Newbie -please help! What's the deal with...?
Aug 4, 2014 8:39:46 GMT -5
via mobile
jmurphree likes this
Post by gypsy12 on Aug 4, 2014 8:39:46 GMT -5
Okay well I have been reading this forum and have been suffering from symptoms for really who knows how long but diagnosed them as morgellons about a month ago. I am curious as to how other people's illness started. I'm wondering if it starts the same and everyone. Mine about a month ago began as what I assumed was a bedbug infestation because I was getting sharp shooting bites all over my body, but when I would go to look at the spot of the "sting" there was no bug to be found only a tiny red dot. Now in hindsight I did start noticing petechiae across my upper abdomen back in April and I just sort of brushed it off as broken blood vessels.
Anyway while I was not able to find any bugs at the scene of the bites, I finally was able to come up with something tangible and the only thing that presented itself was little white pieces of Lint like material. I frantically began to do searches on lint bugs and that is when I came across the term morgellons. I didn't initially think this is what was plaguing me because I read some bogus descriptions of what this disease actually is. However as time went on and I realized that the pieces of Lint and thread were coming out of me, not going into me… I began to do some more research. Once I found information linking our disease to Lyme, everything started to become a lot more clear. My symptoms started in May 2012 and align perfectly with Lyme disease, that is also the time when I received a terrible tick bite but never got the typical bullseye rash. Needless to say because I never presented with a rash, I never went got tested for anything.
So, having said all of that, I can see that several people on the site have excellent advice on a variety of treatments to help reduce the symptoms. That is wonderful and I'm sure that I will have lots of questions about that down the road. Today what is intriguing me is more about the actual presentation of the disease and what in gods name is happening inside my body :-)
what's the deal with the golden brown colored seed like spots that are appearing all over my body? They look like freckles at first, but as a fair skinned woman who also has the ability to tan I had spent the better part of my adult life inspecting all of my freckles and moles year-by-year to look for changes. This summer all of a sudden I turned up with hundreds of new freckles. I was very confused by this I was thinking it is what happens after the petechia heals, however tonight while reading this forum I felt the activity in my lower and upper legs and watch as fibers or whatever it is traveled across my leg at a pretty quick speed leaving string of these golden brown specs in it's path. Can somebody shed some light on this for me?
What's the deal with the white Squigley marks you find in the location of where you just felt recent activity? I'm going to just refer to it as activity because the sensation has a pretty wide range from a faint tickle to sharpshooting pains that are debilitating.
What's the deal with my hair is getting replaced by the thin fibers? I was horrified to read posts of long time sufferers who have gone bald etc. I noticed a couple of weeks ago that my arm hairs were starting to sprout some extremely long thin filament like threads; now I'm pretty sure all of my arm hairs have been replaced by these thin fibers.
Okay I have a lot more questions but this post is becoming a short novel and I apologize for droning on… If somebody could please help explain any of these issues to me I would greatly appreciate it thank you
Anyway while I was not able to find any bugs at the scene of the bites, I finally was able to come up with something tangible and the only thing that presented itself was little white pieces of Lint like material. I frantically began to do searches on lint bugs and that is when I came across the term morgellons. I didn't initially think this is what was plaguing me because I read some bogus descriptions of what this disease actually is. However as time went on and I realized that the pieces of Lint and thread were coming out of me, not going into me… I began to do some more research. Once I found information linking our disease to Lyme, everything started to become a lot more clear. My symptoms started in May 2012 and align perfectly with Lyme disease, that is also the time when I received a terrible tick bite but never got the typical bullseye rash. Needless to say because I never presented with a rash, I never went got tested for anything.
So, having said all of that, I can see that several people on the site have excellent advice on a variety of treatments to help reduce the symptoms. That is wonderful and I'm sure that I will have lots of questions about that down the road. Today what is intriguing me is more about the actual presentation of the disease and what in gods name is happening inside my body :-)
what's the deal with the golden brown colored seed like spots that are appearing all over my body? They look like freckles at first, but as a fair skinned woman who also has the ability to tan I had spent the better part of my adult life inspecting all of my freckles and moles year-by-year to look for changes. This summer all of a sudden I turned up with hundreds of new freckles. I was very confused by this I was thinking it is what happens after the petechia heals, however tonight while reading this forum I felt the activity in my lower and upper legs and watch as fibers or whatever it is traveled across my leg at a pretty quick speed leaving string of these golden brown specs in it's path. Can somebody shed some light on this for me?
What's the deal with the white Squigley marks you find in the location of where you just felt recent activity? I'm going to just refer to it as activity because the sensation has a pretty wide range from a faint tickle to sharpshooting pains that are debilitating.
What's the deal with my hair is getting replaced by the thin fibers? I was horrified to read posts of long time sufferers who have gone bald etc. I noticed a couple of weeks ago that my arm hairs were starting to sprout some extremely long thin filament like threads; now I'm pretty sure all of my arm hairs have been replaced by these thin fibers.
Okay I have a lot more questions but this post is becoming a short novel and I apologize for droning on… If somebody could please help explain any of these issues to me I would greatly appreciate it thank you