My hair moves. It feels like it bites my face so I keep it sprayed back with hair spray because it really hurts. It pokes in my eyes and nose and drives my ears crazy. This has been my worse problem. I know it sounds insane, but it is true.
Does anyone have a good solution? I really do not want to shave my head.
yeah. i know it sounds crazy. i remember telling my doctor that my hair was dancing. she really thought i was a nut then. but when i stood in my bathroom facing the mirror, i was under the bathroom heat lamp.I looked like Medusa, you know the mythological siren with the snakes dancing on her head. it feels like a scifi moment. and yes I agree, it is like they try to get at other parts and bite or start a new spot.
I have really long hair which i debated about shaving because i had such horrible ulcers all over/ i think it is actually easier to have it long because i can pull or pin it out of the way. now i apply the DSPs and it heals the lesions. as for the biting and moving...i have had my head wrapped in a turban now for over a year. i remove it to wash my hair. i make sure that i comb through the hair with a comb so that the tangles it creates can be pulled out along with the blue and red fibers. I cover the wounds with dsp and sterile bandages, then a white washcloth. I wrap the whole head tightly in a turban. the hairs can't get to my ears or my face that way. i don't think they like it. I had such a horrible head that i worked with the burn unit at the hospital and even ended up with an aneurysm (sp)
Anyway, i was told that i would need plastic surgery for the back of my head and that my hair was gone forever. well the weird thing is that i used the dsp and my h head is almost well, all the hair has returned. I see three kinds of hair on my head. there are very fine silken threads (these are the ones that usually try to bite me) , very coarse twisted hairs and clear thick white shard like hairs.
my hair was always the one think i received compliments on and now it is coarse, falling out and yes it attacks me too. It is good to know that we are not imagining these symptoms. I also grew longs hairs in my private area, hairs on my legs and arms. the skin was like i had chill bumps at first, then coarse and dry. what a nightmare. i also use the dandruff shampoo and lavender creme rinse.
The good news is that if your think your hair is gone forever, don't despair. no one could have had any worse head than mine was and as soon as i got the core of the thing out and kept the creme on it came back almost instantly. So anyway my suggestion is wrap your head, wash hair in sulfur shampoo, use dsp on lesions. best of luck to you. so long from Medusa
can anone tell me how to insert a picture please. thanks
The hair thing is the worst part for me, I can deal ok with the rest. Like you, I had beautiful long hair down to my buttocks. My darling husband loved it and did not want me to cut it. Then it began to thin out at the crown. I tried a lot of products, but nothing stopped it. Everyone told me it was probably because my hair was so long and heavy, that the weight was pulling it out, eventhough I wore it in an updo most of the time.
The beautician said if I cut some off, it would grow back in the thinning areas. So I did, I cut 22 inches off, then after I got this thing disease, I broke out in a rash where ever it touched my body, face, or neck, and ears. And it itched really bad. Then I noticed it moving and it would wrap around my neck, go up my nose, in my eyes, and poke itsself into my cheeks like it was putting seeds or eggs in the skin. Then The white things began to emerge from my facial skin. Then I told my husband my hair was alive like worms and was poking its eggs into my skin and makeing more worms. He thought I had lost my mind. He said "you know they put people away for talking like that".
I also told the Dermatologist about it , and he looked at me with sadness and said "you know, we refer these kind of symptoms to mental health doctors." He did not even look at my skin or my hair. He just assumed I was Nuts.
I swear this is true. Even if one hair comes loose from my hairsprayed head, I can tell. If it is a hair in the back occipital area, it will reach around to bite my ears. For some reason, they really like to pester my ears. I bought three wigs to wear over the hair, and after wearing one wig three times, it began to do the same thing my hair did and I developed a severe rash around the back of my neck where the wig touched it.
So, I gave up. I wear a goofy hairstyle with alot of hairspray to hold it down . It looks like wet plastic, but it stops the pain. I wash it out everyday and reaply it. My body hair is a whole new story. I had better not go there.
Post by praying4usall on Feb 23, 2008 3:07:41 GMT -5
You mean like the big too thick & long dark eyebrow you want to pluck, as you watch it go back into your skin so you CAN'T?
Or, where you check a spot on your chest where there is a little growth, and it itches by it, so you look with your cheap little 8 X's magnifier, and there are two little black 'worms' peeking up out of holes (your PORES), and they slip back in before you get near them with your tweezers!
I live this. But it isn't real to me, it is too Twilight Zone to the core, so how Can I tell a Dr. who didn't even see it, and will call me DOP if I were dare to tell him this total insane malarkey that we have come to know as our now daily lives???
Ps 25:2-3 In you I trust, O my God. Do not let me be put to shame, nor let my enemies triumph over me. No one whose hope is in You will ever be put to shame... (NIV)
morph: The most prolific way to spread disease would be FLUID EXCHANGE, transferring infected body fluids into another, the largest amount of readily available transfer agent, a ARMY of men in third world sex havens set up by our own military.
