NIELS LETTER TO THE CDC...A MUST READ « Thread Started on Aug 31, 2007, 10:38pm »
This letter is a "must read" for anyone wishing to truly understand the concerns of the Morgellons community over the CDC award of the morgellons etiology study to the giant west coast HMO Kaiser Permanente. The following letter was excerpted en toto from its original location at lymebusters.com. The original can be seen there. This letter, written by Niels, is very well constructed. It is an important contribution to the ongoing struggle of the Morgellons community for validation and justice.
-Cliff Mickelson
Niels' letter to CDC -------------------------------------------------------------------------------- Date: Mon, 27 Aug 2007 15:58:15 -0700 From: "Niels" To: morgellonssyndrome@cdc.gov, Dan Rutz <dwr1@cdc.gov>, boh9@cdc.gov, Barry.Miller@kp.org, Beverly.Hayon@kp.org
Subject: why is CDC using a lyme-denialist organization to study Lyme-related Morgellons?
And why is the CDC specifying all the wrong tests to get to the bottom of Morgellons etiology???
The CDC's Kaiser Morgellons study appears to use the corrupt IDSA Lyme guidelines in its testing protocols. These ensure that not a single tested Morgellons patient will show serologic evidence of Lyme disease, even though the majority of Morgellons patients have Lyme disease when tested by a reputable lab such as Igenex, using ILADS diagnostic guidelines.
In particular, the CDC/IDSA protocol of ELISA-first will ensure a 100% false negative test for all Morgellons patients. This "gateway" to the proper test -- IgG/IgM Western Blotting -- will never be passed by any of the patients you test with the corrupt and fraudulent IDSA guidelines for Lyme. But your doctors will play "stupid" with these tests, which by the CDC's own admission, are for "surveillance" and not "diagnosis." Furthermore, the CDC and Kaiser continue to ignore ILADS significant science-based conclusions regarding the false-negative rate on the ELISA, especially for people infected with Lyme in the three epidemic states for Morgellons -- California, Texas and Florida (as opposed to the borrelial species found on the east coast of the USA).
Since the Kaiser Morgellons study patients will be prevented from getting a Western Blot test, there will be no chance to identify the "telltale bands" of Lyme Disease infection. And even if a patient was able to get a western blot test, the tests Kaiser uses (Unilab) delete significant reactivities seen in most Lyme patients, thereby further ignoring clear signs of infection. The reason for this is the CDC's own complicity in Lyme denialism -- it's coverup of the Lymerix vaccine fiasco and the deletion of bands from Western blot tests to prevent "false positives" from a vaccine that nobody can get because it was pulled from the market. The fact that this study perpetuates that fraud, continues to coverup the LymeRix fiasco, makes the current Kaiser study a complete waste of time and money from the get-go.
Ultimately, this Morgellons study will perpetuate a scientific fraud the CDC is involved in -- denial of chronic Lyme -- and further ensures that patients with clearly visible Lyme symptoms (rashes) will continue to be ignored and misdiagnosed. The CDC's position and the Kaiser study directly contradicts the opinions of doctors treating Morgellons patients. For example, http://www.morgellons.eu/ claims "According to Dr. William Harvey (chairman of the NASA Education Advisory Committee) 94% of people suffering from Morgellons have tested positive for the bacteria associated with Lyme disease, or Borreliosis." The only valid and peer reviewed medical literature on Morgellons also speaks of the connection with Lyme disease ( http://www.morgellons.org/AJCDerm1.pdf ) and is co-authored by the head of ILADS, which is one of the few professional medical societies that recognizes Morgellons and Chronic Lyme.
IMPORTANT: By ignoring ILADS conclusions regarding Lyme disease and Morgellons, the Kaiser Morgellons study represents a SYSTEMATIC VIOLATION OF CALIFORNIA LAW by a large corporation and a federal government entity. This is due to Kaiser's refusal to abide by California law, insisting on using the IDSA guidelines for Lyme treatment and diagnosis, and excluding ILADS guidelines. The issue is that in California, according to California Health and Safety Code, Section 104190 (as amended by SB 772) patients should not be denied the choice of treatment under ILADS guidelines, which are designated medically viable:
> “Medically viable” as applied to treatment alternatives > means a mode of treatment recognized by a substantial part of the > medical profession to be within the scope of current, acceptable > standards, including the longer term treatment approach reflected > in the treatment guidelines of the International Lyme and > Associated Diseases Society (ILADS), “ILADS Evidence-Based > guidelines for the Management of Lyme Disease.”
