My hair moves. It feels like it bites my face so I keep it sprayed back with hair spray because it really hurts. It pokes in my eyes and nose and drives my ears crazy. This has been my worse problem. I know it sounds insane, but it is true.
Does anyone have a good solution? I really do not want to shave my head.
yeah. i know it sounds crazy. i remember telling my doctor that my hair was dancing. she really thought i was a nut then. but when i stood in my bathroom facing the mirror, i was under the bathroom heat lamp.I looked like Medusa, you know the mythological siren with the snakes dancing on her head. it feels like a scifi moment. and yes I agree, it is like they try to get at other parts and bite or start a new spot.
I have really long hair which i debated about shaving because i had such horrible ulcers all over/ i think it is actually easier to have it long because i can pull or pin it out of the way. now i apply the DSPs and it heals the lesions. as for the biting and moving...i have had my head wrapped in a turban now for over a year. i remove it to wash my hair. i make sure that i comb through the hair with a comb so that the tangles it creates can be pulled out along with the blue and red fibers. I cover the wounds with dsp and sterile bandages, then a white washcloth. I wrap the whole head tightly in a turban. the hairs can't get to my ears or my face that way. i don't think they like it. I had such a horrible head that i worked with the burn unit at the hospital and even ended up with an aneurysm (sp)
Anyway, i was told that i would need plastic surgery for the back of my head and that my hair was gone forever. well the weird thing is that i used the dsp and my h head is almost well, all the hair has returned. I see three kinds of hair on my head. there are very fine silken threads (these are the ones that usually try to bite me) , very coarse twisted hairs and clear thick white shard like hairs.
my hair was always the one think i received compliments on and now it is coarse, falling out and yes it attacks me too. It is good to know that we are not imagining these symptoms. I also grew longs hairs in my private area, hairs on my legs and arms. the skin was like i had chill bumps at first, then coarse and dry. what a nightmare. i also use the dandruff shampoo and lavender creme rinse.
The good news is that if your think your hair is gone forever, don't despair. no one could have had any worse head than mine was and as soon as i got the core of the thing out and kept the creme on it came back almost instantly. So anyway my suggestion is wrap your head, wash hair in sulfur shampoo, use dsp on lesions. best of luck to you. so long from Medusa
can anone tell me how to insert a picture please. thanks
The hair thing is the worst part for me, I can deal ok with the rest. Like you, I had beautiful long hair down to my buttocks. My darling husband loved it and did not want me to cut it. Then it began to thin out at the crown. I tried a lot of products, but nothing stopped it. Everyone told me it was probably because my hair was so long and heavy, that the weight was pulling it out, eventhough I wore it in an updo most of the time.
The beautician said if I cut some off, it would grow back in the thinning areas. So I did, I cut 22 inches off, then after I got this thing disease, I broke out in a rash where ever it touched my body, face, or neck, and ears. And it itched really bad. Then I noticed it moving and it would wrap around my neck, go up my nose, in my eyes, and poke itsself into my cheeks like it was putting seeds or eggs in the skin. Then The white things began to emerge from my facial skin. Then I told my husband my hair was alive like worms and was poking its eggs into my skin and makeing more worms. He thought I had lost my mind. He said "you know they put people away for talking like that".
I also told the Dermatologist about it , and he looked at me with sadness and said "you know, we refer these kind of symptoms to mental health doctors." He did not even look at my skin or my hair. He just assumed I was Nuts.
I swear this is true. Even if one hair comes loose from my hairsprayed head, I can tell. If it is a hair in the back occipital area, it will reach around to bite my ears. For some reason, they really like to pester my ears. I bought three wigs to wear over the hair, and after wearing one wig three times, it began to do the same thing my hair did and I developed a severe rash around the back of my neck where the wig touched it.
So, I gave up. I wear a goofy hairstyle with alot of hairspray to hold it down . It looks like wet plastic, but it stops the pain. I wash it out everyday and reaply it. My body hair is a whole new story. I had better not go there.
Post by praying4usall on Feb 23, 2008 3:07:41 GMT -5
You mean like the big too thick & long dark eyebrow you want to pluck, as you watch it go back into your skin so you CAN'T?
Or, where you check a spot on your chest where there is a little growth, and it itches by it, so you look with your cheap little 8 X's magnifier, and there are two little black 'worms' peeking up out of holes (your PORES), and they slip back in before you get near them with your tweezers!
