My hair moves. It feels like it bites my face so I keep it sprayed back with hair spray because it really hurts. It pokes in my eyes and nose and drives my ears crazy. This has been my worse problem. I know it sounds insane, but it is true.
Does anyone have a good solution? I really do not want to shave my head.
yeah. i know it sounds crazy. i remember telling my doctor that my hair was dancing. she really thought i was a nut then. but when i stood in my bathroom facing the mirror, i was under the bathroom heat lamp.I looked like Medusa, you know the mythological siren with the snakes dancing on her head. it feels like a scifi moment. and yes I agree, it is like they try to get at other parts and bite or start a new spot.
I have really long hair which i debated about shaving because i had such horrible ulcers all over/ i think it is actually easier to have it long because i can pull or pin it out of the way. now i apply the DSPs and it heals the lesions. as for the biting and moving...i have had my head wrapped in a turban now for over a year. i remove it to wash my hair. i make sure that i comb through the hair with a comb so that the tangles it creates can be pulled out along with the blue and red fibers. I cover the wounds with dsp and sterile bandages, then a white washcloth. I wrap the whole head tightly in a turban. the hairs can't get to my ears or my face that way. i don't think they like it. I had such a horrible head that i worked with the burn unit at the hospital and even ended up with an aneurysm (sp)
Anyway, i was told that i would need plastic surgery for the back of my head and that my hair was gone forever. well the weird thing is that i used the dsp and my h head is almost well, all the hair has returned. I see three kinds of hair on my head. there are very fine silken threads (these are the ones that usually try to bite me) , very coarse twisted hairs and clear thick white shard like hairs.
my hair was always the one think i received compliments on and now it is coarse, falling out and yes it attacks me too. It is good to know that we are not imagining these symptoms. I also grew longs hairs in my private area, hairs on my legs and arms. the skin was like i had chill bumps at first, then coarse and dry. what a nightmare. i also use the dandruff shampoo and lavender creme rinse.
The good news is that if your think your hair is gone forever, don't despair. no one could have had any worse head than mine was and as soon as i got the core of the thing out and kept the creme on it came back almost instantly. So anyway my suggestion is wrap your head, wash hair in sulfur shampoo, use dsp on lesions. best of luck to you. so long from Medusa
can anone tell me how to insert a picture please. thanks
The hair thing is the worst part for me, I can deal ok with the rest. Like you, I had beautiful long hair down to my buttocks. My darling husband loved it and did not want me to cut it. Then it began to thin out at the crown. I tried a lot of products, but nothing stopped it. Everyone told me it was probably because my hair was so long and heavy, that the weight was pulling it out, eventhough I wore it in an updo most of the time.
The beautician said if I cut some off, it would grow back in the thinning areas. So I did, I cut 22 inches off, then after I got this thing disease, I broke out in a rash where ever it touched my body, face, or neck, and ears. And it itched really bad. Then I noticed it moving and it would wrap around my neck, go up my nose, in my eyes, and poke itsself into my cheeks like it was putting seeds or eggs in the skin. Then The white things began to emerge from my facial skin. Then I told my husband my hair was alive like worms and was poking its eggs into my skin and makeing more worms. He thought I had lost my mind. He said "you know they put people away for talking like that".
I also told the Dermatologist about it , and he looked at me with sadness and said "you know, we refer these kind of symptoms to mental health doctors." He did not even look at my skin or my hair. He just assumed I was Nuts.
I swear this is true. Even if one hair comes loose from my hairsprayed head, I can tell. If it is a hair in the back occipital area, it will reach around to bite my ears. For some reason, they really like to pester my ears. I bought three wigs to wear over the hair, and after wearing one wig three times, it began to do the same thing my hair did and I developed a severe rash around the back of my neck where the wig touched it.
So, I gave up. I wear a goofy hairstyle with alot of hairspray to hold it down . It looks like wet plastic, but it stops the pain. I wash it out everyday and reaply it. My body hair is a whole new story. I had better not go there.
Post by praying4usall on Feb 23, 2008 3:07:41 GMT -5
You mean like the big too thick & long dark eyebrow you want to pluck, as you watch it go back into your skin so you CAN'T?
Or, where you check a spot on your chest where there is a little growth, and it itches by it, so you look with your cheap little 8 X's magnifier, and there are two little black 'worms' peeking up out of holes (your PORES), and they slip back in before you get near them with your tweezers!