Furthermore, SB772 speaks of "outdated CDC surveillance criteria" and makes it clear that the misdiagnoses fostered by the CDC are medically significant:
> Some persons affected by the advanced stages of Lyme > disease have suffered irreparable damage to their health, career, > and family. Many victims suffer permanent physical or mental > damage due to misdiagnosis or ignorance of the disease. Lyme > disease can be fatal.
The IDSA guidelines used by the CDC and Kaiser are under legal challenge by the Connecticut Attorney General. If Blumenthal's case succeeds against the IDSA, all the Kaiser Morgellons study patients would need to be retested under ILADS guidelines, which would invalidate all the Lyme findings of the study. This means that in addition to the decade or so that the CDC has been "sitting on it's hands" ignoring Morgellons reports, the outcome of this bogus Kaiser study will also miss a significant aspect of the etiology of this disease AND WASTE AN ADDITIONAL YEARS' TIME AND MONEY.
Based on this ongoing "controversy", the Kaiser Morgellons study should "play it safe" and test patients under both ILADS (aka use Igenex IgG/IgM western blotting and ignore the CDC's bogus "surveillance" rules for how many bands need to be positive) and IDSA/CDC guidelines (aka all the Morgellons patients that didn't contract Lyme on the east coast will come up as negative and won't get IgG/IgM tests). That way, when the IDSA guidelines are shown to be the result of corruption and scientifically invalid, valid conclusions may still be drawn from the study patients' Igenex test results.
.....
In summary THIS MORGELLONS STUDY BREAKS THE LAW!!
(1) THE CDC/Kaiser STUDY VIOLATES CALIFORNIA LAW AND IGNORES CALIFORNIA HEALTH AND SAFETY CODE SECTION 104190 as per SB772. (2) THE CDC/Kaiser STUDY is based on IDSA/CDC guidelines which are currently the subject of an antitrust/corruption lawsuit by the Connecticut Attorney General.
WHY IS THE CDC VIOLATING CALIFORNIA LAW? WHY IS KAISER VIOLATING CALIFORNIA LAW?? Why is the study predicated on Lyme guidelines which appear to be corrupt? Why should the taxpayer waste money on a study which is predicated on corrupt guidelines that has the potential of invalidating the entire study??
.....
Finally, in reviewing the tests Kaiser will be performing on patients, it is clear the CDC has specified a number of serologic tests which will always come back "normal" for Morgellons patients. This will probably be used to fraudulently establish that Morgellons is "Somatization Disorder" -- which is Kaiser's current misdiagnosis of Morgellons and Chronic Lyme, a kinder and gentler "delusional parasitosis." Kaiser will want to continue this conclusion because properly treating and curing Lyme and Morgellons patients will take years of antibiotics and antiparasitics, and will be very expensive. It is financially expedient to let patients suffer with palliative treatment. This will be the conclusion the Kaiser study will reach, based on Kaiser's purposeful non-recognition of Morgellons/Lyme disease etiology, and Kaiser's refusal to run tests which might indicate a chronic infective condition.
In contrast, there are doctors treating Lyme/Morgellons who have published their findings to date. Why is the CDC and Kaiser ignoring this important information and pretending that this knowledge does not exist within the medical community?
Specifically, the CDC is ignoring the following important diagnostic information:
> • IgG subclasses (Often S-C 1 and 3 are low. Occasionally Total IgG is low) > > • EBV panel (IgGs always elevated) > ... > Testing for Borrelia-associated agents > > WHERE these tests are done is crucial. Borrelia and its associated agents can be difficult to find even with the most recent, carefully crafted tests. Rationale is brief here but stems from the initial test criteria being set 10 years ago, where inclusion criteria of specimens were for recently-infected individuals with high antibody levels, where test positivity depended strictly on antibodies (then state-of-the-art), and where two of five crucial Outer Surface proteins (P31, P34) were removed for vaccine research. Detection methods now available are for antigenic material, and are more sensitive and specific, such as PCR and DFA. > > The following specialized laboratories are recommended because they have given us the highest correlation with successful treatment, and greatly minimized the number of tests presently needed to find these agents at "standard" commercial clinical laboratories. See relevant attachments. > > • Igenex Laboratories
(2) According to Burrascano (http://www.ilads.org/files/burrascano_0905.pdf ), the CD57/NK1 test is often low in Lyme patients, and this is backed up by people on "lymebusters" Morgellons board posting their CD57 results. For more info, see Stricker RB and Winger EE Immunol Lett. Decreased CD57 Lymphocytes Subset in Patients With Chronic Lyme Disease 2001 feb1;76(1): 43-48.
