My hair moves. It feels like it bites my face so I keep it sprayed back with hair spray because it really hurts. It pokes in my eyes and nose and drives my ears crazy. This has been my worse problem. I know it sounds insane, but it is true.
Does anyone have a good solution? I really do not want to shave my head.
yeah. i know it sounds crazy. i remember telling my doctor that my hair was dancing. she really thought i was a nut then. but when i stood in my bathroom facing the mirror, i was under the bathroom heat lamp.I looked like Medusa, you know the mythological siren with the snakes dancing on her head. it feels like a scifi moment. and yes I agree, it is like they try to get at other parts and bite or start a new spot.
I have really long hair which i debated about shaving because i had such horrible ulcers all over/ i think it is actually easier to have it long because i can pull or pin it out of the way. now i apply the DSPs and it heals the lesions. as for the biting and moving...i have had my head wrapped in a turban now for over a year. i remove it to wash my hair. i make sure that i comb through the hair with a comb so that the tangles it creates can be pulled out along with the blue and red fibers. I cover the wounds with dsp and sterile bandages, then a white washcloth. I wrap the whole head tightly in a turban. the hairs can't get to my ears or my face that way. i don't think they like it. I had such a horrible head that i worked with the burn unit at the hospital and even ended up with an aneurysm (sp)
Anyway, i was told that i would need plastic surgery for the back of my head and that my hair was gone forever. well the weird thing is that i used the dsp and my h head is almost well, all the hair has returned. I see three kinds of hair on my head. there are very fine silken threads (these are the ones that usually try to bite me) , very coarse twisted hairs and clear thick white shard like hairs.
my hair was always the one think i received compliments on and now it is coarse, falling out and yes it attacks me too. It is good to know that we are not imagining these symptoms. I also grew longs hairs in my private area, hairs on my legs and arms. the skin was like i had chill bumps at first, then coarse and dry. what a nightmare. i also use the dandruff shampoo and lavender creme rinse.
The good news is that if your think your hair is gone forever, don't despair. no one could have had any worse head than mine was and as soon as i got the core of the thing out and kept the creme on it came back almost instantly. So anyway my suggestion is wrap your head, wash hair in sulfur shampoo, use dsp on lesions. best of luck to you. so long from Medusa
can anone tell me how to insert a picture please. thanks
The hair thing is the worst part for me, I can deal ok with the rest. Like you, I had beautiful long hair down to my buttocks. My darling husband loved it and did not want me to cut it. Then it began to thin out at the crown. I tried a lot of products, but nothing stopped it. Everyone told me it was probably because my hair was so long and heavy, that the weight was pulling it out, eventhough I wore it in an updo most of the time.
The beautician said if I cut some off, it would grow back in the thinning areas. So I did, I cut 22 inches off, then after I got this thing disease, I broke out in a rash where ever it touched my body, face, or neck, and ears. And it itched really bad. Then I noticed it moving and it would wrap around my neck, go up my nose, in my eyes, and poke itsself into my cheeks like it was putting seeds or eggs in the skin. Then The white things began to emerge from my facial skin. Then I told my husband my hair was alive like worms and was poking its eggs into my skin and makeing more worms. He thought I had lost my mind. He said "you know they put people away for talking like that".
I also told the Dermatologist about it , and he looked at me with sadness and said "you know, we refer these kind of symptoms to mental health doctors." He did not even look at my skin or my hair. He just assumed I was Nuts.
I swear this is true. Even if one hair comes loose from my hairsprayed head, I can tell. If it is a hair in the back occipital area, it will reach around to bite my ears. For some reason, they really like to pester my ears. I bought three wigs to wear over the hair, and after wearing one wig three times, it began to do the same thing my hair did and I developed a severe rash around the back of my neck where the wig touched it.
So, I gave up. I wear a goofy hairstyle with alot of hairspray to hold it down . It looks like wet plastic, but it stops the pain. I wash it out everyday and reaply it. My body hair is a whole new story. I had better not go there.
Post by praying4usall on Feb 23, 2008 3:07:41 GMT -5
You mean like the big too thick & long dark eyebrow you want to pluck, as you watch it go back into your skin so you CAN'T?
Or, where you check a spot on your chest where there is a little growth, and it itches by it, so you look with your cheap little 8 X's magnifier, and there are two little black 'worms' peeking up out of holes (your PORES), and they slip back in before you get near them with your tweezers!
I live this. But it isn't real to me, it is too Twilight Zone to the core, so how Can I tell a Dr. who didn't even see it, and will call me DOP if I were dare to tell him this total insane malarkey that we have come to know as our now daily lives???
