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Post by lintbrush on Jan 9, 2011 3:07:00 GMT -5
;D I FINALLY FOUND A DOCTOR WHO IS WILLING TO TRY TO HELP ME. aNYBODY LIVING IN mICHIGAN WHO IS LOOKING FOR A dOCTOR WITH COMPASSION AND WHO IS WILLING TO BELIEVE YOU. HIS NAME IS DR. ALMANSOUR, HERE IN FLINT,MICHIGAN.
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Post by kshafe on Jan 11, 2012 16:49:58 GMT -5
I too have been on the hunt for a doctor in the michigan area who, at the very least will listen to my symptoms and at least consider morgellons as a possible diagnoses. With all the neighsayors out there in regards to morgellons I too sometimes wonder if it is real or if what i am experiencing is symptoms from some other disease or diseases, but every time i try and find other possibilities there's nothing that even comes close to matching up with my symptoms as perfectly as the symptoms that i read aboutmorgellons. Have you seen Dr. almansour more than once? and if so how are your results? what kind of treatment options has he suggested? Thanks for the info on the dr. i live in jackson mi but would certainly be willing to drive to the flint area if you are experiencing positive results. thanks again for the input
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Post by lori halberstadt on Jan 18, 2012 8:21:53 GMT -5
hi, i just heard of morgellons a couple days ago, but i am pretty sure i have it........i live near detroit......i would also be interested in finding a doctor in michigan.....i would love to get the info please. thank you lori
(i have read and watched A LOT on the topic.......and i have been diagnosed as bi-polar for years, i happen to have an awesome psychiatrist who is very smart, and open, and caring.....i have made him aware of my situation and he is reading up on it before i see him in a couple weeks......thank god i found caring and open people in the medical field.....it wasn't easy!)
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Post by sarahconnor on Jan 18, 2012 16:55:00 GMT -5
Hi lori, pleased to meet you. I once thought I had an out of this world psychiatrist, you know caring & all. He diagnosed me with a mental illness I didn't have = body dysmorphic disorder. I have never wanted cosmetic surgery in my life. That diagnosis suited him just fine so he could learn about me, as he said I was "unique", you bet mate! Just be careful - some psychiatrists flip once they read deep into the dark agenda of Morgellons. I'm sure he will help you with pills, as that maybe ok for your bi-polar. Just keep your blinkers on is all I'm suggesting. Good luck.
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Post by malynne lowers on Feb 29, 2012 0:04:53 GMT -5
hi my names is malynne i live in lansing mi now but i lived in onondaga mi about 15 min from jackson mi where i bought a blanket from sec hand store their an that next morning i wake up with i believe is morgellon as well as my 4 year old son that was sleeping next to me that night he was only 2 1/2 at the time.if any from mi want to write my email is lowersmalynne@yahoo.com
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3 Year Morgellons Sufferer
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Post by 3 Year Morgellons Sufferer on Mar 1, 2013 6:09:04 GMT -5
I WENT TO DR. ALMANSOUR IN FLINT MICHIGAN YESTERDAY. ALTHOUGH HE ACTED LIKE HE WAS LISTENING HIS MIND WAS SOMEWHERE ELSE. HE PRESCRIBED A STEROID OINTMENT, ANTI-ITCH PILLS AND GET THIS...RISPERDONE WHICH IS FOR SCHIZOPHRENIA! HE ONLY SAID THIS MEDICATION WOULD HELP WITH THE ITCHING, HE NEVER TOLD ME IT IS ANTI-PSYCHOTIC DRUG WHICH IS MAINLY USED TO TREAT SCHIZOPHRENIA!!! AT THIS POINT, I GIVE UP. I AM TRYING TO ACCEPT THE FACT THAT I WILL HAVE TO LIVE LIKE THIS FOR THE REST OF MY LIFE BECAUSE AFTER ALMOST 4 YEARS I HAVE YET TO FIND ANY RELIEF FROM THIS NIGHTMARE DISEASE. I ALSO WENT TO A DERMATOLOGIST 2 WEEKS AGO AND HAD A BIOPSY DONE. THE RESULTS CAME BACK AS A SKIN IRRITATION BUT RULED OUT ALL KNOWN SKIN DISEASES SUCH AS PSORIASIS AND ECZEMA. NOTHING SHOWED UP IN THE BIOPSY BECAUSE WHAT I HAVE WASN'T TESTED FOR! THERE IS NO TEST FOR WHAT I HAVE BECAUSE THE CDC AND MEDICAL FIELD IN GENERAL REFUSE TO ACKNOWLEDGE IT AS ANYTHING BUT PSYCHOLOGICAL. SORRY BUT MY MIND IS NOT CAUSING MY SKIN TO BREAK OUT. THE ONLY THING PSYCHOLOGICAL ABOUT THIS IS THAT IT IS ENOUGH TO DRIVE A PERSON CRAZY! SO I'M TOLD I HAVE A SKIN IRRITATION. REALLY??? IS THAT WHAT ITS CALLED? HMM, I COULDN'T TELL MY SKIN IS IRRITATED, GEE THANKS FOR POINTING THAT OUT. AND THESE "DOCTORS" ARE SUPPOSEDLY SMART PEOPLE, WTF?
