My hair moves. It feels like it bites my face so I keep it sprayed back with hair spray because it really hurts. It pokes in my eyes and nose and drives my ears crazy. This has been my worse problem. I know it sounds insane, but it is true.
Does anyone have a good solution? I really do not want to shave my head.
yeah. i know it sounds crazy. i remember telling my doctor that my hair was dancing. she really thought i was a nut then. but when i stood in my bathroom facing the mirror, i was under the bathroom heat lamp.I looked like Medusa, you know the mythological siren with the snakes dancing on her head. it feels like a scifi moment. and yes I agree, it is like they try to get at other parts and bite or start a new spot.
I have really long hair which i debated about shaving because i had such horrible ulcers all over/ i think it is actually easier to have it long because i can pull or pin it out of the way. now i apply the DSPs and it heals the lesions. as for the biting and moving...i have had my head wrapped in a turban now for over a year. i remove it to wash my hair. i make sure that i comb through the hair with a comb so that the tangles it creates can be pulled out along with the blue and red fibers. I cover the wounds with dsp and sterile bandages, then a white washcloth. I wrap the whole head tightly in a turban. the hairs can't get to my ears or my face that way. i don't think they like it. I had such a horrible head that i worked with the burn unit at the hospital and even ended up with an aneurysm (sp)
Anyway, i was told that i would need plastic surgery for the back of my head and that my hair was gone forever. well the weird thing is that i used the dsp and my h head is almost well, all the hair has returned. I see three kinds of hair on my head. there are very fine silken threads (these are the ones that usually try to bite me) , very coarse twisted hairs and clear thick white shard like hairs.
my hair was always the one think i received compliments on and now it is coarse, falling out and yes it attacks me too. It is good to know that we are not imagining these symptoms. I also grew longs hairs in my private area, hairs on my legs and arms. the skin was like i had chill bumps at first, then coarse and dry. what a nightmare. i also use the dandruff shampoo and lavender creme rinse.
The good news is that if your think your hair is gone forever, don't despair. no one could have had any worse head than mine was and as soon as i got the core of the thing out and kept the creme on it came back almost instantly. So anyway my suggestion is wrap your head, wash hair in sulfur shampoo, use dsp on lesions. best of luck to you. so long from Medusa
can anone tell me how to insert a picture please. thanks
The hair thing is the worst part for me, I can deal ok with the rest. Like you, I had beautiful long hair down to my buttocks. My darling husband loved it and did not want me to cut it. Then it began to thin out at the crown. I tried a lot of products, but nothing stopped it. Everyone told me it was probably because my hair was so long and heavy, that the weight was pulling it out, eventhough I wore it in an updo most of the time.
The beautician said if I cut some off, it would grow back in the thinning areas. So I did, I cut 22 inches off, then after I got this thing disease, I broke out in a rash where ever it touched my body, face, or neck, and ears. And it itched really bad. Then I noticed it moving and it would wrap around my neck, go up my nose, in my eyes, and poke itsself into my cheeks like it was putting seeds or eggs in the skin. Then The white things began to emerge from my facial skin. Then I told my husband my hair was alive like worms and was poking its eggs into my skin and makeing more worms. He thought I had lost my mind. He said "you know they put people away for talking like that".
I also told the Dermatologist about it , and he looked at me with sadness and said "you know, we refer these kind of symptoms to mental health doctors." He did not even look at my skin or my hair. He just assumed I was Nuts.
I swear this is true. Even if one hair comes loose from my hairsprayed head, I can tell. If it is a hair in the back occipital area, it will reach around to bite my ears. For some reason, they really like to pester my ears. I bought three wigs to wear over the hair, and after wearing one wig three times, it began to do the same thing my hair did and I developed a severe rash around the back of my neck where the wig touched it.
So, I gave up. I wear a goofy hairstyle with alot of hairspray to hold it down . It looks like wet plastic, but it stops the pain. I wash it out everyday and reaply it. My body hair is a whole new story. I had better not go there.
Post by praying4usall on Feb 23, 2008 3:07:41 GMT -5
You mean like the big too thick & long dark eyebrow you want to pluck, as you watch it go back into your skin so you CAN'T?
Or, where you check a spot on your chest where there is a little growth, and it itches by it, so you look with your cheap little 8 X's magnifier, and there are two little black 'worms' peeking up out of holes (your PORES), and they slip back in before you get near them with your tweezers!
I live this. But it isn't real to me, it is too Twilight Zone to the core, so how Can I tell a Dr. who didn't even see it, and will call me DOP if I were dare to tell him this total insane malarkey that we have come to know as our now daily lives???
Ps 25:2-3 In you I trust, O my God. Do not let me be put to shame, nor let my enemies triumph over me. No one whose hope is in You will ever be put to shame... (NIV)
Mona: However, since I'm kind of OCD when it comes to cleanliness and personal space, they know my ground rules and don't question them regardless of how stupid it may seem to them. My policy has always been "better safe than sorry."
