a a severe enough anti healing effect to cause doctors to deny needed surgery to folk,it suggest either the doctors are using it as an excuse not to heal some one or they dont have thier patients interests at heart. even if one does smoke the doctor should try to get you not to smoke so he can undertake surgery,but i doubt he did?. just an excuse as i see it
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greggo
Junior Member
Posts: 57
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Post by greggo on Jan 14, 2009 20:04:52 GMT -5
Dr Muir at Marter hospital had told me I have Morgellos its taken time and a lot of trouble even locked up in a mental health hospital its taken more than 5 years to be told no help! Dr Muir is in brisbane Q.L.D. dermotolagist
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Post by sadsack on Jan 14, 2009 22:21:34 GMT -5
Greggo - Welcome! Please tell us more about yourself - we are here to try to help. And thank you so much for sharing about your doctor. It blows me away that a dermatologist told you that you have Morgellons. This is the first time I have ever heard of anyone getting a diagnosis (who didn't already know and have it confirmed). Does that mean that we are actually making progress? anewday
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greggo
Junior Member
Posts: 57
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Post by greggo on Jan 15, 2009 22:49:08 GMT -5
It saddens me to say that i did all the ground work I have a biological microscope and a camera took photos of fibres plucked from my face then printed to show my G.P. she then sent me to Dr Muir at the Marter hospital (Dermatologist) who done some tests but I asked for a sample container I had to put some small skin samples in for the lab. Lab results only said quote:Microscopy consistent with cellular debris and fibres no fungi or parasites seen in material submitted. but he is a believer and I'm the 3rd person diagnosed with morgellons. But its real and i can help anyone get help and fast track diagnosis progress please let me help lets get the ball rolling and tell the world its real Dr Muir is the man for Brisbane, its as you know its tough and a long time doing but I can help others and i want to help anyone
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Post by dragnlady on Sept 9, 2009 15:25:30 GMT -5
How can I get a doctor to verify what I already know without being locked up in a sanitarium? I know what is going on, but I am afraid to say anything to my doctor for fear he will diagnose me as DOP and put me on psych meds. If anyone can help me I would greatly appreciate it.
Xanax and heavy sedation is great when fighting extreme flare ups but I'm not crazy and prefer not to be on these types of meds for any length of time.
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Post by sunnydaze on Sept 9, 2009 18:12:41 GMT -5
dragnlady -
Where do you live? There are some doctors who see Morgellons patients and believe in it, but I can't give you any suggestions without knowing where you live.
sunnydaze
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Post by luvbuny on Jan 29, 2010 2:24:19 GMT -5
I live in california and cant get a doctor to validate a thing about the morgellons or even try. to help
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penny
New Member
Posts: 4
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Post by penny on Feb 14, 2010 15:03:17 GMT -5
ohappyday could you tell me the Doctors names that Validated that you have Morgellons. I and very sick and can't work.Iam trying to get disability and cant find a doctor to put it on paper that I have Morgellons- Penny-God Bless
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Post by sunnydaze on Feb 15, 2010 20:40:51 GMT -5
Doctors in CA are Dr. Ginger Savely (a doctorate Nurse Practioner), Dr. Stricker (both are in San Fransico). You may have luck with Dr. Spencer or Dr. Karjoo as well. (google the names and Morgellons to track them down)
Good luck.
Sunnydaze
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greggo
Junior Member
Posts: 57
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Post by greggo on Feb 16, 2010 22:47:06 GMT -5
Hi its Greggo in Brisbane Queensland a Dr Muir is trying to get Morgellons into medical text he has used me and another patient to show other dermatologists this is real I have it pretty bad thanks to Dr Muir around 100 Dermatologists. I asked him how long until it goes into print all he could tell me its a work in progress.
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Post by debbieN on Feb 19, 2010 15:33:48 GMT -5
are there any doctors of any kind in the Denver area?
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Post by debbieN on Feb 19, 2010 23:25:37 GMT -5
ohappyday could you tell me the Doctors names that Validated that you have Morgellons. I and very sick and can't work.Iam trying to get disability and cant find a doctor to put it on paper that I have Morgellons- Penny-God Bless
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Post by 0happyday on Feb 25, 2010 5:54:40 GMT -5
Oh my dear God! I am so sorry I haven't looked at the board to see all of the responses from all of you my dear friends. I sit here trembling as I write to you. First of all let me say that I would not be here today if it would have not been for this board. I do not go on the boards anymore and I have not kept current about all that is happening with Morgellons. The reason: There comes a time when you have to take a mental vacation to keep your sanity. I wish I could say that I am well.. I currently have a severe breakout that started about 6 weeks ago. Before that I had been almost symptom free for several months. I stayed in denial for a month and after weeks of not being able to get out of bed and having any energy broke down and went to my General Practitioner who is treating me for the Morgellons. He again prescribed another round of Levaquin which seems to be the only drug that will completely clear up all of my sores.