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Post by amron on Mar 1, 2013 9:17:41 GMT -5
Hi, I can identify.... How we suffer, but it wont be long now, that chemtrails has been identified as a source. Eyeryone is getting on board, and I for one feel more free in discussing my symptons with all the chemtrails exposure. I can truly say I am allergic to planet earth, and direct them to the chemtrail on the internet. They even have a song the 365 days of Christmas tune. Oh, wow, it says it all and I am learning it for anyone who wants to get on board, and face the reality of planet earths diabolical situation.
I had to go to the doctor, for my regular blood check yesterday. Problem I have had an outbreak with the white cotton worms, that turn into fibers around my mouth. I didn't want to hear it... Have you been to a shrink lately? I have no control of them, they have a choice to be a real doctor or not, but I sure had facing the negativity, when I am hurting bad. My face looks like H---, full of paper cut slits, from mouth corners to chin. They hurt, those little ones dont want to come out either. I have like the white krinckly spirochets coming out too. Anyway back to my story about doctor, I sat in the big chair and asked God to please lighten my load with a decent understanding doctor.
God answers, the doctor at the clinic had read up on chemtrails, and he told me he could talk at length how fearful he was of the tip of the iceburg. I said I was the canary in the mine person, he agreed. Amazing, he had no answers, but he did give me an anti-biotic that would keep me out of SARS trouble. I was greatful for the understanding, though there is little they can do for us. We have more help on the web than anywhere. I told him that my support system was the net. He was pretty frightened, and treated me like one dying with cancer. We have lived with this horrible disease for years so we are pretty fortified in the mind. Blessing amron
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Post by amron on Jun 6, 2013 10:02:09 GMT -5
Hi, I took an emotionaly scary step for me, I allowed my Clinic to send me to a neuro/hosp. for neuro evaluation and test. My standing ability is only for about 5 minutes, and then I have to lay down. If I am walking around I can last longer, but if I try to do cooking, dishes, I have a very limited time slot. I have been in denial about it, and I getting worse,I am hard pressed to put my feelings up for grabs. I thought it over for a couple of weeks, and decided I couldn't hack it. But this morning I had intutive thoughts to be as honest as possible, and let go and let God. In the forms I let them know that I believed I had morgellons. I really dont want to get all the way down to the city, 6 hrs. away and have some prima donna tell me forget it, we dont take morgie people. I'd rather them tell me by mail. So many years of suffering the Phyco-babble, I dont look forward to the outcome of this nano-micro-mysterious escape artist, morgellons, theatrical vanishing act. I dont have any leisons now, and that will be taken as a crack pot observation. Oh well, I'm thinking to much,if it turns out badly that certainly wont be anything new. I'll keep you up to date, it will be in July. Please pray for me that I am not a gutless wonder with them. Blessings amron
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Post by shawnie on Jun 11, 2013 21:18:10 GMT -5
hello im 38 YR old mom I JUST FIGURED OUT THAT MYSELF MY HUSBAND AND OUR 3YR OLD HAVE THIS CRAZY THING please someone point me in the right direction on how to cure
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Post by Noble Dragonfly on Jun 12, 2013 16:04:18 GMT -5