May 11, 2015 19:19:01 GMT -5
Mona: Due to my germ paranoia, my whole life I've taken extreme precautions for germs, diseases, and just cleanliness in general. How did I end up with this? I don't really see my friends any more because I worry I'll pass it on.
May 11, 2015 19:23:42 GMT -5
Mona: I've been abstinent my whole life, taken every precaution I could and I still get this? I simply don't understand. The shame and embarrassment is eating me up inside, and I've never even done anything wrong?
May 11, 2015 19:29:53 GMT -5
Mona: This is a germaphobe's worst nightmare. Well, this is anyone's worst nightmare. I just can't wrap my head around this. I feel like quarantining myself but I know that's not exactly reasonable.
May 11, 2015 19:32:09 GMT -5
Mona: Funny how that works, considering my friends have always joked that I'm unreasonable due to my over cleanliness. And even with that, I still get this. Maybe God is playing a cruel joke on me. Just joking of course. I'm just at a loss for words on this.
May 11, 2015 19:37:39 GMT -5
Mona: I hope I haven't come across in a unfavourable manner. My friends joke that I'm like Sheldon Cooper from The Big Bang. I'm just so lost on this.
May 11, 2015 21:12:56 GMT -5
morph: Seems to me you have found no reason to have this disease, so apparently you do not have it, if you have never had sex, never had a operation, NEVER KISSED ANYONE, never had sex, then you were in fact born with this, I now what your spewing, environmental,
May 12, 2015 23:08:08 GMT -5
morph: Space wars, Chem trails, aliens, your the same one trying to do the tango on Lymebusters. the 20 TROLL entity. Your just too unreal to be real. I know I know, your flabbergasted and hurt and all that.
May 12, 2015 23:10:42 GMT -5
morph: Manic cleaning comes from the fear of disease and filth, that is brought on by infections, born with it, caught it, seriously you present overtly odd stuff, NEVER KISSED, LOL, have you ever manicly cleaned a toilet your friends sat on
May 12, 2015 23:22:49 GMT -5
Mona: I don't follow?
May 12, 2015 23:27:40 GMT -5
Mostly Cured: I found an effective treatment for the fungal infection: KETOCONAZOLE! Fungal infections glow under the black light. The Dr. can find them easy and prescribe the afformentioned!
May 13, 2015 17:20:00 GMT -5
not quite insane: Mona: I had OCD before I caught morgs, funny enough the morgs cured my OCD - after washing my arm of debris that would never stop, as in I could wash my arm for 10+hours and debris would keep coming out alas my OCD meant nothing in the end morgs is worser.
May 16, 2015 2:45:51 GMT -5
llm: Help !! Is there anyone out there that knows how to get rid of the long fibers they are driving me crazy , nothing seems to work and nothing seems to cut them. Please help
May 20, 2015 1:53:04 GMT -5
kitty2014: Hi Morph ....... just happy you were getting a good response rather than the one you normally encourage! Lol! Hey, I caught Herpes off my ex-husband! And he had Scabies years before, but I suspect it was MD now I'm a little wiser on the subject!
May 23, 2015 19:38:21 GMT -5
kitty2014: Mona - anyone can get this - fibre's, fungi/mould spores and Morph's mentioned nuts are everywhere (I live in UK)and dodgy ingredients/chemicals in food don't help! Just concentrate on diet, supplementation and rest! Immune system needs good support!
May 23, 2015 19:42:35 GMT -5
kitty2014: llm - sorry, I'm still no wiser! I can't even grab hold of the bastards in/on my eyes, so hope you find an answer somewhere! Other than that, hope you're ok and being good with your diet etc!?
May 23, 2015 19:45:17 GMT -5
morph: Kitty2014, people should come with a tattoo, NO CODDLING, ESPECIALLY ALIENS, trying to discourage angry discourse and engage in conversation, some day I may learn how, until then yours truly, Just Can't git right, Morph
May 24, 2015 2:29:39 GMT -5
kimberly327: My "hair" is depressing me so much over the past few days. It's constantly twisting and moving. I wish more people would educate themselves about morgellons. I can't get any of my family to listen to me because it's "gross"
May 27, 2015 12:13:45 GMT -5
kimberly327: My Mother and psychiatrist have seen the hair acting like snakes. They've seen some of the peculiar things that randomly comes out of skin,eyes,etc. Yet neither of them seems to want to know more. It's maddening.
May 27, 2015 12:21:32 GMT -5
Sadsara: I swear my sister in law has this. Shes very depressed and she cannot get out of bed. She has had all her hair fall out in clumps so shes shaved her head and black wires in her face and sores on her face. Shes been constipated for a week as well.
May 28, 2015 14:43:49 GMT -5