My hair moves. It feels like it bites my face so I keep it sprayed back with hair spray because it really hurts. It pokes in my eyes and nose and drives my ears crazy. This has been my worse problem. I know it sounds insane, but it is true.
Does anyone have a good solution? I really do not want to shave my head.
yeah. i know it sounds crazy. i remember telling my doctor that my hair was dancing. she really thought i was a nut then. but when i stood in my bathroom facing the mirror, i was under the bathroom heat lamp.I looked like Medusa, you know the mythological siren with the snakes dancing on her head. it feels like a scifi moment. and yes I agree, it is like they try to get at other parts and bite or start a new spot.
I have really long hair which i debated about shaving because i had such horrible ulcers all over/ i think it is actually easier to have it long because i can pull or pin it out of the way. now i apply the DSPs and it heals the lesions. as for the biting and moving...i have had my head wrapped in a turban now for over a year. i remove it to wash my hair. i make sure that i comb through the hair with a comb so that the tangles it creates can be pulled out along with the blue and red fibers. I cover the wounds with dsp and sterile bandages, then a white washcloth. I wrap the whole head tightly in a turban. the hairs can't get to my ears or my face that way. i don't think they like it. I had such a horrible head that i worked with the burn unit at the hospital and even ended up with an aneurysm (sp)
Anyway, i was told that i would need plastic surgery for the back of my head and that my hair was gone forever. well the weird thing is that i used the dsp and my h head is almost well, all the hair has returned. I see three kinds of hair on my head. there are very fine silken threads (these are the ones that usually try to bite me) , very coarse twisted hairs and clear thick white shard like hairs.
my hair was always the one think i received compliments on and now it is coarse, falling out and yes it attacks me too. It is good to know that we are not imagining these symptoms. I also grew longs hairs in my private area, hairs on my legs and arms. the skin was like i had chill bumps at first, then coarse and dry. what a nightmare. i also use the dandruff shampoo and lavender creme rinse.
The good news is that if your think your hair is gone forever, don't despair. no one could have had any worse head than mine was and as soon as i got the core of the thing out and kept the creme on it came back almost instantly. So anyway my suggestion is wrap your head, wash hair in sulfur shampoo, use dsp on lesions. best of luck to you. so long from Medusa
can anone tell me how to insert a picture please. thanks
The hair thing is the worst part for me, I can deal ok with the rest. Like you, I had beautiful long hair down to my buttocks. My darling husband loved it and did not want me to cut it. Then it began to thin out at the crown. I tried a lot of products, but nothing stopped it. Everyone told me it was probably because my hair was so long and heavy, that the weight was pulling it out, eventhough I wore it in an updo most of the time.
The beautician said if I cut some off, it would grow back in the thinning areas. So I did, I cut 22 inches off, then after I got this thing disease, I broke out in a rash where ever it touched my body, face, or neck, and ears. And it itched really bad. Then I noticed it moving and it would wrap around my neck, go up my nose, in my eyes, and poke itsself into my cheeks like it was putting seeds or eggs in the skin. Then The white things began to emerge from my facial skin. Then I told my husband my hair was alive like worms and was poking its eggs into my skin and makeing more worms. He thought I had lost my mind. He said "you know they put people away for talking like that".
I also told the Dermatologist about it , and he looked at me with sadness and said "you know, we refer these kind of symptoms to mental health doctors." He did not even look at my skin or my hair. He just assumed I was Nuts.
I swear this is true. Even if one hair comes loose from my hairsprayed head, I can tell. If it is a hair in the back occipital area, it will reach around to bite my ears. For some reason, they really like to pester my ears. I bought three wigs to wear over the hair, and after wearing one wig three times, it began to do the same thing my hair did and I developed a severe rash around the back of my neck where the wig touched it.
So, I gave up. I wear a goofy hairstyle with alot of hairspray to hold it down . It looks like wet plastic, but it stops the pain. I wash it out everyday and reaply it. My body hair is a whole new story. I had better not go there.
Post by praying4usall on Feb 23, 2008 3:07:41 GMT -5
You mean like the big too thick & long dark eyebrow you want to pluck, as you watch it go back into your skin so you CAN'T?
Or, where you check a spot on your chest where there is a little growth, and it itches by it, so you look with your cheap little 8 X's magnifier, and there are two little black 'worms' peeking up out of holes (your PORES), and they slip back in before you get near them with your tweezers!
