My hair moves. It feels like it bites my face so I keep it sprayed back with hair spray because it really hurts. It pokes in my eyes and nose and drives my ears crazy. This has been my worse problem. I know it sounds insane, but it is true.
Does anyone have a good solution? I really do not want to shave my head.
yeah. i know it sounds crazy. i remember telling my doctor that my hair was dancing. she really thought i was a nut then. but when i stood in my bathroom facing the mirror, i was under the bathroom heat lamp.I looked like Medusa, you know the mythological siren with the snakes dancing on her head. it feels like a scifi moment. and yes I agree, it is like they try to get at other parts and bite or start a new spot.
I have really long hair which i debated about shaving because i had such horrible ulcers all over/ i think it is actually easier to have it long because i can pull or pin it out of the way. now i apply the DSPs and it heals the lesions. as for the biting and moving...i have had my head wrapped in a turban now for over a year. i remove it to wash my hair. i make sure that i comb through the hair with a comb so that the tangles it creates can be pulled out along with the blue and red fibers. I cover the wounds with dsp and sterile bandages, then a white washcloth. I wrap the whole head tightly in a turban. the hairs can't get to my ears or my face that way. i don't think they like it. I had such a horrible head that i worked with the burn unit at the hospital and even ended up with an aneurysm (sp)
Anyway, i was told that i would need plastic surgery for the back of my head and that my hair was gone forever. well the weird thing is that i used the dsp and my h head is almost well, all the hair has returned. I see three kinds of hair on my head. there are very fine silken threads (these are the ones that usually try to bite me) , very coarse twisted hairs and clear thick white shard like hairs.
my hair was always the one think i received compliments on and now it is coarse, falling out and yes it attacks me too. It is good to know that we are not imagining these symptoms. I also grew longs hairs in my private area, hairs on my legs and arms. the skin was like i had chill bumps at first, then coarse and dry. what a nightmare. i also use the dandruff shampoo and lavender creme rinse.
The good news is that if your think your hair is gone forever, don't despair. no one could have had any worse head than mine was and as soon as i got the core of the thing out and kept the creme on it came back almost instantly. So anyway my suggestion is wrap your head, wash hair in sulfur shampoo, use dsp on lesions. best of luck to you. so long from Medusa
can anone tell me how to insert a picture please. thanks
The hair thing is the worst part for me, I can deal ok with the rest. Like you, I had beautiful long hair down to my buttocks. My darling husband loved it and did not want me to cut it. Then it began to thin out at the crown. I tried a lot of products, but nothing stopped it. Everyone told me it was probably because my hair was so long and heavy, that the weight was pulling it out, eventhough I wore it in an updo most of the time.
The beautician said if I cut some off, it would grow back in the thinning areas. So I did, I cut 22 inches off, then after I got this thing disease, I broke out in a rash where ever it touched my body, face, or neck, and ears. And it itched really bad. Then I noticed it moving and it would wrap around my neck, go up my nose, in my eyes, and poke itsself into my cheeks like it was putting seeds or eggs in the skin. Then The white things began to emerge from my facial skin. Then I told my husband my hair was alive like worms and was poking its eggs into my skin and makeing more worms. He thought I had lost my mind. He said "you know they put people away for talking like that".
I also told the Dermatologist about it , and he looked at me with sadness and said "you know, we refer these kind of symptoms to mental health doctors." He did not even look at my skin or my hair. He just assumed I was Nuts.
I swear this is true. Even if one hair comes loose from my hairsprayed head, I can tell. If it is a hair in the back occipital area, it will reach around to bite my ears. For some reason, they really like to pester my ears. I bought three wigs to wear over the hair, and after wearing one wig three times, it began to do the same thing my hair did and I developed a severe rash around the back of my neck where the wig touched it.
So, I gave up. I wear a goofy hairstyle with alot of hairspray to hold it down . It looks like wet plastic, but it stops the pain. I wash it out everyday and reaply it. My body hair is a whole new story. I had better not go there.
Post by praying4usall on Feb 23, 2008 3:07:41 GMT -5
You mean like the big too thick & long dark eyebrow you want to pluck, as you watch it go back into your skin so you CAN'T?
Or, where you check a spot on your chest where there is a little growth, and it itches by it, so you look with your cheap little 8 X's magnifier, and there are two little black 'worms' peeking up out of holes (your PORES), and they slip back in before you get near them with your tweezers!
I live this. But it isn't real to me, it is too Twilight Zone to the core, so how Can I tell a Dr. who didn't even see it, and will call me DOP if I were dare to tell him this total insane malarkey that we have come to know as our now daily lives???
