Post by firedup on Oct 11, 2012 12:27:27 GMT -5
Hello Everyone, I have been away from the site for quite some time and today I have been reading the newest post and it's heartbreaking to read the familiar words of utter defeat and despair coming from more innocent people being afflicted with this horrendous disease. There just seems to be no end to this nightmare. Although I have learned to live with it and my physical symptoms have improved, I continue to struggle with cognitive dysfunction and extreme physical exhaustion. I have tried to pick up the pieces of my life and restore some sense of normalcy by trying to go back to work and rebuild my confidence and self esteem. At times I seemed ok, but the mental dysfunction and confusion has managed to once again shatter my hopes of returning to the life I once knew.
I know that many of you understand what I'm talking about. There are times when I feel like all is well but when I launch out into the deep I always find myself caught up and swept away by the dark, ruthless force of the unknown preditor.
There are so many of us and the numbers are steadily increasing. Alone and by ourselves we are helpless and deafeated but united together there has to be something we can do. We are very quickly becoming a majority, this means something, this is of great significance. I'm pondering the idea of a desperate act of boldness. Maybe showing up on the steps of the White House and demanding to be acknowledged and assisted. I'm open for suggestions or ideas from anyone. We can't go on like this anymore.
Most of us have already lost everything and can't get our lives back and we can't get disability because we can't find a doctor that will treat us or even acknowledge our illness. This should not be happening. It's time to put our heads together and see what we can do as a united force to help each other. We can't do it while we are isolated and alone inside the confines of our homes. It's time to come out of hiding and bear witness to the truth even if we do have to protest the steps of the white house appearing as zombies with all of our lesions and fibers exposed. At least we will get their attention. How sick and tired are you?
I know that many of you understand what I'm talking about. There are times when I feel like all is well but when I launch out into the deep I always find myself caught up and swept away by the dark, ruthless force of the unknown preditor.
There are so many of us and the numbers are steadily increasing. Alone and by ourselves we are helpless and deafeated but united together there has to be something we can do. We are very quickly becoming a majority, this means something, this is of great significance. I'm pondering the idea of a desperate act of boldness. Maybe showing up on the steps of the White House and demanding to be acknowledged and assisted. I'm open for suggestions or ideas from anyone. We can't go on like this anymore.
Most of us have already lost everything and can't get our lives back and we can't get disability because we can't find a doctor that will treat us or even acknowledge our illness. This should not be happening. It's time to put our heads together and see what we can do as a united force to help each other. We can't do it while we are isolated and alone inside the confines of our homes. It's time to come out of hiding and bear witness to the truth even if we do have to protest the steps of the white house appearing as zombies with all of our lesions and fibers exposed. At least we will get their attention. How sick and tired are you?