Of these tests, it is particularly important to test Morgellons patients immune systems, as IMHO, Morgellons is an opportunistic infection brought on by Chronic Lyme's damage to the immune system (and also, possibly through chronic chalmydia pneumoniae infection).
In summary, the Kaiser Morgellons study completely "misses the boat" because the following tests will not be performed on patients: > - CD-57+ NK (natural killer cells) (Lymphocyte Subset Analysis)2 > - IgG (188) and IgM (189) from IgeneX (Western Blot Antibody Assays for B. Burdorferi)3 > - SPEP (Serum Protein Electrophoresis)4 > - IgG-A-M levels4 > - IgG subclasses4 > - Herpes Panel4 > - EBV panel > - Chlamydia pneumoniae IgG/IgM
(4) According to Dr. George Schwartz, author of "Lisa's Disease, Fiber Disease, Also known as Morgellon's disease: Origins, staging, clinical course, treatment, case histories, decontamination of house--much more" -- testing for microfiliaria should be done via microscopic examination of a peripheral blood smear.
My own research indicates that "ONCHOCERCA VOLVULUS" and it's Blackfly vector may be present in areas considered Morgellons endemic and may be a significant aspect of morgellons etiology. In Florida, this is backed up by Trish Springstead, RN, who appeared on a recent Florida News segment on "Body Bugs" ( http://www1.wsvn.com/features/articles/investigations/MI46364 ). In California, Morgellons endemic areas such as Los Angeles county have had longstanding problems with blackfly: http://www.lawestvector.org/black_flies.htm
Although it is repeatedly claimed that onchocerca volvulus is not found in the USA, there are scattered reports in the medical literature indicating otherwise. Furthermore, the presence of Morgellons in Blackfly endemic areas of the United States, indicates that these claims need to be updated for the 21st century.
Thus in addition to standard peripheral blood smears for microfiliaria, blood collection should occur through a "bloodless skin snip" as suggested by http://www.mssushi.com/stuff/medschool/notes/micro/other/GKHelminths.doc . That document also suggests "microfiliaria migrate through dermal lesions" therefore the skin snip and blood collection should probably occur from a morgellons lesion and not uninfected skin.
There is also a Lyme connection to Microfiliaria. After all Dr. Burgdorfer discovered borrelia by accident while investigating microfiliaria in ticks:
> A microfilaria of exceptional size from the ixodid tick, Ixodes dammini, from Shelter Island, New York Beaver, P. C.; Burgdorfer, W. 1984 > > Journal of Parasitology 70(6): 963-966 > > Thirty or more microfilariae 0.70-1.32 mm in length were recovered from the haemocoel of an unengorged adult tick, Ixodes dammini, that was collected from vegetation on Shelter Island, New York, USA. Among approximately 500 I. dammini collected from the same area only one other was similarly infected. Outstanding features, in addition to size, were absence of a cephalic space and the presence of nuclei in 2 or 3 irregular rows extending to the end of a bluntly rounded tail. The microfilariae apparently were ingested in a blood meal that was taken when the ticks were larvae or nymphs, and had persisted alive without development.
PS: Unfortunately, I cannot expect the CDC to be "reasonable" in its position on Lyme disease (and by extension, Morgellons), given the organization's complicity in a coverup of Lyme disease and it's ongoing conflicts of interest with Lyme vaccine manufacturers (see http://www.canlyme.com/Conflicts.doc and http://www.canlyme.com/cdc_implicated_2006.html ):
> For instance, the CDC and SmithKline Beecham worked together on the Lyme-disease vaccine. A 1992 CDC activity report, obtained by UPI, says the agency had an agreement "with SmithKline Beecham that currently funds three positions at (the CDC) for the purpose of providing information of use in developing advanced test methods and vaccine candidates." > > In June 2001, the General Accounting Office delivered a report on the issue to Senator Chris Dodd, (D-Conn), that noted that CDC employees "are listed on two Lyme-disease related patents" including "a 1993 joint patent between CDC and SmithKline Beecham Corporation." The report also said that six of 12 consultants working for the CDC on Lyme vaccines "reported at least one interest related to a vaccine firm." > > According to CDC meeting transcripts where the committee weighed its recommendation, 3 had conflicts of interest with SmithKlineBeecham. The LYMERIX lyme-disease vaccine was approved by the CDC on February 18, 1999, and by October of 2000, more than 1.4 million people had received the vaccine. > > But 18 months later, according to UPI, in February 2002, SmithKline Beecham pulled the vaccine off the market claiming that sales of LYMERIX were insufficient to justify the continued investment. However, according to UPI, the company also faced hundreds of lawsuits by people who said they suffered side effects from the vaccines. > > The government's database at the time, listed possible side effects from LYMERIX as 640 emergency room visits, 34 life-threatening reactions, 77 hospitalizations, 198 disabilities and six deaths after people took the shots since the CDC endorsed it, according to UPI.
