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Post by svetlana on Oct 22, 2010 13:01:08 GMT -5
I live in the Republic of Georgia, Tbilisi city. I am Russian, sorry for my poor English. Resently I've noticed very strange symptoms - black curly "hairs" coming from my skin. Some of them are red. They are not my owm hair. They look like silk or polymeric tessue. I suffered from pielodermia (dermatit) during all the summer (this summer was very hot in Georgia + 40-45). All my back and arms had lesions, very painful. Then I saw strange small black "balls" in and on my skin. They consist of something like hair. That is awfull! I've been in deep depression during 3-4 months. Here, in Georgia Republic I can not find any doctor who knows anything about such type of illness. They think, I am crazy. I am taking Ambendazole now, 400 mg a day. It seems I feel better. I began to attend sauna, where I use sault, masseging it into the skin. I hope that it is possible to fight with this devil's deseas. Let Lord Jesus bless everybody at this forum. We must fight together.
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Post by instylemom on Mar 2, 2011 20:29:15 GMT -5
I am new here and recently diagnosed morgellons. I am looking for Dr. Spencers contact info. If anyone knows I would really appreciate it. Seems the number he had no longer works.
Noelle
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Post by amron on Mar 3, 2011 3:11:36 GMT -5
svetlana welcome, you speak very well. The more I think about the depression you almost instantly get with this disease, I see it as anger that knowone wants to help. Proffessionals blow us off like so many flys. You keep coming back and sharing, you will feel better helping another fellow sufferer. They've been dumping chemtrails all over the world, you are an early bird canary, we need to stick together. The fibers are every where, look and you will see even those who you wouldn't expect have this diabolical mess.Bless you! amron
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Post by zapstorm on Apr 9, 2011 20:24:04 GMT -5
Dear chair58 and everyone else, hello and God Bless Us All! I have had this condition for the last two months. A short time to be sure, but full of hell all the same. I have been to three doctors so far and have gotten no relief. The last doctor had me try a cancer causing agent, but only if I ingested it!?! It goes into the skin, duh! I am using vitamin e-oil mixed with suave's aloe and cucumber lotion. I mix it myself, and it soothes pretty well. After showering in the morning, it stings abit and my face gets all red, but it's a small price to pay for the relief of itching. I cover my whole body after showering. The condition seems to go in cycles. It will inflame my face and ears so badly, I ruptured an eardrum scratching. Then it will fade and flare up wherever there are lymph nodes and sweaty areas. I am now taking olive leaf extract four times a day, 300mg. I doubled the dose because the disease was progressing faster. It gives much relief by helping the immune system fight off disease. I am detoxing with an Aqua Chi machine I bought years ago and never used much, until now. Black stuff comes out of me every day. It is based upon Dr. Royal Raymond Rife technology and I have seen things swimming around in the water that people have their feet in. It helps. Please pray for us all! zapstorm
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help
New Member
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Post by help on Jan 20, 2012 15:51:51 GMT -5
PLEASE EVERYONE READ MY POST ON THE MESSAGE BOARD AND TELL ME WHAT SKIN PRODUCTS YOU'RE USING AND YOUR SYMPTOMS. THANK YOU!
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Post by Admin on Jan 20, 2012 21:39:55 GMT -5
what post where; as it is difficult to tell by this post?
Thank You
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help
New Member
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Post by help on Jan 21, 2012 10:51:56 GMT -5
On the board "NEWCOMERS - Let us know you're here - HERE!" I made a post yesterday entitled "CUREEE!" would be good if people could reply. Thanks!
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Post by medic642 on Nov 4, 2013 16:29:01 GMT -5
Hello, I am new, I have Morgellons, with several colored fibers, many lesions on my face now and spreading, but they are all over my body. What is this you guys are talking about with pin worms, larve, and machines ? Please explain,,,,also where do you get that tree oil and stuff you guys are using, also is their any doctors in Sacramento, Ca. That believe in Morgellons? Any help or response is appreciated, i'm ashamed to show my face outside, and do you guys nurse your lesions daily too? I noticed that under alot of them it seems like the skin had turned to liquid. Thanks
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Post by pmamama on Dec 6, 2013 0:11:16 GMT -5
It is absolutely a wonderful surprise that your very own doctor was already familiar w/ Morgelons AND treating another patient before you, AND now treating YOU!!! YOU ARE VERY BLESSED!!! If there is anyone in the NEW ENGLAND region who knows of a doctor who is willing to treat Morgellons, please let me know!!!
