My hair moves. It feels like it bites my face so I keep it sprayed back with hair spray because it really hurts. It pokes in my eyes and nose and drives my ears crazy. This has been my worse problem. I know it sounds insane, but it is true.
Does anyone have a good solution? I really do not want to shave my head.
yeah. i know it sounds crazy. i remember telling my doctor that my hair was dancing. she really thought i was a nut then. but when i stood in my bathroom facing the mirror, i was under the bathroom heat lamp.I looked like Medusa, you know the mythological siren with the snakes dancing on her head. it feels like a scifi moment. and yes I agree, it is like they try to get at other parts and bite or start a new spot.
I have really long hair which i debated about shaving because i had such horrible ulcers all over/ i think it is actually easier to have it long because i can pull or pin it out of the way. now i apply the DSPs and it heals the lesions. as for the biting and moving...i have had my head wrapped in a turban now for over a year. i remove it to wash my hair. i make sure that i comb through the hair with a comb so that the tangles it creates can be pulled out along with the blue and red fibers. I cover the wounds with dsp and sterile bandages, then a white washcloth. I wrap the whole head tightly in a turban. the hairs can't get to my ears or my face that way. i don't think they like it. I had such a horrible head that i worked with the burn unit at the hospital and even ended up with an aneurysm (sp)
Anyway, i was told that i would need plastic surgery for the back of my head and that my hair was gone forever. well the weird thing is that i used the dsp and my h head is almost well, all the hair has returned. I see three kinds of hair on my head. there are very fine silken threads (these are the ones that usually try to bite me) , very coarse twisted hairs and clear thick white shard like hairs.
my hair was always the one think i received compliments on and now it is coarse, falling out and yes it attacks me too. It is good to know that we are not imagining these symptoms. I also grew longs hairs in my private area, hairs on my legs and arms. the skin was like i had chill bumps at first, then coarse and dry. what a nightmare. i also use the dandruff shampoo and lavender creme rinse.
The good news is that if your think your hair is gone forever, don't despair. no one could have had any worse head than mine was and as soon as i got the core of the thing out and kept the creme on it came back almost instantly. So anyway my suggestion is wrap your head, wash hair in sulfur shampoo, use dsp on lesions. best of luck to you. so long from Medusa
can anone tell me how to insert a picture please. thanks
The hair thing is the worst part for me, I can deal ok with the rest. Like you, I had beautiful long hair down to my buttocks. My darling husband loved it and did not want me to cut it. Then it began to thin out at the crown. I tried a lot of products, but nothing stopped it. Everyone told me it was probably because my hair was so long and heavy, that the weight was pulling it out, eventhough I wore it in an updo most of the time.
The beautician said if I cut some off, it would grow back in the thinning areas. So I did, I cut 22 inches off, then after I got this thing disease, I broke out in a rash where ever it touched my body, face, or neck, and ears. And it itched really bad. Then I noticed it moving and it would wrap around my neck, go up my nose, in my eyes, and poke itsself into my cheeks like it was putting seeds or eggs in the skin. Then The white things began to emerge from my facial skin. Then I told my husband my hair was alive like worms and was poking its eggs into my skin and makeing more worms. He thought I had lost my mind. He said "you know they put people away for talking like that".
I also told the Dermatologist about it , and he looked at me with sadness and said "you know, we refer these kind of symptoms to mental health doctors." He did not even look at my skin or my hair. He just assumed I was Nuts.
I swear this is true. Even if one hair comes loose from my hairsprayed head, I can tell. If it is a hair in the back occipital area, it will reach around to bite my ears. For some reason, they really like to pester my ears. I bought three wigs to wear over the hair, and after wearing one wig three times, it began to do the same thing my hair did and I developed a severe rash around the back of my neck where the wig touched it.
So, I gave up. I wear a goofy hairstyle with alot of hairspray to hold it down . It looks like wet plastic, but it stops the pain. I wash it out everyday and reaply it. My body hair is a whole new story. I had better not go there.
Post by praying4usall on Feb 23, 2008 3:07:41 GMT -5
You mean like the big too thick & long dark eyebrow you want to pluck, as you watch it go back into your skin so you CAN'T?
Or, where you check a spot on your chest where there is a little growth, and it itches by it, so you look with your cheap little 8 X's magnifier, and there are two little black 'worms' peeking up out of holes (your PORES), and they slip back in before you get near them with your tweezers!
I live this. But it isn't real to me, it is too Twilight Zone to the core, so how Can I tell a Dr. who didn't even see it, and will call me DOP if I were dare to tell him this total insane malarkey that we have come to know as our now daily lives???