Ps 25:2-3 In you I trust, O my God. Do not let me be put to shame, nor let my enemies triumph over me. No one whose hope is in You will ever be put to shame... (NIV)
Mostly Cured: If anyone knows of an internal medicine that does dissolve the cocoons, please let us all in.
Nov 20, 2014 14:10:06 GMT -5
kitty2014: Orh, sorry about the tea-tree oil! Yes, the immune system and staying neutral/slightly alkaline is the key! I have been searching and here's one link that may help! http://morgellonsaid.wordpress.com/detox/mucoid-dissolving-cleanse/
Nov 20, 2014 16:04:43 GMT -5
kitty2014: I've got to get going now, but will search and put some more up soon! Whether they help, I don't know!? Fingers' crossed, eh! Please forgive me if you've already seen them!
Nov 20, 2014 16:06:25 GMT -5
kitty2014: Wasabi, the green Japanese horseradish, seems to be the best thing so far, both internally and topically. It gets one truly "clean", which any Morgie victim can attest to being a fairly rare phenomenon, and also rids hard and soft
Nov 20, 2014 18:36:29 GMT -5
kitty2014: surfaces of them, even where they've really dug in and nested. - That's a quote from someone from the Morgellons Remedies site! Hope it helps and dissolves your cocoons!?
Nov 20, 2014 18:38:42 GMT -5
kitty2014: Have you tried Organic Apple Cider Vinegar? I use half tsp in water and b/soda mix morning and night and just read something that says the vinegar kills fungi/dissolves bio film, so maybe that may help!?
Nov 20, 2014 20:16:52 GMT -5
Mostly Cured: I have just recently discovered Wasabi. After eating some Wasabi cheese, one of my lesions turned wasabi green. I didn't know what to make of it at the time. I still don't, but this is interesting news!
Nov 21, 2014 14:19:34 GMT -5
kitty2014: Oh, Mostly Cured, so glad if it's of any use! I'm a mind full of useful information at times, when it's not useless! Lol! You could not imagine how much research I've done and still doing, in order to help myself and others and if it only helps one, at
Nov 21, 2014 15:07:27 GMT -5
kitty2014: least it'll be something; although I'd rather it apply to the core of all sufferers problems!!! I'm gonna see if I can find anything informative on the "green" lesion issue so I'll get back to you on it! Keep smiling!
Nov 21, 2014 15:12:24 GMT -5
kitty2014: Jezza - I'm undecided on it! Sorry buddy, seen a lot of those kind of statements! The page was useful though, for the discussions - apart from the rotten *ankers' being hostile!
Nov 21, 2014 15:13:56 GMT -5
kitty2014: Sorry, Mostly Cured - looked at loads of doc's and there's nothing to suggest why your lesions would have turned green! My conclusion would be that it'd either be the bio-film coming to the surface (which is fab) or the wasabi, which is green in colour!?
Nov 21, 2014 18:19:39 GMT -5
kitty2014: Maybe it's worth a try though!? ........... Good luck!!!
Nov 21, 2014 18:20:37 GMT -5
Mostly Cured: I am rapidly running out of lesions to test but I'm going to eat some more wasabi cheese anyway!!!
Nov 22, 2014 13:16:42 GMT -5
kitty2014: Fantastic you've hardly got any, but I suppose if you can afford some cheese etc, then go for it! I haven't got a clue what it's like, but I bet it's expensive!? Let me know if you try it and it works, please!
Nov 23, 2014 4:42:02 GMT -5
Mostly Cured: kitty2014, Thank you for your time and research. It is helping people!
Nov 24, 2014 11:53:36 GMT -5
kitty2014: Orh, thank you! Bless you! You are more than welcome! .... You are too!!! ....... We all are!!! (Well, apart from the kno8head's who spout $hite and ridicule us!)
Nov 24, 2014 18:41:20 GMT -5
not quite insane: I havent tried wasabi, must try that though thanks for headsup atm im only using cellfood and vitamin c but every couple of days, usually if I wash my hands with antibacterial liquid after drying all the nano fibres start coming out atm theyre not??
Nov 25, 2014 15:45:23 GMT -5
not quite insane: So I am wondering whether I am between some sort of cycle or not as there has been no sign of the clear fibres for a month now, though the larvae/eggs still showup embedded in my skin but only just sparingly I know the cellfood is working for me atm..
Nov 25, 2014 15:47:23 GMT -5
not quite insane: I read recently that a guy with morgs thinks hes cured as he got into a domestic and was tasered by the police, he said he had a million popping sounds all over his body and temp went up 100% had to use a water hose, anyway dont try that as could be phony
Nov 25, 2014 15:50:06 GMT -5