Let me note something of extreme interest to me; due to the fact that his office has moved and they have new billing statements, when the receptionist handed me the billing sheet to take back to the doctor with me I noticed that I am being classified as, now get this, "A Research Case". I had asked him a couple of months ago about referring him to others and he said he would rather wait until he finds out more about this disease, "keep in mind, he originally diagnosed me with Morgellons while I was accompanying one of his patients. Months later when the Nurse Practitioner who was treating me stopped seeing me because I move out of the county she was in did I call this doctor to ask if he would treat me.
I was considering not going to the conference in Austin and he told me he felt I should go and bring back more info like I did last year. I WOULD STRONGLY RECOMMEND IF THERE IS ANY WAY THAT ANY OF YOU CAN MAKE IT, NOT ONLY ARE THE SPEAKERS REMARKABLE PEOPLE, BUT THE SUPPORT WE HAVE TO OFFER EACH OTHER IS IMMEASURABLE.
The biggest contributor to this disease that I have experienced is "STRESS" It is vital to do everything in our power to eliminate as much stress as possible and I know that that is a very, very hard thing to do, especially when we are shunned by our families, discriminated against by the medical community, and are so extremely sick that to even get out of the bed some days is a major accomplishment.
You MUST develop a support system! The more people you have the better. I am extremely blessed to have the friends, both Morg's and non-Morgs that I have. It hasn't come easily and I have found that there are a lot of people out there who truly care about what we are going through. The ones that don't you have to forget about.
The other thing that is EXTREMELY important is to start on a daily or better yet hourly basis practicing POSITIVE AFFIRMATIONS!
I absolutely refuse to say that I am going to die from Morgellons anymore. I can honestly say that I now believe I WILL BE HEALED. I thank God even in my suffering. Focus on your blessings no matter how few they may be.
My oldest daughter told me something she heard a week ago and it was AWESOME: She said "What if you woke up one morning and all you had left was what you had thanked God for the night before? WOW!!!!!!! That came out of my child's mouth......
I am currently struggling to take just one college class. I just withdrew from the other one because I physically or mentally cannot handle 2. Last semester I had to drop all 5 classes because I was so sick. I am again singing on the Praise Team at my church even though last week I was too sick. I have to push myself to do anything....but the one thing I am sure of is when we have someone cheering us on it helps tremendously.
I love you all so much. I will be calling my doctor tomorrow or I guess its today now and asking about treating others.
GOD BLESS YOU ALL AND YOUR FAMILIES!
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Post by 0happyday on Feb 25, 2010 6:02:52 GMT -5
Also and by the way I live in North Carolina. You can PM me if I can help. Leave a phone number and I will call you back also I will ask Sho if she would be willing to relay the message because my memory sometimes is bad enough I may not check the board for another month.
Love 0happyday
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Post by amron on Jul 28, 2010 18:15:11 GMT -5
Bad day at Blackrock... I've been to hell and back! Unfortunatly I didn't take good advice from you folks and went and unburdened myself for a medicine check. I had a bad night, I got scared when my leisons dumped piles of morgies, after so long of suffering. The tea bags worked, but it was awful to look at it and realize that my whole body could be inhabited in the same fashion. Reality strikes, and its like a bad dream. My balance has been gone for many a year, but now it is super bad and it isn't easy to walk. Dizzy is a part of my life no medicine helps. Anyway, I foolishly allowed me to be beat up by a pill pushing shrinks Nurse prac. I saw her in action, weaving her web of lies about delusions, and I got so emotional, that it was heart breaking even to me.
People nothing has changed out there, it is worse than ever getting someone to listen to you. My God it just hurts, we suffer so much, why cant we have acknowledgement from the CDC? They need to test our blood, but they are still on page one. I told the lady I would wait until the emergency option. I said I wanted my blood tested. She said, why dont I try Zyprexra? At that, I left the room and had a good cry. Sad day indeed.
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Post by morph on Jul 28, 2010 21:46:13 GMT -5
Sorry you went thru this Amron, i would take you to the beach if you were here. I am sure that would help you some, at least your outlook.