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Post by viverre on Dec 18, 2013 14:13:38 GMT -5
hello i am new here. i have had this horrible disease in its full blown state for over five years now. im sure i had it before that also but the symptoms were milder. i had to give up a brand new just built house and move to another area and live in a small apartmemt where my husband and i can clean everything evrry day and we have absolute minimum possesions. everything else is in storage and i doubt ill ever be able to touch it again. im sure you all know how this thing takes everything from you. i cut my long, beautiful hair and now i have short hair with bald spoys. ive had to leabe my job and i dont go near my friends anymore, besides they live two hours away. my son libed with us at the house and moved to his own placw taking many possesions so now i can not walk into his house without literally being attacked and i can no longer touch him or be around him for long. i cant even have christmas dinner in my house because he will infect my house. of course the stuff doesnt bother him or my husband it just finds me and rips into me sometimes so badly that i bleed where they enter. now our new house is becoming infected and i have no where to run this time. i can only sit and suffer in my own home. i have some different views on treatment. i never use tree oils or flowery botanicals. i find although things such as eucylyptus oil work to kill one thing, they strongly attract another. i do not eat cheese since it makes my skin oily and attracts. i never eat fresh fruit because it attracts fruit flies to my cheeks. you have to remember that most of your face is just the outside of your mouth. i have had the most success with black walnut and cloves tincture, both ingested and used topically and also activated charcoal both ingested and applied to my scalp.i i habe found some new interesting literature about fibrins. im looking into that now and thatvrequires an enzyme treatment. if it works ill post more about it.
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Post by kitty2014 on Jul 4, 2014 5:33:08 GMT -5
Hi am in UK and I was prescribed this a month ago (Vermox) I had to take 15mls and then 15mls 2 weeks later.I have to say I had no stomach ache at all.I did however start to lose tiny worms out of the side of my nose and around my mouth.It just started with a tickly feeling and there they were.I have also been given and taken ivermectin with no ill effects but I have been taking probiotic at the same time (acidophilus) and i really think you need to take this at the same time as wormers. Hi england, already drafted you a message earlier, but it's gone whistling with the wind, so just in case you and it turns up, I'll dribble something different! Lol! ...... Regarding your treatment - I do hope this year finds you very well and you're all sorted out!? .... Just as a note of interest, I'm not takin' any meds, as haven't been to the Doc's (If you read my newcomer thread, you'll understand why!) but since I realised this disease, I've changed app 95% of my diet to a strict, mainly rabbit food fodder, organic one (Basically salad and raw veg!) and since that, have been experiencing the same as your above-mentioned symptoms, with the addition of fibres, black dots, infrequent stinging pain in legs and spine (not bites!) and a few tiny, thin white/cream fibres/worms erupting under the surface of my skin and one out of a freakle, thrown into the mix! ... Now, my question is, is that due to not takin' any meds and controllin' my health by diet, am I treating my body in the same way you were yours when on Vermox etc? .... If so, everyone who wants to know what my exact diet is, make cheque out to ..... Ha! Ha! Ha! .... No! ... Only jokin'! ....... If that's the case, then I'm really chuffed with myself for bein' so darned lucky and all the aftermath and "bein' ready with the salty water and tissue to wipe the little gits away and chuck 'em in the crapper-pan," will be bloody worth it! Lol! ..... On a serious note though, I'm a bit confused regarding whether something's working for the better, or not!? ... For instance, I assume you were pleased that you had escapees, as it meant that they were finally comin' to the surface and presumably, leavin' your body, with your help!? .... Well, my musing is based on my question - "Am I sufferin' like this because I've agitated them with something that's a danger and they're reacting" or "Am I eating the wrong stuff that feed's them and they're steppin'-up their activity because it's boostin' their energy and population'?! .... I know about the Herxheimer Reaction etc, but it's all rather puzzlin', to be honest and I would be grateful if someone could enlighten me with true facts!
Many regards
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mandy
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Post by mandy on Dec 28, 2016 13:56:05 GMT -5
Im sorry but I hear lots of talk of worms Morgellons are not worms we have to remember we may have similar symptoms but not same disease as far as treatment. Doctors love to prescribe pills does not mean they know or understand. Our bodies produce this nightmarish ailment and in 300 years no type of prescription has helped. We need to be looking for somthing natural or well all lose our minds and health due to doctor prescribed medication. Why are we waiting for these so called professionals to tell us what we need to feel better. Are we that desperate that we are just willing to believe anything? I realized a couple years back that the only important thing in life is to be happy, how many of you are truley happy with who and what you are experience. I understand positive thinking it is half the battle but when do we decide to be realistic. . Ok because my lines and grains are not worms, I don't think they move at all.
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Post by fearsomedreamer on Dec 28, 2021 12:11:37 GMT -5
Hello, I'm new here. But I've had Morgellons since 2010. I think I've tried every snake oil and crazy treatment out there. I can say that I'm mostly healed now and can live a normal life. But it's not completely gone and it's lonely knowing about this and living through it. I hope I can talk about my healing journey and someone and might get something out of it.
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