My hair moves. It feels like it bites my face so I keep it sprayed back with hair spray because it really hurts. It pokes in my eyes and nose and drives my ears crazy. This has been my worse problem. I know it sounds insane, but it is true.
Does anyone have a good solution? I really do not want to shave my head.
yeah. i know it sounds crazy. i remember telling my doctor that my hair was dancing. she really thought i was a nut then. but when i stood in my bathroom facing the mirror, i was under the bathroom heat lamp.I looked like Medusa, you know the mythological siren with the snakes dancing on her head. it feels like a scifi moment. and yes I agree, it is like they try to get at other parts and bite or start a new spot.
I have really long hair which i debated about shaving because i had such horrible ulcers all over/ i think it is actually easier to have it long because i can pull or pin it out of the way. now i apply the DSPs and it heals the lesions. as for the biting and moving...i have had my head wrapped in a turban now for over a year. i remove it to wash my hair. i make sure that i comb through the hair with a comb so that the tangles it creates can be pulled out along with the blue and red fibers. I cover the wounds with dsp and sterile bandages, then a white washcloth. I wrap the whole head tightly in a turban. the hairs can't get to my ears or my face that way. i don't think they like it. I had such a horrible head that i worked with the burn unit at the hospital and even ended up with an aneurysm (sp)
Anyway, i was told that i would need plastic surgery for the back of my head and that my hair was gone forever. well the weird thing is that i used the dsp and my h head is almost well, all the hair has returned. I see three kinds of hair on my head. there are very fine silken threads (these are the ones that usually try to bite me) , very coarse twisted hairs and clear thick white shard like hairs.
my hair was always the one think i received compliments on and now it is coarse, falling out and yes it attacks me too. It is good to know that we are not imagining these symptoms. I also grew longs hairs in my private area, hairs on my legs and arms. the skin was like i had chill bumps at first, then coarse and dry. what a nightmare. i also use the dandruff shampoo and lavender creme rinse.
The good news is that if your think your hair is gone forever, don't despair. no one could have had any worse head than mine was and as soon as i got the core of the thing out and kept the creme on it came back almost instantly. So anyway my suggestion is wrap your head, wash hair in sulfur shampoo, use dsp on lesions. best of luck to you. so long from Medusa
can anone tell me how to insert a picture please. thanks
The hair thing is the worst part for me, I can deal ok with the rest. Like you, I had beautiful long hair down to my buttocks. My darling husband loved it and did not want me to cut it. Then it began to thin out at the crown. I tried a lot of products, but nothing stopped it. Everyone told me it was probably because my hair was so long and heavy, that the weight was pulling it out, eventhough I wore it in an updo most of the time.
The beautician said if I cut some off, it would grow back in the thinning areas. So I did, I cut 22 inches off, then after I got this thing disease, I broke out in a rash where ever it touched my body, face, or neck, and ears. And it itched really bad. Then I noticed it moving and it would wrap around my neck, go up my nose, in my eyes, and poke itsself into my cheeks like it was putting seeds or eggs in the skin. Then The white things began to emerge from my facial skin. Then I told my husband my hair was alive like worms and was poking its eggs into my skin and makeing more worms. He thought I had lost my mind. He said "you know they put people away for talking like that".
I also told the Dermatologist about it , and he looked at me with sadness and said "you know, we refer these kind of symptoms to mental health doctors." He did not even look at my skin or my hair. He just assumed I was Nuts.
I swear this is true. Even if one hair comes loose from my hairsprayed head, I can tell. If it is a hair in the back occipital area, it will reach around to bite my ears. For some reason, they really like to pester my ears. I bought three wigs to wear over the hair, and after wearing one wig three times, it began to do the same thing my hair did and I developed a severe rash around the back of my neck where the wig touched it.
So, I gave up. I wear a goofy hairstyle with alot of hairspray to hold it down . It looks like wet plastic, but it stops the pain. I wash it out everyday and reaply it. My body hair is a whole new story. I had better not go there.
Post by praying4usall on Feb 23, 2008 3:07:41 GMT -5
You mean like the big too thick & long dark eyebrow you want to pluck, as you watch it go back into your skin so you CAN'T?
Or, where you check a spot on your chest where there is a little growth, and it itches by it, so you look with your cheap little 8 X's magnifier, and there are two little black 'worms' peeking up out of holes (your PORES), and they slip back in before you get near them with your tweezers!
I live this. But it isn't real to me, it is too Twilight Zone to the core, so how Can I tell a Dr. who didn't even see it, and will call me DOP if I were dare to tell him this total insane malarkey that we have come to know as our now daily lives???