shawnie Hi Shawnie You have to change diet. Detox the body and rebuild the terrain. There are different ways of doing this. I could show you more of those ways at my site which is new and I am there daily. I am not here daily but still would like to help. Link to my page for Morgellons is health.groups.yahoo.com/group/TorpedoLynn/ The reason I started a forum is I belonged to a site called Lymebusters and it is near dead site after many years of a lot of activity and members. Proboards changed their format which near about finished it off. Hope others here will answer you so you can just relax here, but I have been searching off and on this week for some Morgellons chat and it seems like no one has post in a long time. Could be I just have not found the right links to new articles and could very easily be my fault. So if I you do not get a response go to the link and I will help. In Light Lynn
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Post by Noble Dragonfly on Jun 12, 2013 16:29:01 GMT -5
Hi Amron
Just saw your post. So quiet here I was wondering if anyone was going to post. I am glad you found a Dr. I will stop here in a moment and pray for you. Even if it turns out badly then the Dr. is possibly not the answer. Those who have won their battle with Morgellons did it with diet change, detoxing, and rebuilding their terrain. I am way much better by fallowing their example, but the diet part is one of my down falls.
I pop in now and then hoping for activity. Trying to find a new forum that has posters. Been tough too. Even got frustrated and started my own forum. lol.
Best of luck and hope they help you.
In Light Lynn
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Post by kathy on Mar 25, 2014 15:49:56 GMT -5
I haven't found a Dr yet. I have had some success with apple cider vinegar. It brings them to the surface. I have a sponge on a stick. I warm the vinegar alittle in pot on stove. If you have sores it will make them bleed. In fact it's pretty scary to watch and feel . I would like to show a dr what happens. But I don't have as many comming out now . I'm afraid of where they are going. I have colloidal silver salve that feels so good. I put apples cider vinegar with the mother into my diet. Actually vinegar is my best friend now . I wash floors(just pour into swiffers)lysol too.put it into laundry too. I've made my own clove capsules too . It's all pretty affordable .The silver is pricy. I've only been aware for a couple weeks . It's too soon to tell if I'm doing the right things. Knowing I'm not the only one who has this has helped a lot.hope you get help.
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Post by tadpole on Apr 3, 2014 4:29:43 GMT -5
Has anyone found a Dr in the tri state area yet? Mine just says I should take a vacation. He says this winter was extremely hard on people . :-(
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Post by michaelclarke on Apr 8, 2014 14:53:23 GMT -5
Amron, whatever happened with the neuro hosp last year? How did they react to you putting M on the form? Sorry 3year sufferer re doctor prescribing Risperdal without even letting on that it's an antipsychotic. That really stinks, and they shouldn't be allowed to do that. I mean if you are on a psych ward and swinging at people or trying to hurt yourself they should be able to put you down and give you a needle in the butt. But if you go to a doctor for an itchy rash they should not be allowed to send you home with a script for anti-psychotics unless you actually want them for some reason, and you dam well better be psychotic.
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Post by Kathy on Apr 18, 2014 19:33:57 GMT -5
Gave up on the Dr's nutrasilver is working. Follow the instructions,no quick fix but it will work if you stick with it. Above all follow instructions and know like you know...like you know it will work. We didn't do anything to deserve this and it's not something to be ashamed of. Other people just don't understand yet but someday they will when it's realized what's going on. It is hard,but every day just do one thing you used to do . Don't give up.