I live this. But it isn't real to me, it is too Twilight Zone to the core, so how Can I tell a Dr. who didn't even see it, and will call me DOP if I were dare to tell him this total insane malarkey that we have come to know as our now daily lives???
Ps 25:2-3 In you I trust, O my God. Do not let me be put to shame, nor let my enemies triumph over me. No one whose hope is in You will ever be put to shame... (NIV)
don is nuts: latest info points to borrelia and h pylori. drop the agrobacterium bunk.
Mar 2, 2014 15:39:51 GMT -5
Blondie: DOES ANYONE KNOW OF A DOCTOR IN THE TAMPA BAY AREA WHO TREATS MORGELLONS PATIENTS
Mar 12, 2014 14:24:06 GMT -5
metalart: suave professional almond and shea butter shampoo...which i bought a month ago by chance is causing the most affected areas to totally dry out and fall away....I have been fighting this different ways for several years.morgellons is also inside..so?
Mar 17, 2014 22:22:54 GMT -5
Alexnyc: Ok I have received my herbs. I will let you know how it goes!
Mar 22, 2014 2:26:03 GMT -5
Alexnyc: I'm seeing results! taking the cryptolepis sida alchornea formula from woodland essence. tablespoon 4-5 times a day
Mar 30, 2014 2:16:17 GMT -5
jaci: IHi all, my first post. Just got diagnosis Friday from Univ of Wash Medical, Dermatology Center. Had it 3 yrs but docs around me think it is all Dop. Not sure if I have any worms, do however get for several months ea summer tons of gnats living in my scalp
Mar 30, 2014 12:55:26 GMT -5
Lninia: Y r they saying its not contagous? Its absolutly contagous!!! I feel them jumping on me every time I get near a carrier. And caught it from my boyfriend it was jumping back and forth on us tryn to find the one with the poorest imune system to fight it.
Apr 4, 2014 9:30:24 GMT -5
Lninia: R they trying to hide the truth?
Apr 4, 2014 9:31:22 GMT -5
alexnyc: ok it was working the first week but then stopped after one week. Not sure why. Back to the drawing board...
Apr 4, 2014 20:07:01 GMT -5
alexnyc: I do notice worsening at the end of the day or when the body is tired... it seems as if they capitalize on a body when its sleep deprived... important note
Apr 4, 2014 20:09:34 GMT -5
Dani: [/b]First figured out I had morgellons after not sleeping for three days. Had been having symptoms for months before that , but never heard of it. My face broke out in huge sores all over my face within a six hour period.
Apr 13, 2014 22:18:41 GMT -5
Dani: Also had fibers and granules coming from what seemed like every pore in my body. Plus growing from under and on my nails. At first I thought it was some sort of "bed bug" so I went to the hospital. They shooed me away, telling me I had dermatitis.
Apr 13, 2014 22:20:41 GMT -5
Dani: The next day CPS showed up on my doorstep saying that the E.R. reported to them I was suffering from delusional parasitosis. I was humiliated, scared, and now I'm just furious! I can not believe the evil lies associated with this disease.
Apr 13, 2014 22:23:52 GMT -5
Dani: I have two children, seven and two, who have been exhibiting symptoms for months as well, and I feel so lost as what to do for them. HELPLESS! To describe it in one word. If anyone has any advice please let me know asap. Thanks.
Apr 13, 2014 22:25:43 GMT -5
Neil from Cedarcide: At Cedarcide.com have had some wonderful responses from people using our organic Best Yet, made with Cedar Oil. Call 800-842-1464 would send a free sample (just pay shipping & handling). Call in with the Key Word "Morgellons"
Apr 15, 2014 9:14:03 GMT -5
michaelclarke: Poor Dani, that was awful what happened to you at the ER and then CPS showing up. At least it sounds like they did not take your kids? Did CPS see the sores on your face so they could at least understand why you went to the ER?
Apr 19, 2014 16:43:17 GMT -5
michaelclarke: For your household, try to get vinyl mattress covers and put them on all the beds. They can be wiped down with vinegar when you change your sheets. That is a big help.
Apr 19, 2014 16:44:49 GMT -5
michaelclarke: Ppl say not eating sugar is one of the biggest helps for this condition, although I havent managed to do this myself.
Apr 19, 2014 16:45:33 GMT -5
michaelclarke: There are some Morgellons sites with detailed information on them re treatments for the body, house, diet, etc. If you don't find them and respond again here I will give you more info. Good luck.
Apr 19, 2014 16:51:06 GMT -5