I live this. But it isn't real to me, it is too Twilight Zone to the core, so how Can I tell a Dr. who didn't even see it, and will call me DOP if I were dare to tell him this total insane malarkey that we have come to know as our now daily lives???
Ps 25:2-3 In you I trust, O my God. Do not let me be put to shame, nor let my enemies triumph over me. No one whose hope is in You will ever be put to shame... (NIV)
0u812: what in gods name has the government created that can be on a person and act up due to the environment... ?
Jun 30, 2015 21:30:06 GMT -5
0u812: so no alchohal > sugar - white flour - carbs -
Jun 30, 2015 21:31:59 GMT -5
0u812: correct ?
Jun 30, 2015 21:32:13 GMT -5
0u812: Do you realize how crazy i look telling my family I have a parasite in me that goes crazy when i eat the above foods, and
Jun 30, 2015 21:33:21 GMT -5
ou812 : when i am near wooded or swamp like areas .... They think I am crazy... I wonder if this crap is from a government lab that
Jun 30, 2015 21:34:39 GMT -5
ou812 : somehow got out
Jun 30, 2015 21:34:47 GMT -5
ou812 : This started in me in 2005 but the only thing is that I dont get the fibers everyone is talking about.... I get the creepy
Jun 30, 2015 21:35:20 GMT -5
ou812 : crawling feelings and sometimes a quick sting feeling
Jun 30, 2015 21:35:53 GMT -5
ou812 : but no fibers or lesions.... Do you think this is still morgellons ? or do you think this is a different parasite that is related to morgellons ? It also is bad when I sit near my computer... and when something startles me like my laundry
Jun 30, 2015 21:37:32 GMT -5
ou812 : machine going off and buzzing when its done
Jun 30, 2015 21:37:46 GMT -5
ou812 : I also get a high pitch tone in my ears when it happens sometimes... like my body is alerting me that they are about to attack,,, oh yea, it also happens when it rains... i get the crawly feelings on my head, eye brows and arms... IS there a cure ??
Jun 30, 2015 21:39:37 GMT -5
ou812 : Sorry to ramble ... thanks for listening... I contemplated going to a doctor again but the ones back in 2005 said it was parasitosis... I wonder if doctors know about this but are scared to admit it may be true... Theres gotta be a doctor out there that
Jun 30, 2015 21:41:06 GMT -5
ou812 : has it.... and will come correct and bring it to the public...
Jun 30, 2015 21:41:33 GMT -5
ou812 : Sorry to ramble .... thanks for listening..
Jun 30, 2015 21:41:52 GMT -5
kitty2014: No, course you're not crazy!!! .... You must have fungal issues though or it wouldn't affect you! Some say nature is better for us but I just get swamped by insects! It's bad enough just walking in my streets and I live in the UK, in a town! Lol!
Jun 30, 2015 22:22:56 GMT -5
kitty2014: I'm not sure about all this conspiracy crap, I believe part of it is nature anyway! Think about fungi etc! Just forget about it as it'll only add stress and you don't need that! Just concentrate on getting better and helping yourself!
Jun 30, 2015 22:25:51 GMT -5
kitty2014: Yeah, that's it! No alcohol, only rice flour and only small amount of carb's! Can have org raw cane sugar, but not too much! Hey, £uck soundin' crazy; they'll realise in the end when you show them proof! Taken me a year, but gettin' there now! Only 2 but
Jun 30, 2015 22:31:06 GMT -5
kitty2014: it's a start, isn't it!? ..... At first, family sent me to a mental center and were shocked when I was deemed sane, wished luck in finding a cure and dismissed without med's! Lol! That'll teach 'em!
Jun 30, 2015 22:33:10 GMT -5
kitty2014: Definitely sounds like Morgellons! I didn't notice any fibre's until I was aware of the disease, so maybe it'll come soon! I don't suffer from lesions but had a few when I ate potatoes and bread (once-a-day) for a week 'cos I was sick of hunger! Lol!
Jun 30, 2015 22:37:05 GMT -5
kitty2014: Don't apologise, that's what we're here for! If you join, we can all message you and give you some good tips! Hard on here with rationed blocks! Lol! In the meantime, cut above mentioned out gradually (1 by 1, wk by wk) and change to organic 1 by 1!
Jun 30, 2015 22:41:10 GMT -5