Post by charliem1010 on Oct 11, 2012 22:43:42 GMT -5
Hi, I can't believe it has taken me so long to find something like this website. I have been sick for about ten years now, but it seems to be getting a lot worse. I have a lot of trouble with muscle and joint pain, I never even get to sleep through the entire night anymore as the pain inevitably wakes me, and I really dread waking up each morning to face another day of hell. I have had the "sores" break out in different places most recently on my legs and when the sores came on I started to pull the hairs out because it was hard to shave them. That's when I first noticed the rubbery goo, that you can see with a flashlight and a magnifying glass. It's so weird they are really wet and rubbery at first but they quickly dry to a hard whitish clear like substance. I also noticed as I started tweezing that some of the hairs are strangely shaped and it looks like the hair is flat, not round. I began keeping these hairs because I feel like if someone could tell me what the stuff growing on these hairs is maybe they can tell me what's wrong with me. Most days I just feel like I am dying inside. I feel sick all the time, and so tired like I can barely walk from one place to another. I even had to quit working recently and that just terrifies me. Mostly I just want it to be over, I am so so tired of feeling sick. I was also wondering if anyone else has collected these hairs and if they have noticed that the substance on some of the hairs keeps growing. I have actual photographic evidence of this (which I tried to show to the dermatologist and she wouldn't even look.) I am beyond frustrated and i don't know where to turn to get help. Sometimes the stuff on the hairs is brown and I even pulled one that was black and rust colored. Once the hair is pulled out it never grows back either. Also the substance on the hairs tend to shrink as it dries. Please if anyone has experiences something similar please let me know. I could really use a friend.