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Post by thinker on Jan 30, 2007 0:24:46 GMT -5
Well, it's already apparent we still have left a few symptoms off the new version of our symptoms list.
Use this thread to make suggestions for adding symptoms that we've omitted.
Please try to make this a list, adding only enough words to accurately describe the condition. Make a separate thread for discussing symptoms in detail.
Thanks!!
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Post by thinker on Jan 30, 2007 0:27:04 GMT -5
SYMPTOMS TO BE ADDED TO OUR NEXT SYMPTOMS LIST:
* Teeth feel like they're shrinking. Food easily gets caught between them because they are smaller than they used to be.
* Dental work requires extra amounts of "deadening" due to extreme sensitivity in gums.
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Post by sarahconnor on Feb 4, 2007 17:24:22 GMT -5
* Teeth feel like they have moved
* Limited range of movement in head & neck, due to very tight skin
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Post by sarahconnor on Feb 4, 2007 17:34:23 GMT -5
* Dints in skin, particularly noticeable under arms and side of breasts.
* Unusual and extra hair growth (body)
* Extremely painful feet - toes, particularly soles of feet. Foot/ankle/knee swelling.
* Changes to hands and fingers. ie. arthritic type deformity of fingers
**PLEASE NOTE: These are long standing symptoms NOT new symptoms since pregnancy.
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Post by jeff88 on Feb 6, 2007 13:25:56 GMT -5
I have experienced the majority of these symptoms over the past 3 years. Especially the odd ones. A home inspection finally gave some answers. Toxic mold, Voc's and mycotoxins. I finally received a diagnosis after 2 1/2 years of trying to convince so many there was a serious problem and trying to convince myself that I was not going nuts. I have multiple fungal infections, seven different species have set up shop within my body along with a T-2 toxin. All are at the cellular level and reproducing. My dogs are in the same boat, one of which was hospitalized for 29 days and lost a lung. I am currently undergoing treatment and recently had our second infected home remediated. The symptoms are decreasing in severity, but not as rapidly as my doctor's would like. Next step is the Mayo Clinic for IV therapies in house. I am by no means suggesting that this is the answer to everyone elses problem, I am just urging other's to consider possible exposure. Two year's ago I was convinced that Morgellon's was as close as I would get to finding answer's. I even had numerous friends, family members and even one of my doctor's contact me when the stories were on the news because it sounded so similar to my symptoms. Good luck to all!
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Post by gracebeours on Feb 6, 2007 13:41:34 GMT -5
Jeff, what were your main symptoms, what tests confirmed what you had, what is the treatment they are giving you, and how was your house remediated? I know my house is toxic, so I am very interested. Thanks for your post.
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Post by jeff88 on Feb 6, 2007 14:28:28 GMT -5
I'll try to summarize. I moved into our newly constructed home on 12/19/2003 and had instant allergy symptoms: congestion, pressure swelling, etc. Diagnosed with chronic sinusitus 03/2004. In my office I would become extremely flushed and breakout in a rash (mainly on my face), I called the gas company thinking there was a leak in the fireplace. There wasn't. By 6/04 I had continuous sinus infections. Extensive allergy testing and an MRI led to a diagnosis of Chronic Rhinitus. Around this time I noticed the first of what were to become many places on my skin that I can best describe as age spots. These spots continue and along the way I have added lesions, bruises that turn into mysterious abnormalities within hours, hard risen bumps, and the list goes on. Heading into winter I began to notice an unexplainable amount of what appeared to be ingrown hairs. Then came the discovery of hairs that appeared to have a clear coat on them. Next, extreme itching sensations under my eyebrows and loss of them. Concurrently, I began to have excessive new hair growth that was in no way similar to my own dark brown hair. I felt like I was getting rabbit fur that was so fine and pale that I did not notice at first the clumping of multiple fiber like strands that I thought were single hairs. Another oddity was that these "hairs" grew in different directions and never in the same direction as my existing hair. Then came the horrible objects that came out of my skin. I began to have periods in which a clear-orange/yellow tinted fluid would ooze. I was now losing alot of hair that appeared to have slimy nodules at the base. These symptoms all occured prior to 2006.