I have a friend that has been crippled by this, he is 50 and in a wheelchair. They will not try to help him as they say he has had a stroke. In the next situation they say he has lesions of the skull and they have leaked blood into his brain. The man has other issues they will not even address, he crys when he talks he is in so much pain, if he goes to the emergency room they put him out as quickly as possible.
This is a sad situation for too many.
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Post by sarahconnor on Jul 29, 2010 1:40:36 GMT -5
Dear amron, ever so sorry to hear of your bad experience. I could relate to your post in many ways, particularly when I was showing obvious signs of CNS involvement. Zyprexa (antipsychotics) are "their" answer to human suffering...symptoms don't lie!! You're right, nothing has changed & look how long we have all been "doing" this day in day out...waiting waiting waiting to be vindicated from this nightmare that no one in their wildest dreams could make up or pretend. I know from experience the psych. community call "our" symptoms hypochondria...how's that for a kick in the guts? an absolute disgrace! We all had lives once upon a time, then BANG! the rug is pulled out from under our feet. One has no idea what is happening, symptoms upon symptoms & pain like you've never imagined. Makes me think, this is maybe what "they" want for us, is it easier for them to pass this off as a"mental illness" ...so why did the CDC remove DOP from their website in 2007? Then again I really don't feel in a position to grumble about the CDC since I'm not an American citizen & don't pay tax to the US. I'd really like to say how I feel about the Australian Government, unfortunately my colorful language would have me banned from this forum. It becomes clearer & clearer to me the longer I suffer with this condition, those that disbelieve us are in fact delusional. You don't necessarily need a medical degree to know this condition is real...using ones eyes to "look" is usually a good place to start. I hope you do get the opportunity to have your blood tested amron. You probably already know this but, don't hold out hope, the blood results quite often are very normal & healthy, & yet you look & feel like you're dying. I think the blood tests are done by an automatic machine, not a human. Our blood needs to be put under a microscope! Also, ask if they can test your urine & poop. I shouldn't give advice about medication but from one morgie to another... please don't take the Zyprexa, it will steal your spirit & wound your soul. You sound too smart to fall for the delusional evil psych. community. Hope you had a better day today. morph, what a terribly sad story about your friend, lucky he has you.
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awake
Full Member
For nation will rise against nation, and kingdom against kingdom.
Posts: 191
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Post by awake on Jul 29, 2010 7:58:50 GMT -5
I get sick of being down troden for trying to inform people about this disease... I always approach it with the intention of enlightening those to this. Every time it's the same type of response from those we love...our families...and the doctors. It is a very crual and vicious cycle.. it seems that sometimes the whole world is against us.
I feel this way sometimes, but i know i have to mantain control and not get emotional and upset...Indeed i cry sometimes over what's being allowed to happen to our beautiful planet...people really don't seeem to care anymore about ANYTHING. I talk with god because he is the only one how can truely understand our plight.
awake
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Post by sarahconnor on Jul 29, 2010 22:25:08 GMT -5
Hi Greggo if you're reading. Karen mentioned you aren't very well right now & that you just want to put the whole thing behind you. That tells me things aren't progressing too well with Dr Muir? Dr Muir has deceived you & has used you in more ways than one.
You're not alone in your pain, I'm struggling right now too. The biofilm on my skin doesn't allow anything to escape, my tears release at least some of the Morgs.
I hope you get this message.
Take care Gill
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Post by amron on Jul 30, 2010 1:07:44 GMT -5
Thanks lovely morgie suffers, I needed your comfort, and care. Our comunity is a treasure trove of gifted faithful, loving people.
Sarahconnor, I completely understand that Bio-film, its so darn painful when that phony skin covers any area. Morgies seem so smart, the film gets tougher every day, I try to soak it off. It weeps off and on during the night. Some phony skin looks real, between my fingers I am amazed at the enginerring and the duplicate cross hatching I see.
God Bless your sick friend Morph, we all share the endless pain, and pray that he has more good days than bad. Thanks for sharing.
For now, I have a morph releaser I dont know how long it will work. My tumors are dumping at a fantastic rate. I use one tea bag of green, one tea bag of celestial seasons Mandrin Orange,in a dab of water in cup,in micro wave twenty seconds, to get it slimey, cool apply. Even gentle brings them up, pressure in circular fashion, they release and pop out. I say this is a Jesus gift to me for the pain. I lovingly share it, for another alternative method. Thanks Guys
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Post by sarahconnor on Jul 30, 2010 18:57:17 GMT -5
Hi amron, good to hear you sounding better.
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Post by sarahconnor on Mar 10, 2011 23:15:07 GMT -5
edited out a video that was gone; couldn't delete for some reason
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