Mar 25, 2015 11:51:17 GMT -5
morph: This is not only a possibility, it is a fact that only people of low intelligence could dismiss from the equation, I am the first KNOWN case to tell you where and when this happened, don't you have something important to do, soap operas are on.
Mar 25, 2015 11:55:11 GMT -5
morph: The case will never be closed as long as people like you draw breath, people that imagine themselves better than others will always cry out that they are PURE, better and in no way could catch a disease spread by sex, these people are arrogant.
Mar 25, 2015 12:10:28 GMT -5
morph: I am not a person that takes lightly what I say when it comes to this disease, my life has been devastated by it, could I say it would be nice to catch it in another way, NO, sex is quite grand actually, the problem is the disease not sex.
Mar 25, 2015 12:16:52 GMT -5
not quite insane: morph: the problem is you sound like one of those propaganda jerks, almost in a narcissistic way and your confusing an std to morgellons, so whatever floats your boat I couldnt care less
Mar 25, 2015 16:33:36 GMT -5
morph: Madam NONPLUS, propaganda jerk, well I've never and I never will, I do not confuse anything, I am an answer man, when people needed answers in my business they came to me, why do you imagine that is. disease is my business now, till death do us part.
Mar 25, 2015 16:53:05 GMT -5
morph: There is a big difference in being educated and being a narcissist, a narcissist is always right a person with knowledge speaks about what they know to be correct. If you go back you will never hear me say I KNOW THE VECTOR OF OUR DISEASE.
Mar 25, 2015 16:57:54 GMT -5
morph: Most often I furnish assumptions of researchers cause of Alzheimers, Autism, a relative symptom of our vector disease, pay attention to their studies, fiber disease, amoloids, we are after all making fibers, so are all the other unknown cause disease.
Mar 25, 2015 17:11:40 GMT -5
morph: When someone yells the sky is falling, I do not run, I consider the probability, when someone yells brake while I am driving distracted, guess what I am going to do. The law of probability says the person riding with me see's something I do not.
Mar 25, 2015 17:16:21 GMT -5
morph: Other smart people brake, yes Frito, that would be you, LOL.
Mar 25, 2015 17:21:22 GMT -5
kitty2014: Oh dear! not quite insane - you really should trust what morph says! He might be a little dry-humoured and come across as arrogant, but he really isn't! You'll be like him in 40 yrs if you don't get cured! Basically, he metaphorically states about bugs in
Mar 26, 2015 17:45:05 GMT -5
kitty2014: a sarcastic way because that's how it's perceived when we emphasise about them! He made me think about a lot of things, for which I'm truly grateful!
Mar 26, 2015 17:47:45 GMT -5
morph: Holy Cow Batman, KUDOS for dinner, eat dem all up, Dry humor, I would call it more like slap stick, NO, stick and poke, stick and poke joke, careful of da eyeball. if de eyeball be poke den maybe some cryin be done, cry make man feel need to run.
Mar 26, 2015 18:34:39 GMT -5
not quite insane: kitty2014: I dont appreciate people who confront other people who has morgellons, it is hard enough to get flack from doctors but then from someone else who is in the same boat? and in 40years time I will be 80 years old btw and morph whatever!
Mar 27, 2015 16:14:46 GMT -5
morph: MONSTER COME OUT. why if I see him/her I will give them one of these and then one of those and a this and a that, they better not come round here, them people pickin on them people that ? got what ever it is
Mar 27, 2015 16:57:45 GMT -5
kitty2014: Morph - you disguise well the fact that you're a caring human being! If I didn't know you, one would assume you were a big ugly troll, trying to stress us out and cause further infliction on our already-tired bodies! ... You are naughty! ..... I'll give
Mar 27, 2015 17:11:36 GMT -5
kitty2014: you a bloody slap with a joke stick! Lmao! .... Oh, love your self-deprecating parody!
Mar 27, 2015 17:16:14 GMT -5
kitty2014: not quite insane - I understand, but you'll have to excuse him! Lol! Obviously his torture shows, through the sting from his words! I don't take offence, he just makes me laugh and that's a blessing with this disease!
Mar 27, 2015 17:21:57 GMT -5
morph: Yes, please, excuse me, after all I did eat beans, because I know the tunnel that the dirty little demons used to get into me, I am a kinda character, I am doing a demon get out, a self deliverance tonight, demon you get out, here me
Mar 27, 2015 23:20:18 GMT -5
morph: You get out you pesky demon, get out or my new best G/F bring her ray gun and git you out she has a special intertermular, opulent, hot and cold, frequency, adulator, from Gar the destroyer fame and it even vibrates, you watch out demon
Mar 27, 2015 23:27:41 GMT -5