As you can tell this could get really long so I will list the symptoms from 2006 forward: Slouthing of my skin, swelling/numbness/tingling/turning blue on ankles and hands, easy bruising, vertigo, brain-fog/ inability to focus/ loss of common words/names/etc., inability to regulate body temp., driving became difficult as I would forget turns and could not stay focused, couldn't seem to keep track of time, sleeplessness, feeling of always being on guard, CNS totally wacked, adrenal functions went crazy, tooth decay, PH levels low with very high acidity. I am sure I am omitting so many other problems!
I had so many tests. Finally, muscle testing (like biofeedback) showed fungal infections of the hypothalmus, sinuses and left lung, B-Pathway was blocked, and fungus at a cellular level. ELISA testing backed this up as my amino acids, along with numerous others, were skewed unbelievably. For instance norms would be 7-10 and I would be at 1,912- No Joke! Scratch testing of skin showed living fungus.
I started on fluconazole, a broad antifungal, accompanied with chelation, peroxide IV'S, hyper-baric chamber treatments along with the infra-red sauna. I kept getting worse. Eventually they mycotoxin was identified and I was put on Voriconazale, a very potent antifungal that is one of two that seem to have an effect on my particular toxin, that I actually began making headway. I am currently taking this 2x daily, countless supplements and weekly IV treatments.
As for the house, we had to install a 30-ply vapor barrier, an industrial strength dehumidifier, a sump pump, UV lights throughout HVAC, and ozonate. This has helped, but has not completely remedied the problem. At least I have a fighting chance now!
Please feel free to ask me anything else!
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Post by gracebeours on Feb 6, 2007 15:39:12 GMT -5
Thanks, Jeff. Just a few more questions: 1. what part of country do you live in? 2. did they identify the source of mycotoxin? 3. how did you convince them to do the ELISA test? 4. what kind of doctor are you seeing? 5. do you know what a combining yeast is? 6. did you have the fibers?
I am going to send you a personal message later today, but really appreciate your openness.
Bless you.
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Post by jeff88 on Feb 7, 2007 18:36:20 GMT -5
1. what part of country do you live in? North Carolina 2. did they identify the source of mycotoxin? Faulty construction led to foundation failure and water intrusion. Molds present in home were Aspergillius. Stachy., Fusarium and others. Fusarium created the vomitoxins. 3. how did you convince them to do the ELISA test? I had the fortune to be misfortunate enough to see one doctor who ran over tests in less than weeks in order to maximize his profit. Elisa happened to be one of them. 4. what kind of doctor are you seeing? Both an Integrative Medicine and a Kinesioligist. 5. do you know what a combining yeast is? I have heard something about this but am not really familiar with it. 6. did you have the fibers? Yes, black, blue and red.
Take Care.
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Post by mfromcanada on Feb 8, 2007 21:17:23 GMT -5
Skin all over turning a yellow colour, like the thin coating on a sausage, like an extra layer of skin.
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Post by mfromcanada on Feb 8, 2007 21:18:45 GMT -5
Pores change shape and beign to form a distinct pattern or design on the nose. Like a star burst or an oval shape. Very distinct shape. Deep deep pores but only some.
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Post by sarahconnor on Feb 22, 2007 7:59:48 GMT -5
Constant changes in appearance
Lymph nodes and lymph vessels over lap one another, and become literally fused together, the skin feels like it has been glued in place, but in the WRONG place
Causes severe disfigurement
Heartburn, reflux, reflux, reflux, oh lord the reflux is horrible!!!!
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Post by sarahconnor on Feb 22, 2007 8:01:42 GMT -5
P.S. Precribed meds aren't helping the reflux, nor is the antacid preparation, I guess I gotta blame pregnancy on this. I am running out of room in my belly!
