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jmurphree: No, well the vinegar may have been helping more with the Doxy running out of my system - but seemed to exacerbate the lesions toward the end. Finally I resolved to take the remaining Doxy and coupled with vinegar baths (my source says white is ok too) Aug 11, 2014 13:52:14 GMT -5
jmurphree: they seem to be healing up mostly. I think I need a stronger antibiotic - what is the one that starts with an A or something? No bugs that I can tell. I don't think I've ever seen a bug - just the fibers with me. My sores get fuzzy Aug 11, 2014 13:53:38 GMT -5
jmurphree: and sometimes, very rarely I have produced a silicone like mass with a black hair entangled inside of it. Aug 11, 2014 13:54:28 GMT -5
jmurphree: Don't forget about Matthew and Kristen Gray. The description of her experience is very compelling: https://www.giveforward.com/fundraiser/0l85/kirsten-s-undiagnosed-illness-fund-morgellon-s-research Aug 11, 2014 14:35:38 GMT -5 *
lin52: Our doctor today said, nothing he can do for my hubby. Advised he go see a psychiatrist. My hubby so emotional and depressed. Rather be dead. Says the 'things' are attacking him. Feels like needles. Doctor says antibiotics won't help. Feel hopeless. Aug 11, 2014 20:34:17 GMT -5
lin52: I see that some of you are taking antibiotics. Have you seem improvement while on them? Aug 11, 2014 20:39:05 GMT -5
jmurphree: lin yes, antibiotics do ease the symptoms and I can first hand tell you it does feel like needles Aug 11, 2014 22:48:01 GMT -5
jmurphree: It breaks my heart to hear that your doctor, your doctor would do something so cruel as to refer your husband to a psychiatrist when clearly this is a biological affliction. Please let him know that yall have the choice to go see someone else Aug 11, 2014 22:49:34 GMT -5
jmurphree: and hopefully that inspires him. You guys are not alone and each one of us on this website have gone through the same ordeal every time we go see a doctor for a cure. Don't be discouraged - there are doctors that will treat him right. There are. Aug 11, 2014 22:52:37 GMT -5
jmurphree: I almost don't want to suggest this however it may be the only way he can get real treatment - go to an ER of a Christian hospital. I say I don't want to suggest that because of the expense, however he may be able to get antibiotics right away Aug 11, 2014 22:55:56 GMT -5
jmurphree: I say Christian hospital because here in town between the two, St. Hospital and City Hospital, the St. Hospital seemed to take me seriously. Aug 11, 2014 22:57:03 GMT -5
holyjoke: The St.hospital that delivered my three miracles saw me when so sick with morg that my kidneys failed and sent me on my merry way. I was home two days still in the same clothes and my coat on in my Kitchen and haden't a clue how I got there. Aug 12, 2014 21:49:14 GMT -5
holyjoke: Oh I forgot to mention MY DAUGHTER WAS MY NURSE!!!!!Caring doctors are rare!!!! Aug 12, 2014 21:51:18 GMT -5
kitty2014: Orh, bless ya, holyjoke! I get ya! I haven't been as bad as that and I hope I don't! Hope you're ok now and gettin' there, with your recovery! :) Aug 12, 2014 23:46:00 GMT -5
jmurphree: Has anyone managed to utilize this to get treatment: http://www.morgellons-research.org/morgellons/morgellons-treatments.htm Aug 16, 2014 23:36:23 GMT -5 *
jmurphree: I'm going to take it into the ER tomorrow Aug 16, 2014 23:36:49 GMT -5
phantasm: the real cure for morgellons (bartonelosis) is here www.lyme-morgellons.com Aug 19, 2014 19:41:18 GMT -5
jmurphree: http://www.lyme-morgellons.com Aug 20, 2014 7:49:30 GMT -5 *
jmurphree: Phantasm, you said you went to California and the doctor you saw diagnosed you with: Granlomatous Perforating Skin Disorder Aug 20, 2014 7:53:35 GMT -5
jmurphree: Who is the doctor so some of us can go see him/her? Aug 20, 2014 7:53:51 GMT -5
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