Thus, I see the CDC's Morgellons study as further corruption and coverup of Lyme disease. I expect the study to be a complete waste of money, and another scientific fraud that the CDC will perpetuate.
This is why I'm requesting all Morgellons and Lyme patients to contact their senators and congressmen, especially the ones involved in budget and oversight of the CDC. The CDC is wasting our taxpayer dollars on this bogus study, and has been complicit in the suffering of millions of taxpayers who are supporting the organization financially. The selection of Kaiser for this study is pure corruption as they have a vested interest in perpetuating the status quo of ignoring Chronic Lyme and Morgellons sufferers symptoms as psychosomatic.
This is the most egregious case of "the fox guarding the henhouse" I've witnessed to date. The congressmen, senators and their constituents have all heard about or seen Michael Moore's "Sicko!" in which Kaiser figures prominently. We, the taxpayers funding this study are thus angry, and we're not to allow this medical fraud to continue unchallenged.
Re: NIELS LETTER TO THE CDC...A MUST READ « Reply #1 on Sept 1, 2007, 12:48pm »
Neil's letter is excellent and makes a strong case for all he states.
The point is the CDC does not wish to confirm what we are speaking of, the point is they do wish to waste time and money to further the plan along, IMO. I did the post on a company named Kaiser, sure there are a lot of companies with that name. Yet this board after digging has found a great deal in the area of genetic manipulation, so odds are there could very well be a connection. I can see it now, the folks go in and they have two charts one to let them know what is happening with their attempts to change all life and why our bodies are not playing along and another that has all the correct questions to prove we are all DOP, how delightful.
I believe the fibers are now everywhere, in everything, food, water and the air we breathe. We are looking at fibers that are conductors, they allow for information to be sent in and sent out, a two way street if you will. We have those wishing to distribute the fibers who wish control of the masses. We (the morgellons folks) are a pain in the butt to them, because our bodies shouted---hey this isn't right get this out of me. The people (and I use the term loosely) who distributed these fibers were most likely scientists who were brought over after World War 11, geneticists, who are in the process of altering the whole face of the planet, or haven't you noticed, not looking around much are you? You have to look more than skin deep, because on the outside much appears the same, it is the little things you need to notice. Like what your hair looks like say in the toilet bowl when the shadows hits it. Is your hair segmented, it shouldn't be, may even have things that move as you watch it, technically hair is dead, so what's up with that.
I propose that much of the government is hog tied in many ways, be it emotional, threat of life and limb, threats to family. I also propose that some may be true imposter's. We know the Manchurian candidate is a real deal. We have corporations that are destroying our planet running things, what's wrong with that picture? We have GM foods taking over everything and if you are at all aware you know these will cause disease and death to a great deal. If the animals and bugs won't touch it, you shouldn't either. If we attempt to tackle this issue in the so-called correct protocol, we're going to run out of time along with the world.
We can pray for G-d's intervention but at the same time we should be acting to expose the likes of Craig Venter, Kurzweill (not sorry if I spelled it wrong). These groups and their trans-humanist goals are so against G-d's plan. If we can't get the media to let folks know than it becomes our job to inform. Some won't listen and will look at you like you are crazy, but as time goes on and they see more and more that is incorrect in our environment, they will begin to consider what you were attempting to espouse to them.
Lastly, consider that morgellons will only go so far as far as affecting folks, yes, all will be fibered, but most will not know until it is to late. The morgellons ones are those in the know of the travesty that is occurring on our planet. Only 15% of us will have this heads up and so it becomes "Our Job" to inform.
It could be we are looking at some type of galactic event no matter what we do at this point. It could be that certain scientists are just going full board because "what the hey", all things are destined to change anyway due to this galactic event. We might as well learn everything possible, while we can, before we move underground.
We obviously haven't been told all that science has achieved or discovered. I suggest to you that the microbiologists that were killed, knew what is up, at least a good portion of it.