I live this. But it isn't real to me, it is too Twilight Zone to the core, so how Can I tell a Dr. who didn't even see it, and will call me DOP if I were dare to tell him this total insane malarkey that we have come to know as our now daily lives???
Ps 25:2-3 In you I trust, O my God. Do not let me be put to shame, nor let my enemies triumph over me. No one whose hope is in You will ever be put to shame... (NIV)
kitty2014: not quite insane - I understand, but you'll have to excuse him! Lol! Obviously his torture shows, through the sting from his words! I don't take offence, he just makes me laugh and that's a blessing with this disease!
Mar 27, 2015 17:21:57 GMT -5
morph: Yes, please, excuse me, after all I did eat beans, because I know the tunnel that the dirty little demons used to get into me, I am a kinda character, I am doing a demon get out, a self deliverance tonight, demon you get out, here me
Mar 27, 2015 23:20:18 GMT -5
morph: You get out you pesky demon, get out or my new best G/F bring her ray gun and git you out she has a special intertermular, opulent, hot and cold, frequency, adulator, from Gar the destroyer fame and it even vibrates, you watch out demon
Mar 27, 2015 23:27:41 GMT -5
mzanony: One researcher is blazing trails into[br]a brand new science: identifying foods[br]that target and remove toxins like[br]heavy metals from our bodies.[br][br]Details here about this fascinating new[br]science here...[br][br]Video:[br][br]http://www.therealfoodchannel.com/page/25979.htm
Mar 30, 2015 21:04:57 GMT -5
mzanony: The above post would not let me key in last letter (l) - why?
Mar 30, 2015 21:05:34 GMT -5
morph: Wow another new member, I wonder why you can not type a (l) welcome new member.
Mar 31, 2015 8:52:35 GMT -5
not quite insane: mzanony: Hi welcome and thanks for the link, its ok, realised just to add the 'l' at the end, interesting video, chelation is very important it can take a long too, sometimes a year or more depending on how long it has mutated for..
Apr 1, 2015 15:48:35 GMT -5
keeperoflife: have never been to a forum before & am truly grateful to find this one, for now I know my suffering is not from something I imagined
Apr 12, 2015 4:18:23 GMT -5
nickyjane: How are you?
Apr 13, 2015 10:02:45 GMT -5
nickyjane: I just wanted to let people know that I am for the most part better. I wonder why there are so many people suffering out ther.
Apr 13, 2015 10:06:24 GMT -5
nickyjane: What does people think of magnets as a cure?
Apr 13, 2015 10:06:49 GMT -5
nickyjane: II was diagnosed with delusional parasitosis and phsycosis because Morgellons is not a recognised disease!. Several Medical Doctors have admitted to believing me, they just don't know what to do. What a joke. I can tell you quite clearly, I had it.
Apr 13, 2015 10:11:20 GMT -5
nickyjane: I am suspicious though. I have a lesion that is taking months to heal. I feel abnormally tired.They prescribed me amilsulpride and it worked. I take vitamin C and multivitamins and have been symptom free for about 1 year. Who knows. Magnets?
Apr 13, 2015 10:16:24 GMT -5
nickyjane: Obviously I am chatting to myself so bye for now and all the best
Apr 13, 2015 10:16:57 GMT -5
Question: Why would magnets cure a disease, the earth is one big magnet, want to see it at work, go down to Ecuador and plop down on the equator supposedly water runs in different directions on either side, they really should mount two toilets there.
Apr 13, 2015 16:03:35 GMT -5
Question: What do you suppose a condition of being cured is, if you have a lesion, well I do not imagine your cured, but it goes much deeper, do you have any fibers in your blood, urine, saliva, excrement. I will bet you do. Cured I need that word explained to me
Apr 13, 2015 16:06:41 GMT -5
not quite insane: You know your cured or almost there when there is no activity at night and absolutely no fibres coming out of your pores, such as where im at atm, took a LONG time and changes with diet etc etc goodluck
Apr 18, 2015 22:38:49 GMT -5
Question: From what I know about the posts of people suffering this, they may be in remission but not cured. A look in your urine and blood with a microscope will tell you otherwise.
Apr 18, 2015 22:46:02 GMT -5