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Post by nteeks on Mar 13, 2007 17:19:35 GMT -5
YESTERDAY I GIGGLED. I DIDN'T HAVE A NAME FOR MY ILLNESS UNTIL I FOUND MORGELLANS.THE GIGGLE CAME FROM A DEVIOUS GROAN INSIDE OF ME. "I WANT TO SHOVE THE FACES OF ALL OF THE SO CALLED DRS. WHO MADE FUN OF ME, PATRONIZED ME AND HAD ME BAKER ACTED FOR BEING ILL, INTO A ROOM FULL OF MORGELLANS SUFFERERS AND WE BAKER ACT THEM." I HAVE BEEN STUDYING THIS ILLNESS FOR A LOT OF YEARS & I KNOW IT IS CONTAGEOUS. I AM HOPING SOON TO GET WITH SCIENTISTS AND SEE IF MY FINDINGS ARE TRUE. I AM NOT SURE ABOUT A CURE YET BUT, I DO HAVE HOPES OF IT SOON. I DON'T HAVE DEGREES IN SCIENCE BUT I HAVE TURNED MY HOME INTO MY OWN PERSONAL LAB.. I HAVE LIVED AND BREATHED THIS HORROR MOST OF MY LIFE AND I AM NOW 47 AND DISGUSTED WITH MY HEALTH CARE PROFESSIONALS, I HAVE TAKEN IT UPON MYSELF TO END THIS FIGHT, ONE WAY OR ANOTHER. I NEED INFORMATION FROM SUFFERERS LIKE MYSELF SUCH AS A SIMPLE LIST OF ILLNESSES FROM CHILDHOOD UP TO NOW. I BELIEVE I CAN LINK A FEW TOGETHER FOR MORE ANSWERS. IF ANYONE WOULD LIKE TO HELP ME WITH THIS, ALL I ASK IS,EITHER AN E-MAIL WITH A LIST OF ILLNESSES ALONG WITH AGE OF ILLNESS OR A RESPONSE TO MY MESSAGE HERE. LET'S BAN TOGETHER AND FIND OUR OWN ANSWERS! I DON'T HAVE ANYMORE MONEY FOR DRS. THAT LAUGH AT ME...ETC.. MY E-MAIL ADDRESS IS NTEEKS@BELLSOUTH.NET THANK YOU FOR READING THIS. I AM HOPING IN THE FUTURE WE CAN CHAT BY PHONE. UNTIL THEN, THANK YOU. YOU ARE NOT ALONE.
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Post by sarahconnor on Mar 13, 2007 19:30:40 GMT -5
This one particular symptom was a BIG one for me for quite sometime and I do know that some others have had this feeling also;
* Feeling like you are dying.
(Whether this sensation/feeling was brought about by IV antibiotic therapy (herx reaction) I am not sure, but I lived with this feeling for way too long).
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Post by sickandtired on Mar 14, 2007 10:37:05 GMT -5
yes, I would say this is like dying in slow motion.....it just zaps the life out of us.....sometimes my husband will just fall out on the couch into a sleep like no other.....and at the weirdest times.....like 2 hours after he just got up from a full nights sleep.....very strange....
anyway a feeling of dying in slow motion - the energy just being drained out of you....sometimes I get this flutter and I have to catch my breath....and this feeling of lightheadedness
I can see indents in my arm (between my shoulder and elbow) where a huge patch of these things were taken up residence and now my arm there is indented from these things whittling away my muscle there.....like it was feeding on my muscle there and very happy for it took me 3 years now to fight this cluster and I now have a tiny patch left but a huge area of discolor that it does to your skin when healing.....
but anyway a feeling of dying - yes I can see that.....
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Post by silentlamb on Mar 24, 2007 16:08:48 GMT -5
Advanced cases (?)….
Total lack of normal illnesses such as common colds and flu seasonal or otherwise even after direct exposure.
Total lack of secondary infections on lesions, even lesions that have been open for over a year and longer.
I just don’t get “normal” sick.
sl
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Post by whiterose on Mar 24, 2007 16:19:45 GMT -5
I can't speak for everyone, but a large percentage of folks here are like that, go figure.
wr
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garin
New Member
Posts: 12
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Post by garin on Mar 26, 2007 21:39:49 GMT -5
silentlamb and whiterose, I know what you mean about never getting sick or infected. I have had m for many years, probably more than 30. I never get sick, but I have often had to make a supreme effort to act as healthy and energetic as I looked.
garin
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Post by mfromcanada on Mar 26, 2007 23:19:31 GMT -5
Cheeks feel as though they are sinking into your face. Shapes that look like white double sided rakes.