Our group has a definite DNA link, enough on science now what of biblical prophecy: What of the tribes of Israel, could it be that, that is how we are connected, looks like their is an RH negative factor in this grouping. 15% of the world is RH negative, ooh that puts the odds a bit closer doesn't it. I suggest to you that the King James version of the bible is a bit tainted, I suggest we need to look further back. I do not suggest that this group of folks is any more or any less than anyone else, what I do suggest is that G-d put us here as a thermometer, to gage if the fallen angels/watchers/et whatever you wish to call them are monkeying (had to) with us again. Keep in mind, once you have the knowledge of something that is immoral, non action is as evil as those that have committed the immoral action. It becomes all our jobs, time for "All of You to Stand Up and Speak Out", let your voices be heard! Now you will ask, who do we tell---Anyone that will listen! Once they have been told and they choose to ignore, it releases you from your obligation of WARNING FOLKS!
Re: NIELS LETTER TO THE CDC...A MUST READ « Reply #2 on Sept 1, 2007, 2:57pm »
Cliff, Neils and Whiterose,
Thank you for all your information. At this time and for the next several weeks, please try to keep your posts positive and provide helpful suggestions, not criticism. The CDC is aware of most of these criticisms and so we must all try to remain "positive and united" in front of the public and CDC. By holding judgment, we stand the best chance to having our concerns addressed. We must behave in a calm and intelligent manner to have the best opportunity to be heard.
We also need to gain back some credibility with them if we ever want them to listen to us about their concerns. Put yourself in their shoes. Would you listen to someone that spoke poorly about you all over the internet as we have about CDC (this applies to all the Morgellons factions. Think long and hard about it please.
I am optimistic that if we present ourselves properly, the time will come soon to sit down and talk with them. If for any reason, that doesn't work, after using all of our positive energy, we haven't lost anything and, in fact, may gain some credibility with the public. IE, if the opportunity doesn't arise with CDC soon, we have other options to consider.
PS: I know how all of you feel as I have felt the same way, but lets give CDC another chance. Both sides have participated in negativity, but every day is a new opportunity to be successful and shine in the face of God.
Re: NIELS LETTER TO THE CDC...A MUST READ « Reply #3 on Sept 1, 2007, 3:27pm »
All due respect gracebeours, but if they had any intention of doing the right thing, they would have chosen someone else to do the study. My credibility with them and with the public, which one of these entities has ever done anything but persecute where morgellons has been concerned. They should be considering their credibility with us. Better yet, lets all stand on the same ground and just speak the truth looking eye to eye. I know I and most folks with Morgellons would have no problem with this, the CDC might have some difficulty though.
I learned a long time ago, someone slaps, insults, hits (whatever) you once, you tell them to stop, they throw it at you again, you warn harshly, third time, it is on you to take action, being a doormat is not helpful to anyone.
I believe in being positive, kind and loving, but I also believe in standing up to adversity. I see truth, I will tell you, I see a lie, I will tell you. This thing that the CDC has going with Kaiser is a SCAM!
Re: NIELS LETTER TO THE CDC...A MUST READ « Reply #4 on Sept 1, 2007, 9:48pm »
I think if they are to do an adequate study they should bring the DOE into the picture, they have created many microbes, many fiber optics, many nanobots, that will show many of the very things we have.
If they do not bring in the latest nano studies, then they will be leaving a big part of this out of the study. First, worm checks, then protozoan vectors, then nano, if not then we know they will use everything in their power to make this a mental diseases.
DOE knows how to look for mutations in DNA, extremely well. THE DOE/NIH program as described in the Alta Summit on another post, shows this.
Re: NIELS LETTER TO THE CDC...A MUST READ « Reply #5 on Jun 9, 2008, 12:03pm »
AMEN whiterose.
I recently read a Rense page that simply stated that all the research that needs to be done has already been done by Dr. Hildy (Staninger) and two others. It also made the point that the scientific findings have been given to the CDC and others.
We are not meant to know the truth, and doctors are meant to treat us.
The entire earth has been poisened and we will all die if there isn't public awareness enough to bring about an uprising.
Re: NIELS LETTER TO THE CDC...A MUST READ « Reply #6 on Jun 9, 2008, 5:28pm »
When they discover how to detect the morgellons they will find out the reptoid parazite as well inside the body...They are co-programmed connected the Rep-Network all around the world,some say it is the matrix world but this kind of explaination just makes it more complicateed..
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