Ps 25:2-3 In you I trust, O my God. Do not let me be put to shame, nor let my enemies triumph over me. No one whose hope is in You will ever be put to shame... (NIV)
jmurphree: can I just get a borreliosis test?
Jul 23, 2014 3:01:29 GMT -5
dblhelixman: gotta hit the hay. will respond to more later. it depends - ELISA/WB (inaccurate) is what they will run. Whole blood PCR is preferrable (tests for bacterial DNA not antibodies to bacterial antigens)
Jul 23, 2014 3:02:27 GMT -5
jmurphree: Yeah me three, I'm almost tired :-) hey connect with me on here when you get back on, please!
Jul 23, 2014 3:03:17 GMT -5
dblhelixman: The best thing to do is to google "recommended lyme treatment protocols." Joseph Burrascano has one. There are others. Borreliosis=Lyme (Borrelia causes Lyme + there are coinfections.
Jul 23, 2014 13:13:29 GMT -5
dblhelixman: Here is a duckduckgo search for you. Read and study. https://duckduckgo.com/?q=recommended%20lyme%20treatment%20guidelines. Hope this helps search=recommended lyme treatment guidelines
Jul 23, 2014 13:17:20 GMT -5
dblhelixman: BTW Lyme will not resolve unless coinfections (Babesia, Bartonella, Brucella, Anaplasmosis/Ehrlichiosis, BLOs (Bartonella like organisms, mycoplasms, etc. are not treated as well. Detox is mandatory (metals,metabolites)
Jul 23, 2014 13:20:21 GMT -5
jmurphree: MorgieHead69 I don't have to think I know you to know what you are doing here is an attempt at compensation for something obviously missing in your life. I suppose you're going to go hit up the kids with cancer next? Lots to make fun of over there
Jul 24, 2014 3:07:33 GMT -5
jmurphree: Anyways - the ER was good to me tonight! I told the doctor I felt he was more qualified to make a diagnosis than I was and sh!t went smooth after that. Got the Doxy for 10 days, a shot of Rocethin and (here ya go MH69) some scabies cream just in case.
Jul 24, 2014 3:10:43 GMT -5
jmurphree: Score 1 for Non DP Diagnosis!
Jul 24, 2014 3:10:54 GMT -5
Lu: jm dont feed the troll, MH obviously has a deep void in his life and hes trying to fill it
Jul 25, 2014 4:30:00 GMT -5
jmurphree: Dermatologist office reviewed photos of my sores, and recommended me to an Internal Specialist! Now I feel like I'm getting somewhere!
Jul 26, 2014 3:03:06 GMT -5
kitty2014: Yippee, JMurphree! Congratulations! Let's hope they get you sorted!
Jul 26, 2014 22:57:36 GMT -5
jmurphree: Getting there I think! This dermatology office actually told me to put what I've collected into a plastic container (instead of a ziplock bag) because the internal specialist would want to send samples off for laboratory identification :-)
Jul 27, 2014 1:06:14 GMT -5
kitty2014: Hey, that's absolutely fab!! Usually, we're told not to do that and hide! Lol! Fingers' crossed, eh!? Let's hope they test for the right things and they don't come back as negative, which is normal!? Let us know when you get your appointment, etc!
Jul 27, 2014 16:59:25 GMT -5
jmurphree: The reason I say I failed the Lyme test instead of passed it is because the failure was not having something tangible the doctors could work with. Mainly I think this is Morgellons because I have hires photos of my skin that show unbroken fibers under it.
Jul 28, 2014 6:45:28 GMT -5
jmurphree: I could be mistaken and they could be scabies tunnels for all I know, doubtful but still possible. My passion in this (besides being healthy and happy) is addressing the systematic herding of people to a quick diagnosis.
Jul 28, 2014 6:47:57 GMT -5
jmurphree: I believe the process is established this way to accommodate symptom based diagnosis that compliment prescription drugs. When was the last time anyone went to the doctor without leaving with a prescription of some kind?
Jul 28, 2014 6:50:53 GMT -5
jmurphree: I hope to be able to cure this - and would be happy even if that meant that I cured scabies. Then I could help other people understand how to not lose 8 years of their lives by simply giving their doctor the right information.
Jul 28, 2014 6:52:29 GMT -5
jmurphree: To be certain, I do believe in modern medicine. Additionally however, I believe that what our society is utilizing is at least 100 years behind what is currently considered "modern".
Jul 28, 2014 6:56:17 GMT -5
kitty2014: You suspect it could be scabies? And, you've had it for 8 yrs!?! Bloomin 'eck! Poor guy! I don't yet know all your symptoms, so unable to make me own diagnosis! Lol! Ya, modern medicine is questionable! Especially with honesty to doc! Asylum! Asylum! Lol!
Jul 28, 2014 13:51:02 GMT -5