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Post by tiffany on Nov 11, 2014 5:50:58 GMT -5
hi my names is malynne i live in lansing mi now but i lived in onondaga mi about 15 min from jackson mi where i bought a blanket from sec hand store their an that next morning i wake up with i believe is morgellon as well as my 4 year old son that was sleeping next to me that night he was only 2 1/2 at the time.if any from mi want to write my email is lowersmalynne@yahoo.com Hello I would like to ask you if your baby got it too? I have a 2 1\2 year old daughter and I am so scared she might get it from me. Thanks
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Post by desperate on Jun 15, 2015 23:06:34 GMT -5
I have been suffering from this nightmare since my move to NC! I didn't know what was happening to my skin! I visited two Derms and every assistant in each office. All wrote scripts for steroid creams, anti itch and meds to help me sleep!!! Not one Doctor helped! They said it was in my head! I have been back home in Mi now for 3 years! I have been suffering with this for 6!! I was sent to U of M and they sent me to Psychology, and Neurology! Knowone has a clue as to what I have! When you even begin to talk about the thought if Morgellons...they look at you as if you have two heads! My son jas been slowly showing symtems now as is my husband! This is not a joke, I have been cleared mentally and Neurology asked why on earth i was sent to them!! I have been trying everything and i wish i could find someone who could just sit with me and guide me through what I can and cannot have! I feel as though its taken control of my life!!!
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Post by Admin on Jun 16, 2015 0:12:10 GMT -5
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Post by Admin on Jun 16, 2015 13:56:42 GMT -5
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Post by leah on Aug 26, 2015 13:34:03 GMT -5
I have had morgellon's going on six years it's been very rough,finding a cure seems impossable, I'm on a mission from god, I'm not giving up.
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Post by morph on Aug 27, 2015 12:29:30 GMT -5
I do hope you get some results, then there is a large part of the population with this and all doctors in this country have seen the results, I have not heard of them saying, even with the huge rise in disease I have not heard them say something is wrong.
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Post by angrygreek222 on Mar 1, 2018 9:56:12 GMT -5
In Michigan I'd love to start a monthly or bI monthly support group. Please email me at angrygreek222@gmail.com
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Post by Beaglemom5 on Mar 20, 2018 21:13:40 GMT -5
Hi everyone. I started out with a rash type thing about 6 months ago. It turned into stinging, painful sores. Of course I was curious and had to try to see what was inside. There were tiny fibers with a hooey like substance that hardened. Some felt as if there were needles in them. I also have seen blue and black fibers. Also hard white, little round balls. As of know I still have some sores and they still hurt. I just found out about this condition 2 days ago by searching the internet. I have between 90-95% of the symptoms. I also have fibromyalgia, CFS, gluten sensitivity (I wasn't diagnosed with celiac disease even though blood work came back way, way over the norm. My biopsies were negative) I am extremely sensitive and intolerant to many household cleaners, soaps, perfumes, shampoos, conditioners, etc. I also had scarlet fever twice as a child thinking that maybe there is a connection between that and my conditions. I live in St Clair County Michigan. Any info, hints or tips would be greatly appreciated. I was going to talk to my doctor about this today but she was running behind and I had been there for over 2 hours.
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Post by Admin on Mar 21, 2018 9:55:09 GMT -5
I wouldn't mention the name of the condition unless you know your doctor well or you will get a DOP Analysis. If you know and trust her bring up the name Charles E Holman foundation as their work and research are bringing credibility to the topic. Also if you have an in with the doctor get a Lyme test Through Igenex. Do Not take the western blot because they are bogus tests set against us, rarely do they show a positive, lots of false negatives.
Write to the folks at the group Charles E Holman and ask them for more info. So walk very carefully and be cautious about your words.
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Post by Sarah on Apr 3, 2018 13:47:07 GMT -5
I too have been on the hunt for a doctor in the michigan area who, at the very least will listen to my symptoms and at least consider morgellons as a possible diagnoses. With all the neighsayors out there in regards to morgellons I too sometimes wonder if it is real or if what i am experiencing is symptoms from some other disease or diseases, but every time i try and find other possibilities there's nothing that even comes close to matching up with my symptoms as perfectly as the symptoms that i read aboutmorgellons. Have you seen Dr. almansour more than once? and if so how are your results? what kind of treatment options has he suggested? Thanks for the info on the dr. i live in jackson mi but would certainly be willing to drive to the flint area if you are experiencing positive results. thanks again for the input
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Post by kristindetroit on Feb 21, 2022 0:01:56 GMT -5
Looking to connect with anyone who has Morgellons near Detroit
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