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Post by brimstone on Mar 27, 2007 6:04:39 GMT -5
If you put the double sided rakes next to each other, you will see (the) cookie cutter tracks or a ladder shape. More of them next to each other will form a "wavy" grid or a matrix. The vertical lines seem straighter than the horsontal ones.
Skin cells will be shed that leave pores - tiny slits, or larger oblong or round "pores" that form the spaces between the ladder steps.
When callus is formed, the spikes underneath fit the grid pattern.
The pattern looks whitish or greenish under the skin surface. (Hard to detect when you have fair skin - at first..)
I have discovered such slits inside my eyes (they release these "floaters"), my nose, my ears and my mouth, especially inside my cheeks where skin regularly comes off. (It isn't thrush)
The list of symptoms mentions uneven skin coloration. May be these observations are relevant under that heading.
I also think there is a cycle to the shedding and to the activity/intensity of the lesions: There are peaks every 3 or 4 days. I also have agitated bowels every 3 or 4 days. I am trying to make a log now.
I do not get "normal" sick anymore either - haven't for the last six or seven years. (Think I contracted this in the early 1990's)
Brimstone
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Post by 0happyday on Apr 16, 2007 21:44:45 GMT -5
Sarah I have experienced the sense of dying on several occasions. I have actually felt as though my organs were starting to shut down and that I was fighting to keep them going.
Something else I may have forgotten about until tonight , when it happened again; A swelling and tightness right above my heart. On one occassion at the ER, my mom was with me and she also witnessed it raise up and then go back down. This time it was much worse, I actually felt it squeezing and swelled up maybe twice as large as last time. First several times it felt to be about the size of a softball but elongated. This time around 8-10 inches by maybe 5-6.
Another observation, maybe someone else has witnessed. The fibers/organism, is almost impossible to pull out. I found that if you gently wind and pull, you will see them starting to let go and then will suddenly release.
Also I have on occassion observed a breathing tube of some sort. I have videod this which is accentuated by applying vaseline over the tube.
I also question whether of not they become your cuticles.
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Post by wildanimal on Apr 17, 2007 17:11:10 GMT -5
I noticed in the begining for me and my dogs that we got cotton mouth, it's like it changes to thick saliva like a snail. I always chew gum , it seems to help keep the mouth lubricated.
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Post by michellenh on Jan 19, 2008 10:07:22 GMT -5
lymphnode surgery removed,sharp pains that take your breath away.night sweats in neck head area,red scratch marks on skin,
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Post by michellenh on Jan 19, 2008 19:21:57 GMT -5
sorry I remembered a coulple more, raised permenent lines.me my husband and son have one on our left arm.my husbands went away?does anyone else have this- ? Feeling things going into hands,mostly petting animals.rice krispys sound in head when going to sleep.
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Post by mfromcanada on Jan 20, 2008 2:58:53 GMT -5
michellenh, Yes I have the sharp pains which take your breath away, the night sweats, especially the neck area with sweat like slime, and white shapes under my skin, some raised, shapes are like a star, a half moon, a comma, a feather, a comb, a fern frond etc...
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Post by michellenh on Jan 20, 2008 9:30:23 GMT -5
i just have the raised straight line about 2 inches long
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Post by bygraceofgod on Feb 6, 2008 10:45:13 GMT -5
Patterns of differing pigment on skin. I have stars. I know someone with hearts.
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Post by gracebeours on Feb 6, 2008 12:11:15 GMT -5
If you know someone with stars it is very important that you take pictures of the stars and post them. VERY IMPORTANT
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Post by wildanimal on Apr 9, 2008 14:54:44 GMT -5
When I first noticed this stuff I would tape my skin and I would have star like shapes. It was like a white powder film that made the star like shape on the tape. So I know that's not normal but why is the star shape so important to all the other patterns? I will make sure ijf I see this again I will take a picture. ps I found most of the star shapes on my thighs and back area. take care, wildanimal
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