Ps 25:2-3 In you I trust, O my God. Do not let me be put to shame, nor let my enemies triumph over me. No one whose hope is in You will ever be put to shame... (NIV)
morph: NEXT they will be blaming newborns for causing stress that causes stress in their mothers that causes the newborn to be handicapped, the assumptions of doctors is, when disease becomes prominent it is normal
Apr 29, 2016 10:02:45 GMT -5
morph: It should have been the dermatologist doctors that noticed in the 1970s that the skin of people they were seeing was getting terrible, they only saw MONEY signs, why complain, must be stress, LOL, and people believe them /b
Apr 29, 2016 10:06:37 GMT -5
morph: MAKE NO MISTAKE, when you spread that fallacy that STRESS causes disease you are helping doctors hide their inadequacy, the damage done by this stealth disease is what causes panic attacks, nervous conditions, brain damage, Autism, ADD, Bi-Polar, [/
Apr 29, 2016 10:12:22 GMT -5
morph: Itching may take you over in the beginning, terrorize you, people call you insane as the itching is a trait that you have the disease, then you may have little itching or it goes away quickly, skin problems can come and go or stay
Apr 29, 2016 10:15:22 GMT -5
morph: LESIONS can come sooner but most likely later in life, UNLESS you are born with this disease then they will come early, puberty or child birth can spur on attacks of the skin, immune response will handle time frame of some occurrences
Apr 29, 2016 10:19:34 GMT -5
Admin: Itching I had in the beginning not your normal itching and was on my leg first and then my arm; more like scrapie as nothing dulled it at all. I had just given birth; Rh negative pregnancy, Rhogam shot second child and six months later covered in lesions.
Apr 29, 2016 11:01:16 GMT -5
Admin: My face looked like someone took a meat hammer to it and my family said quit picking but wasn't. Was the crystals coming out that created the horrible sores. Then the sores refused to heal for years literally.
Apr 29, 2016 11:03:20 GMT -5
Admin: You're probably right Morph; they will blame this on pregnancy stress so folks quit having babies; but that is the lie. They gave this to the public on purpose. They being the depopulation group
Apr 29, 2016 11:04:26 GMT -5
Admin: Killing them softly and ignoring them (all in your head) while they watch them die from their pedestal of safety (not much longer though ) things are coming around
Apr 29, 2016 11:06:35 GMT -5
Lilac rain: How are things coming around? I don't want to give this to anyone else.
May 1, 2016 2:27:03 GMT -5
Admin: Truth, Especially, if Trump gets in! Water, sex spread it and it can be spread by air under certain conditions. I think it is at a certain point in the illness that it is more contagious.
May 1, 2016 11:23:24 GMT -5
Admin: Also tics, lice, scabies, seems to latch onto other things and make its way around. Spirochetes, dental tools, probably in vaccines
May 1, 2016 11:24:35 GMT -5
nerdglasses: Please watch and let me know what you think We just finished our study and are trying to get our findings out to sufferers. https://www.youtube.com/watch?v=c1iQT0IX01Y
May 1, 2016 16:00:35 GMT -5
Admin: Just viewed and you missed prions and XMRV----
May 1, 2016 19:05:15 GMT -5
morph: Right off from the git go you start off with crazy B/S about bugs, parasites and such idiotic nonsense you have good back into time when people worshipped the moon god, this assumption made me turn it off right away.
May 2, 2016 11:31:18 GMT -5
morph: Where is the science, Once upon a time there was a man that wrote a rhyme about people that itched from disease that took their minds, the sting, bite, itch caused their tails to switch, to cry out, unproven invisible bugs are sure a pregnant dog,
May 2, 2016 11:42:56 GMT -5
morph: Your findings are trash basket filler, that is trying to bullnuts someone that the bugs that can not be seen are real, because your insane now you try to propagate lies, who in the hell has paid you for this, you do not sign up you post in the shout box
May 2, 2016 11:45:46 GMT -5
morph: Well nerdglasses your not funny, your tragic. Study my bum.
May 2, 2016 11:46:54 GMT -5
morph: I get all wound up when I hear trash talk about disease that is killing us and people talk about it LIKE THEY HAVE A SCIENCE DEPARTMENT and proof of what they assume, really what proof. I here ringing in my ears, is it a miniature space ship
May 3, 2016 22:35:52 GMT -5
morph: I know my head is a sea shell.
May 3, 2016 22:36:13 GMT -5