My hair moves. It feels like it bites my face so I keep it sprayed back with hair spray because it really hurts. It pokes in my eyes and nose and drives my ears crazy. This has been my worse problem. I know it sounds insane, but it is true.
Does anyone have a good solution? I really do not want to shave my head.
yeah. i know it sounds crazy. i remember telling my doctor that my hair was dancing. she really thought i was a nut then. but when i stood in my bathroom facing the mirror, i was under the bathroom heat lamp.I looked like Medusa, you know the mythological siren with the snakes dancing on her head. it feels like a scifi moment. and yes I agree, it is like they try to get at other parts and bite or start a new spot.
I have really long hair which i debated about shaving because i had such horrible ulcers all over/ i think it is actually easier to have it long because i can pull or pin it out of the way. now i apply the DSPs and it heals the lesions. as for the biting and moving...i have had my head wrapped in a turban now for over a year. i remove it to wash my hair. i make sure that i comb through the hair with a comb so that the tangles it creates can be pulled out along with the blue and red fibers. I cover the wounds with dsp and sterile bandages, then a white washcloth. I wrap the whole head tightly in a turban. the hairs can't get to my ears or my face that way. i don't think they like it. I had such a horrible head that i worked with the burn unit at the hospital and even ended up with an aneurysm (sp)
Anyway, i was told that i would need plastic surgery for the back of my head and that my hair was gone forever. well the weird thing is that i used the dsp and my h head is almost well, all the hair has returned. I see three kinds of hair on my head. there are very fine silken threads (these are the ones that usually try to bite me) , very coarse twisted hairs and clear thick white shard like hairs.
my hair was always the one think i received compliments on and now it is coarse, falling out and yes it attacks me too. It is good to know that we are not imagining these symptoms. I also grew longs hairs in my private area, hairs on my legs and arms. the skin was like i had chill bumps at first, then coarse and dry. what a nightmare. i also use the dandruff shampoo and lavender creme rinse.
The good news is that if your think your hair is gone forever, don't despair. no one could have had any worse head than mine was and as soon as i got the core of the thing out and kept the creme on it came back almost instantly. So anyway my suggestion is wrap your head, wash hair in sulfur shampoo, use dsp on lesions. best of luck to you. so long from Medusa
can anone tell me how to insert a picture please. thanks
The hair thing is the worst part for me, I can deal ok with the rest. Like you, I had beautiful long hair down to my buttocks. My darling husband loved it and did not want me to cut it. Then it began to thin out at the crown. I tried a lot of products, but nothing stopped it. Everyone told me it was probably because my hair was so long and heavy, that the weight was pulling it out, eventhough I wore it in an updo most of the time.
The beautician said if I cut some off, it would grow back in the thinning areas. So I did, I cut 22 inches off, then after I got this thing disease, I broke out in a rash where ever it touched my body, face, or neck, and ears. And it itched really bad. Then I noticed it moving and it would wrap around my neck, go up my nose, in my eyes, and poke itsself into my cheeks like it was putting seeds or eggs in the skin. Then The white things began to emerge from my facial skin. Then I told my husband my hair was alive like worms and was poking its eggs into my skin and makeing more worms. He thought I had lost my mind. He said "you know they put people away for talking like that".
I also told the Dermatologist about it , and he looked at me with sadness and said "you know, we refer these kind of symptoms to mental health doctors." He did not even look at my skin or my hair. He just assumed I was Nuts.
I swear this is true. Even if one hair comes loose from my hairsprayed head, I can tell. If it is a hair in the back occipital area, it will reach around to bite my ears. For some reason, they really like to pester my ears. I bought three wigs to wear over the hair, and after wearing one wig three times, it began to do the same thing my hair did and I developed a severe rash around the back of my neck where the wig touched it.
So, I gave up. I wear a goofy hairstyle with alot of hairspray to hold it down . It looks like wet plastic, but it stops the pain. I wash it out everyday and reaply it. My body hair is a whole new story. I had better not go there.
Post by praying4usall on Feb 23, 2008 3:07:41 GMT -5
You mean like the big too thick & long dark eyebrow you want to pluck, as you watch it go back into your skin so you CAN'T?
Or, where you check a spot on your chest where there is a little growth, and it itches by it, so you look with your cheap little 8 X's magnifier, and there are two little black 'worms' peeking up out of holes (your PORES), and they slip back in before you get near them with your tweezers!