Ps 25:2-3 In you I trust, O my God. Do not let me be put to shame, nor let my enemies triumph over me. No one whose hope is in You will ever be put to shame... (NIV)
ST.P: STOP USING ANY SILICONE, SILICA, DIMETHICONE products!!!!!!!! Titanium DIOXIDE, ALUMINUM< BARIUM all bad.. .I live in the flight path makes sense..
Jan 21, 2015 13:44:07 GMT -5
ST.P: Stop itching it makes it worse too. I found a lotion that works wonders at CVS It was for psoriasis it was call M something in a white tube with purple. Its the only thing that has ever made the itching stop other then shaving my arms& legs
Jan 21, 2015 13:45:17 GMT -5
ST.P: Don't wear COTTON.. I wear all nylon polyester now and NEVER ever wear anything from China
Jan 21, 2015 13:45:40 GMT -5
ST.P: I was in the hospital&saw some of the "fibers" whatever they are... moving on the blanket. Was not hallucinating. I kept it to myself tho. I tell myself when I see them it's nothing. Its a sign for me I need to eat, drink water, sleep...or
Jan 21, 2015 13:47:15 GMT -5
ST.P: get rid of the Candidas in my body. I put athletes foot crème all over my body, take Pin Ex every 4 weeks and miracle worker is GI
Jan 21, 2015 13:49:33 GMT -5
ST.P: The secret to maintaining this is get rid of any clothes that make you itch. Yes I know that may be your entire wardrobe..deal with it we are not our Khakis or our designer labels. Maybe we're all getting this for a reason so we can understand we are not..
Jan 21, 2015 13:50:18 GMT -5
ST.P: the ILLUSION the world makes us out to be..
Jan 21, 2015 13:50:31 GMT -5
ST.P: We are not our bodies, our clothes, our things or our friends.
Jan 21, 2015 13:50:47 GMT -5
ST.P: Some of us may not even have friends anymore. But its okay this will help you find your higher power and the light within you that connects humanity. Our entire body is mae up of millions of cells that communicate to one another.. Our bodies are screaming
Jan 21, 2015 13:51:33 GMT -5
ST.P: screaming out for help... so lets take better care of ourselves. Don't beat yourself up. Know you're NOT ALONE> You are NEVER alone. It will get better. This is a spiritual journey...SLeep more eat better and get your REST
Jan 21, 2015 13:52:31 GMT -5
ST.P: The things that helped me get better were Omega 3's, Unikey Health Super GI cleanse pills, & unikey Para Key pills. I also take Pin EX from CVS every 3-6 weeks. I put athletes foot crème all over my body and use psorios lotions
Jan 21, 2015 13:54:00 GMT -5
ST.P: Let not get into the conspiracy, the aliens, nanotech, it doesn't matter. We're probably in the future any how.. let it all go. Just be present in this moment and help others remain happy. Be grateful for what you have and lets lift eachother up.
Jan 21, 2015 13:54:47 GMT -5
ST.P: It's going to be okay. This is to help us get closer to our higher power and one another. if anyone has any questions or needs help shout out your email and I'll email you
Jan 21, 2015 13:55:18 GMT -5
ST.P: I'm sorry I went on a rant just want to lift you all up today because its easier over time. Be in the moment and at Peace. They feed off negative energy. Take it as a sign from your body something is off. NAMASTE and peace
Jan 21, 2015 14:00:12 GMT -5
@Sunshine: thanks I can read noting back do you write this to me?? ST.P
Jan 22, 2015 9:55:18 GMT -5
kitty2014: ST.P - Would you set up a post with all this info on, please, as due to limited space, we can't see it all (or answers I may have had from a previous question, a couple of days ago! Lol!)Thanks for your insight!!!
Jan 22, 2015 11:37:58 GMT -5
not quite insane: Yep the fibres are real, they are everywhere and ive seen them crawling at the hospital as well!! Anyways drink plenty of water to flush toxins+bacteria, take vitc daily, use several pro and prebiotics like yoghurt, capsules and drinks, alkalise body to 7+
Jan 24, 2015 14:04:46 GMT -5
angelsneeded: Hello, new to forum, just joined tonight. Please, stay focused on good health, recovery, dont give it your mind too, thats the more important part of you, and it can not take it away. People only sound insane when they use a poor choice of words.
Jan 25, 2015 2:57:59 GMT -5
libby: Hello, brand new, i feel like a sci fi pioneer
Jan 26, 2015 20:33:57 GMT -5
libby: is anybody here
Jan 26, 2015 20:34:56 GMT -5