I live this. But it isn't real to me, it is too Twilight Zone to the core, so how Can I tell a Dr. who didn't even see it, and will call me DOP if I were dare to tell him this total insane malarkey that we have come to know as our now daily lives???
Ps 25:2-3 In you I trust, O my God. Do not let me be put to shame, nor let my enemies triumph over me. No one whose hope is in You will ever be put to shame... (NIV)
itchy: hello, has anyone tried the above cream ?
Aug 4, 2015 16:20:01 GMT -5
Po: Why don't all that is suffering come together so th
Aug 5, 2015 3:32:31 GMT -5
Po: Why not come together and get at
Aug 5, 2015 3:33:01 GMT -5
willowwyld: I believe everyone has morgellons..the one who have the sores,fibres pertruding ..are those rejecting them...turning it positive will help alot!
Aug 7, 2015 8:27:05 GMT -5
morph: You may be right by this point, maybe not everyone, I would say centurions will not have this in their blood, their long life is a direct result of a body not fighting itself inside. When you see a couple of 90 year olds look closely, many have good hair
Aug 7, 2015 16:02:11 GMT -5
morph: Not only good hair but they are not covered with skin anomalies, many have their own teeth and beautiful clear eyes. You can see the absence of disease very easily. I have centurions in my family, one was 106 and a flock of those making over 90 years old.
Aug 7, 2015 16:04:40 GMT -5
morph: Harvesting blood samples from desolate areas common with long life, the result, comparison is the answer, then nobody can relent, fibers are a normal part of blood, comparing people in a country rife with disease, you would say, disease is NORMAL
Aug 7, 2015 16:16:49 GMT -5
Admin: That is exactly what they have convinced the younger generation of; disease is normal. I saw my family lived to old age with some ills but not many.
Aug 7, 2015 17:45:38 GMT -5
morph: One other thing of note, most of the very old that have none of these other problems, their minds are sharp and their wit is good. What does that mean, their brain was not compromised by sickness, usually couples not demented by Alzheimer's.
Aug 7, 2015 17:59:05 GMT -5
Perplexed: Does anyone know of a Doctor in the Cleveland Ohio area who affirms Morgellons,and treats it
Aug 12, 2015 14:14:09 GMT -5
Perplexed: does any one in the Cleveland Ohio area who affirms Morgellons and treats it.
Aug 12, 2015 14:16:20 GMT -5
Admin: Don't mention Morgellons and best to find a Lyme literate doctor, IMO. Perhaps someone else will chime in that knows.
Aug 12, 2015 17:31:38 GMT -5
morph: That is the only real choice, there are a few that actually advertise as helping Morgellons but in all reality, they treat a disease that has no medical reality and could be penilized.
Aug 14, 2015 0:54:37 GMT -5
morph: I have one very near me.
Aug 14, 2015 0:54:55 GMT -5
Admin: Morgellons is real (despite not being accepted yet) so you have to go on what will get you the best treatment.
Aug 14, 2015 6:46:54 GMT -5
morph: That's a fact. Lets just call it, get treatment, as they really have no workable protocol, but there are symptoms that can be addressed.
Aug 14, 2015 12:07:18 GMT -5
Jumay: Aloha- this is my first time on any chat, have patience - I've had Morgellons it's seems close to 6yrs the last 3yrs pure hell- head to toe and headquarters being privates and face belly button. Anyway, has anyone notice their blood thickening, mine extrem
Aug 27, 2015 19:34:42 GMT -5
Admin: yup and you can take white willow (aspirin) coated is less painful, or at this page there are more helps, remember with Turmeric, black pepper improves the Turmeric a lot: http://www.ctds.info/natthinners.html
Aug 27, 2015 22:46:44 GMT -5
morph: My blood was like purple mud, I had intravenous UV light therapy, vitamins, minerals, Chelation and hydrogen peroxide, blood returned to more like water and color change. Not so sure its all good for you but that changed the blood.
Aug 29, 2015 19:06:32 GMT -5
Admin: I haven't had all those therapies; and can say I know mine is still like purple mud at times. I take coated aspirin when it gives me issues like in the back of my knees.
Aug 31, 2015 18:40:35 GMT -5